Need to Find a Cardiologist
(who travels to developing nations to work sometimes)
, Feb 20 2013 10:00 AM
14 replies to this topic
Posted 20 February 2013 - 10:00 AM
I've recently become aware of Ana's story.
She's six years old, and her family are refugees from the DRC. They live in the Kyangwali refugee camp in Uganda, and they have nothing.
Ana has a heart condition. I saw a photo of her, looking drawn and sick, from a friend who had visited recently, and came to know her story in recent weeks. She's very sick.
She was booked in to see a visiting cardiologist in Kampala, and her family were able to raise the money to travel there and stay a day for her appointment. Unfortunately on that day many others were booked to see the same specialist, and Ana did not make it to the front of the queue.
We raised some money so the family could stay in Kampala a little longer and wait for her to see the cardiologist. Sadly, she never made it to the front of the line and the visiting specialist flew home to the US without seeing her. He returns in May, I think.
Ana will not survive until May without some treatment and medication, neither of which she can afford, and she needs assessment by a specialist to determine what medications she needs. We're happy to continue raising money for her support - but I am desperately trying to find a cardiologist to see her as soon as possible.
I know EB has a collection of people with all kinds of stories and experiences, and I thought maybe someone had known/worked with/heard of a doctor or an organisation who helps provide assessment and treatment for "heart kids" in developing nations?
Any suggestions or contacts at all for this little girl - who, even if she does survive until May - has no guarantee she will reach the front of the waiting line for the specialist when he returns.
It does not have to be a doctor who works specifically in Uganda (those are almost non-existent!) - we will find a way to get her to where she needs to be. Just searching for a doctor or organisation that does do work overseas in developing nations, who might be able to see her soon, or recommend someone local who can.
I know this is a long shot. I know "one does not solve the medical conditions of a dying child by politely asking an Australian doctor to fly to Uganda and operate". And I know there are many many children with similar issues in Africa, who receive no help.
But I know Ana's story. I know Ana's name. And I know her face. I can't NOT do something - and I really don't know who to ask.
Posted 20 February 2013 - 10:07 AM
YOu could try referring Ana to the Children First Foundation- this is the work they do. Here is the link http://www.childrenfirstfoundation.com
. At the very least you can refer Ana to them directly
Posted 20 February 2013 - 10:09 AM
Please PM the names of specific specialists to the OP as we do not allow discussions or recommendations of medical practitioners on the forums. I will PM the information to the OP from the post I have needed to remove due to this rule.
Posted 20 February 2013 - 10:24 AM
I have heard of this particular venture OP as well as others. I know the article is old but it might be another lead. Good luck. I hope she gets the helps she needs and deserves. http://www.couriermail.com.au/news/queensl...f-1225698714485
THE philosophy behind Operation Open Heart is simple: Help those who most need our help.
And since the mid-'80s, Australian medical teams have done just that.
The program, which is run out of the Sydney Adventist Hospital, has involved teams of medical experts travelling at their own expense to 13 countries in Asia, the south Pacific and Africa where people cannot get access to modern heart surgery.
The aim of the project has always been to provide treatment for patients and to teach those who can treat.
"When we took the first team over and saw the incredible need, it was clear we could not go there only for a service commitment," Dr Alan Gale says of the experience in taking Australian medical teams to work in two hospitals in Myanmar.
"You couldn't go in and operate on only 20 people because there was hundreds there."
Dr Gale said the response from the local medical professionals, who are denied the opportunity to learn the latest techniques because of their restricted access to the internet and limited access to medical journals, was overwhelming.
"The enthusiasm for the acquisition of skills and knowledge is unbelievable," he said.
"Every time one of us gets up to talk, it's a bit like someone in Hyde Park talking about politics. People crowd around and try to absorb as much energy.
"These are highly intelligent, highly motivated people and their surgical dexterity is fantastic.
"It's just that they've never had the opportunity to be taught.
"The country has been arrested in the '60s or '70s level of cardiac surgery performance."
The Brisbane team of medical experts from three hospitals who most recently visited Myanmar in February as part of Operation Open Heart have been nominated for a Pride of Australia Medal in the category of care and compassion.
The team, led by Dr Gale, is: cardiologist Dr Darren Walters, pediatric cardiologist Dr Chris Whight, clinical nurse consultant Cathy Gough, clinical nurse Denise Grant, perfusionist Lynne McKellar, cardiac scientist Belinda Shearer, pediatric surgeon Dr Graham Nunn, pediatric cardiologist Dr Jason Wildschut, biomedical engineer Venerando Leotta.
Some of the team members have been going to Myanmar for four or five years as part of the program.
Along with their time and services, the group takes text books and medical equipment.
The paediatric cardiac surgeon mentioned in this article has performed 2 open heart surgeries on my son. Sadly though, he has since retired.
Edited by Bek+3, 20 February 2013 - 10:46 AM.
Posted 20 February 2013 - 10:38 AM
Blog for Operation Open Hearthttp://www.ooh.org.au/blog
Posted 20 February 2013 - 10:43 AM
A friend from school established a medical centre in Uganda and as far as I know they have cardiologists to assist. Might be worth contacting them? They might be able to give you some names. Best of luck to little Ana xxhttp://www.maranathahealth.org/
Posted 20 February 2013 - 10:47 AM
Good luck with this.
I know a plastic surgeon who travels to Africa to do voluntary surgery, perhaps I could contact him and see if he has any idea?
Posted 20 February 2013 - 11:04 AM
Thankyou everyone - I have contacted each of the suggestions so far by email and will follow up by phone soon. I really appreciate it.
STBG I would really appreciate that if you don't mind, thanks so much!
Posted 20 February 2013 - 12:32 PM
How about contacting Moira Kelly - she has kudos+++. With her amazing track record she can pull rabbits out of hats. Just google her OP....
Posted 20 February 2013 - 03:14 PM
I have PM'd you
Posted 20 February 2013 - 04:16 PM
Thankyou, each and every person who has replied and offered suggestions.
Posted 20 February 2013 - 06:13 PM
Keep us up to date OP. I would love to hear how you get on. Also, can you please tell me where we can read about this little girl. I am a member of private FB group which is an International Congenital Heart Defects community. In the group is a paediatric heart surgeon who works out of the Miami Children's Hospital. He is quite active in the group if people direct questions towards him. Perhaps I could post the link to this little girls story. He may know of a program.
On another note, did you manage to have a look through the blog I posted? I haven't read it all but have flicked through the photos. Seeing pics of those kids and their smiling faces, in less fortunate countries than our own given a second chance at life really warms the soul.
Edited by Bek+3, 20 February 2013 - 07:11 PM.
Posted 20 February 2013 - 06:31 PM
I was also coming in to suggest Operation Open Heart. I just heard about them today as my son's school is raising money to sponsor surgery for a child in Cambodia.
All the best OP, I do hope you have some luck and please keep us posted.
Posted 20 February 2013 - 06:38 PM
I've worked with children first, I know Moira has helped dozens of international children with heart problems.
Posted 20 February 2013 - 07:03 PM
STBG I would really appreciate that if you don't mind, thanks so much!
Strange as it may seem this surgeon has been wanting to 'friend' me on FB for quite some time, I have done so and sent him a PM :-)
He actually brings patients out here too, his work is connected to a specific church but I am not sure which one though.
I also think Moira Kelly is a really valid option, she has quite a slew of contacts.
1 user(s) are reading this topic
0 members, 1 guests, 0 anonymous users
Two young boys have been rushed to hospital after falling out a second-storey window of a home in Eastwood.
Vote for your favourite pregnancy, baby and toddler products for your chance to win your share of $2500 in cash prizes.
Thousands of same-sex couples with children will have the right to be jointly recognised as parents by Victorian law.
Cutest snap find on the planet - bee rompers, tees and dresses for babies.
A two-year-old girl who disappeared on Friday night from her great-grandparents' home in rural Ohio was found alive Sunday evening in a nearby field.
The transition from cot to big kid bed might be a little easier if every toddler had a bed like this one.
Woolworths appears to have taken the upper hand in its price battle with Coles after investing millions of dollars lowering the cost of groceries, according to new figures.
Parents say Australian babies are being "kept captive" and cannot come home after a ban on commercial surrogacy in Nepal.
If virgin women can become mothers through IVF, maybe we're ready for another miracle - genuine equality for men in the parenting debate.
What I once assumed about health and fitness is wrong.
I have two children: one living, the next an angel baby.
Planning a wedding can be stressful – and, as most newlyweds can attest, it can be very costly, too.
They had just decided on a name they both agreed on, but then the grandparents threw in an offer of $10,000 in exchange for choosing something else.
After 17 years of trying, this man had given up hope of having a family.
Actress Claire Danes found it difficult pretending to have postnatal depression in Homeland, as she had just become a new mother herself.
It's a heart-warming photo this family will treasure forever.
While every woman's breastfeeding journey is different, many hurdles are shared. Knowing what to expect will enable you to make informed decisions if - or when - you meet challenges along the way.
We do love ourselves some brand new designs in tried and true products. The renowned bamboo dinnerware from Love Mae has just had several more members join the family, in addition to a brand new website.
A mother-of-five who killed a paedophile has had her jail sentence reduced by a judge who described her case as a "truly exceptional" one.
We just spotted Geleeo, a brand new self-cooling pram liner you can buy in time for summer.
He might not utter a single word - but this toddler is having a great debate with his mother about nap time.
Fashion designer Stella McCartney has honoured her late mum, Linda McCartney, by designing a special bra for post-mastectomy patients.
Mark Harris has helped deliver 500 babies. And he's now telling fathers what to expect.
Being a calm parent takes a lot of work, sometimes more than is obvious to those around us.
It's cool, kind of like a second childhood. I love him to bits and think, on average, I'm an okay dad. But I also want to talk about the other stuff.
He may have only lived for 100 minutes, but that didn't stop baby Teddy from saving the lives of others.
A haunting reminder to stay mindful about babies in cars, especially as we approach summer.
Tongue-tie can cause feeding problems. However once it is diagnosed, the condition can be easily treated.
Some people move frequently, while others like to stay put. But everyone finds it stressful.
The birth of her first child should have been happiest of times for Campsie mother Phuong Cao, but friends say it marked the beginning of when her life began to unravel.
It was an experiment doomed to failure - they were looking for male cells in female bodies. And their search was stunningly successful.
A gorgeous photo series shows babies in the first hours after their birth - as they were positioned in the womb.
We don't know what he's saying, but this baby has a very clear message for his bulldog pal: let's walk - NOW.
Without a doubt, one of the best gifts for a toddler turning two or three is a play kitchen.
With a few simple tips you can take your images from random happy snaps to lovely clean images that create beautiful lasting memories.
The Essential Baby Awards are on now, and we need your help! Have your say on your top picks and you'll go in the draw to win a share of $2500.