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Type 1 diabetes - DD2 diagnosed today

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#1 zande

Posted 10 February 2019 - 11:32 PM

Never imagined I’d be here in hospital with DD2 newly diagnosed with diabetes. I’m scared, stunned, bummed, sad, can’t quite wrap my head around it. DD2 hardly even gets a cold. I know we’ll be bombarded this week with all the info but would love to hear from people with kiddos with this? Please reassure me that life will become normal again and that DD can still have a good life? She’s just completed her first week at a new high school (she’s 12) and had made a few little friends and now she’s going to have to miss this week, plus miss the swimming carnival, and go back to school with having to inject herself.

#2 BusbyWilkes

Posted 10 February 2019 - 11:42 PM

Big hugs. It is such a shock, to have healthy kids one minute and not the next. My child doesn't have diabetes, but has other autoimmune conditions, diagnosed at the start of high school, that have lifelong implications, so I understand a little of what you are going through.
We have several friends with teens recently diagnosed with diabetes. They are doing well. It is a big adjustment for all of you, and often takes a bit of juggling of meds to start with. Your DD may be back at school next week, or it may take a little longer to stabilise her bsl.
There are advances with this disease all the time, and with insulin pumps now used regularly, your daughter can still go on to have a great quality of life.
Be gentle with yourself over the next while, as you begin to come to terms how this impacts her, you and the rest of your family.

#3 steppy

Posted 10 February 2019 - 11:48 PM

Life will become normal again in most ways - it's mostly making sure her diet and insulin match each other, which you (and she) will get better at over time. It's never easy for the person who has diabetes - nothing really makes having to inject several times a day seem okay - and it means you have to be more organised with travel and things and make sure you have enough supplies all the time, as well as having emergency sugar on hand whenever you go out, especially for sports and such.

One thing I will say is that if over time, and especially as she gets older, you think she is not managing her injections well, get a pump for her before she turns 18 - it gets ridiculously expensive after that.

#4 steppy

Posted 11 February 2019 - 12:13 AM

Oh and yes, there are advances being made all the time. It's entirely possible that a cure could be discovered within her lifetime. People with diabetes can certainly live long and normal lives. It really depends on how much care they take of themselves. There are some big negatives - if she wants to join the defence forces or I think some emergency services that's not going to be possible. That happened to our child who had diabetes - it completely stopped that dream - but there are vastly more paths people can take in the world where managed diabetes will not be an issue.

#5 rowd

Posted 11 February 2019 - 04:55 AM

My best friend was diagnosed with diabetes in highschool. Yes there was an adjustment period, but she did everything we did, and now lives overseas and is very successful. She has an implant in her arm which she can scan to get her blood sugar readings and to track whether they are rising or falling. She is fit and healthy and takes great care of herself, which definitely helps her diabetes. My sister in law was diagnosed at age 12 and she has a pump, so never has to inject herself. She is also healthy and a mum of two primary school aged kids.

All the best to your family and the confusing days ahead. I know you will find a new normal, but you are allowed to feel overwhelmed and devastated right now.

#6 SplashingRainbows

Posted 11 February 2019 - 05:09 AM

I’m so sorry Zande. What a shock, but good on you for following up your concerns.

My dad was diagnosed at age 14, back when the support and knowledge was so much less. He is a healthy mid 60s retiree now.

I won’t lie. It was hard for him. However technology has come so far now your daughter will have many advantages he didn’t. Pumps are great - your endocrinologist will advise you on this and whether it’s appropriate. Dad has one now and likes it I think.

#7 Veritas Vinum Arte

Posted 11 February 2019 - 09:02 AM

Glad to hear that the EB brains trust worked well and you followed up concerns. Very sad to hear the diagnosis.

I had a friend diagnosed at the end of primary school. They managed to manage it well, apart from the later teens when she was drinking alcohol when she shouldn’t. She is now happily married late 30s, very into sports and a teacher.

#8 Engingirl

Posted 11 February 2019 - 09:34 AM

My daughter was diagnosed at 16 months old, and is 8 years old now. It's our new normal. There's nothing she can't do because of diabetes, it just takes some extra planning. She wears a pump and CGM. She was on the pump 2 months after diagnosis, and the pump is extremely liberating - she can eat what she wants when she wants to, and conversely doesn't have to eat if she's not hungry. I'm happy to talk more via PM if you'd like.

#9 The Little Engine

Posted 16 February 2019 - 03:52 PM

My 9yo daughter was diagnosed around 9 months ago. As a single mum it has been a very difficult adjustment period and DD has had lots of issues with insulin sensitivity so big variances in glucose levels. Shr has mostly been a trooper though everything!

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