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Ready Set Go: Graduates! Chat Thread #1


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#1 Shaynavyre

Posted 17 April 2015 - 03:35 PM

Welcome!

This group is an extension of the Assisted Conception "Ready Set Go Girls" buddy group http://www.essential...on-buddy-groups - a place where the successful graduates can meet and mingle, and openly discuss pregnancy without fear of causing upset or distress to those still cycling.

Those who are still cycling are also welcome to participate, or stalk, their friends who have their little miracle on the way!

Because RSG has been going for a while (up to 250 now!), and the nature of the group is transient, it might be a good idea to briefly introduce yourself and your journey in the first post so that people you may not have crossed paths with in RSG can get to know you!

I don't belong here yet, so I will post this introduction and move back in to lurkerdom for a while :)

Commence!

Edited by Shaynavyre, 17 April 2015 - 03:37 PM.


#2 Jo.F

Posted 17 April 2015 - 05:42 PM

woo hoo! Glad to see this up and running.

I'll sit patiently and wait for others to join me :whistle:

#3 EmbryoAgogo

Posted 17 April 2015 - 10:54 PM

I so hope to be joining you in here either soon or eventually!!!

#4 ~Mintie~

Posted 19 April 2015 - 09:01 AM

Nice work Shaynavyre :D . If you ladies need anything feel free to PM me. Don't forget this area relies on you posting to survive, so keep chatting!

#5 Jo.F

Posted 19 April 2015 - 11:55 PM

One more sleep Embie and hopefully you'll be in here for good :D

We need to get OnlyOneMore in here too and spread the word to try and track down some of the others.

#6 Jo.F

Posted 20 April 2015 - 12:40 AM

Oh and just to introduce myself to those who don't know me:

I'm 39 and have had adenomyosis (endometriosis in the uterus) forever, since I was about 20. Combine that with MFI and we were always going to struggle to conceive. After a year of trying we went to an IVF clinic. The first appt was meant to be just to find out our options but the FS very nicely pointed out that we were unlikely to have any success without intervention and that IVF with ICSI were the way to go. He didn't want to waste our time or money with IUI or straight IVF without ICSI.

1st Cycle
IVF/ICSI long down reg (6 weeks on Synarel) on Puregon 350mg. Severe OHSS, 72 follicles in total. A week in hospital with internal bleeding, couldn't breathe, incredible pain etc. 3 weeks off work. Out of that we got 8 eggs, 3 fertilised and were frozen for a future cycle.

2nd Cycle
Medicated FET with 2 of the above embryos implanted. Got a positive BT with great HCG but low progesterone. MC at 8½ weeks. I thought I'd never get over it and I still think about that first one a lot.

3rd Cycle
IVF/ICSI another long down reg (8 weeks this time with Lucrin instead of synarel) for PGD testing with Puregon and Orgalutran. Reduced puregon dose to avoid OHSS meant even less follicles and eggs. Got 2 embryo's suitable for testing and ended up with one great quality embryo.

4th Cycle
Medicated FET to implant the above "perfect embryo". BFN and total devastation that even when putting in a perfect, tested embryo it still failed. The problem is obviously me :(

5th Cycle
FET without any drugs this time, using the 1 left over frostie from the very first cycle. BFN. Not a total surprise but still devastating.

6th Cycle
IVF/ICSI yep, long down reg again (6 weeks on Lucrin) with a new drug, menopur. Very low follicle count, only 6 mature and 2 small ones at EPU and I was devastated, totally expecting the worst. Woke up to find I got 5 eggs which was more than the 1 or 2 that I was expecting. I burst into tears when they told me in recovery. Out of that 5, 4 were suitable for ICSI and all 4 fertilised. Never before had I had 100% fert rate.
This was my first ever fresh cycle where I had a transfer at the end and didn't freeze any. We had 2 4 day embryo's implanted. One absolutely perfect one and one almost as good but they were hoping it would keep developing. One was frozen and the 4th one stopped developing.

Fast forward one week and I knew this one had worked. I was feeling queasy and off my food a bit. My BT was scheduled for a Monday (day after my birthday) but on Friday I did a FRER - positive. For some reason though I wasn't excited yet. I did one on Saturday and Sunday. They were all positive but the line was getting lighter.
Get the phone call Monday afternoon to say the test was positive

BUT

my HCG was only 54 which is too low as usually it's at least 100 and they told me to expect the cycle to fail. I went in for another BT on the wednesday and HCG was 172. Not quite high enough. On the following Monday (so a week after the 1st BT) it was 598 and they were "cautiously optimistic" and booked an early scan at 6½ weeks.

To our absolute surprise there was a little heart beat thumping away on the screen

They booked in another scan at 8 weeks with our FS as he couldn't make the early one.

Once again, little heart beating away.

BUT

Then they told me that the amniotic fluid sac was too small which wasn't good and that my chances of a miscarriage had just jumped from 5% to about 60%. There was nothing they could do to fix it and we had to just wait and see what happened. Awesome.

They shook our hands, said congratulations and we went home to see if this little one would make it or not.

Our first appt with the OB was at 9½ weeks. He does another scan and there is is again, still kicking along. He tells us everything looks perfect and that he can't see any issue with the sac, it's all good.

Phew!

We have since had the 12 NT scan which came back low risk and 20 week scan which was also fine.

The only problem I have now is the Adenomyosis which is causing quite a lot of pain as all the scarring is in my uterus so as that stretches it really hurts. There's nothing we can do about it other than keep an eye on it and try to manage the pain.

So, finally after all this we can relax now but I still have trouble getting super excited about it. I guess after the way this cycle has gone with good news which is then followed by bad news etc I don't think I'll be able to relax until it's actually here.

Also, just for people's info as I know it's a hotly debated topic, our FS suggested implanting 2 embryos due to my age and the fact that the Adenomyosis was most likely causing implantation problems so putting in 2 gave us twice the chance of getting one (his words).

Oh and in between cycles 3 and 4 I had an operation on my knee and then between cycles 5 and 6 I had a knee replacement so it's been a big 12 months for me!

#7 EmbryoAgogo

Posted 20 April 2015 - 11:48 AM

I'm here!!!! I'm here!!!!!!! :BFP: :clap: :omg2: :omg2: :excite: :dance: etc!!

Beta of 284, next step is a scan in three weeks. I'm too hysterical to do a full intro but I will be back when I've accepted that this is real life and not a lovely dream xxxx

#8 Shaynavyre

Posted 20 April 2015 - 12:32 PM

Thanks for outlining your story here Jo - the "perfect" embryo failing resonates strongly with me - my last FET everyone in the room was so excited and made me take a photo, and a transfer ultrasound print out home with me - the excitement was contagious, and to fail after that was pretty devastating.

Can't wait for more of the RSG girls to join you in here!

Agh. Emby!!!!!!!! I was writing at the same time as you posted! oMg OMg OMG!!!!!!!!!


Squealing with excitement for you babe!!!!! So happy right now!

#9 Jo.F

Posted 20 April 2015 - 01:07 PM

View PostEmbryoAgogo, on 20 April 2015 - 11:48 AM, said:

I'm here!!!! I'm here!!!!!!! :BFP: :clap: :omg2: :omg2: :excite: :dance: etc!!

Beta of 284, next step is a scan in three weeks. I'm too hysterical to do a full intro but I will be back when I've accepted that this is real life and not a lovely dream xxxx

Such great news! The next 3 weeks between knowing and having that first scan will take f-o-r-e-v-e-r but I can't wait to hear how that goes :D :excite:

#10 EmbryoAgogo

Posted 20 April 2015 - 06:12 PM

Thank you so much ladies, you've been such great cheerleaders!! Shay I am going to keep stalking you until you get that result, you deserve it so much.

I spoke to my FS later this morning, he's such a debbie downer haha. He signed the call off with 'it's no guarantee!' which I think is just his catch phrase, he said that after the first transfer too!! I asked about the scan/no more BTs after my ectopic, and I think they'd all forgotten about it, so he brought my scan forward a bit and I'll be there on the 6th of May. So a little bit less torturous waiting ;) My uterus is tilted towards the right so all of my sensations are on one side, but I'm 95% sure it's not where my ovaries/tubes are, but it'll be the biggest relief to actually see it.

Tomorrow morning I'm going to book into my local birth centre because it books up so quickly - and you know me, I want the full hippy experience - a water birth, if I can ;) Feels waaaaaay too early but they recommend it, all part of making this feel real I guess!!

But I'm sorry to hear how up and down this has been for you Jo after that BFP, what a roller coaster xxx That pain sounds like no fun at all. Is pregnancy going to help it long term? Or does it just stop it growing during, but then continues after breast feeding? When are you due?

#11 Hope28

Posted 20 April 2015 - 07:10 PM

I hope it's ok for me to join in here - I was only briefly in the RSG threads but really appreciated the support I found there, and would love to share stories with other graduates.

Congratulations EmbryoAgogo - wonderful news!

Jo.F - thank you for sharing your story. Wishing you all the best for a smooth pregnancy from here on!

Our story is below. It could be summarised as: 'relax' is the single most annoying word in the English language.

After about 1 year of TTC, blood tests and scans for me, DH had a checkup too. Results came back, everything looked good. "Relax, keep trying."

12 months later, more blood tests, more scans, a Hycosy procedure for me, another test for DH. Results came back, everything looked good. "Relax, keep trying".

Late 2014, referral to our FS. More tests! (I should put a tap in my arm.) Everything looks perfect, there is no reason according to medical science that we cannot conceive. We just can't.

First ICF cycle March 2015. 3 eggs collected, all fertilised. One embryo transferred, one frostie, one didn't make it.

Unbelievably, first cycle brought us our BFP! We cannot wait to meet our bub in December.

We feel so very fortunate, I know that many people do not have our good fortune (BFP on round 1!).

#12 EmbryoAgogo

Posted 21 April 2015 - 09:17 AM

Of course Hope, welcome!

OK, now I have got back to normal ;) this is my story:

Started trying, was confident we'd get PG quickly as I had clockwork cycles, tonnes of EWCM  :omg: always starting day 15, surely I'd be UTD in no time.

And I was kind of right, I got an ectopic in the 2nd cycle, although it wasn't diagnosed until 3 months later, ending in a removed tube and an eventual diagnosis of endometriosis. We were told to keep trying as normal, my fertility should've been 10% affected not 50%. I'd never noticed any issues or particular pain with my periods so the endo was quite a shock.

So we try.. nothing.. after 6 months we go back to the GP and as soon as she hears 'endometriosis' we get referred to a specialist at Genea.

It takes around 8 months to have the fertility tests (All fine other than my tube, still trying throughout) and get a laparoscopy to look at and remove my endo. After this, I'm told that my endo has now been removed and won't grow back, they were able to get it at the root. So hurray, we're fertile, off we go to BD.

6 months later.. nothing. We go to the Genea GP to get another, non endo focussed opinion, and she is wonderful. It was 2.5 years of trying at this point, and whilst there's no one thing wrong she says my hormones are a bit off and coupled with the missing tube and how long its taking us, she recommends IVF. As I know my cycles well, she didn't see IUI helping and there was no reason to think I wasn't ovulating, so clomid wasn't particularly useful either.

So a couple of months later we start our first IVF cycle, gonal f, non ICSI. I get 13 eggs in a very painful EPU (left ovary is stuck down), with 4 becoming good 5 day embies. 1 is transferred fresh, three are frozen. The fresh is a low beta CP and I am beyond devastated - full hysterical crying in the office. I'm terrified it'll be another EP, thankfully it wasn't. The two frozen cycles also total BFNs.

At this point, I've been in a job I've gradually grown to hate for years and my stress levels are at an all time high. Before my last frozen transfer I was crying almost daily, I felt completely trapped and overwhelmed. It was nervous breakdown territory. So, my superhero DH agreed for us to use our savings to allow me to quit my job, take time to get my sanity back, and to take a few months off from IVF, so I can work out what job I do want to do and also get me in the best physical/mental shape possible for the next IVF.

So I start on a cocktail of supplements - royal jelly, coq10, magnesium, liquid iron, evening primrose oil, pre natals (my naturopath is passionate about folate not folic acid as part of those too, so I get special ones from the US). I start doing creative endeavours (a part of me that's been pretty much shut in a box after 10+ years in finance), meditating, throwing out to do lists and electronic diaries that stress me out. The aim was as much to work out the life I wanted to lead as it was to get pregnant, we had no reason to think children were in our future really.

And that leads us to this cycle, the FS recommends PGD and iCSI to give us our best chances, and we have enough embies to put in an untested fresh as well as get four tested. I get a life changing Reiki session two days before my transfer :D , I get acupuncture three days before and on the day itself. I go to a silent meditation retreat during my 2ww, and bombard the poor little blastocyst with an endless amount of 'vibes'. I start to get strong symptoms on 12dpo (8dp5dt) - very strong and ongoing tugging feeling in my uterus/near my belly button, so I POAS on 13dpo, and have a faint positive. I keep testing each day, it gets stronger, and I get a beta of 284 on the Monday. My progesterone is strong enough to come off the crinone gel, and I get a scan in 2 weeks to double check it's in the right place and doing its thing :D It still doesn't feel real, it's still so very early, but I'm so pleased to have made some progress after 3.5 years of nothing and I have a good feeling about this one (I'm usually a worry wart).

Of course I have been ridiculously lucky being able to take the time away from work and to completely focus on my mental health as part of this cycle, not many women could. If I was in my 'normal' life of work, the main thing I would do is the meditation, the liquid iron (makes me feel brilliant) and the reiki (and the ICSI :D) - the impact it's had on my stress and resilience levels has been life changing even without the BFP. I would've also left my job as soon as I started to dislike it, like I would've done if I wasn't trying to get pregnant, as I got myself in a really sh*t situation where getting pregnant was my only way out.

I send every lurker and trier all the baby dust in the world, there are so many deserving mamas and papas that have to go through an endless labyrinth of crap to get their LO, and it comes so easily to others. There are a lot of success stories out there, they're just not often put on the internet :)

#13 Jo.F

Posted 21 April 2015 - 03:48 PM

Hi Hope :) I remember seeing you when I was stalking the 2ww thread. There's been a couple of ladies lately who've had success on the first cycle which is so awesome!

Don't you hate being told to relax? My personal favourite was the old "If you just relax and stop thinking about it, it'll happen!".. lol

Can't wait to see how the next 7-8 months go for you :)

Embie - I've been told by a few people that pregnancy can sometimes get rid of endometriosis because it "cleans everything out" and usually the pain would stop when you're og because there's no monthly bleeding to cause the pain. My luck being what it is, I have a different form of it which apparently doesn't go away. My OB said that it will probably settle down towards the end when my uterus stops growing but he said it will get worse before it gets better. Some days I can barely walk...uggh.

I remember when you quit your job. I was so jealous lol and it looks like it did the trick!  I was actually thinking of stopping if this cycle hadn't worked. Emotionally and physically I was over it, and then we finally had success! Maybe it was the fact that this was the first cycle where I hadn't really invested too much hope that made it work. I dunno, but here we all are :)

I can't wait for other people to come in here. There are so many happy outcomes to this god-awful process but as you said, we just don't often hear them.

There was a lady in RSG last year who had a disaster first cycle with 6 eggs but none fertilised and then the next cycle she only got one embryo and that little champ is due in May.

#14 rosie28

Posted 21 April 2015 - 04:16 PM

Hi All!

Hope it's ok for me to join, I graduated from RSG almost 2 years ago, my DS is almost 14 months old. I feel like I've forgotten a lot of what it was like, but I'm just starting the process for baby #2 (is there a BG for that!?) Anyway, here goes on my story:

I went of the pill in April 2012, and my period never returned. By August 2012 I was in a FS office being diagnosed with PCOS (my AMH is 157 and I have the most polycystic ovaries my FS has ever seen apparently), then I had a hysteroscopy, and started Clomid in October 2012. So no trying for 12 months for us, thank goodness!

Clomid was a disaster, I did three cycles and only ovulated once, which was a BFN. I don't respond at all well to it. It made me into an insane person, and it was during this time that I basically read the internet re fertility treatment.

I did one round of OI using gonal. It took 50, yes 50, days of injections (I should mention, I'm petrified of needles) for me to ovulate. 3 eggs, they cancelled me because I was considered to be a triplet risk. This was the low point.

We moved onto IVF with ICSI at this point. Did a totally normal amount of stims (having the experience of the previous cycle, my FS knew to start me on 125mg of gonal, instead of the 12.5 it should take someone with my AHM to get moving), had 16 eggs picked up, 12 fertilise, and 11 make it to the freezer. I was at huge risk for OHSS, so we froze them all at 2 days, and did a FET a month later. They took 4 embryos out of the freezer, grew them all to day 5, put one back in and refroze the other three (so now there are 7 day-2 and 3 day-5s in the freezer). The one they put in was a gorgeous blast, and is now my gorgeous DS. One shot wonder. I couldn't believe my luck. I still can't when I think about it.

Horrible pregnancy, extreme morning sickness, horrible labour, horrible birth, and I can't wait to do it all again!

I was told I'd probably never have a natural period, never ovulate on my own, and that I definitely wouldn't be that person who has number #2 naturally. In November my period returned though, and it has varied between 28 and 33 days since, with one 41 day cycle. I have an appointment with my FS on 18 May, and I'm almost more scared to try naturally, but I don't want to wean my DS, he still has 3 breastfeeds a day and we both love it. For another FET I'd be told to wean, although my own research indicates I might not need to.

So, that's me!

#15 Jo.F

Posted 21 April 2015 - 05:24 PM

Hi Rosie

Definitely welcome in here :) i don't know if there is an official BG for your 2nd ivf baby but there are ladies in the RSG thread who are trying for number 2 so you should hop in there

I'm so jealous you got so many frosties! Although not jealous of the 50 days of injections. I did 3 ultra long down reg cycles and the 2nd and 3rd ones were with Lucrin injections. It's amazing how quickly you get used to injecting yourself huh!

If you do non medicated FET's would you need to stop breastfeeding? You've got enough frosties left to do the first couple drug free maybe and then after that if you've not had success you can ween DS off and go for a frozen one? I guess the FS will give you all the info.

Good luck with #2 :)

#16 OnlyOneMore

Posted 26 April 2015 - 10:51 AM

Hi everyone,

I don't really feel like I belong here until I have the results of my viability scan in just over a week, so I will hold off on giving you my fertility story until then (if I'm lucky).

I only started reading this thread last night and already am a huge fan. Shay - this was such a great idea! Thanks so much for facilitating it's creation.

Jo F - what a nerve-wrecking start to your pregnancy! I really can relate to your experience. It is reassuring to be reminded that statistics can be wrong & that fertility isn't an exact science. I hate being given false hope but your experience certainly demonstrates that hope is not always false. Not everyone falls within the bell curve. There has to be someone in the margins - sometimes this works against us, sometimes for us. When are you due?

Hope - I can certainly relate to the "relax" advice, in fact because my ectopics occurred during a period of extreme stress for me at work, it has been suggested to me by some people that this may have been the cause. I have been unable to find any medical evidence that substantiates that idea. I hate the "relax" advice because it implies that the person is responsible for their infertility. It also places them in an impossible position because anyone who experiences difficulties conceiving knows that the process is incongruous with relaxation.

Embryo - i'm so glad everything is going well. Do you know the results of your PGD testing yet?

Rosie - my goodness your experience is so similar to one of my friend's! Her DS was born in March 2014. Also had a crazy AMH of 172 at 29yrs old & took ages to stim. Had a few unsuccessful cycles until she stumbled onto the idea of freezing on day 2. Thawed a batch of embryos & transferred the strongest one & got pregnant!
With respect to the breastfeeding, I understand the desire to continue but I have seen some evidence suggesting that breastfeeding may have a negative effect on implantation rates. It might be something to discuss with your FS.

#17 Jo.F

Posted 26 April 2015 - 11:05 PM

Only - I've been reading your updates in the RSG thread and i can't believe how this cycle is going for you. I was so excited to read your first update, then I went back to see the next one and just couldn't believe it. So many ups and downs for you!   I totally get the false hope thing. It was easier to expect the worse really, then you don't get so disappointed. It's sad to have that attitude but it just makes things easier.

But then like you said, someone has to be the exception to the norm and hopefully that's you this time :)

I'm due on 5th September - I'm 21 weeks and 1 day along and it still doesn't seem real!

I have everything crossed for you and I can't wait to hear how your scan goes xx

#18 Wolf87

Posted 26 April 2015 - 11:38 PM

Hello!
I recognise a few names in here, one being Jo! How are you???
On phone so can't put 'my story' up but currently 36+3, not long to go now!
Going to sub to this thread and I'll check in soon it's late and I'm tired xxx

#19 Jo.F

Posted 27 April 2015 - 12:04 AM

ahh Wolf! I've been meaning to pm you to join this thread. So glad you've found it :D

I'm good thanks. How are you feeling? I knew you were due soon-ish - how exciting for you :)

chat soon xx

#20 soul11

Posted 09 May 2015 - 08:53 AM

Hi ladies I've been browsing around to see if there was a group like this.. Deep down inside me I know I can be here but I'm still struggling on the outside to come to terms with the fact I'm actually here! I actually googled to topic accepting pregnancy after ivf. I guess I've been down for so long and struggling that I'm waiting for the emotion to hit me again.. All through my body I feel an overwhelming sense of calm yet I can't seem to let my head believe it. I know it's a coping mechanism but still.. I'll pop back with my story hopefully tonight but basically at the moment I am 4wks5days pregnant from cycle two of IVF with egg quality issues.. Xx

#21 Jo.F

Posted 09 May 2015 - 11:14 PM

Hi Soul :) I have been stalking the RSG thread and was so happy to see your BFP!

It is hard to accept when it finally happens. You get so used to failure that when it finally works it's like "Holy Crap! We're really going to be parents?" it's taken me a long time to be excited about it and I still don't really talk about it a lot (much to the dismay of my mother lol), I don't know why, I just don't like to make a big deal about it.

When is your first scan?

#22 soul11

Posted 10 May 2015 - 05:46 PM

it is so like that isnt it Jo.F i really just cant get my head around it - im not really excited to tell anyone, mainly for the reason cause i havnt really registered myself yet but also cause i just want to keep it all for myself and not talk about it if that makes sense. lol.. what a weird thing to experience definatly not how i thought i would be once getting pregnant.

i have bloods again on tuesday to see if i can finish progesterone and then first scan in 2nd june which will be 8 weeks.

how far along are you and how are you travelling?

#23 Jo.F

Posted 11 May 2015 - 08:06 PM

t's a long wait between the blood test and the first scan. It's great that being an ivf pregnancy you get one so early. I had 3 scans by the time I was 9½ weeks. Eventually I started looking forward to them instead of dreading them expecting bad news. It takes a while to get your head around it though.

I'm 23 and a bit weeks :) Things are going well i think. I still get super tired (prepare yourself for that) and still feel seedy now and then but otherwise I'm pretty good thanks.

i still haven't bought anything though other than a couple of stuffed sheep. I find the process of working out what to buy totally overwhelming so I've kinda avoided it completely. That will only last so long before I start to run of time!

#24 Hope28

Posted 12 May 2015 - 07:15 AM

Welcome soul11 and congratulations!

I felt the same way too. I remember after I got my call from the clinic and recovered from the initial shock I felt very lost. We'd been trying for so long and suddenly we had made it - it felt kind of like walking up some stairs and suddenly the stairs being gone, if that makes any sense.

I hope time flies between now and 2 June!

#25 EmbryoAgogo

Posted 12 May 2015 - 08:05 PM

Welcome Soul! I am absolutely still there - I find myself googling 'i still can't believe I'm pregnant' - and it's not just IVF graduates who struggle with believing a little person is growing in there!! We've got guests staying with us for a month and that's also making it feel pretend, we can't even talk about it at home. I'm only 7.5 weeks and already pregnancy is really dragging, after so long trying I am beyond ready for the baby to be here. I agree, I expected to be serene and glowy and carefree when it finally happened, whereas I spend most days either in disbelief or worry that it's all a mistake/something will go wrong. But thanking my lucky stars every day that this happening... from my googling its seems that when the baby starts moving it starts to feel very real!!

Also the babycenter 'my pregnancy' app helps remind me this is actually happening :D


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