Jump to content
Amniotic Band Syndrome (ABS)
5 replies to this topic
Posted 16 February 2013 - 10:12 AM
I have recently had to have a abortion because my baby was suffering from Amniotic Band Syndrome
Me and my boyfriend went to the 12 week scan expecting to see a little baby and hear a little heart beat but instead we got told they couldn't hear a heartbeat because our baby was all wrapped up by bands causing its head to cover its heart and its arms and legs was all tied together so it couldn't move at all this happens becase there is a rupture in the Amniotic sac and bands from the sac can get tangled round the baby. We got told there was a good chance it would be born with no arms or legs because of how bad it was wrapped up.
I'm really struggling to come to terms with what has happened its always in my head and I'm finding it hard to concentrate at college. I just need someone to talk to as I can't talk to my boyfriend about it. All I want is a baby and its killing me knowing I had to have an abortion even though it was for the best is there anyone else that's suffered from this??
Posted 16 February 2013 - 12:01 PM
Suspect that the lack of response is proof as to how rare this condition is.
Perhaps contact a large city maternity unit and ask if they can refer you to an obstetrics counsellor.
I'm really sorry for your loss and grief.
Posted 16 February 2013 - 12:31 PM
So sorry for your loss. I have only heard about this as it was in a book I read. I am so sorry you had to terminate your much wanted pregnancy.
Posted 16 February 2013 - 01:00 PM
I am so very sorry.
I have cared for babies who have suffered ABS, this was in the years before ultrasound was around or in it's early days when vision was too poor to be able to pick up such things.
As I am sure you have been told it is an extremely rare complication of pregnancy and the truth is that you will not see too many babies being born these days with major deformity due to ABS because of the number of U/S's available for pregnant mums these days.
The recommendation then decision to terminate is such a tough one and most parents would make the choice dependent on the level of disability the baby was going to have.
I think from what you have described that your precious little one was going to be severely disabled by the bands and I believe you have made the right but heartbreaking decision.
There is a group called 'amnioticbandsyndrome.com' who have a support group which I believe is extremely helpful.
I hope you have people around you supporting you through this difficult time.
Posted 16 February 2013 - 02:11 PM
I am so sorry for your loss, I can't imagine how you must be feeling... It is heartbreaking just reading your post.
I hope you don't mind me replying as i havent suffered as a result of ABS but I wanted to write as I have amniotic banding although thankfully all is ok at the moment. I am having u/s's every four weeks to check and last appointment they were decreasing in size so my fingers are crossed all will be ok.
In saying that, it is very stressful & worrying especially as the u/s's are so far apart - so much can happen during these four weeks I guess.
Look after yourself and wishing you the best for the future. I hope you can find a support person to help you get through this difficult time.
Posted 16 February 2013 - 02:17 PM
I'm so sorry about what you've had to go through - it's very sad.
I think it's important that you find a way to talk to your boyfriend about this. He probably doesn't know what to say or may be in denial about what you have lost. It's not just a 12 week pregnancy but also lots of dreams and hopes for the future - a shared future.
All the best and take care.
1 user(s) are reading this topic
0 members, 1 guests, 0 anonymous users
You really don't realise everything your parents did for you until you find yourself doing them for your own children ... vomit catching and all.
When you're a baby, even getting off a bed and onto the floor can be a tricky procedure.
It is a quiet video, less than a half-minute long. It features no flourishes to speak of. It has no kittens doing kitten things. None of the things that often make a video go viral.
Rugby league star Anthony Watmough and his wife Elle have shared their joy at learning their unborn baby, who was thought to have Trisomy 18, was cleared of the fatal condition.
To celebrate the Home Entertainment release of Shaun the Sheep Movie, Essential Kids and Universal Sony Pictures Home Entertainment are offering one winner and their family a holiday to a farm.
I may have lost that particular friend years ago, but I have gained so much from that experience.
It's far more than just a bag for nappies - it's the travel companion for your baby that should contain all the things you might need when away from home base.
The biggest joy of our daughter's name is that people really light up when they hear it (pun intended).
The Pyjama Jam! tour will see Justine Clarke returning to more intimate venues around Australia, creating the perfect comfy and cozy atmosphere for a PJ party.
When Brittany and Brandon Buell's son Jaxon was born missing much of his brain and skull, doctors said he only had days to live.
Emily Bingham had been asked about her baby making plans one too many times.
Thinking of investing in meal replacement shakes to slim down ahead of summer?
It is among the most delicate and difficult dilemmas in medicine: Should a pregnant woman who has received a cancer diagnosis begin treatment before her child is born?
Vote for your favourite pregnancy, baby and toddler products for your chance to win your share of $2500 in cash prizes.
Looking for a baby name with a nod to nature, or one with an organic meaning? Check out our list to get inspired.
That cup of Joe is just the boost your body needs.
An illiterate and poverty stricken mother has abandoned her newborn triplets at hospital because she cannot afford to care for them.
The first time my oldest daughter called me 'Mum', she was 17.
A recent Facebook photo post is prompting widespread discussion of an emotional topic for many parents: rainbow babies.
Dozens of young women have had virgin births after undergoing IVF in Britain, it has been reported.
Your baby might be crawling around in hundreds of dollars worth of clothing.
A one-hour difference to the day is pretty big deal when you're little.
The frontiers of life are advancing ever further into uncharted territory.
Top 5 Articles
Fashion designer Stella McCartney has honoured her late mum, Linda McCartney, by designing a special bra for post-mastectomy patients.
Mark Harris has helped deliver 500 babies. And he's now telling fathers what to expect.
Being a calm parent takes a lot of work, sometimes more than is obvious to those around us.
It's cool, kind of like a second childhood. I love him to bits and think, on average, I'm an okay dad. But I also want to talk about the other stuff.
He may have only lived for 100 minutes, but that didn't stop baby Teddy from saving the lives of others.
A haunting reminder to stay mindful about babies in cars, especially as we approach summer.
Tongue-tie can cause feeding problems. However once it is diagnosed, the condition can be easily treated.
Some people move frequently, while others like to stay put. But everyone finds it stressful.
The birth of her first child should have been happiest of times for Campsie mother Phuong Cao, but friends say it marked the beginning of when her life began to unravel.
It was an experiment doomed to failure - they were looking for male cells in female bodies. And their search was stunningly successful.
A gorgeous photo series shows babies in the first hours after their birth - as they were positioned in the womb.
We don't know what he's saying, but this baby has a very clear message for his bulldog pal: let's walk - NOW.
Without a doubt, one of the best gifts for a toddler turning two or three is a play kitchen.
With a few simple tips you can take your images from random happy snaps to lovely clean images that create beautiful lasting memories.
The Essential Baby Awards are on now, and we need your help! Have your say on your top picks and you'll go in the draw to win a share of $2500.