Jump to content

Sick baby - updated with answers!
Any clue?


  • Please log in to reply
65 replies to this topic

#1 Anyanswers

Posted 23 January 2013 - 04:36 PM

Hi,

Mods, move this to a  more appropriate section if you feel the need. I have gone anon as I am on FB and no one know on my friends list what is going on.





Baby girl (14 months) has been really off since October. She was sick then (virus) and hasn’t really recovered. She has been quite sick on and off all her life, always told it is a virus.


  These are her symptoms

  -          Swollen lymph nodes present in her head and neck since October

  -          Swollen right nipple

  -          Excessive crying and sooking, even when asleep (yes, I am extremely sleep deprived)

  -          Constantly holds her head and ears

  -          Night sweats

  -          Low weight gain (officially diagnosed with failure to thrive)


  -          Constant scratching at lymph nodes while whining

  -          Vomiting after feeds

  -          Occasional purple feet

  -          Barely eats, refuses everything I offer her

  -          Falling over more and more

- Gagging on nothing

  My GP was concerned and did a full blood evaluation on her. It ruled out leukemia but not lymphoma as she had a marker for it. Also showed the urea levels are high.

  We were sent for an ultrasound on the nodes in her head today that showed that the nodes are swollen but not looking suspicious. That said, the scan was done in under a minute with no measurements taken of any nodes. I am unsure how they could've properly checked them when she was so wriggly and sooky.
I've done some reading and ultrasounds don't detect lymphoma. I have no idea why they even ordered that test.

  The ultrasound on her nipple back in October showed that it was normal glandular tissue (just seems she has more on that side)

  Our GP is stumped and has sent us to a paed who we have an appointment with tomorrow.

  Anyone have any clues or gone through a similar thing? Like I said, we are seeing the paed tomorrow.

Edited by Anyanswers, 26 January 2013 - 06:59 PM.


#2 roses99

Posted 23 January 2013 - 04:44 PM

No, but I truly hope you get answers soon. How very frightening  sad.gif

It's good you're going to the paed.

#3 Anyanswers

Posted 23 January 2013 - 05:25 PM

I am beside myself with worry and it is all starting to get on top of me but will push through. Thanks for the reply.

#4 Guest_Dinah_Harris_*

Posted 23 January 2013 - 05:30 PM

I am sorry to hear this, and I have no real answers for you.  But I hope you get some clarity around what it could be soon.

#5 miinii

Posted 23 January 2013 - 05:34 PM

Oh gosh OP how stressful for you and your poor DD i really hope you get some answers soon.

#6 Ice Queen

Posted 23 January 2013 - 05:36 PM

Certainly no answers from me.  Glad you are going to the paed, just keep pushing and trust your instincts that things aren't right.  Specialists are very hard to get appts with so you will need to keep strong and push, push, push sometimes.

Good luck and hope your LO gets better.  It doesnt sound normal by any means.

#7 Lady Excentrique

Posted 23 January 2013 - 05:37 PM

Let us know how you go OP, how stressful.  sad.gif

#8 Quay11

Posted 23 January 2013 - 05:40 PM

Good luck with the paed. I'm on a periodic fevers forum and there are also a lot of undiagnosed diseases out there too. My daughter ended up having Muckle Wells Syndrome, but there are plenty of children without a diagnosis. I hope the paed has answers for you, but if not and you feel something is not right, keep asking questions and recording symptoms and they might be able to work it out eventually.

#9 MumLOA

Posted 23 January 2013 - 09:16 PM



Hi there, sorry you're going through this, it can be very stressfull.

I don't have any answers for you, but my son has some similar symptoms so thought i would share our story so far...


He is 15 months and has had severe eczema since 3 months old, we have had it under control now since about 12 months with only occasional mild flare ups.

He has also had enlarged lymph nodes on his head, neck and body since about 4-5 months, most of these they believe were due to the eczema, but he has a very prominent one on his neck (approx. 1.5cm+ that can be seen at all times) that has never gone way even with antibiotics and no signs of other infection.

He is also low weight at 7.6kg at last check with no weight gained in the last 3months, but our paed is taking a 'wait and see' approach with everything (we are currently in the process of changing paeds :/)

He also has had very blue hands and feet on occasion and was diagnosed with Raynauds phenomenon, although again, no more investigation was done, it was just 'labeled' ...i have noticed lately that they don't turn as blue as often anymore. Maybe your DD has similar? It may or may not be related to her other symptoms?

Another thing could be allergies, is your DD allergic to anything that you're aware of?


This is probably not much help to you, but you wanted to let you know you are not alone and we are currently investigating similar things with our DS...i hope you get some answers soon original.gif

#10 Anyanswers

Posted 24 January 2013 - 08:56 PM

Thanks for the replies!
Here is what his answers were for everything...

Swollen lymph nodes present in her head and neck since October (most babies have this...)
- Swollen right nipple (No answer, ultrasound was clear)

- Excessive crying and sooking, even when asleep (behavioural/attention seeking)

- Constantly holds her head and ears  (behavioural/attention seeking)

- Night sweats (Didn't comment)


- Low weight gain (I give her too much milk/water so she doesn't want to eat)

- Constant scratching at lymph nodes while whining  (behavioural/attention seeking)

- Vomiting after feeds (behavioural/attention seeking)

- Occasional purple feet (cold - even with night sweats)

- Barely eats, refuses everything I offer her (Give her too much milk/water)

- Falling over more and more  (behavioural/attention seeking)

- Gagging on nothing  (behavioural/attention seeking)

Apparently my baby is a naughty attention seeker.

We are travelling to the closest Children's Hospital tomorrow for a further opinion (3 hours away - just going to emergency)

Edited by Anyanswers, 24 January 2013 - 09:44 PM.


#11 FreeRangeMum

Posted 24 January 2013 - 09:01 PM

Oh you poor thing sad.gif I hope you get more answers tomorrow. Thinking of you xxxx

#12 F1widow

Posted 24 January 2013 - 09:02 PM

My god, that was his assessment from how much observation? 15 minutes? Yeah, get a second, third, fourth opinion! Good luck! bbighug.gif

#13 solongsuckers

Posted 24 January 2013 - 09:02 PM

Wow, that doctor is a knob. I hope you get some answers tomorrow.

#14 Guest_LeChatNinjah_*

Posted 24 January 2013 - 09:04 PM

Those sound to my untrained ear to be ludicrous replies, OP, I am so glad you're getting further opinions.

Good luck tomorrow!

Oh, and if it helps, 2 of my 3 had one swollen nipple for the first 2 years, no idea why, paed said sometimes they're just like that.  They both gradually went more normal-looking.



#15 Coffeegirl

Posted 24 January 2013 - 09:05 PM

Pead sounds like he has no idea so he's fobbing you off.

What 14mth old has the ability to vomit on demand to seek attention?

I hope you get a second/third/fourth opinion!



#16 I'mBeachedAs

Posted 24 January 2013 - 09:06 PM

What a disappointing response! I'm very pleased you're taking her to hospital. Poor little baby, I hope you get some answers soon.

#17 mummabear

Posted 24 January 2013 - 09:08 PM

Good luck tomorrow, you are so doing the right thing, that doctor has no idea! No wonder you are worried sick.

Hope they find something simple and easily fixed...your poor little girl.



#18 TillyTake2

Posted 24 January 2013 - 09:09 PM

That dr sounds crap!! Where are you op? Maybe people can suggest a better paed!!

My only thought is ears. It can affect balance, could be related to gagging/vommiting if tonsils etc involved. ENT would be my best guess but a good paed would be ideal.

#19 TheGreenSheep

Posted 24 January 2013 - 09:10 PM

Glad your heading to the children's hospital. Hopefully they'll treat you and your child with more respect.

#20 Anyanswers

Posted 24 January 2013 - 09:13 PM

I am in Canberra, we are going to Sydney tomorrow.
Her ears were checked by my GP and the paed today and are apparently ok.
I must say that I am pretty impressed that a 14 month old is already attention seeking! (yes, that was sarcastic)

ETA - He told me to stop giving her fluids between the hours of 8:30pm and 6:30am so she would be hungry for breakfast in the morning. She has to learn to self settle and not bother me. Obviously I am disregarding this piece of advice!

Edited by Anyanswers, 24 January 2013 - 09:15 PM.


#21 *Finn*

Posted 24 January 2013 - 09:14 PM

Trust your instinct OP, what a load of crap from the pead. She is a baby for gods sake how can she be attention seeking.

#22 GreenEgg

Posted 24 January 2013 - 09:14 PM

It sounds a llike my friends DD who has been diagnosed with Febrile neutropenia

I hope you get answers soon



#23 Guest_Dinah_Harris_*

Posted 24 January 2013 - 09:17 PM

That sucks, OP.  I hope you get some much better answers tomorrow.  Your poor little baby.

#24 Therese

Posted 25 January 2013 - 09:27 AM

Just a reminder that all recommendations for doctors need to be taken off the boards. Feel free to use the pm system. I have removed a post.


Good luck OP, I hope you can get some answers today.


#25 ScarfaceClaw

Posted 25 January 2013 - 09:36 AM

I assume someone has listened to her chest and ruled out cardiac anomalies? Some of those features, while generally vague could indicate a circulatory issue (FTT, night sweats, purple feet, vomiting, for example)

I hope you find a good dr in emerg who can rule out things for you in a more methodical manner.

Good luck




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

What you need to know about pregnancy and health insurance

It's not just waiting periods that couples need to consider - there are other factors to consider when thinking about health insurance.

Yummy mummy

Nicole Trunfio breastfeeds baby on Elle magazine cover

Australian model Nicole Trunfio has taken the concept of multitasking to a fashionable new level for Elle Australia.

Warnings after baby girl died while sleeping in bouncer

Parents have been warned about the dangers of letting babies sleep in bouncers and swings following the death of a three-month-old girl.

Coping with fatigue as a parent

Sleep deprivation is a real hazard of caring for a baby. But there are ways to manage the challenges of fatigue better.

A very 21st century issue: parents, parks and smart phones

It's not all the parents, and it's not all the time, but there is often at least one doing it. And sometimes, that 'one' is me.

Appliances

Faulty washing machines linked to house fires

More than 80,000 faulty Samsung washing machines pose a fire threat in homes throughout Australia despite a nationwide recall of the machines.

'I had a lotus birth and I loved it'

Lotus birthing is not all that common, but for a number of women it feels like the most natural thing to do.

7 things you might not know about postnatal depression

Despite its widespread nature, there is still a great amount of mystery surrounding PND - and it's important to try unravelling as much of that as we can.

Is your family's car part of the world's biggest safety recall?

More than 50 million vehicles recalled for potentially lethal airbag fault - is your car affected?

Why drinking water can be deadly for babies

H2O is one of the necessities of life, but for babies a seemingly harmless amount of water can be fatal.

Mother-in-law faceplants during proposal

He had it all planned: a romantic proposal on a windswept beach. The whole family would be there so they'd all be able to celebrate the joyous moment together.

A preschooler suddenly goes mute - and it's not just shyness

When our son stopped talking, our sense of loss was painful and acute.

The mums who ask for a 'wife bonus'

They run their homes like domestic CEOs and work tirelessly to improve their family's social standing. And now, according to a new book, they want an annual perk from their husbands.

Woman shares photo of dimple on breast to warn others of cancer risk

A widely-shared Facebook photograph of a British woman's breast has raised awareness of a more subtle breast cancer symptom.

Starting a family despite a low sperm count

"I'd never really failed a test - how could I fail this particularly manly test?"

It's official: we must better protect our kids from toxic lead exposure

New guidelines have been released, aimed at reducing children's harmful exposure to lead. But they still don't go far enough.

Trouble-shooting toddler social skills

Chances are your toddler's behaviour is all completely normal - but here's how to tackle some common social problems.

Helping your first-born welcome a sibling

We did sigh with joy at the arrival of a royal princess - but, mostly, we sighed with pity at the sight of Prince George being taken to meet her.

Farewell, daytime nap

I've been in denial and I'm not too proud to beg, but it appears I must accept the fact that you have gone. I need to let you go.

The identical triplets who are one in 50 million

The father of identical triplets born in a Texas hospital says his three daughters, including conjoined twins, are "a miracle" sent by God.

Seven questions you should be asking about your health cover

If the last time you assessed your health cover was five years ago, there?s a chance it may no longer suit your needs. To ensure it?s still right for your family, click here for seven questions to ask.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

How to use gas effectively in labour

Many women in labour don't use gas effectively and suffer more side effects than benefits. Here's how to get the most out of this pain relief option.

'He has gastro but that's okay, right?': sick kid etiquette

We cannot place all children who are sick in a bubble till they recover, but we can give other parents a choice about exposing their kids to them.

Ada Nicodemou: 'I can never be completely happy again'

Home and Away actress Ada Nicodemou has opened up about the loss of her stillborn baby.

10 things to consider when you're thinking about trying for a baby

Before you start tracking your menstrual cycle and reading up on the best positions to get pregnant, there are a few other things you may want to consider.

How special surgery and IVF can create a post-vasectomy baby

Cricket legend Glenn McGrath and his second wife Sara are expecting their first child together, thanks to IVF and a delicate surgical sperm retrieval process that helped the couple to conceive.

Belle Gibson's mother 'disgusted and embarrassed'

The mother of disgraced wellness blogger Belle Gibson has accused her daughter of lying about her childhood in an attempt to garner public sympathy.

Doctor's mobile phone 'left inside c-section mum'

A new mum claims a doctor left his mobile phone inside her after delivering her baby via caesarean section.

I'm a mum and I'm following my dreams

I want my kids to know that no matter what happens in life, you can still be who it is that you've always wanted to be.

Those first daycare days

I had this innate 'mum' moment the other day.

'If one person had listened, my life would have been so different'

Katherine's father will die in prison for the horrifying sexual abuse of his daughter. Yet she is the one with the true life sentence.

This new plan undermines breastfeeding and baby health at everyone's expense

Mothers, babies, the health system and the wider society are going to pay the price of this new budget.

Couple to celebrate terminally ill baby's birthday in unique way

Baby Jai Bishop has lived at Starship Hospital for the past seven months, with his parents flying back and forth from Hokitika, 1100km away, to be by his side.

Life On Mars

It's men who need 'retraining', not women

We are all responsible for our own behaviour. Telling victims to harden up is wrong.

Baby Gammy's dad tries to claim charity money

The biological father of baby Gammy has reportedly tried to access charity money raised for the little boy's medical costs.

Where are the childcare places?

It?s all very well to encourage women to work if they choose to, but how can the measures lead to increased workforce participation when women are once again left holding the baby?

The pain of not having babies and not knowing why

After seven years of wishing, hoping, crying, punching pillows and shouting "why me?!", the end result is more than I ever thought possible.

Getting your family finances in order

Whether you're after a new car for a growing family, a bigger house, or are just fixing up your finances, here are the basics on borrowing.

Mum shares graphic selfie to warn against tanning

A mum has shared a graphic photo of her skin cancer treatment as a warning to others.

Does parenthood make us happier?

We can certainly gain higher levels of happiness when we become parents, but the trick is to not get overwhelmed by the pressures of raising our kids.

No, having a dog is not like having a human child

It's obvious these people dote on their pets, but they're barking up the wrong tree.

 

Top baby names

Baby Names

The numbers are in and we can now bring you the 2014 top baby name list for Australia.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.