Jump to content

Choking in Adults
with low muscle tone HELP!!


  • Please log in to reply
14 replies to this topic

#1 trebambinibelli

Posted 13 February 2013 - 08:21 PM

Posting here for traffic....

I have a variety of health issues, one being that I have hypotonia (low muscle tone).  Over the last decade or so, I have had increasing problems with dysphagia (difficulty swallowing).  This sometimes leads to choking.  Majority of the time I can quickly cough or swallow but sometimes, like tonight, I try to clear the throat and the food just stays there.  I have to quickly get myself over a desk or table and bang myself on the back while trying to cough.  This time it only lasted about 10 sec.  A few weeks ago, it lasted at least 30 seconds or maybe more, the most terrifying 30 seconds of my life.  sad.gif

I'm so scared of this happening again but possibly losing consciousness if I can't dislodge the food in time. I've seen a speech path who said I had really weak swallowing muscles, so she gave me some exercises on a trial.  The exercises only tired out the muscles more and the choking increased so she said that is all I can do.  

I've googled but most info relates to babies choking but not adults.  I'm a single Mum so have no adult present if can't recover from the choking.  I'm at the very beginning of my dietetic studies so I'm still yet to learn about diet modifications relating to this but maybe I should ask one of my lecturers for their advice? But in the meantime, is there anyone out there that experiences the same problem - or even has older children with it?  If so, what or who helped you or your child?

Thanks for reading original.gif

#2 Mumma3

Posted 13 February 2013 - 08:27 PM

A friends husband has something similar, which last year resulted in a trip to the ED.
I can't remember the name of what he has, but he ended up seeing a dietician after also having an endoscopy (is that the one they do through the throat?) which showed scarring to his food pipe. He had had symptoms since a child, but it has got worse the last few years.
He had to go through an elimination diet, and has managed to control it by avoiding gluten and nuts. It seems to be a variation of an anaphylaxis for him, but had the potential to continue getting worse if he doesn't avoid those triggers.
HTH

#3 TillyTake2

Posted 13 February 2013 - 08:27 PM

Could you see a gastroenterologist?

#4 TillyTake2

Posted 13 February 2013 - 08:31 PM

QUOTE (Mumma3 @ 13/02/2013, 09:27 PM) <{POST_SNAPBACK}>
A friends husband has something similar, which last year resulted in a trip to the ED.
I can't remember the name of what he has, but he ended up seeing a dietician after also having an endoscopy (is that the one they do through the throat?) which showed scarring to his food pipe. He had had symptoms since a child, but it has got worse the last few years.
He had to go through an elimination diet, and has managed to control it by avoiding gluten and nuts. It seems to be a variation of an anaphylaxis for him, but had the potential to continue getting worse if he doesn't avoid those triggers.
HTH


This sounds like eosinophilic esophagitis. A gastroenterologist would be my point of call, this is what came to mind for me too. There are sometimes also surgical options if it is a muscle tone issue.

#5 trebambinibelli

Posted 13 February 2013 - 08:44 PM

Ironically I do have eosinophilic oesophagitis which was diagnosed a year ago but that causes food to become impacted in the oesophagus whereas I choke at the point where it could go either way.  The Speech path said that my throat closes over in order to prevent food going down the trachea but that doesn't help if it won't go down my oesophagus either.  The choking was thought initially to be related to EO but now the Drs, speech path etc think my choking stems from low muscle tone.

Thanks for your replies thus far original.gif

#6 Feral Nicety

Posted 13 February 2013 - 08:44 PM

You need to see a gastro ASAP.

#7 jmaz86

Posted 13 February 2013 - 08:47 PM

I agree go and see a gastro, did the speechy say anything about pureed foods and thickened fluids?

#8 Fossy

Posted 13 February 2013 - 08:55 PM

No advice on the choking, but it might be worth investing in something like a medic alert button. You push it in a medical emergency and an ambulance is dispatched. If you're the only adult present it may truly be a life saver.

#9 trebambinibelli

Posted 13 February 2013 - 09:04 PM

Thanks for replying.

QUOTE (Fossy @ 13/02/2013, 08:55 PM) <{POST_SNAPBACK}>
No advice on the choking, but it might be worth investing in something like a medic alert button. You push it in a medical emergency and an ambulance is dispatched. If you're the only adult present it may truly be a life saver.


Actually that has been mentioned for another condition I have (I said I had multiple issues lol!).  I'm starting to think that maybe I need to investigate this further.  The GP dissuaded me at the time saying that it is way too expensive.

Tilly take2, Balzac, jmaz86 - I am under a gastro because of my EO.  I am on a (very long!) waiting list for a repeat endoscopy.  He knows about my chronic choking but said it's not to do with EO as someone with EO only does not choke, just feels food trapped in their throat.  At the time I was diagnosed with EO I had an extremely elevated eosino count but no strictures.  And the speech path did not recommend texture modification for me.  She said to avoid some foods which seem to trigger the choking but it is getting to the point where I choke on something pretty much every day.

#10 Kafkaesque

Posted 13 February 2013 - 09:20 PM

On adult patients at work with dysphasia they would be on a soft diet. Has this been suggested to you?

#11 trebambinibelli

Posted 13 February 2013 - 09:32 PM

QUOTE (Kafkaesque @ 13/02/2013, 09:20 PM) <{POST_SNAPBACK}>
On adult patients at work with dysphasia they would be on a soft diet. Has this been suggested to you?


No.  No diet modifications recommended at all (apart from avoidance of those foods that mostly cause the problem, pretty much everything now!).

#12 ednaboo

Posted 14 February 2013 - 09:49 AM

The Australian Resuscitation Council Management of Airway Obstruction guidelines are to adminster 5 back blows to the upper middle of the back, then if needed, follow by 5 chest thrusts.  See here for how to do it:
ARC - Airway pgs 4 - 7
It would probably be easier to do chest thrusts to yourself than back blows.  But I agree with the PP - some sort of Medic alert system would be sensible.

#13 Therese

Posted 14 February 2013 - 10:03 AM

You do really need to discuss this with your gastro again.

Please also remember that although it is great to get people's thoughts on EB, that nothing replaces proper medical advice.

#14 trebambinibelli

Posted 14 February 2013 - 10:07 AM

QUOTE (ednaboo @ 14/02/2013, 09:49 AM) <{POST_SNAPBACK}>
The Australian Resuscitation Council Management of Airway Obstruction guidelines are to adminster 5 back blows to the upper middle of the back, then if needed, follow by 5 chest thrusts.  See here for how to do it:
ARC - Airway pgs 4 - 7
It would probably be easier to do chest thrusts to yourself than back blows.  But I agree with the PP - some sort of Medic alert system would be sensible.


Thanks ednaboo, I'll have a look at those recommendations original.gif

QUOTE (Therese @ 14/02/2013, 10:03 AM) <{POST_SNAPBACK}>
You do really need to discuss this with your gastro again.

Please also remember that although it is great to get people's thoughts on EB, that nothing replaces proper medical advice.


Yes Therese, I'm aware, hence I asked if anyone else has experienced this and how they handled this issue, not asked specifically for medical advice

#15 trebambinibelli

Posted 21 May 2013 - 10:05 PM

Hi, just thought I'd update if anyone is interested.... This morning I had a video fluoroscopy which showed eosophageal dysphagia due to slow motility.  Sometimes it took several manual swallows to get the food down.  The speech path recommended that I have only soft, nutrient/energy dense food with smaller meals, eat with a certain posture (sitting forward which I was doing anyway) and organise my children to have training in first aid, particularly how to handle someone choking.

The speech path felt that my swallowing problem is mostly related to muscular weakness (I have a genetic condition related to muscular dystrophy) and low muscle tone, and just worsened possibly by the eosinophilic oesophagitis.  At least now I know.....  

Thanks to those who gave me ideas and advice, I appreciate it.  Next step is I'm having an endoscopy in 2 weeks and need to see my GIT specialist to get a management plan.  Right now it is still somewhat 'mild' as there was no aspiration into my lungs so hopefully as long as I stick to soft food and smooth thickened liquids I should be okay.  However, it is worsening so who knows what will happen down the track.

I feel sad for my kids who have to be vigilant in case something untoward happens but it is what it is...  If nothing else, I hope this makes me a better dietitian, what better way to empathise than having to live it yourself




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

Itching for a solution to eczema

Around 30 per cent of children live with eczema every day. A dad shares his son's story and gets advice from an expert.

Video: The challenges and joys of making new mum friends

This hilarious video shows how making new mum friends can be awkward - but reassures that it is possible.

That's my boy: a dad's diary of the first 4 months

Unbearable anxiety, unspeakable joy, constant exhaustion and bouts of frustration ... The many shocks of first-time fatherhood resound in a dad's diary of his son's early months.

Bring the outdoors in with a play camper tent

Don't let rainy days stop your kids from enjoying the outdoors - let their imagination run wild inside with this pretend camper tent.

No, we are not using our babies as an excuse to be 'fat and lazy'

A Sydney personal trainer has made a series of abusive and shaming comments directed at new mums. This is what I'd like him to know.

Conjoined twins' memorials destroyed

The grieving parents of conjoined twins Hope and Faith have been left devastated by the actions of heartless thieves.

Baby Gammy's mum won't get a cent of donated funds

The charity overseeing the donations made to baby Gammy has confirmed that the donated funds will go wholly towards the baby's medical expenses, not to his mother.

Keep your iPad safe with a kid friendly case

The Clever Case for Clumsy Hands is practical and easy to use, protecting your iPad from the bumps and drops it experiences in the hands of small children.

Losing yourself to motherhood

While watching your baby grow into a unique little person is exciting and wondrous, the intensity of meeting everyone else?s needs can ever so sneakily overtake your own needs for self-care.

Fun nursery and playroom wall art

This Etsy store offers a large range of of vintage and retro-inspired pieces in a variety of sizes.

The question no mum of a singleton needs to hear

Most people ask out of curiosity and not animosity, but it doesn?t stop me feeling irritated by its tone. And it doesn't help me make up my mind either way.

8 things my dad taught me about parenting

He taught me to question, to see the world beyond my own bubble and to stand up for those who are unable to defend themselves.

One of the most important things a new mum can do

Finances may not be as cute as a newborn, but with many women?s working arrangements changing post-baby, monetary matters need attention too.

When newborn baby shoots go wrong

As the classic book says, everyone poops. But not everyone has such exquisite timing as Al Ferguson's newborn son, Ted.

When a friend's baby joy is a painful reminder

It can be difficult to celebrate other people's pregnancies when you are struggling to conceive.

Dad's amazing videos with his action hero son

What do you get when you combine a dad with awesome animation/CGI skills, his enthusiastic son, a bit of spare time and a camera?

Claire Danes admits to sometimes feeling 'trapped' by motherhood

Claire Danes has admitted that sometimes she has felt trapped by motherhood and the responsibility that it brings.

What financial abuse looks like

It leaves no physical signs, except maybe the signs of a woman who can?t eat because she has to choose between feeding herself and feeding her children. It?s financial abuse.

Man who created ice bucket challenge a new dad

The 29-year-old man who inspired the world to raise millions of dollars for ALS now faces a different kind of challenge: parenthood.

Baby girl for Scarlett Johansson

Actress welcomes her first child with fiance Romain Dauriac.

5 sleep school myths busted

There are few things that polarise a group of mothers like the two little words ?sleep school?.

Bop Along Buddies bouncing into business success

An Australian entrepreneur and mum of two is taking the children's toy market by storm with this fun bouncer.

Remembering Logan: the dangerous world of unregulated daycare

In parts of America, daycare workers are not required to have a state license to care for children. One couple wasn't aware of the right questions to ask potential carers and government officials - and have paid a tragic price.

Home alone with a newborn

It?s my husband?s first day back at work after paternity leave and my first full day alone with our baby. I have nowhere to be and everything to do.

Download now: Essential Kids Activity Finder app

Got bored kids? Quickly find the best activities for kids wherever you are in Australia with the Essential Kids app.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Special offer: The Baby & Toddler Show 2014

At The Baby & Toddler Show, you?ll find everything you need to get ready for your new arrival and guide you through the early weeks and years of parenting.

Win a House of Magic prize pack

To celebrate the release of the new movie House of Magic, we have 10 double passes and magic sets to give away just in time for these school holidays. Enter Now for a chance to win!

Win a Dress Up Attack Family Pass

Sydney's music festival for kids and grown ups this weekend, and we have a family pass to giveaway. Enter Now - entries close Thursday 11th September!

Win back some precious time and get FREE coupons

Membership to eBay's Bubs? Corner is free and includes a $10 coupon to spend on nappies each month - a win for multitasking mums!

Losing yourself to motherhood

While watching your baby grow into a unique little person is exciting and wondrous, the intensity of meeting everyone else?s needs can ever so sneakily overtake your own needs for self-care.

Tearing during delivery: the facts

Almost all women will experience bruising, grazing or tearing after a vaginal birth. Depending on the degree of tearing, there are various treatments available.

6 tips for a day out with a baby and toddler

Outings can be lots of fun with the kids, but there are inevitable challenges. Here's some information about days out to help you be a little more prepared.

Why I invited a dozen people to watch my son's birth

I sent invitations on burgundy scrapbooking paper stamped with a field of poppies, and told each person why I wanted him or her there. I warned that there would be nudity.

Getting labour started: tips for a natural induction

When your baby?s due date comes and goes without so much as a pop - let alone a bang - it can be disheartening. Mums and a doula share their stories of natural inductions.

7 mistakes old hands make with new babies

As I sat across the table from my friend ? me, a seasoned mother of three; her, a brand new mum ? I thought of all the mistakes an old-hand parent can make when visiting a newborn baby.

That's my boy: a dad's diary of the first 4 months

Unbearable anxiety, unspeakable joy, constant exhaustion and bouts of frustration ... The many shocks of first-time fatherhood resound in a dad's diary of his son's early months.

One of the most important things a new mum can do

Finances may not be as cute as a newborn, but with many women?s working arrangements changing post-baby, monetary matters need attention too.

Mum blasted for breastfeeding on train

Breastfeeding may be legal everywhere in Australia - yes, even on public transport - but that doesn't stop the complaints, as a mum learnt.

Personalised baby gifts

We've scoured the internet to find gorgeous personalised keepsakes and nursery decor to record baby name and dates. They make great gifts for christenings, name days and birthdays! (All prices in AU.)

 

Reader offer

2 FOR 1 TICKET OFFER

For Shopping, For Advice, For Baby & You. Enjoy a special day out with fabulous shopping from over 200 brands, leading parenting experts offering advice on a range of topics, and amazing children?s entertainment

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.