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SCC skin cancer stage IV experiences - updated it is back


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#1 Veritas Vinum Arte

Posted 02 July 2015 - 07:15 PM

Dad has had a melanoma removed. Test results show SCC, that has invaded Parotid salivary glad and is in the neurons.

Dad avoiding seeing the next specialist until he has spoken to his Heamatologist (he has CLL leukaemia) and Cardiologist (recent heart problems).

Grrr

So theory is next specialist will remove cancerous cells and radiation therapy.

Just trying to work out what potential future is.

Edited by Veritas Vinum Arte, 17 May 2018 - 03:40 PM.


#2 Soontobegran

Posted 02 July 2015 - 07:33 PM

So it is a Squamous Cell cancer and not a Melanoma?
My dad had one on his face and has had it removed and radiation therapy 15 years ago..he did have parotid involvement and had some problems with saliva production for awhile but aside from that he has no problems.
Fingers crossed it will be the same for your dad.

#3 Veritas Vinum Arte

Posted 02 July 2015 - 07:39 PM

It is the nerve stuff that has us more worried, that plus the fact that his CLL may not be helpful.


Glad to hear that your dad is doing well STBG :)

DH isn't worried as dad has played the odds well so far..... His CLL is now going on 17 years without treatment.



#4 Soontobegran

Posted 02 July 2015 - 07:47 PM

Dad has a CT scan every 3 or 4 years to check the area..there is some scar tissue that is pretty closely situated to the facial nerve but at his check up just a couple of months ago they do not want to do anything about it.
He has had bowel cancer and a bowel resection since which he has also received the all clear from too so he is a bit of a legend in my eyes :)

#5 purplekitty

Posted 02 July 2015 - 07:54 PM

It may be melanoma and SCC at the same site.

It is more complicated because of the CLL and your Dad is probably right to want to see his haematologist to talk about it but definitely not to delay treatment.
He should try to get an earlier appointment.

#6 Soontobegran

Posted 02 July 2015 - 08:08 PM

Results she cited only mentioned SCC not Melanoma though PK.

Many people hear skin cancer and presume it is Melanoma.

#7 purplekitty

Posted 02 July 2015 - 08:14 PM

View PostSoontobegran, on 02 July 2015 - 08:08 PM, said:

Results she cited only mentioned SCC not Melanoma though PK.

Many people hear skin cancer and presume it is Melanoma.
Oh OK.
I was thinking the melanoma might have been completely excised but the SCC remained but you are probably right with your interpretation.
They can be coexisting because of skin damage.

My reply still stands though.
Bring on the haematology appt. if that is a sticking point.

#8 Veritas Vinum Arte

Posted 10 July 2015 - 09:51 AM

We haematologist told dad he needed to see the other specialist quick smart and do radiation if recommended.

He told dad it is not his area of speciality so to do what next specialist says.

He pointed out (as we knew) that his CLL makes things more dangerous and getting it treated is of utmost importance.

He also confirmed that dad was Ok for surgery from platelet levels etc.

So hopefully dad will follow the advice now.



#9 Therese

Posted 10 July 2015 - 10:07 AM

Fingers crossed your dad does listen to the haematologist.

I hope it all goes well for him.

#10 purplekitty

Posted 11 July 2015 - 09:52 AM

I hope he listens now he has seen his haemotologist.
Good Luck for his treatment.

#11 *name changed

Posted 11 July 2015 - 05:03 PM

My dad also has stage IV squamous cell carcinoma. Diagnosed late last year. He had radiation and it went away, then some months later it was back and had spread to his lungs. He's 78.

He's now on i/v chemotherapy fortnightly (not sure of the drugs), and getting a good response with the spots on his lungs shrinking.

He claims he feels perfectly fine, no side effects from the chemo. He spent five hours doing my lawns and garden last week. And no I didn't ask him, I came home and it was done and I felt terribly guilty! :( He lost quite a bit of weight at first, but has put it back on.

After his current protocol, his oncologist has suggested he may go on an experimental drug treatment. Again, I can't tell you the one, he never knows and gets annoyed if you ask him too many questions. :rolleyes:

We are resigned to him being on constant treatment until it impacts his quality of life, and then he decides what he does. There are counsellors and staff equipped to advise in most oncology units.

Obviously your dad's existing conditions will complicate matters, but mine is feeling pretty good at the moment, about eight months since diagnosis.

#12 Veritas Vinum Arte

Posted 13 July 2015 - 10:40 PM

Fingers crossed for your dad els.

Specialist appt today says pending results of MRI and PET scan they may not do surgery but do 7 wks of daily radiotherapy.

That will be hard on dad.... He loves to escape mum once a month and visit me ;)



#13 Veritas Vinum Arte

Posted 17 May 2018 - 03:40 PM

Just thought I would update....

For that one he had surgery and radiation therapy.

One on the top of his scalp came back too and had radiation therapy at the end of last year (2017 4th quarter).

At the follow up appt this year he mentioned how his face (one operated here and radiation therapy in 2015) felt funny. Further investigation showed it was back. Ended up being back in a big way.... 13.5hrs operation removing cancer from whole left side of face and neck. huge skin grafts and even nerve grafts. His face looks partially paralysed now.

They said instead of a lump of cancer to remove it was splattered all over (think shot with paint gun multiple times) and they don't know if they have got it all.

He starts Chemotherapy on Friday. 2wks on, 1wk recovery for 6 cycles. Fingers crossed it does the job this time and that my dad doesn't get too sick.



#14 Fossy

Posted 17 May 2018 - 04:37 PM

I am sorry your dad’s cancer is back OP. Thinking of you and your family and hoping the operation was successful and he responds well to the chemo.  Cancer sucks x

#15 eponee

Posted 17 May 2018 - 06:57 PM

Best of luck to your darling dad xxx

#16 Little boys rock

Posted 17 May 2018 - 09:42 PM

Sending all the positive vibes your way. Wishing your dad a speedy recovery xx

#17 Veritas Vinum Arte

Posted 03 June 2018 - 12:06 PM

Well good news so far. Dad has completed his first cycle and generally did not suffer side effects.

So fingers crossed for easygoing cycles in the future.

#18 Soontobegran

Posted 03 June 2018 - 12:47 PM

Sorry about this news but I am very glad he is okay with the treatment.
Sending my best wishes.

#19 Veritas Vinum Arte

Posted 08 June 2018 - 07:54 PM

Bugger, platelets dropped to 45 so no chemo infusion today. Deferred for a week and retest blood again next week.

#20 mumto4boys

Posted 25 October 2018 - 06:47 PM

I hope your dad is doing as well as possible.

#21 Veritas Vinum Arte

Posted 25 October 2018 - 07:23 PM

Thanks. He had his final Chemo tablet last week. Except for being a bit tired (and paper hin skin and excessively low platelet so any slight graze spurts blood), he has been fine on chemo. His hair has even continued to grow back after losing most of it to radiotherapy last year.

So awaiting a PET scan in Dec, but not 100%on effectiveness of that as his one earlier this year did not pick up even half the problem and the Drs had said it was going down to jaw and throat whereas it was really goind up to cheek, eye, forehead.

But fingers crossed.

Funnily enough dad is booking himself all sorts of trips next year where as mum is saying she cannot book anything as does not know what 2019 will bring. My parents are glass half full and glass half empty.

#22 Veritas Vinum Arte

Posted 20 February 2019 - 08:30 AM

PET scan inconclusive, then MRI, CT and biopsies and they are saying it is back with a vengeance. Proposed surgery will make the 15hrs one look like a walk in the park. There are also queries about quality of life afterwards.

**** cancer!


#23 Little boys rock

Posted 20 February 2019 - 08:31 AM

I’m so sorry xx

#24 TrixieBelden

Posted 20 February 2019 - 08:36 AM

So sorry to see this update.

I hope you have someone around you for support.

#25 Lucrezia Borgia

Posted 20 February 2019 - 08:37 AM

i’m so sorry. **** cancer.



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