Jump to content

ENDOCOMPRESIS
What works??? TMI


  • Please log in to reply
19 replies to this topic

#1 Lightning_bug

Posted 10 February 2013 - 09:32 PM

I know this is the wrong area but I'm desperate for traffic.

My son has been diagnosed with endocompresis.  I'm absolutely horrified with how constipated his is.  We're talking a lot of poo.

We've been given a stool softner and micro-enema thing but even with the application of these, nothing has moved.

I'm angry and frantic at the same time.  Angry because we visited so many doctors over the years and they've all been so blaise about it, dismissing us with the old 'give him more fibre and water' without really investigating why at 6 he is still soiling his pants.

So, has anyone been there and done that?  What can we do to help him?

#2 JuliaGulia

Posted 10 February 2013 - 09:33 PM

You need to send Balzac a message.  She's the poo expert around here original.gif

#3 Lightning_bug

Posted 10 February 2013 - 09:35 PM

Thanks Julia.  Did one of her children have endocompresis?


#4 JuliaGulia

Posted 10 February 2013 - 09:39 PM

If you do a post search you will find lots of info from her.  She really does know what she's talking about, and has given heaps of advice to other mums in the same situation as you.

So sorry for your son.

#5 Taystee

Posted 10 February 2013 - 09:39 PM

Jus FYI it's encopresis original.gif

And I am sorry that it's taken so long to get answers.

I am sure other people with personal experience will be in soon, but just know that it will take a lot of laxatives and a long time to get your little one into a nice healthy bowel routine. ie months- years. That's not to say you won't see an improvement in a matter of weeks, but lots of bowel retraining needs to happen.

This is a very basic starting point http://www.rch.org.au/kidsinfo/fact_sheets/Constipation/

http://raisingchildren.net.au/articles/enc...tml/context/556

Good luck xx

#6 Lightning_bug

Posted 10 February 2013 - 09:46 PM

Thanks Stan, Google's autofind has always given me what I've wanted with the wrong spelling.  lol.

I worry about giving him so many laxatives.  It's just a horrible thing to be intentionally pumping your child with.

And that horrible stool softening stuff.

I hate making him cry.

#7 luke's mummu

Posted 10 February 2013 - 10:00 PM

My son doesn't have you son's condition, but he does have chronic constipation secondary to refusing to eat and veges at all, and minimal fruits.

He is on Movical Junior every 2nd day, for the last 2 years. Initially we tried drinking it straight, he couldn't handle the taste. Now we mix with apple juice, or milo and milk. Neither of which is idea, but at least he drinks it. Really trial and error to see what your son can tolerate.

Hope you get some great advice here.

#8 Feral Nicety

Posted 11 February 2013 - 01:38 PM

Movicol needs to be given in clear liquids to be most effective.  Osmolax works just as well in milk as in clear liquids.

#9 TheGreenSheep

Posted 11 February 2013 - 01:57 PM

Whilst DS2 3yr 8m doesnt have encopresis, he has a slow gut. Despite eating plenty of veg and fruit, high fibre breads, water, he just doesnt go! Same diet and DS1 goes all the time, different bodies, different gut.

I got heaps of advice from reading though threads related to soiling and holding on (thats what DS2 was doing). Balzac knows her stuff! Something I took away from them was the importance of routine and sitting on the toilet till empty, plus never let them block up! Ever!

So since then has movicol-half everyday. He has it with apple juice every morning before his brekky. We then head straight to the toilet and he sits with an ipad till hes empty. So far its worked.

We have had reductions in dose, blocked up within 2 days. Back to square 1. We have changes in routine, blocks up in 2 days. Back to square 1. And then starts the toilet refusal. Pooing in his night nappy. We arent confident to start night toilet training in any way until we are on top of it. I dont know when Ill reduce the movicol again, but we are not in any hurry.

OP goodluck.

#10 Carabosse

Posted 11 February 2013 - 02:06 PM

A great paed who knows their 'poo', Parachoc, regular routine and 'sitting' and most importantly time and a whole lot of patience because they really can't help the accidents. They don't know it is happening. It won't disappear overnight because they have to retrain their bowels and this can take months.

My eldest took about 6mnths. She wasn't bad but we had a little kit packed in her school bag (plastic ziplock bags, fresh undies and flush-able wipes) which she had to use at school 2 times in 6 months. She managed her condition pretty well through first year of school. (I was petrified!) We are now out the other side thank goodness.

Good luck!

Edited by Carabosse, 11 February 2013 - 02:07 PM.


#11 Kay1

Posted 11 February 2013 - 02:27 PM

Osmolax is a winner here. DS! was utterly traumatised by my attempts to give him Movicol. He won't drink juice so I put Osmolax in his milk. Good luck, its a difficult thing to deal with.

#12 EssentialBludger

Posted 11 February 2013 - 03:03 PM

We had the most success with actilax and parachoc. Movicol and osmolax did nothing.

#13 Feral Nicety

Posted 11 February 2013 - 03:36 PM

The macrogols, movicol and osmolax, do do something--it just can be very slow if they are all you are using.  They soften the stool but if the bowel is very baggy, the stool can just sit there with no impetus to leave.  If they are not working, following up with bisacodyl drops or another laxative will help.

Actilax and parachoc are a stool softener and a laxative so it's the same principle where you are softening the stool and then stimulating the bowel to get moving.

#14 Quack Quack

Posted 11 February 2013 - 03:54 PM

I have a son who has suffered with Encopresis for the last 3 years, we went for 2 solid years where he never pooed on his own.... ever.  It was 4 - 5 enemas per week, just to keep it under some type of control

We had an admission to hospital late last year for severe constipation, his bowel was completely impacted and he needed a hospital strength enema along with a naso- gastric tube to clear him out from the top end.

It was horrific, I won't lie, having to go through that BUT since then he has been able to poo on his own!
He still needs to be told to poo, he won't choose to go to the toilet on his own but when I tell him to go he does and most times will poo on his own.

there is an end to it, most children grow out of it when they are around 8 years old, we were on a regime of parachoc & movicol for a little while after the hospital trip... but since then he has managed on his own and we haven't any further blockages.



#15 misseb

Posted 16 February 2013 - 04:41 PM

My nephew suffered with this for the past 3 years.  He was on microlax and that didn't help. After years of frustration it was suggested by a naturopath to look at his diet. After some trial and error with diets it has just been discovered that the constipation was caused by some vegetables - in particular broccoli & cauliflower. So far it has been 8 weeks without of those vegetables and 8 weeks without any constipation. He still had accidents for the first few weeks - due to a fear of it hurting like it had before. But so far 6 weeks in things seem to have done the trick.

I am not saying this is the problem, but another thing worth investigating. I can "hear" your frustration in your post and feel for you. Good Luck.

#16 CharliMarley

Posted 16 February 2013 - 04:51 PM

Suppositries (sp?) and getting them to sit on the toilet at a certain time of the day, everday at the same time, will make it a lot better. It does take years to cure though and once they are at school it is very embarrassing for them.

#17 Feral Nicety

Posted 16 February 2013 - 04:56 PM

Diet is worth looking at--the usual culprits are dairy, wheat and soy.

Suppositories are a very oldfashioned way of dealing with encopresis and would actually be of no help whatsoever in helping the bowel empty as they only act on the rectum.  On their own, they are fairly useless.

#18 Romeo Void

Posted 16 February 2013 - 05:22 PM

My DS (aged 4.5) has it, we've been struggling for probably a year now but are starting to see results in the last 2 months.  It's taken all my intuition, all my energy to keep on top of it and get us to the point we are now (he previously would point blank REFUSE to go, deliberately sitting on the floor to force the sensation to push to go away) are getting spontaneous poo's from him sometimes.  

Our Dr suggested that a good 'benchmark' would be to get him to go no longer than 3 days between poo's if possible to help his bowel get back into a normal state (his poo would come out shaped like an orange).  We keep a little diary on the fridge and mark down any days he poo's, we draw a rough diagram of how big it was, any leaks he has and if we needed to use any meds and when.  Keeping the chart means that DH and I are a team and both can see what is going on.  This may horrify some people but we've had lots of success with letting DS run around naked and letting him poo on the grass.  May not work for some but my DS seems to like being naked and I guess it makes it spontaneous.

Best of luck, it's a draining thing to have to deal with.

#19 Feral Nicety

Posted 16 February 2013 - 05:33 PM

The Bristol Stool Scale is very useful for record keeping.

http://en.wikipedia.org/wiki/Bristol_stool_scale

#20 mummydo

Posted 18 February 2013 - 01:02 PM

sorry no answers for you but i can sympathise as my 5yr dd has the same thing.
we are currently seeing paed who has her on osmolax once a day and see takes benefibre. he just keeps saying it take alot of time. My dd has never been constipated it stems from a fear of pooing and holding back in the past couple of years. she now has smears in undies 1 to 2 per day and never initiates toileting. it is sooooo frustrating esp as there is nothing i can do. i just want to scream and yell at her but it will only make things worse. I believe she knows she needs to go she just holds it in and cant hold it all in.
she has just started school and it makes me nervous every day (so far its ok she goes as soon as she gets home) she is also extremely shy and wont tell the teacher she has done it. I had to warn the teacher in case she smells it (soo embarassing)
anyway good luck with it all its so hard to go through with your child.




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

Share the little things that make you smile

We're giving away a Mountain Buggy nano, the ultimate travel stroller - and here are some of the great entries so far.

Toddler pleads for return of "stolen" nose

A two-year-old's reaction to a game of "got your nose" shows it doesn't take much to make a toddler cry.

The 15 photos new parents share (and five they don't)

From the first scan photo to the baby covered in cake at their first birthday party, there are 15 photos most parents seem to share - and some they don't.

Doctor sings first Happy Birthday to newborns

His job is to deliver babies, but this US obstetrician also has a unique way of celebrating the miracle of life.

Breastfeeding friendly café goes viral

A photo of a breastfeeding-friendly sign in a cafe has been posted to Facebook and shared by hundreds of mums around the world.

First look at the Bugaboo Bee3

The newest Bugaboo Bee ? the Bee3 ? offers a variety of improved features, including a much asked-for bassinet and a rainbow of colour combinations.

Childcare costs, not paid leave, the real issue for parents

Given the choice between maintaining their wage for six months to have a child, or having a reduced rate of pay for a time but a better deal on childcare when returning to work, there are no odds on what most working parents would choose.

Win a Mountain Buggy nano

We?re giving away the new Mountain Buggy Nano - the lightweight travel buggy! So show us the little things that make you smile for your chance to win.

We lost three babies in two years

Our first pregnancy ended the way we all expected it to - with a healthy, happy baby in our arms. What a true blessing he was, for we were not to know the heartache we were about endure.

Family turned back from doomed flight MH17

'There must have been someone watching over us and saying, 'You must not get on that flight,' says mother who narrowly avoided boarding the Malaysian Airlines flight which exploded in mid-air over the Ukraine last night.

The myths and facts about "normal" breastfeeding

When it comes to successful breastfeeding, there is a wide variety to what is "normal", according to new research.

Adorable Skeanie loafers for kids

Your little toddler or preschooler can now get their nautical on with a new range of classic loafers by Australian show brand Skeanie.

My baby is hypermobile

For months, I have been telling myself not to worry that Jasmin isn't crawling or walking. This week I heard the term hypermobile for the first time.

When you don?t bond with your baby

They say that there is no bond greater than the bond between a mother and her child. But for some women, the mother-baby bond takes more time and effort to develop.

Yumi Stynes: Having a baby after a 10-year break

After a long break, Yumi Stynes gets a reminder of the pain - and the pleasure - of giving birth.

Grieving father asks for help to Photoshop his daughter's image

When Nathan Steffel's daughter Sophia died from a liver condition at just 6 weeks old, he reached out for someone to create a beautiful image of his little girl.

Raising kids in a 'low media' home

Can you imagine a life without TV or computers? Some parents are opting for a low-tech, screen-free life for their kids.

Download now: Essential Kids Activity Finder app

Got bored kids? Quickly find the best activities for kids wherever you are in Australia with the Essential Kids app.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Win a Mountain Buggy nano

We?re giving away the new Mountain Buggy Nano - the lightweight travel buggy! So show us the little things that make you smile for your chance to win.

Be careful what you say, your baby is listening

The importance of speaking to your baby even if they are not old enough to answer back has been highlighted by new research.

WIN two Sea-Bands plus $1000

Three lucky fans can win a Sea-Band Prize Pack valued at over $1000 each, which includes two Sea-Bands plus a $1000 Eftpos Gift Card!

The beautiful moment a baby was born at the side of a road

It's not where she expected to give birth, but mum Corrine Cinatl is delighted that her daughter's roadside arrival was captured in a series of beautiful photos.

Doctor sings first Happy Birthday to newborns

His job is to deliver babies, but this US obstetrician also has a unique way of celebrating the miracle of life.

The Nappy Collective starts new drive

It's that time of year when the dedicated volunteers at The Nappy Collective do their bit to help out mums and children in need - and they need your help.

Baby shower cake wrecks

From misshapen cake babies to questionable text, from odd colour choices to internal organ recreation, these are the baby shower cakes that taste forgot.

Photographer captures the beauty of adoption

The love of a family is usually tough to capture on camera. This is an exception.

Pregnancy progression photo ideas

Want to record your pregnancy as your belly grows? Here are some creative, fun ideas for photo shoots along the way.

The myths and facts about "normal" breastfeeding

When it comes to successful breastfeeding, there is a wide variety to what is "normal", according to new research.

Tin can craft and DIY ideas

Got a few old formula, Milo or coffee cans around the house? Use these fantastic upcycling ideas to create items for around the house and yard.

Dads meet their newborn for the first time

Emotional photos of two fathers meeting their newborn son have resonated with viewers worldwide, attracting thousands of Facebook likes and shares.

Skin safety isn't just a summer worry

Lax about the slip slop slap with your kids as weather turns cooler? Here's a reminder as to why we have to remain vigilant for our children?s future health.

Personalised baby gifts

We've scoured the internet to find gorgeous personalised keepsakes and nursery decor to record baby name and dates. They make great gifts for christenings, name days and birthdays! (All prices in AU.)

Creative sleeping baby photoshoots

See how some parents and photographers have captured sleeping babies in unusual positions and using different props.

DIY kitchen and food hacks

DIY your way to a better kitchen and make cooking easier with our clever hacks. (Some content reproduced with permission from mashable.com.)

Winter warmers for babies and toddlers

Your baby or toddler will be nice and snug in these beautiful and fun winter pieces. Most are hand-made or knitted, and they're all designed to keep your little one toastie - and adorable!

 

Mind, body, beauty, life

Making time for me

We look at your wellbeing, covering health, relationships, beauty and fashion, mind and body.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.