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Worried about my 19 month old

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#26 reesan

Posted 13 June 2017 - 02:58 PM

You can ask for a chronic disease management plan now for subsidised speech and a mental health care plan for subsidised OT - both will still be a fair bit out of pocket though. If you can get referred to the community mental health their services are likely to be free (though perhaps less choice and less availability). You can also ask for a referral to an ECIS provider I think (unless this is different in WA)

Our Dev paed was about $100 out of pocket after the Medicare rebate, so it can be quite variable. You'll need a specific Dev paed to get the referral, but f you ring around and find someone can see you sooner, cheaper, or is more open to diagnosing young kids etc you can pop back to gp to change the referral.

Public system for diagnosis will be a long long wait. They often aren't keen to diagnose before 3.

Once you have the diagnosis you can get carer's allowance and helping children with autism / facsia (if not in an NDIS area) but you won't get these before hand. You'll probably be eligible for carer's payment too but someone else will be better placed to advise how this works with DSP.

#27 mayahlb

Posted 13 June 2017 - 03:02 PM

BluJay - ASD is an automatic qualifier for carer's allowance but while your GP can fill out the paperwork it might be hard to qualify for it before an official diagnosis as you have to provide proof that your child requires more care then a child his age... which is hard when they are younger.

The autism package can only be access after a diagnosis. however it is being phased out depending on where you live if NDIS is rolling out. i.e. NDIS is rolling out as of July in my area (not that I can access it until Feb when our "plan" come due) so any new diagnosis are put forward as NDIS not the $12000 of the previous package.

The medicare thing, I am unsure what it is, it might be under either of those name but it allows 5 sessions annually (if you are looking for psych appointments there is also the mental health care plan which is for 10 appointments a year). If you manage to see a pead they can also sign off on a medicare package that is specific to autism and related to the diagnosis process. It is for 20 session/lifetime. So once those 20 sessions are used you can't access it again.

Can I recommend you try your local Allied Health or Population Health Centre? These are the people who run the public Speech/OT/physio in WA. If you can't find them, ring your child health nurse or local hospital, they will have the details. Do you have a good relationship with your local child health nurse? They can do referrals to allied health, and it is possible they might have allied health staff participate in their clinic. I know our child health clinic has an OT for 4 hours once a week and 1 day a week has a speechie there, so concerns can be brought up and then they can organise for you to be seen via the public system. They can also do some prelim assessments and give you advice on how to work on the issues at home.

#28 reesan

Posted 15 June 2017 - 02:31 PM

How did it go with your GP BluJay? Do you feel like you got the referrals and support you need?

#29 Chaotic Pogo

Posted 15 June 2017 - 04:51 PM

BlueJay I kept my claim for carers allowance 'live' for more than 6 months until I got diagnosed for my youngest. Technically it was in the final 13 week appeal period after just telling them waiting for an appointment etc.  They give you back pay starting from  3 months before you lodge so ours was about 10 months worth when we finally got signed off by the dev paed. It more than paid for faster private diagnosis even if longer term you use public services.
I think you are a great mum for seeing this to this now. If anyone is brushing you off, download the Latrobe ASDetect app. What you have written will put you in the highest category and gives you 'independent ' reason to push the system if anyone wants to 'wait and see'

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