Jump to content

Choking in Adults
with low muscle tone HELP!!


  • Please log in to reply
14 replies to this topic

#1 trebambinibelli

Posted 13 February 2013 - 08:21 PM

Posting here for traffic....

I have a variety of health issues, one being that I have hypotonia (low muscle tone).  Over the last decade or so, I have had increasing problems with dysphagia (difficulty swallowing).  This sometimes leads to choking.  Majority of the time I can quickly cough or swallow but sometimes, like tonight, I try to clear the throat and the food just stays there.  I have to quickly get myself over a desk or table and bang myself on the back while trying to cough.  This time it only lasted about 10 sec.  A few weeks ago, it lasted at least 30 seconds or maybe more, the most terrifying 30 seconds of my life.  sad.gif

I'm so scared of this happening again but possibly losing consciousness if I can't dislodge the food in time. I've seen a speech path who said I had really weak swallowing muscles, so she gave me some exercises on a trial.  The exercises only tired out the muscles more and the choking increased so she said that is all I can do.  

I've googled but most info relates to babies choking but not adults.  I'm a single Mum so have no adult present if can't recover from the choking.  I'm at the very beginning of my dietetic studies so I'm still yet to learn about diet modifications relating to this but maybe I should ask one of my lecturers for their advice? But in the meantime, is there anyone out there that experiences the same problem - or even has older children with it?  If so, what or who helped you or your child?

Thanks for reading original.gif

#2 Mumma3

Posted 13 February 2013 - 08:27 PM

A friends husband has something similar, which last year resulted in a trip to the ED.
I can't remember the name of what he has, but he ended up seeing a dietician after also having an endoscopy (is that the one they do through the throat?) which showed scarring to his food pipe. He had had symptoms since a child, but it has got worse the last few years.
He had to go through an elimination diet, and has managed to control it by avoiding gluten and nuts. It seems to be a variation of an anaphylaxis for him, but had the potential to continue getting worse if he doesn't avoid those triggers.
HTH

#3 TillyTake2

Posted 13 February 2013 - 08:27 PM

Could you see a gastroenterologist?

#4 TillyTake2

Posted 13 February 2013 - 08:31 PM

QUOTE (Mumma3 @ 13/02/2013, 09:27 PM) <{POST_SNAPBACK}>
A friends husband has something similar, which last year resulted in a trip to the ED.
I can't remember the name of what he has, but he ended up seeing a dietician after also having an endoscopy (is that the one they do through the throat?) which showed scarring to his food pipe. He had had symptoms since a child, but it has got worse the last few years.
He had to go through an elimination diet, and has managed to control it by avoiding gluten and nuts. It seems to be a variation of an anaphylaxis for him, but had the potential to continue getting worse if he doesn't avoid those triggers.
HTH


This sounds like eosinophilic esophagitis. A gastroenterologist would be my point of call, this is what came to mind for me too. There are sometimes also surgical options if it is a muscle tone issue.

#5 trebambinibelli

Posted 13 February 2013 - 08:44 PM

Ironically I do have eosinophilic oesophagitis which was diagnosed a year ago but that causes food to become impacted in the oesophagus whereas I choke at the point where it could go either way.  The Speech path said that my throat closes over in order to prevent food going down the trachea but that doesn't help if it won't go down my oesophagus either.  The choking was thought initially to be related to EO but now the Drs, speech path etc think my choking stems from low muscle tone.

Thanks for your replies thus far original.gif

#6 Acidulous Osprey

Posted 13 February 2013 - 08:44 PM

You need to see a gastro ASAP.

#7 jmaz86

Posted 13 February 2013 - 08:47 PM

I agree go and see a gastro, did the speechy say anything about pureed foods and thickened fluids?

#8 Fossy

Posted 13 February 2013 - 08:55 PM

No advice on the choking, but it might be worth investing in something like a medic alert button. You push it in a medical emergency and an ambulance is dispatched. If you're the only adult present it may truly be a life saver.

#9 trebambinibelli

Posted 13 February 2013 - 09:04 PM

Thanks for replying.

QUOTE (Fossy @ 13/02/2013, 08:55 PM) <{POST_SNAPBACK}>
No advice on the choking, but it might be worth investing in something like a medic alert button. You push it in a medical emergency and an ambulance is dispatched. If you're the only adult present it may truly be a life saver.


Actually that has been mentioned for another condition I have (I said I had multiple issues lol!).  I'm starting to think that maybe I need to investigate this further.  The GP dissuaded me at the time saying that it is way too expensive.

Tilly take2, Balzac, jmaz86 - I am under a gastro because of my EO.  I am on a (very long!) waiting list for a repeat endoscopy.  He knows about my chronic choking but said it's not to do with EO as someone with EO only does not choke, just feels food trapped in their throat.  At the time I was diagnosed with EO I had an extremely elevated eosino count but no strictures.  And the speech path did not recommend texture modification for me.  She said to avoid some foods which seem to trigger the choking but it is getting to the point where I choke on something pretty much every day.

#10 Kafkaesque

Posted 13 February 2013 - 09:20 PM

On adult patients at work with dysphasia they would be on a soft diet. Has this been suggested to you?

#11 trebambinibelli

Posted 13 February 2013 - 09:32 PM

QUOTE (Kafkaesque @ 13/02/2013, 09:20 PM) <{POST_SNAPBACK}>
On adult patients at work with dysphasia they would be on a soft diet. Has this been suggested to you?


No.  No diet modifications recommended at all (apart from avoidance of those foods that mostly cause the problem, pretty much everything now!).

#12 ednaboo

Posted 14 February 2013 - 09:49 AM

The Australian Resuscitation Council Management of Airway Obstruction guidelines are to adminster 5 back blows to the upper middle of the back, then if needed, follow by 5 chest thrusts.  See here for how to do it:
ARC - Airway pgs 4 - 7
It would probably be easier to do chest thrusts to yourself than back blows.  But I agree with the PP - some sort of Medic alert system would be sensible.

#13 Therese

Posted 14 February 2013 - 10:03 AM

You do really need to discuss this with your gastro again.

Please also remember that although it is great to get people's thoughts on EB, that nothing replaces proper medical advice.

#14 trebambinibelli

Posted 14 February 2013 - 10:07 AM

QUOTE (ednaboo @ 14/02/2013, 09:49 AM) <{POST_SNAPBACK}>
The Australian Resuscitation Council Management of Airway Obstruction guidelines are to adminster 5 back blows to the upper middle of the back, then if needed, follow by 5 chest thrusts.  See here for how to do it:
ARC - Airway pgs 4 - 7
It would probably be easier to do chest thrusts to yourself than back blows.  But I agree with the PP - some sort of Medic alert system would be sensible.


Thanks ednaboo, I'll have a look at those recommendations original.gif

QUOTE (Therese @ 14/02/2013, 10:03 AM) <{POST_SNAPBACK}>
You do really need to discuss this with your gastro again.

Please also remember that although it is great to get people's thoughts on EB, that nothing replaces proper medical advice.


Yes Therese, I'm aware, hence I asked if anyone else has experienced this and how they handled this issue, not asked specifically for medical advice

#15 trebambinibelli

Posted 21 May 2013 - 10:05 PM

Hi, just thought I'd update if anyone is interested.... This morning I had a video fluoroscopy which showed eosophageal dysphagia due to slow motility.  Sometimes it took several manual swallows to get the food down.  The speech path recommended that I have only soft, nutrient/energy dense food with smaller meals, eat with a certain posture (sitting forward which I was doing anyway) and organise my children to have training in first aid, particularly how to handle someone choking.

The speech path felt that my swallowing problem is mostly related to muscular weakness (I have a genetic condition related to muscular dystrophy) and low muscle tone, and just worsened possibly by the eosinophilic oesophagitis.  At least now I know.....  

Thanks to those who gave me ideas and advice, I appreciate it.  Next step is I'm having an endoscopy in 2 weeks and need to see my GIT specialist to get a management plan.  Right now it is still somewhat 'mild' as there was no aspiration into my lungs so hopefully as long as I stick to soft food and smooth thickened liquids I should be okay.  However, it is worsening so who knows what will happen down the track.

I feel sad for my kids who have to be vigilant in case something untoward happens but it is what it is...  If nothing else, I hope this makes me a better dietitian, what better way to empathise than having to live it yourself




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

Ada Nicodemou: 'I can never be completely happy again'

Home and Away actress Ada Nicodemou has opened up about the loss of her stillborn baby.

10 things to consider when you're thinking about trying for a baby

Before you start tracking your menstrual cycle and reading up on the best positions to get pregnant, there are a few other things you may want to consider.

Baby Gammy's dad tries to claim charity money

The biological father of baby Gammy has reportedly tried to access charity money raised for the little boy's medical costs.

How special surgery and IVF can create a post-vasectomy baby

Cricket legend Glenn McGrath and his second wife Sara are expecting their first child together, thanks to IVF and a delicate surgical sperm retrieval process that helped the couple to conceive.

Belle Gibson's mother 'disgusted and embarrassed'

The mother of disgraced wellness blogger Belle Gibson has accused her daughter of lying about her childhood in an attempt to garner public sympathy.

Life On Mars

It's men who need 'retraining', not women

We are all responsible for our own behaviour. Telling victims to harden up is wrong.

Doctor's mobile phone 'left inside c-section mum'

A new mum claims a doctor left his mobile phone inside her after delivering her baby via caesarean section.

I'm a mum and I'm following my dreams

I want my kids to know that no matter what happens in life, you can still be who it is that you've always wanted to be.

Those first daycare days

I had this innate 'mum' moment the other day.

'If one person had listened, my life would have been so different'

Katherine's father will die in prison for the horrifying sexual abuse of his daughter. Yet she is the one with the true life sentence.

Couple to celebrate terminally ill baby's birthday in unique way

Baby Jai Bishop has lived at Starship Hospital for the past seven months, with his parents flying back and forth from Hokitika, 1100km away, to be by his side.

This new plan undermines breastfeeding and baby health at everyone's expense

Mothers, babies, the health system and the wider society are going to pay the price of this new budget.

Trying to understand why your baby is upset

Working out what?s underlying your baby's fussiness can be a case of trial and error. Here are a few common causes and how you can remedy each one.

When those you love judge your parenting

In today's society, never has it been harder to parent without judgment. But what about when judgment is coming from closer to home?

Don't play the victim blame game with family violence

It's not a woman's job to teach violent men how to behave.

11 truths about having two under two

When I told my mothers? group that my husband and I had started trying for our second baby they told me I was crazy. Now I can see why.

'How do you say goodbye to someone you've only just started to get to know?'

New mum Sarah Sutton was faced with a shattering scenario no person should have to endure.

It's a ... boy! Couple welcomes son number 13

"It's a boy!" That's the phrase Kateri Schwandt has heard in labour delivery ward for the 13th time in her life.

Six reasons to go for a walk

Can't find time to get to the gym? It could be just as beneficial to put your baby in the stroller and go for a walk.

Seven questions you should be asking about your health cover

If the last time you assessed your health cover was five years ago, there?s a chance it may no longer suit your needs. To ensure it?s still right for your family, click here for seven questions to ask.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

How to use gas effectively in labour

Many women in labour don't use gas effectively and suffer more side effects than benefits. Here's how to get the most out of this pain relief option.

'He has gastro but that's okay, right?': sick kid etiquette

We cannot place all children who are sick in a bubble till they recover, but we can give other parents a choice about exposing their kids to them.

Ada Nicodemou: 'I can never be completely happy again'

Home and Away actress Ada Nicodemou has opened up about the loss of her stillborn baby.

10 things to consider when you're thinking about trying for a baby

Before you start tracking your menstrual cycle and reading up on the best positions to get pregnant, there are a few other things you may want to consider.

How special surgery and IVF can create a post-vasectomy baby

Cricket legend Glenn McGrath and his second wife Sara are expecting their first child together, thanks to IVF and a delicate surgical sperm retrieval process that helped the couple to conceive.

Belle Gibson's mother 'disgusted and embarrassed'

The mother of disgraced wellness blogger Belle Gibson has accused her daughter of lying about her childhood in an attempt to garner public sympathy.

Doctor's mobile phone 'left inside c-section mum'

A new mum claims a doctor left his mobile phone inside her after delivering her baby via caesarean section.

I'm a mum and I'm following my dreams

I want my kids to know that no matter what happens in life, you can still be who it is that you've always wanted to be.

Those first daycare days

I had this innate 'mum' moment the other day.

'If one person had listened, my life would have been so different'

Katherine's father will die in prison for the horrifying sexual abuse of his daughter. Yet she is the one with the true life sentence.

This new plan undermines breastfeeding and baby health at everyone's expense

Mothers, babies, the health system and the wider society are going to pay the price of this new budget.

Couple to celebrate terminally ill baby's birthday in unique way

Baby Jai Bishop has lived at Starship Hospital for the past seven months, with his parents flying back and forth from Hokitika, 1100km away, to be by his side.

Life On Mars

It's men who need 'retraining', not women

We are all responsible for our own behaviour. Telling victims to harden up is wrong.

Baby Gammy's dad tries to claim charity money

The biological father of baby Gammy has reportedly tried to access charity money raised for the little boy's medical costs.

Where are the childcare places?

It?s all very well to encourage women to work if they choose to, but how can the measures lead to increased workforce participation when women are once again left holding the baby?

The pain of not having babies and not knowing why

After seven years of wishing, hoping, crying, punching pillows and shouting "why me?!", the end result is more than I ever thought possible.

Getting your family finances in order

Whether you're after a new car for a growing family, a bigger house, or are just fixing up your finances, here are the basics on borrowing.

Mum shares graphic selfie to warn against tanning

A mum has shared a graphic photo of her skin cancer treatment as a warning to others.

Does parenthood make us happier?

We can certainly gain higher levels of happiness when we become parents, but the trick is to not get overwhelmed by the pressures of raising our kids.

No, having a dog is not like having a human child

It's obvious these people dote on their pets, but they're barking up the wrong tree.

 

Top baby names

Baby Names

The numbers are in and we can now bring you the 2014 top baby name list for Australia.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.