Jump to content
Amniotic Band Syndrome (ABS)
5 replies to this topic
Posted 16 February 2013 - 10:12 AM
I have recently had to have a abortion because my baby was suffering from Amniotic Band Syndrome
Me and my boyfriend went to the 12 week scan expecting to see a little baby and hear a little heart beat but instead we got told they couldn't hear a heartbeat because our baby was all wrapped up by bands causing its head to cover its heart and its arms and legs was all tied together so it couldn't move at all this happens becase there is a rupture in the Amniotic sac and bands from the sac can get tangled round the baby. We got told there was a good chance it would be born with no arms or legs because of how bad it was wrapped up.
I'm really struggling to come to terms with what has happened its always in my head and I'm finding it hard to concentrate at college. I just need someone to talk to as I can't talk to my boyfriend about it. All I want is a baby and its killing me knowing I had to have an abortion even though it was for the best is there anyone else that's suffered from this??
Posted 16 February 2013 - 12:01 PM
Suspect that the lack of response is proof as to how rare this condition is.
Perhaps contact a large city maternity unit and ask if they can refer you to an obstetrics counsellor.
I'm really sorry for your loss and grief.
Posted 16 February 2013 - 12:31 PM
So sorry for your loss. I have only heard about this as it was in a book I read. I am so sorry you had to terminate your much wanted pregnancy.
Posted 16 February 2013 - 01:00 PM
I am so very sorry.
I have cared for babies who have suffered ABS, this was in the years before ultrasound was around or in it's early days when vision was too poor to be able to pick up such things.
As I am sure you have been told it is an extremely rare complication of pregnancy and the truth is that you will not see too many babies being born these days with major deformity due to ABS because of the number of U/S's available for pregnant mums these days.
The recommendation then decision to terminate is such a tough one and most parents would make the choice dependent on the level of disability the baby was going to have.
I think from what you have described that your precious little one was going to be severely disabled by the bands and I believe you have made the right but heartbreaking decision.
There is a group called 'amnioticbandsyndrome.com' who have a support group which I believe is extremely helpful.
I hope you have people around you supporting you through this difficult time.
Posted 16 February 2013 - 02:11 PM
I am so sorry for your loss, I can't imagine how you must be feeling... It is heartbreaking just reading your post.
I hope you don't mind me replying as i havent suffered as a result of ABS but I wanted to write as I have amniotic banding although thankfully all is ok at the moment. I am having u/s's every four weeks to check and last appointment they were decreasing in size so my fingers are crossed all will be ok.
In saying that, it is very stressful & worrying especially as the u/s's are so far apart - so much can happen during these four weeks I guess.
Look after yourself and wishing you the best for the future. I hope you can find a support person to help you get through this difficult time.
Posted 16 February 2013 - 02:17 PM
I'm so sorry about what you've had to go through - it's very sad.
I think it's important that you find a way to talk to your boyfriend about this. He probably doesn't know what to say or may be in denial about what you have lost. It's not just a 12 week pregnancy but also lots of dreams and hopes for the future - a shared future.
All the best and take care.
1 user(s) are reading this topic
0 members, 1 guests, 0 anonymous users
To celebrate the release of children?s musical series Play Along with Sam, out now on DVD, we?re giving one lucky parent the chance to have Sam perform at their child?s pre-school or day care!
A shopping centre escalator needed to be pulled apart to free a toddler's trapped hand.
Is it weird to say that I am secretly thrilled to find that my daughter Edie has nits?
Well, it's actually 13-12-14 to us over here. But still, Clare Elizabeth Keane's consecutive numerical birth time is pretty special.
We can't live in fear. This post is about Christmas and how at this time we should be celebrating life and grateful for what we have: our loved ones who we cherish fiercely.
Everyone will love your baby but your baby may not be so happy to be passed around a lot of new people - nor may you want to feed with an audience.
There are pros and cons to this policy.
Here are a few popular methods hopeful parents-to-be use to try to get a baby of their preferred gender – and what an expert says about whether they really work.
It's officially time to get into the Christmas spirit. Why not branch out when you put up your tree this year and add a personal touch with a few DIY decorations? We've found the perfect easy-to-make ways to put more festive fever into your home.
A dangerous trend is seeing more mothers-to-be declining a relatively simple and painless test to check for gestational diabetes.
The Office of Fair Trading has pulled seven toys from shelves ahead of Christmas after they fail safety tests.
These twin girls will no doubt have fun fooling people in years to come, but nobody will be as confused as baby Landon.
Men could soon have access to an injectable long-term contraceptive which works in a similar way to a vasectomy but promises to be easily reversed.
After bathing and dressing her three-month-old son, Amanda had a rare moment alone with her baby.
I feel that almost every day, someone in my life - be they a friend, family member or complete stranger - feels the need to excuse my behaviour as I have other things on my mind.
A Melbourne mother has described how her son turned grey when he became seriously ill after drinking raw milk.
Modern newlyweds are now well into their 30s and marriage still offers something powerful a new book argues.
In Australia, 30 per cent of women find their birth experience traumatic, with 6 per cent going on to develop post traumatic stress disorder (PTSD).
A young mum is in intensive care after she took a friend's antibiotic and wound up with an ailment that is burning her body 'from the inside-out'.
If he doesn't change his mind, all I can hope is that I will. It would be a waste to spend the rest of my marriage mourning a baby that never was.
Got bored kids? Quickly find the best activities for kids wherever you are in Australia with the Essential Kids app.
Top 5 Articles
One mother's futile attempt to sleep in caught on camera in a hilarious - and very cute - video.
While we all like to imagine the holiday season as being a fun, loving and bonding experience; often our reality is quiet different.
The fear of being weighed is the most significant factor in women cancelling medical appointments - and now weight-shaming has happened to me.
As we reach the end of 2014, we're closing the book on many things for another year, most notably childcare. Our last child has attended childcare for the very last time.
Contrary to popular belief, making it past the seven-year mark doesn't mean your marriage will be smooth sailing from there on.
We teach kids it’s okay to say no if they don’t feel safe, so why do some parents force their children to climb in to Santa's lap?
I’m sure that parenting will get harder. But life isn’t exactly smooth sailing for many of us right now, either.
Yes, the bouncing baby girl was born by caesarean section. And mum says no more kids.
I'm the first to admit that when I used to see tiny babies with dummies in their mouths, I thought "Hmm, lazy parenting." And now I apologise.
Imagine meeting your double at a school sports event, or regularly being mistaken for someone you haven't met. Separated twins Margaret and Joy tell their story.
As Sydney grieves the loss of Sydney siege victims Katrina Dawson and Tori Johnson, reports have suggested that both died as heroes.
How many weeks til Christmas?
Get the "Santa" shopping done without the kids in tow.