Jump to content

TTC with Endometriosis and Adenomyosis
Anyone else in a similar boat?

  • Please log in to reply
4 replies to this topic

#1 Shayde Artell

Posted 07 February 2013 - 12:19 PM

Hi All,
I'm new to this forum but thought it would be the best way to find a good support group of women undergoing similar challenges.
I'm 29 years old (30 next month) and I was diagnosed with endometriosis when I was about 23 and have had a total of 3 laparoscopies since. I had a mirena iud inserted when I had my first operation and each time I've had one its been replaced. My last laparoscopy was in November 2012 where I also discovered that I have adenomyosis which explains why my pain has progressively been worse to the point that I cannot get out of bed most days due to extreme pain. At the start of January this year I had my mirena removed so that my parter and I can try for a family and I'd love to hear some positive stories from other women that have gone through something similar, I am currently trying anything possible to increase my health and my chances of conceiving...I have compiled a list below

  • Weekly acupuncture/ Chinese medicine
  • Weekly chiropractor/kinesiologist
  • Daily yoga and meditation
  • A total of 18 natural herbs every morning and night

As a side note AF has not reared her ugly head since having the mirena removed but I know that I ovulated 15 days ago (im very in tune with my body) and I keep getting extreme cramping expecting for the flood gates to open but still nothing!
Is there anyone here who has conceived with endometriosis and adenomyosis?
How long did it take for AF to return after mirena removal?
Apologies for the novel! wacko.gif

#2 AllyK81

Posted 07 February 2013 - 12:56 PM

Hi Shayde - there is an EBer who I think has similar health issues - MrsLexieK. She is in the May DIG. Good luck!

If you O'd 15 days ago and no AF, might be worth POAS!

#3 MrsLexiK

Posted 07 February 2013 - 01:57 PM

Hi Shayde.  Short answer yes it is possible, long answer read below original.gif

I have endo, adeno and PCOS original.gif I was dx with endo when I was young and adeno when I was 21 (at the time all my endo had been removed, nerves cut etc it was basically a process of elimination). My endo was removed twice and Aug 2011 I started charting (but not TTC) in Dec when it appared I was not getting any ovulation I had a check up with my gyno. (I had come off the pill in the April 2011 as it really wasn't helping and I did not want to try the mirena at that stage as we were heading down the path of TTCing.) He did some tests to make sure I was ovulating and even though temp wise and OPK wise it didn't appare that I was, I actually was. My issue was my pain had gotten progressivly worse as well, my gyno wasn't sure if it was the endo that was returning or if the adeno was getting worse. Or a combination of the two. We tried for Dec and Jan (and by accident Nov) but I got WC and both my GP and gyno advised me to not try until I was better (I was really sick for 3 months, and sort of better by May.) We then started trying again in May, June, July, Aug and in Sept we got our BFP!!!! So really there was only 6 months of TTCing and that is fantastic for healthy couple of our ages.  It is believed that I had a chemical preg in January, more so now that I have been pregnant and gone through those symptons again.

I did have a subchronic haemotoma (which I understand was most probably due to the adeno, as I know it is common for you to fertilise but difficult for implantation, and a common theory for subchronic haemotoma is where the baby has implanted somewhere and then come away and then implanted in another spot.) I did bled a bit durning my early stages, and now I am having pain which is like my period (that constent pain in your uterus that you feel due to the adeno) However I know many ladies with adeno that have had this pain throughout the pregnancy.  

My adeno was "lucky" in that I was only about a 2 month at most 3 month looking women, so it was not as advanced as other ladies I know.  I do wonder if this is one of the reasons though that I have basically experienced reflux from 16 weeks on wards and why my uterus appares to be sitting much higher then it should be for stage I am at (as in right under my ribs and makes it difficult to breath sometimes) Whilst I was able to feel flutters from about 16 weeks, feeling actual kicks has been different and I think perhaps some of it could be down to the adeno.

I can't tell you how over the moon I was, when those lines turned up.  And without any intervention, I had been with my gyno and had said if I wasn't pregnant by June (so 3 - 4 months of trying) then he would refer me to an IVF place (and he confirme I wouldn't have to go through all the crap again of tests and laps etc) We had said that if by Sept I wasn't pregnant I would go back to doing natural remedies and we would look at IVF in 2 years time because really it wasn't just the getting pregnant that was going to be an issue but the staying pregnant and I knew I wouldn't be able to stop at x amount of goes we needed to have a decent amount behind us.  I had the number for chinese herbalist/accuptunist who is recommended by Monash IVF dr's (I had previously been to see a naturopath and was taking one particular vitamin still) I

I also made sure I exercised and ate really healthy and tried to stay positive. I can't sit still for yoga but I was able to do pilates and run.  Strangly enough the month we feel pregnant was excatly 1 month after my uncle had passed (to the day) and I had consumed more alcohol in that month then I had for the past 2 years, I also ate like crap that month so perhaps healthy eating doesn't actually work original.gif

Firstly though I would take a pregnancy test because it is very likely that you may indeed have o'd and if you o'd and your period is not here well they are all good signs!.  If you had had your last lap in Nov chances are that your body is in optimal shape in that area for pregnancy and many women get pregnant very quickly after having endo removed.
I would also look at talking to your gyno and seeing what he recommends. He might be able to stimulate your cycle so you have some form of control over it (I am thankful for where I work which has made having the time off durning my periods easy, I know other people that do not have this option so the thought of TTC is so scary because how the hell are they going to get through a period)

Good luck

ETA: I also just wanted to add (because another thread made me click) I switched to full cream diary and went off all skim milk and low fat diary. This was a tip my SIL had been told and many other people I know who where/are TTC have been told to do. Not sure if it helped or not

Edited by MrsLexiK, 07 February 2013 - 03:00 PM.

#4 Shayde Artell

Posted 13 February 2013 - 07:10 AM

Thank you both for your responses!
It makes it much easier when hearing positive stories from other people rolleyes.gif
So I have POAS every day for the last 4 days and still getting BFN. I have had bad cramping for 2 weeks like AF is coming but then nothing (I think I've used a large pack of pads!) and nothing! I'm now 21dpo and still waiting

#5 MrsLexiK

Posted 18 February 2013 - 03:59 PM

QUOTE (Shayde Artell @ 13/02/2013, 08:10 AM) <{POST_SNAPBACK}>
Thank you both for your responses!
It makes it much easier when hearing positive stories from other people rolleyes.gif
So I have POAS every day for the last 4 days and still getting BFN. I have had bad cramping for 2 weeks like AF is coming but then nothing (I think I've used a large pack of pads!) and nothing! I'm now 21dpo and still waiting

I would go to the GP to get a blood a test because 21dpo would be around a week a late I would assume? It might give you an indication of what is going on.  FX and goodluck.

1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users


Get your FREE Baby & Toddler Ticket!

Get your free ticket to the Essential Baby & Toddler Show Brisbane (4-6 March). Register online now to save $20!

Newborn baby found in a nativity scene

Police are trying to trace a woman who abandoned a baby boy in the manger of a church nativity scene.

Life would be harder without my kids

The Humans of New York Facebook page is well known for sharing touching, real stories from one of the world's biggest cities – and it's just hit the heart of parents everywhere.

Mum dresses as Wonder Woman for last day of chemo

A Brisbane mum dressed up as a superhero to celebrate the end of her chemotherapy and created a moment her family will remember forever.

How a raisin can predict a toddler's IQ

All you need to assess a child's future intelligence is a plastic cup and a raisin, according to new research.

Former Hi-5 member's cannabis hope

Former Hi-5 star Tim Harding hopes a cannabis-derived drug will help control his daughter's epilepsy, which sees the four-year-old suffering between 50 and 100 seizures a day.

The top 5 reasons your toddler throws a tantrum

Whilst to the outside world little people may appear to have it easy, it's actually not always the case – just ask any toddler who's had their toast cut up the wrong way.

Glenn McGrath thought he'd lost his wife and baby

Australian cricket ledged Glen McGrath has spoken about the moment he thought he might lose his wife, Sara and their baby daughter, Madison.


Inside my Centrelink nightmare

Mother Bec Smith has been trying for months to access Centrelink payments. A "serious error" is preventing her.

Warnings over push for hourly childcare billing

Australia's peak childcare body has called for caution around the Turnbull government's push for childcare centres to charge parents by the hour, not by the day.

Cate Blanchett thought about adopting for years

Cate Blanchett says her recent adoption of a baby girl had nothing to do with wanting a daughter after having three sons.

Kate Walsh: 'I can't have kids'

Grey's Anatomy star Kate Walsh has revealed she is unable to have children because she has experienced early menopause.

The parasite that could boost fertility

The Tsimane women of Bolivia are often revered as among the most fertile in the world - on average having 10 children in their lifetimes -- but some are even more fertile than others.

Family may sue cousin over genetics

A Melbourne couple is suing the Royal Children's Hospital for failing to diagnose a genetic disorder in their first child - an error they allege caused them to have another child with severe disabilities.

Strange things mums have done in labour

While most women in labour focus on the upcoming birth of their baby, some women do more interesting things.

Michael Clarke reveals baby's name

When Michael Clarke said he was wrapped around the finger of his little princess, he wasn't joking.

The logistics of breastfeeding twins

Our life is more or less divided into neat four hour parcels of time and it's hard to get much of anything done in the time between feeds.

How to stop people ruining Christmas

We can make a conscious effort about how we react to those curly Christmas day scenarios that can send us up the wall, or should we say chimney.

Lots of formula offers for desperate mum

The mum who was down to her last three tins of baby formula said she had received hundreds of calls and offers to send her formula.

Surviving breast cancer while pregnant

It was last thing Rebecca O'Donnell expected at 30 weeks' pregnant. One morning, while putting on her bra, she felt a pea-sized lump in her right breast.

Cot sheet brands for the nursery

With so many awesome cot sheet options these days, we thought we'd put together a list of go-to brands for you to seek out for your baby's bed.


What's hot on EB

How I survived breast cancer while pregnant

It was last thing Rebecca O'Donnell expected at 30 weeks' pregnant. One morning, while putting on her bra, she felt a pea-sized lump in her right breast.

Grieving father's letter to Bataclan terrorists: "...this little boy will threaten you by being happy and free"

A grieving father whose wife was killed in the attacks on the Bataclan Theatre last weekend has written an open letter to her killers.

5 challenges of motherhood - and how to see them differently

Despite the smiles, the sloppy kisses and the pure magic children bring to our lives, it's hard to deny that motherhood can be tough.

4 challenges of being a new dad - and how to face them

Becoming a parent is challenging – and that applies to both mums and dads.

My battle against antenatal and postnatal depression

I was five months pregnant when I realised I needed help.

Children swapped at birth will not be returned to biological parents

A boy and girl accidentally swapped on the day they were born will stay with the families who have raised them, a South African court has ruled.

A quarter of men believe they get 'man periods'

A British study has revealed one in four men believe they have a monthly cycle.

Baby deposit

How much do you need to save for a 'baby deposit'?

It's fairly straightforward to calculate a house deposit, but how much money do you need to save up for a baby?

Dad's beautiful note to his wife, a nurse

To anyone else it might just look like a picture of a mum having a nap with her toddler.

'I was a complete schmuck': Mike Baird opens up about his wife's postnatal depression

When his wife Kerryn was not well following the birth of their daughter, NSW Premier Mike Baird buried himself in his work.

Mum's desperate plea as whooping cough alert issued

A desperate mother has shared a heart-breaking video of her baby struggling to cope with a coughing fit caused by pertussis.

Coffee could help you live longer

New US research found people who report drinking three to five cups of coffee a day are less likely to die prematurely from heart disease, suicide, diabetes or Parkinson's disease.

The joy and dread of playdates

To live vicariously through your child is to rediscover anxieties you thought dead and buried.

Sick baby could die without scarce special formula, mum says

Lizzie Cann is down to her last three tins of a special formula in short supply.

Adorable toddler's strop foiled by squeaky shoes

We're probably all familiar with the pouty bottom lip and tightly crossed arms of a tot mid-strop.

More sex during World Cup created more baby boys

More sex during South Africa's World Cup meant a disproportionately high number of boys were born nine months later, a new study has found.

ABC Shop perfect for Christmas gifts

What a boon it would be to have your toddler's Christmas gifts covered this year. We have two awesome ABC Shop prize packs to give away to two lucky winners.

Do fitness challenges really work?

Fitness challenges aren't new. There's Michelle Bridges 12WBT and a bunch of other programs if you really want to lose weight.

What are pregnant women Googling?

Pregnancy is a huge change for any woman, so it's natural we'll have questions - and turn to Google to ask them.



Can't decide?

Check out the Essential Baby Names section for some inspiration

Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.