Jump to content

Sick baby - updated with answers!
Any clue?


  • Please log in to reply
65 replies to this topic

#1 Anyanswers

Posted 23 January 2013 - 04:36 PM

Hi,

Mods, move this to a  more appropriate section if you feel the need. I have gone anon as I am on FB and no one know on my friends list what is going on.





Baby girl (14 months) has been really off since October. She was sick then (virus) and hasn’t really recovered. She has been quite sick on and off all her life, always told it is a virus.


  These are her symptoms

  -          Swollen lymph nodes present in her head and neck since October

  -          Swollen right nipple

  -          Excessive crying and sooking, even when asleep (yes, I am extremely sleep deprived)

  -          Constantly holds her head and ears

  -          Night sweats

  -          Low weight gain (officially diagnosed with failure to thrive)


  -          Constant scratching at lymph nodes while whining

  -          Vomiting after feeds

  -          Occasional purple feet

  -          Barely eats, refuses everything I offer her

  -          Falling over more and more

- Gagging on nothing

  My GP was concerned and did a full blood evaluation on her. It ruled out leukemia but not lymphoma as she had a marker for it. Also showed the urea levels are high.

  We were sent for an ultrasound on the nodes in her head today that showed that the nodes are swollen but not looking suspicious. That said, the scan was done in under a minute with no measurements taken of any nodes. I am unsure how they could've properly checked them when she was so wriggly and sooky.
I've done some reading and ultrasounds don't detect lymphoma. I have no idea why they even ordered that test.

  The ultrasound on her nipple back in October showed that it was normal glandular tissue (just seems she has more on that side)

  Our GP is stumped and has sent us to a paed who we have an appointment with tomorrow.

  Anyone have any clues or gone through a similar thing? Like I said, we are seeing the paed tomorrow.

Edited by Anyanswers, 26 January 2013 - 06:59 PM.


#2 roses99

Posted 23 January 2013 - 04:44 PM

No, but I truly hope you get answers soon. How very frightening  sad.gif

It's good you're going to the paed.

#3 Anyanswers

Posted 23 January 2013 - 05:25 PM

I am beside myself with worry and it is all starting to get on top of me but will push through. Thanks for the reply.

#4 Guest_Dinah_Harris_*

Posted 23 January 2013 - 05:30 PM

I am sorry to hear this, and I have no real answers for you.  But I hope you get some clarity around what it could be soon.

#5 miinii

Posted 23 January 2013 - 05:34 PM

Oh gosh OP how stressful for you and your poor DD i really hope you get some answers soon.

#6 Ice Queen

Posted 23 January 2013 - 05:36 PM

Certainly no answers from me.  Glad you are going to the paed, just keep pushing and trust your instincts that things aren't right.  Specialists are very hard to get appts with so you will need to keep strong and push, push, push sometimes.

Good luck and hope your LO gets better.  It doesnt sound normal by any means.

#7 Bluestocking

Posted 23 January 2013 - 05:37 PM

Let us know how you go OP, how stressful.  sad.gif

#8 Quay11

Posted 23 January 2013 - 05:40 PM

Good luck with the paed. I'm on a periodic fevers forum and there are also a lot of undiagnosed diseases out there too. My daughter ended up having Muckle Wells Syndrome, but there are plenty of children without a diagnosis. I hope the paed has answers for you, but if not and you feel something is not right, keep asking questions and recording symptoms and they might be able to work it out eventually.

#9 MumLOA

Posted 23 January 2013 - 09:16 PM



Hi there, sorry you're going through this, it can be very stressfull.

I don't have any answers for you, but my son has some similar symptoms so thought i would share our story so far...


He is 15 months and has had severe eczema since 3 months old, we have had it under control now since about 12 months with only occasional mild flare ups.

He has also had enlarged lymph nodes on his head, neck and body since about 4-5 months, most of these they believe were due to the eczema, but he has a very prominent one on his neck (approx. 1.5cm+ that can be seen at all times) that has never gone way even with antibiotics and no signs of other infection.

He is also low weight at 7.6kg at last check with no weight gained in the last 3months, but our paed is taking a 'wait and see' approach with everything (we are currently in the process of changing paeds :/)

He also has had very blue hands and feet on occasion and was diagnosed with Raynauds phenomenon, although again, no more investigation was done, it was just 'labeled' ...i have noticed lately that they don't turn as blue as often anymore. Maybe your DD has similar? It may or may not be related to her other symptoms?

Another thing could be allergies, is your DD allergic to anything that you're aware of?


This is probably not much help to you, but you wanted to let you know you are not alone and we are currently investigating similar things with our DS...i hope you get some answers soon original.gif

#10 Anyanswers

Posted 24 January 2013 - 08:56 PM

Thanks for the replies!
Here is what his answers were for everything...

Swollen lymph nodes present in her head and neck since October (most babies have this...)
- Swollen right nipple (No answer, ultrasound was clear)

- Excessive crying and sooking, even when asleep (behavioural/attention seeking)

- Constantly holds her head and ears  (behavioural/attention seeking)

- Night sweats (Didn't comment)


- Low weight gain (I give her too much milk/water so she doesn't want to eat)

- Constant scratching at lymph nodes while whining  (behavioural/attention seeking)

- Vomiting after feeds (behavioural/attention seeking)

- Occasional purple feet (cold - even with night sweats)

- Barely eats, refuses everything I offer her (Give her too much milk/water)

- Falling over more and more  (behavioural/attention seeking)

- Gagging on nothing  (behavioural/attention seeking)

Apparently my baby is a naughty attention seeker.

We are travelling to the closest Children's Hospital tomorrow for a further opinion (3 hours away - just going to emergency)

Edited by Anyanswers, 24 January 2013 - 09:44 PM.


#11 FreeRangeMum

Posted 24 January 2013 - 09:01 PM

Oh you poor thing sad.gif I hope you get more answers tomorrow. Thinking of you xxxx

#12 F1widow

Posted 24 January 2013 - 09:02 PM

My god, that was his assessment from how much observation? 15 minutes? Yeah, get a second, third, fourth opinion! Good luck! bbighug.gif

#13 solongsuckers

Posted 24 January 2013 - 09:02 PM

Wow, that doctor is a knob. I hope you get some answers tomorrow.

#14 Guest_LeChatNinjah_*

Posted 24 January 2013 - 09:04 PM

Those sound to my untrained ear to be ludicrous replies, OP, I am so glad you're getting further opinions.

Good luck tomorrow!

Oh, and if it helps, 2 of my 3 had one swollen nipple for the first 2 years, no idea why, paed said sometimes they're just like that.  They both gradually went more normal-looking.



#15 Coffeegirl

Posted 24 January 2013 - 09:05 PM

Pead sounds like he has no idea so he's fobbing you off.

What 14mth old has the ability to vomit on demand to seek attention?

I hope you get a second/third/fourth opinion!



#16 I'mBeachedAs

Posted 24 January 2013 - 09:06 PM

What a disappointing response! I'm very pleased you're taking her to hospital. Poor little baby, I hope you get some answers soon.

#17 mummabear

Posted 24 January 2013 - 09:08 PM

Good luck tomorrow, you are so doing the right thing, that doctor has no idea! No wonder you are worried sick.

Hope they find something simple and easily fixed...your poor little girl.



#18 TillyTake2

Posted 24 January 2013 - 09:09 PM

That dr sounds crap!! Where are you op? Maybe people can suggest a better paed!!

My only thought is ears. It can affect balance, could be related to gagging/vommiting if tonsils etc involved. ENT would be my best guess but a good paed would be ideal.

#19 TheGreenSheep

Posted 24 January 2013 - 09:10 PM

Glad your heading to the children's hospital. Hopefully they'll treat you and your child with more respect.

#20 Anyanswers

Posted 24 January 2013 - 09:13 PM

I am in Canberra, we are going to Sydney tomorrow.
Her ears were checked by my GP and the paed today and are apparently ok.
I must say that I am pretty impressed that a 14 month old is already attention seeking! (yes, that was sarcastic)

ETA - He told me to stop giving her fluids between the hours of 8:30pm and 6:30am so she would be hungry for breakfast in the morning. She has to learn to self settle and not bother me. Obviously I am disregarding this piece of advice!

Edited by Anyanswers, 24 January 2013 - 09:15 PM.


#21 *Finn*

Posted 24 January 2013 - 09:14 PM

Trust your instinct OP, what a load of crap from the pead. She is a baby for gods sake how can she be attention seeking.

#22 GreenEgg

Posted 24 January 2013 - 09:14 PM

It sounds a llike my friends DD who has been diagnosed with Febrile neutropenia

I hope you get answers soon



#23 Guest_Dinah_Harris_*

Posted 24 January 2013 - 09:17 PM

That sucks, OP.  I hope you get some much better answers tomorrow.  Your poor little baby.

#24 Therese

Posted 25 January 2013 - 09:27 AM

Just a reminder that all recommendations for doctors need to be taken off the boards. Feel free to use the pm system. I have removed a post.


Good luck OP, I hope you can get some answers today.


#25 ScarfaceClaw

Posted 25 January 2013 - 09:36 AM

I assume someone has listened to her chest and ruled out cardiac anomalies? Some of those features, while generally vague could indicate a circulatory issue (FTT, night sweats, purple feet, vomiting, for example)

I hope you find a good dr in emerg who can rule out things for you in a more methodical manner.

Good luck




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

 

Exclusive Black Friday Sale!

Get over 40% off selected products, including prams, baby carriers, cloth nappies, sleeping bags and much more! 24 hours only, on May 6 - register now for your special code.

Kelly Clarkson shares first photos of son

Kelly Clarkson has shown off the first photos of her son, Remington Alexander Blackstock.

5 childbirth myths that need to be busted

Birth is an unpredictable, mysterious process that intrigues us all, and there is a lot of misinformation out there.

Mum of three fatally shot by toddler while driving

A US mother has been shot by her toddler while driving on a highway in Wisconsin.

All you need is one minute to work out

The seven-minute-work out is old news. Research shows the effectiveness of going hell-for-leather for just one minute.

Pregnant women needed to join diabetes study

Pregnant woman in country Australia will help Adelaide researchers figure out why cases of type 1 diabetes have doubled over the past two decades.

Just announced: the Mountain Buggy Unirider

It's the perfect solution to combat those toddler meltdowns when they no longer want to be in a pram but can't walk long distances.

Authorities euthanise dog that fatally bit a newborn baby

A pit bull mix that fatally bit a 3-day-old infant last week has been euthanised, authorities said.

The push for Medicare to fund lactation consultants

While meeting with a lactation consultant can make an enormous difference to a new mother, it's not a service that is available through the public health system.

Why it's perfectly natural to dislike other people's children

Members of a popular forum are fiercely debating whether it is acceptable to dislike a friend's child.

Woman gives birth on plane, names baby after airline

A pregnant woman who unexpectedly gave birth on a flight has named her new baby after the airline, Jetstar.

Heartwarming photos show the joy of adoption after foster care

Children living in foster care can feel like their future is less than clear. But that uncertainty disappears the day they are adopted by their "forever family" 

'Oh my god, it's a baby!' Mum shocked to give birth

When the cramps started to kick in, Klara Dollan just assumed a painful period was starting.

Mum's Facebook plea: 'Help me find my daughter's father'

Kerryn has a unusual present planned for daughter Imi's 13th birthday celebrations - she hopes to be able to be able to give the soon-to-be the teenager her first ever photo of her dad.

Is it possible for your house to be too clean?

Our houses are cleaner than ever before. But how clean is too clean? Could a sterile home be putting your family's health at risk?

Millions of Monkeys: puzzles that grow with your toddler

Here's a puzzle that grows with them; the Puzzle Grow Pack by Millions of Monkeys.

Baby names from Britpop

If you grew up in the 90s you might want to look to the genre of Britpop music for baby name inspiration.

What to eat and drink when you have gastro

When you catch a bug that causes acute infectious gastroenteritis (gastro), your stomach and intestinal tract become inflamed, causing diarrhoea, nausea, vomiting, abdominal cramping and pain. The last thing you probably feel like doing is eating.

'To this day, I owe her my life'

Would I have survived if I hadn't crossed that street?

Why baby Sonny needs you to vaccinate your children

Caitlin is a firm believer in the importance of immunisation to protect children from harmful and deadly diseases.

Five-year-old's photo captures beauty of motherhood

There is no make-up or special outfits and hairdos, but the five-year-old boy who took this picture captured the essence of motherhood as well as any professional photographer.

Babies know whether you are naughty or nice

Studies have shown that infants in the first months of life try to avoid dealing with social wrongdoers - for example, sharing less with them and helping them less - and they expect others to, too.

 
Advertisement
 

Top 5 Articles

Advertisement
 
 
 

What's hot on EB

The babies who are one in 70 million

Bethani Webb was excited to find out she was pregnant, but the first time mum did not realise she was carrying four babies not one.

Exclusive Black Friday Sale!

Get over 40% off selected products, including prams, baby carriers, cloth nappies, sleeping bags and much more! 24 hours only, on May 6 - register now for your special code.

Cafe offers breastfeeding mums a free cup of tea

A Sydney cafe is offering breastfeeding mums free cups of tea in a bid to show support for the right of women to nurse their babies wherever they choose.

To snip or not to snip? When the decision is not clear cut

Jamie Oliver, who considered a vasectomy, is to be a father again. A fellow dad reflects on his own decision 11 years ago

Doctors stunned by rare twins born almost six weeks apart

To everyone's surprise, Kristen Miller "kept doing better each day", keeping her second baby safe.

Baby book ideas for modern parents

Before my son was born I was given a lovely baby book full of blank pages waiting to be filled with weights and heights and first words.

The adorable smile of a baby seeing his mum clearly for the first time

There is no doubt seeing their child smile for the first time is an unforgettable moment for parents everywhere.

Mum tells how toddler 'nearly hung himself' in cot mishap

When Alison Johnson put her 18-month-old Caleb down for a nap, she had no reason to believe her son was in any danger.

Babies are still switched at birth? Yes, it can happen

All my panic and tears aside, my biggest question looking back is about the kind of security measures used in the maternity ward.

Doctors slammed for taking selfie with newborn

Everyone who visits a mum in hospital in the days following childbirth wants to get a photo with the new baby.

ergoPouch Twosie Sleepsuit for winter breastfeeding

Finally, there's a way to keep warm while breastfeeding through winter.

Health check: How long does sex 'normally' last?

What to do with this information? My advice would be to try not to think about it during the throes of passion.

When breastfeeding sucks: fixing common problems

From niplash to tight boobs, biting to milk supply issues, Pinky McKay looks at common breastfeeding issues and how to solve them.

10 things I've learnt in my first six months with twins

Six months on we're all still alive, and the more we get to know each other the easier the days become.

Mum's loving kiss leaves baby fighting for life

Kirsty Carrington thought nothing of giving her newborn son a kiss, little did she know it would leave the baby fighting for life.

When doing chores is your new 'me time'

After children, 'me time' looks a little different.

Get going: 14 travel strollers for families on the move

A stroller can make or break travelling with a baby or toddler. Here are 15 great single travel stroller options.

10 ways toddlers are terrific

It always pays to remind yourself of how terrific toddlers can be - they're little like this for such a short time

 

ENTER NOW

Do your kids love bananas?

This is the comp for you! We have $800 worth of Myer gift cards and boxes of Australian Bananas to be won. Entry is simple: just post a pic of your little one enjoying a banana in the comments of the FB post to enter.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.