Jump to content

Need to Find a Cardiologist
(who travels to developing nations to work sometimes)


  • Please log in to reply
14 replies to this topic

#1 AngryBird

Posted 20 February 2013 - 10:00 AM

I've recently become aware of Ana's story.

She's six years old, and her family are refugees from the DRC. They live in the Kyangwali refugee camp in Uganda, and they have nothing.

Ana has a heart condition. I saw a photo of her, looking drawn and sick, from a friend who had visited recently, and came to know her story in recent weeks. She's very sick.

She was booked in to see a visiting cardiologist in Kampala, and her family were able to raise the money to travel there and stay a day for her appointment. Unfortunately on that day many others were booked to see the same specialist, and Ana did not make it to the front of the queue.

We raised some money so the family could stay in Kampala a little longer and wait for her to see the cardiologist. Sadly, she never made it to the front of the line and the visiting specialist flew home to the US without seeing her. He returns in May, I think.

Ana will not survive until May without some treatment and medication, neither of which she can afford, and she needs assessment by a specialist to determine what medications she needs. We're happy to continue raising money for her support - but I am desperately trying to find a cardiologist to see her as soon as possible.

I know EB has a collection of people with all kinds of stories and experiences, and I thought maybe someone had known/worked with/heard of a doctor or an organisation who helps provide assessment and treatment for "heart kids" in developing nations?
Any suggestions or contacts at all for this little girl - who, even if she does survive until May - has no guarantee she will reach the front of the waiting line for the specialist when he returns.
It does not have to be a doctor who works specifically in Uganda (those are almost non-existent!) - we will find a way to get her to where she needs to be. Just searching for a doctor or organisation that does do work overseas in developing nations, who might be able to see her soon, or recommend someone local who can.


I know this is a long shot. I know "one does not solve the medical conditions of a dying child by politely asking an Australian doctor to fly to Uganda and operate". And I know there are many many children with similar issues in Africa, who receive no help.

But I know Ana's story. I know Ana's name. And I know her face. I can't NOT do something - and I really don't know who to ask.
Thanks!

#2 sandgropergirl

Posted 20 February 2013 - 10:07 AM

YOu could try referring Ana to the Children First Foundation- this is the work they do. Here is the link http://www.childrenfirstfoundation.com. At the very least you can refer Ana to them directly


good luck

#3 Chelli

Posted 20 February 2013 - 10:09 AM

Hi,
Please PM the names of specific specialists to the OP as we do not allow discussions or recommendations of medical practitioners on the forums. I will PM the information to the OP from the post I have needed to remove due to this rule.

Regards
Chelli

#4 B.feral3

Posted 20 February 2013 - 10:24 AM

I have heard of this particular venture OP as well as others. I know the article is old but it might be another lead. Good luck. I hope she gets the helps she needs and deserves.

http://www.couriermail.com.au/news/queensl...f-1225698714485

QUOTE
THE philosophy behind Operation Open Heart is simple: Help those who most need our help.

And since the mid-'80s, Australian medical teams have done just that.

The program, which is run out of the Sydney Adventist Hospital, has involved teams of medical experts travelling at their own expense to 13 countries in Asia, the south Pacific and Africa where people cannot get access to modern heart surgery.

The aim of the project has always been to provide treatment for patients and to teach those who can treat.

"When we took the first team over and saw the incredible need, it was clear we could not go there only for a service commitment," Dr Alan Gale says of the experience in taking Australian medical teams to work in two hospitals in Myanmar.


"You couldn't go in and operate on only 20 people because there was hundreds there."

Dr Gale said the response from the local medical professionals, who are denied the opportunity to learn the latest techniques because of their restricted access to the internet and limited access to medical journals, was overwhelming.

"The enthusiasm for the acquisition of skills and knowledge is unbelievable," he said.

"Every time one of us gets up to talk, it's a bit like someone in Hyde Park talking about politics. People crowd around and try to absorb as much energy.

"These are highly intelligent, highly motivated people and their surgical dexterity is fantastic.

"It's just that they've never had the opportunity to be taught.

"The country has been arrested in the '60s or '70s level of cardiac surgery performance."

The Brisbane team of medical experts from three hospitals who most recently visited Myanmar in February as part of Operation Open Heart have been nominated for a Pride of Australia Medal in the category of care and compassion.

The team, led by Dr Gale, is: cardiologist Dr Darren Walters, pediatric cardiologist Dr Chris Whight, clinical nurse consultant Cathy Gough, clinical nurse Denise Grant, perfusionist Lynne McKellar, cardiac scientist Belinda Shearer, pediatric surgeon Dr Graham Nunn, pediatric cardiologist Dr Jason Wildschut, biomedical engineer Venerando Leotta.

Some of the team members have been going to Myanmar for four or five years as part of the program.

Along with their time and services, the group takes text books and medical equipment.


The paediatric cardiac surgeon mentioned in this article has performed 2 open heart surgeries on my son. Sadly though, he has since retired.

Edited by Bek+3, 20 February 2013 - 10:46 AM.


#5 B.feral3

Posted 20 February 2013 - 10:38 AM

Blog for Operation Open Heart
http://www.ooh.org.au/blog

#6 ~kuddlebug~

Posted 20 February 2013 - 10:43 AM

A friend from school established a medical centre in Uganda and as far as I know they have cardiologists to assist. Might be worth contacting them? They might be able to give you some names. Best of luck to little Ana xx

http://www.maranathahealth.org/

#7 Soontobegran

Posted 20 February 2013 - 10:47 AM

Good luck with this.
I know a plastic surgeon who travels to Africa to do voluntary surgery, perhaps I could contact him and see if he has any idea?

#8 AngryBird

Posted 20 February 2013 - 11:04 AM

Thankyou everyone - I have contacted each of the suggestions so far by email and will follow up by phone soon. I really appreciate it.

STBG I would really appreciate that if you don't mind, thanks so much!

#9 TwiceThe Woman

Posted 20 February 2013 - 12:32 PM

How about contacting Moira Kelly - she has kudos+++. With her amazing track record she can pull rabbits out of hats.  Just google her OP....

#10 Cheryl_v

Posted 20 February 2013 - 03:14 PM

I have PM'd you

#11 AngryBird

Posted 20 February 2013 - 04:16 PM

Thankyou, each and every person who has replied and offered suggestions.

#12 B.feral3

Posted 20 February 2013 - 06:13 PM

Keep us up to date OP. I would love to hear how you get on. Also, can you please tell me where we can read about this little girl. I am a member of private FB group which is an International Congenital Heart Defects community. In the group is a paediatric heart surgeon who works out of the Miami Children's Hospital. He is quite active in the group if people direct questions towards him. Perhaps I could post the link to this little girls story. He may know of a program.

On another note, did you manage to have a look through the blog I posted? I haven't read it all but have flicked through the photos. Seeing pics of those kids and their smiling faces, in less fortunate countries than our own given a second chance at life really warms the soul.  wub.gif

Edited by Bek+3, 20 February 2013 - 07:11 PM.


#13 Kay1

Posted 20 February 2013 - 06:31 PM

I was also coming in to suggest Operation Open Heart. I just heard about them today as my son's school is raising money to sponsor surgery for a child in Cambodia.

All the best OP, I do hope you have some luck and please keep us posted.

#14 ScarfaceClaw

Posted 20 February 2013 - 06:38 PM

I've worked with children first, I know Moira has helped dozens of international children with heart problems.



#15 Soontobegran

Posted 20 February 2013 - 07:03 PM

QUOTE (AfroCircus @ 20/02/2013, 12:04 PM) <{POST_SNAPBACK}>
STBG I would really appreciate that if you don't mind, thanks so much!


Strange as it may seem this surgeon has been wanting to 'friend' me on FB for quite some time, I have done so and sent him a PM :-)
He actually brings patients out here too, his work is connected to a specific church but I am not sure which one though.

I also think Moira Kelly is a really valid option, she has quite a slew of contacts.




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

Tell us what you think

to WIN 1 of 2 $500 Coles/Myer gift cards

Dealing with a toddler's morning tantrums

Your schedule is not important to your two-year-old, and you cannot convince her otherwise. So what can you do?

Child in suitcase 'could have died eight years ago'

A child whose remains were dumped in a suitcase in the South Australian bush is believed to have been a girl aged between two-and-a-half to four.

MP breastfeeds baby during parliamentary session

An Argentinian mum and politician has caused a stir on social media after being filmed breastfeeding her baby.

My baby's first seizure

It was 1am on a cold winter's night when I woke suddenly to the screams of my 12-month-old son. Our lives were about to change forever.

Portable pools 'more dangerous than permanent ones'

Inflatable and portable children's pools may be required to be sold with compulsory fencing to prevent backyard drownings, with some experts even floating the idea of a ban.

Heartbreaking moment mum kisses her one-week-old goodbye

At 11.07am on April 2 this year, Sarah Marriott welcomed baby Sebastian into the world.

The amazing Tee Pee bed and kid-friendly Frankie Bunk bed

These kids' beds definitely fit the brief of providing personality and personal space for little people who are moving up in the world.

The funny things kids say when you're pregnant

Since becoming noticeably pregnant, my son has taken more of an interest in the sibling he'll soon have.

The real problem with having one child

In this age of political correctness, it seems the one subject still subject to discrimination is that of the Only Child.

Six-week-old baby found dead, believed stabbed

A neighbour heard a child screaming before a baby was found dead, believed to have been stabbed, in a house in Newcastle.

The fire hazard in more than 70,000 Australian homes

So far, 206 Samsung washing machines have caught fire and some have exploded. But many remain in people's homes.

How having a baby can bring on OCD

We all know that having a baby can turn your life upside down - and it can also bring a raft of new anxieties and worries.

IVF gender selection being considered for Australian parents

Couples using IVF may be able to choose the gender of their babies and women could be financially compensated for donating their eggs.

The best age to get married (according to the latest study)

Not too young, and not too old. That's reportedly the best age to get married. Not everyone agrees.

Yes, you can get pregnant before your period returns post-baby

After giving birth, the last thing you want to think about is contraception. But you can get pregnant before your period comes back.

Fellow diner rewards mum after toddler's tantrum

Parents of toddlers everywhere know the feeling. After working up the courage to take your child out for lunch or dinner in public you are rewarded with a mid-meal meltdown. 

IKEA begins massive safety campaign after two toddler deaths

Two children were killed when pieces from their Malm furniture line tipped over.

Beaneasy: sweet nursery furniture with a twist

If you're looking to introduce an organic element into your baby's nursery but want to step away from natural timber, we have the perfect alternative.

A dad's guide to hyperemesis

I am in no way qualified to advise women on how to cope with hyperemesis, but I've learnt some lessons that might be worth sharing with other partners.

Woman adopts best friend's four daughters after cancer tragedy

Best friends share everything - and for these two life-long friends, that includes family.

Baby Leo's mum excluded from $500K trust 'for her own protection'

Samuel Forrest didn't want his wife as a trustee of their baby Leo's half million dollar trust for her own "protection", it has emerged.

Confirmed: men gain weight when they become dads

Men who become fathers experience weight gain and an increase in body mass index, a measurement of body fat based on height and weight, according to a new, large-scale study

Carer investigated over washing machine photo posted 'for a laugh'

She said the photo of a boy with Down syndrome in a washing machine was taken just for fun, but no one else was laughing.

Mum's premature labour nightmare after high tea salmonella outbreak

An opulent high tea at a luxury Melbourne hotel has left 44 people with salmonella poisoning - including a pregnant woman, who went into early labour.

The day my son started a fire

Would you know what to do in a fire emergency? How safe is your home and family?

Prince George celebrates second birthday

Prince George's second birthday has been marked by the release of an official picture showing the toddler smiling as he is held by his proud beaming father.

Which beauty treatments are safe in pregnancy?

Is it safe to use fake tan, hair dye and nail varnish during pregnancy?

The five ways I know my 'baby' is no longer a baby

The truth is, I can no longer deny that my walking, babbling, somewhat-independent little miss is no longer a bona fide 'baby'.

Review: Cybex Platinum PRIAM pram

I'm not usually one who believes in love at first sight but that's exactly what happened when I first saw the Cybex PRIAM.

Get your FREE Baby & Toddler Show ticket!

Get your free ticket to the Sydney Essential Baby & Toddler Show for September 25-27 - register online now.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Tell us what you think

to WIN 1 of 2 $500 Coles/Myer gift cards

Why I'm choosing to be a single mother right from the start

I believe that you get out of families what you put into them, and I will give mine my all.

Mother and baby units are a necessity for mental health, not a luxury

I have had two postnatal psychotic episodes. The first when my eldest child was six weeks old, and another after my second child was born.

30 French baby names

French names are always in fashion, but a few have risen in popularity in recent years.

New mum's Spanish maternity nightmare

A British woman who gave birth in Spain has told of her ordeal after spending weeks trying to convince medics the baby girl was hers.

Preparing Rover to be a good dog with baby

Some friends of ours say that it's dangerous to have a dog around a newborn and that we should start looking for a new home for him. Is it?

Company offers to ship working mums' breast milk home

First Apple and Facebook announced they would pay $20,000 towards the cost of their female employees freezing their eggs, now IBM in the US has come up with an innovative new policy aimed at retaining female employees.

Prince William speaks of his pride at wife Kate and 'little joy of heaven' Charlotte

The Duke of Cambridge opened up about family life and his plans for the future in an interview to mark his first day as an air ambulance pilot.

'Glowing' eye saves baby Mason's life

A simple photo taken in front of an evening fire gave new mother Sarah Bowers the power to save her baby's life. 

Parenting and decision overload

Of all the advice people told me before having a baby, no one warned me about the amount of decisions involved.

Proof that toddlers can't be left unsupervised - ever

Parents of toddlers all know the moment when realise your child is being suspiciously quiet. It can only mean one thing - trouble!

Meet Jeremy Ryan, The Voice contestant with seven kids

If you have trouble recalling the ages of Jeremy Ryan's seven children on The Voice, you're not alone. So does he.

Baby's adorable reaction to wearing glasses for the first time

Getting glasses can be a formative moment in a person's life.

Police officer buys supplies for family after mum of six caught shoplifting

When a mum of six was caught shoplifting nappies, clothes and shoes for her kids, the last thing she expected was for a stranger to pay for her haul.

Why pregnant women on antidepressants shouldn’t panic about birth defect claims

The risk of having uncontrolled depression is far greater than the small increased risk of birth defects that may be associated with specific antidepressants.

Arrests made over children's birthday party brawl

Police have raided properties and arrested a number of people over a brawl at a child's birthday party at a play centre in Sydney's west.

Family shares awesome drone baby announcement

Looking for a creative way to share some big news? Look to the skies, like this family did.

Young warrior Owen defies doctors' predictions

Little Owen DiCandilo's name means "young warrior", and it's a description that perfectly fits the inspiring 18-month-old

Advice for dads: when to approach your wife for sex

The exhaustion that comes with caring for young children often means romance between parents becomes a thing of the past.

I might be fat, but I don't need saving

I've been fat for pretty much most of life, besides a few crazy moments of being less-fat, but for the most part I've existed on this earth with a little more meat on my bones than desirable.

The rookie mistakes we make as parents

Since the dawn of civilisation, generation after generation of new parents have had to rely on instinct, trial and error - and sometimes get it wrong.

 

FREE TICKET

See Pinky McKay live in Sydney

Get your free ticket to The Essential Baby & Toddler Show and save $20 - register online now!

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.