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2 y.o. forgotten her words and now screams


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#1 me-and-mini-me

Posted 15 February 2013 - 08:54 PM

Hi
I was visiting my friend this afternoon, and her Mum showed up.  We got to chatting, and my friend's mother mentioned her grand-daughter is having so much trouble now.  I asked my friend and her Mum what she meant by that, and they both started telling me about how she has changed, and the doctor thinks that she may be deaf in one ear now.  I asked how she could be deaf now, when the hearing gets checked at birth, and they said it was checked, and everything was fine then, but that she has recently had many tests done on her ears, and absolutely nothing has shown up. I asked if she may have had fluid in the ear, and again, they said she was checked for it, and nothing showed up.  I asked what is happening now, and they said that she was perfect, saying some words and that she knew all her colours.  She now doesn't say any of the words that she used to, doesn't know her colours any more, and she screams all the time to get what she wants, and gets frustrated that nobody knows what she wants now.  She has just turned two in January.  What got my friend worried, which ultimately resulted in all the hearing tests, was that one day when she was at her mother's place, and the grand-daughter was there, somebody accidentally dropped a cooking pot on the tiled floor, which made a very loud noise that everybody jumped at, however, she didn't even flinch.  My friend then said to her Mum, "I swear there is something wrong with her now".  Has anybody ever had that happen to their child, and know what caused it?

#2 Tetinks

Posted 15 February 2013 - 09:08 PM

So has she had her hearing tested properly?

Hearing can change. My DD is hearing impaired so I've learnt quite a bit about it. It's possible to pass the newborn screen and then have a hearing loss discovered a few years later. Many hearing losses are progressive too.

A lot of the stuff you describe is normal 2yo stuff, like the screaming. Many kids also learn a new word, perfect it, then stop saying it for a few months (this is age appropriate and common).

However your friend is worried, so should get checked out by someone who knows what they're doing. If they suspect a hearing loss they should be seen by a paed audiologist and ENT.

#3 item

Posted 15 February 2013 - 10:12 PM

Also a developmental paediatrician.

#4 kay11

Posted 15 February 2013 - 11:10 PM

I started going deaf as a teenager. Unfortunately it can happen. Mine ended up being due to a very rare immune system issue, however I wasn't diagnosed until my thirties. Thankfully it's treatable but the damage is already done and I'll never get my hearing back.

#5 melanieb530

Posted 15 February 2013 - 11:36 PM

Don't want to be alarmist as it's quite unlikely but one of the first things that sprang to mind when you mentioned a girl with language loss was Rett Syndrome.
Has she had any loss or change in her hand skills and movements?

#6 baddmammajamma

Posted 16 February 2013 - 09:23 AM

Loss of words and loss of skills would be major red flags for me to see a developmental paed as soon as possible.

Just to throw another possibility into the mix (with the disclaimer that I am not a doctor) -- regression in language and skills are two very common signs for autism.

Some kids with ASD don't regress -- they are born with characteristics of ASD, and those "quirks" reveal themselves over time (my daughter was like this).

Other kids are "normally developing children" until the age of 18-30 months or so, and then start to show a noticeable regression in language and other skills.

A good developmental paed will be able to look across this child's entire developmental profile to see what might be going on.



#7 Lyra

Posted 16 February 2013 - 09:25 AM

Issues like this prompted us to rock up the ER at the RCH. I would definitely be seeing a doctor ASAP

#8 baddmammajamma

Posted 16 February 2013 - 09:30 AM

QUOTE (Lyra @ 16/02/2013, 10:25 AM) <{POST_SNAPBACK}>
Issues like this prompted us to rock up the ER at the RCH. I would definitely be seeing a doctor ASAP


I should have added this line to my note as well. If there have been dramatic changes in the child, I wouldn't be taking a cautious "wait and see" approach -- I'd be pushing to get in to see a specialist ASAP.

#9 amabanana

Posted 16 February 2013 - 09:37 AM

I'm sorry but I also see 'red flags' for a few different things in that post.  I'd be visiting a dev. paed ASAP.   I agree that a wait and see approach is probably not what I would do if that were my child.


#10 red_squirrel

Posted 16 February 2013 - 09:52 AM

Regression in children isn't normal.
I would see a GP and ask their advice as well as ask for a referral to a dev. Paed.
I would also have the hearing tested thoroughly.

She maybe losing hearing due to something reversible. There is also the possibility that it is the onset of one of the many syndromes out there. Or she may be experiencing abnormal brain activity such as absence seizures.

It isn't something that will go away. It needs investing and hopefully it turns out to be something as benign as glue ear. Good luck.

Edited by red_squirrel, 16 February 2013 - 09:57 AM.


#11 me-and-mini-me

Posted 16 February 2013 - 04:53 PM

Thanks for all the replies ladies.  Apparently, she has had lots of tests done on her ears, and a hearing test was one of them, and these all found nothing wrong with her hearing or inside her ears. Neither my friend nor her mother mentioned that her hand skills have changed though.  They only talked about her hearing and speech.  The grandmother did mention that she now has an appointment with a professional, and I asked what kind of professional, and she said she couldn't remember.  I then waffled off some names, and she still couldn't remember, but said that she was definitely booked in.  When they first told me the story, it also raised a red flag for me, as I know somebody who has an autistic child, which he claims happened right after she got her 18 month injection, and he strongly blames that as the reason she changed.  He also said that she was a perfectly normal happy child who could also say words, but then after the injection, she couldn't say anything anymore, and just screamed.  He says he has video tape of before and after which clearly shows how she changed.  I didn't say anything to them, as I didn't want to alarm them unnecessarily, but I will ask how this next appointment went and go from there.    Mary.

#12 baddmammajamma

Posted 16 February 2013 - 06:25 PM

Mary:

Is your friend the child's aunt or the child's mother? I went back and read your original post, and I couldn't quite discern which.

If she is the child's mother and you are close friends, I would be having a heart-to-heart with her about the importance of getting the right kind of professional guidance at this stage.

I hope they aren't being given the run around.

Loss of language is a classic red flag that says "Investigate NOW." I sure hope that their GP is just as concerned as many of us seem to be and has referred the child on to a specialist!

Edited by baddmammajamma, 16 February 2013 - 06:30 PM.


#13 me-and-mini-me

Posted 16 February 2013 - 06:50 PM

[quote name='baddmammajamma' date='16/02/2013, 07:25 PM' post='15334367']
Mary:

Is your friend the child's aunt or the child's mother? I went back and read your original post, and I couldn't quite discern which.

Hi.  My friend is the child's aunt.  Sorry, I went back over my post too and realised I didn't specify that.   rolleyes.gif I really didn't want to say anything in front of the grandmother, as she is a worrier, but do intend saying something to my friend, the aunt.   original.gif



#14 Emby

Posted 16 February 2013 - 06:52 PM

QUOTE (me-and-mini-me @ 16/02/2013, 05:53 PM) <{POST_SNAPBACK}>
When they first told me the story, it also raised a red flag for me, as I know somebody who has an autistic child, which he claims happened right after she got her 18 month injection, and he strongly blames that as the reason she changed.  He also said that she was a perfectly normal happy child who could also say words, but then after the injection, she couldn't say anything anymore, and just screamed.  He says he has video tape of before and after which clearly shows how she changed.  I didn't say anything to them, as I didn't want to alarm them unnecessarily, but I will ask how this next appointment went and go from there.    Mary.


Good on you for being involved original.gif

I had one of those "regressing" kids - your description of this little girl's changes sound awfully like what we went through after DS turned 2, though he wouldn't scream so much as just haul us round by the arm and put our hand on what he wanted us to do for him. It can happen very quickly. I think people can blame vaccinations just if it happens their child regresses around vaccination time - in our case, it was really nowhere near, it just happened.

(BTW, my DS just started FYOS alongside of his agemates and he is GORGEOUS and I wouldn't trade him for anyone else's five year old in a million years original.gif . His autism is hard on him, but in retrospect the stress of dealing with the unknown future of what might be happening was a million times worse than just being able to get on with it and help him, once we knew what the issues were. So I hope your friend gets some good answers soon)


#15 nik_klinger

Posted 16 February 2013 - 06:58 PM

QUOTE (baddmammajamma @ 16/02/2013, 10:23 AM) <{POST_SNAPBACK}>
Loss of words and loss of skills would be major red flags for me to see a developmental paed as soon as possible.

Just to throw another possibility into the mix (with the disclaimer that I am not a doctor) -- regression in language and skills are two very common signs for autism.

Some kids with ASD don't regress -- they are born with characteristics of ASD, and those "quirks" reveal themselves over time (my daughter was like this).

Other kids are "normally developing children" until the age of 18-30 months or so, and then start to show a noticeable regression in language and other skills.

A good developmental paed will be able to look across this child's entire developmental profile to see what might be going on.

This... The story you tell is similar to an article I read about a father recounting his son's journey to autism, I think the title has something to do with horse, the boy had regressed in his language that he could no longer say the word. A beautiful account of a father's heartache and learning.

#16 baddmammajamma

Posted 16 February 2013 - 07:04 PM

Mary:

You might want to share these links (or print out the materials) for your friend to share with her sister:

http://www.firstsigns.org/healthydev/milestones.htm

http://www.firstsigns.org/concerns/if.htm

Also if you click on the link in my signature, there is some very good information about common red flags for ASD (and good resources to consult)

You are a good friend for being concerned.

ETA: Nik, the book is "When Horse Became Saw:"

http://www.penguin.com.au/products/9780143...orse-became-saw

Edited by baddmammajamma, 16 February 2013 - 07:04 PM.


#17 Superman+4sisters

Posted 16 February 2013 - 07:10 PM

There is also Rett Syndrome, where children (predominantly girls) lose their language, fine motor and some gross motor skills - this usually happens between 6 months and 2 years. Definitely encourage your friend to get her dd checked out.

#18 me-and-mini-me

Posted 16 February 2013 - 07:50 PM

Thanks so much for those links baddmammajamma.  I have just read the links, and have bookmarked them in my favourites to show my friend, including the book that you gave the name of that nik_klinger mentioned (thanks  original.gif ).  One of the things I read in the link really made an impression with me:

Another parent remembers, “I wanted to believe that nothing was wrong. My pediatrician suggested we see a specialist just to rule it out—I believe she said, “What do we have to lose?’ In retrospect, I now understand just what we would have lost if we hadn’t found out about my son’s autism at age 2. We would have lost valuable time; we would have wasted my son’s potential. Now, after three years of special interventions, my son has made more progress than if we had waited.”

I'm actually going to point that out to my friend, because she is quite involved in her sister's baby, as there is a 16 year age difference between them.

I actually googled Rett Syndrome too, and by what I read, I don't think it is, but I've bookmarked that anyway too.

And thanks too Emby for sharing your very positive story !!  biggrin.gif

Mary.






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