Jump to content

Preventative Mastectomy

  • Please log in to reply
6 replies to this topic

#1 Bendersmum

Posted 13 March 2019 - 05:44 PM

My mum has been having treatment for breast cancer for the last few months. She's doing really well but it's definitely knocked her around. Next up is radiation and then fingers crossed she's all done.

Last week my sister was diagnosed with breast cancer too. Hers seems to be more aggressive and they're talking about treatment to shrink it and then a double mastectomy.

Mum has has the genetic screening done. She doesn't have any of the known mutations. Our family history is horrible - aside from mum and my sister both grandmothers, one grandfather and aunts on both sides have all had breast cancer. Another aunt died from a different kind of cancer.

Between us my sister and I have three daughters. I'm a bit scared for them as well as me.

I've got an appointment to see a breast specialist. As I'm under 40 I can't access BreastScreen but apparently I qualify for free MRI screening until I'm 40 then it's mammograms or ultrasounds.

I'm seriously considering a preventative mastectomy. I figure while I've got the appointment I might as well canvass it with the breast guy. I don't want to end up like the rest of the family. Has anyone had one/know someone who's had one? Any thoughts?

#2 fluffybun

Posted 13 March 2019 - 06:00 PM

My cousin has a similar family tree with her sister and mother both having breast cancer and she had one. It was covered by medicare including a reconstruction as they have the BRAC gene. We had genetic counselling and it wasnt on our shared tree but it would have been something I would have done as well just for peace of mind.

I think a good chat to your GP or genetic counsellor is a great first step. I wish you and your family all the best im so sorry you are all in this situation, cancer sucks!!

#3 Ruf~Feral~es

Posted 13 March 2019 - 06:09 PM

Bendersmum - I am so sorry you and your family are going through this!  

I was diagnosed with breast cancer last year, and have had a lumpectomy.  I am now on Tamoxifen and surveilance.

If it reappears I will have have a total bilateral mastectomy - no questions asked!  

I can't offer any other advice, other than to have the BRCA testing  and gather all the information you can.  Speak to as many people as you can and make an informed choice - for you and the girls around you.

Wishing you all the very best - it's a scary journey, but catching it early is always best.  Head in the sand doesn't help anyone, so you are doing all the right things!

#4 Soontobegran

Posted 13 March 2019 - 06:11 PM

That is unusual but not impossible to have such a strong family history for BC without the genetics. I often wonder if there are genetic mutations which are not yet identified.
I have Lynch Syndrome, which is where there is genetic mutation that makes me very much increased chance of several cancers yet my father who has had bowel cancer along with 12 members of his family does not have the gene which means I got it from my mother who did not have nor did any of her family aside from one we know for sure have cancer.

If I was you I would be asking to be tested despite the negative from your mum although it would not change what I would do in your position and that is to have a prophylactic mastectomy.
It is handy to know your genetic status as your children may like this information as they get older.

It is a tough decision I know but to remove the possibility would be such a relief for you.

I am having surgery in 4 weeks that will ensure that my ditched organs will not kill me by becoming cancerous.

Good luck with your decision and I hope your mum continues to do well.

#5 Staying Strange

Posted 13 March 2019 - 06:13 PM

I'm happy to chat with you via PM

I carry the BRCA2 gene and have an appointment with a breast surgeon later this month to book in  a preventative double mastectomy.

I'm also having my ovaries and fallopian tubes removed... that specialist appointment is booked  for next month.

I've been having annual MRI, mammogram and ultrasoundsfor the last few years and last year decidedto proceed with surgery.

I have 3 girls too....

#6 JoanJett

Posted 13 March 2019 - 06:43 PM

You and your sister should also see the genetics service, if you/she haven't already.  Known mutations are a small group in familial breast cancer. The genetics service can discuss all the options for reducing risk, which includes medical therapy as well as surgical options.  With your family history, tissue/blood banking would also be of interest for most services, for continued tracking of undiscovered mutations.  

Good luck to you and all your family.

#7 xxyzed

Posted 13 March 2019 - 11:05 PM

Look up the organisation Pink Hope. The website has a lot of information around this topic.

0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users


'My parenting style is Survivalist'

A helicopter or tiger mum, I am not.

8 mums reveal their favourite nappy bags

We asked a bunch of mums which nappy bags they love the most.

Why you shouldn't bother throwing a big first birthday party

If you're feeling the pressure to host an all-out, over-the-top shindig for your baby's birthday, I hereby grant you permission to throw the rules out the window.

The 24 baby names on the verge of extinction this year

If you're on the hunt for the perfect baby name and don't want a chart-topper like Oliver or Olivia, then do we have the list for you.

'My mum doesn't seem that interested in my baby'

Q: My mother and I have always been close, but now that I have a baby, she has not helped out as much as I thought she would.

New guidelines: "Bottle-feeding mums need support too"

Breast is best, but mums who can't, or choose not to breastfeed need support too.

Dads also struggle to 'have it all', study finds

Men and women both experience work-family conflict.

Language development may start in the womb

Study found babies can recognise foreign languages before birth.

Meet the baby born from an embryo frozen for 24 years

Experts say little Emma is a record breaking baby.


Top 5 Articles


From our network

Five things you need to know about flu and pregnancy

As the 2017 flu season begins in earnest, here?s what you need to know to protect yourself and baby.

Mum tips to keep your pre-baby budget in check

Money might be funny in a rich man's world (or so ABBA told us), but for the rest of us it's a major consideration – particularly before having a baby.

5 easy ways to make your maternity leave last longer

Maternity leave is a special time for you, your partner and your new little bundle. The last thing you want is for financial worries to stand in the way of that joy.

10 ways to keep your 'buying for baby' costs down

Becoming a parent is full of surprises – not least of all finding out that, for such small beings, babies cause a lot of chaos and expense.

5 ways to prepare to go from two incomes to one

Here are some ideas for getting that budget in shape, ready for being a one income family.


Baby Names

Need some ideas?

See what names are trending this year.

Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.