Jump to content

Sick baby - updated with answers!
Any clue?


  • Please log in to reply
65 replies to this topic

#1 Anyanswers

Posted 23 January 2013 - 04:36 PM

Hi,

Mods, move this to a  more appropriate section if you feel the need. I have gone anon as I am on FB and no one know on my friends list what is going on.





Baby girl (14 months) has been really off since October. She was sick then (virus) and hasn’t really recovered. She has been quite sick on and off all her life, always told it is a virus.


  These are her symptoms

  -          Swollen lymph nodes present in her head and neck since October

  -          Swollen right nipple

  -          Excessive crying and sooking, even when asleep (yes, I am extremely sleep deprived)

  -          Constantly holds her head and ears

  -          Night sweats

  -          Low weight gain (officially diagnosed with failure to thrive)


  -          Constant scratching at lymph nodes while whining

  -          Vomiting after feeds

  -          Occasional purple feet

  -          Barely eats, refuses everything I offer her

  -          Falling over more and more

- Gagging on nothing

  My GP was concerned and did a full blood evaluation on her. It ruled out leukemia but not lymphoma as she had a marker for it. Also showed the urea levels are high.

  We were sent for an ultrasound on the nodes in her head today that showed that the nodes are swollen but not looking suspicious. That said, the scan was done in under a minute with no measurements taken of any nodes. I am unsure how they could've properly checked them when she was so wriggly and sooky.
I've done some reading and ultrasounds don't detect lymphoma. I have no idea why they even ordered that test.

  The ultrasound on her nipple back in October showed that it was normal glandular tissue (just seems she has more on that side)

  Our GP is stumped and has sent us to a paed who we have an appointment with tomorrow.

  Anyone have any clues or gone through a similar thing? Like I said, we are seeing the paed tomorrow.

Edited by Anyanswers, 26 January 2013 - 06:59 PM.


#2 roses99

Posted 23 January 2013 - 04:44 PM

No, but I truly hope you get answers soon. How very frightening  sad.gif

It's good you're going to the paed.

#3 Anyanswers

Posted 23 January 2013 - 05:25 PM

I am beside myself with worry and it is all starting to get on top of me but will push through. Thanks for the reply.

#4 Guest_Dinah_Harris_*

Posted 23 January 2013 - 05:30 PM

I am sorry to hear this, and I have no real answers for you.  But I hope you get some clarity around what it could be soon.

#5 miinii

Posted 23 January 2013 - 05:34 PM

Oh gosh OP how stressful for you and your poor DD i really hope you get some answers soon.

#6 Ice Queen

Posted 23 January 2013 - 05:36 PM

Certainly no answers from me.  Glad you are going to the paed, just keep pushing and trust your instincts that things aren't right.  Specialists are very hard to get appts with so you will need to keep strong and push, push, push sometimes.

Good luck and hope your LO gets better.  It doesnt sound normal by any means.

#7 Lady Excentrique

Posted 23 January 2013 - 05:37 PM

Let us know how you go OP, how stressful.  sad.gif

#8 Quay11

Posted 23 January 2013 - 05:40 PM

Good luck with the paed. I'm on a periodic fevers forum and there are also a lot of undiagnosed diseases out there too. My daughter ended up having Muckle Wells Syndrome, but there are plenty of children without a diagnosis. I hope the paed has answers for you, but if not and you feel something is not right, keep asking questions and recording symptoms and they might be able to work it out eventually.

#9 MumLOA

Posted 23 January 2013 - 09:16 PM



Hi there, sorry you're going through this, it can be very stressfull.

I don't have any answers for you, but my son has some similar symptoms so thought i would share our story so far...


He is 15 months and has had severe eczema since 3 months old, we have had it under control now since about 12 months with only occasional mild flare ups.

He has also had enlarged lymph nodes on his head, neck and body since about 4-5 months, most of these they believe were due to the eczema, but he has a very prominent one on his neck (approx. 1.5cm+ that can be seen at all times) that has never gone way even with antibiotics and no signs of other infection.

He is also low weight at 7.6kg at last check with no weight gained in the last 3months, but our paed is taking a 'wait and see' approach with everything (we are currently in the process of changing paeds :/)

He also has had very blue hands and feet on occasion and was diagnosed with Raynauds phenomenon, although again, no more investigation was done, it was just 'labeled' ...i have noticed lately that they don't turn as blue as often anymore. Maybe your DD has similar? It may or may not be related to her other symptoms?

Another thing could be allergies, is your DD allergic to anything that you're aware of?


This is probably not much help to you, but you wanted to let you know you are not alone and we are currently investigating similar things with our DS...i hope you get some answers soon original.gif

#10 Anyanswers

Posted 24 January 2013 - 08:56 PM

Thanks for the replies!
Here is what his answers were for everything...

Swollen lymph nodes present in her head and neck since October (most babies have this...)
- Swollen right nipple (No answer, ultrasound was clear)

- Excessive crying and sooking, even when asleep (behavioural/attention seeking)

- Constantly holds her head and ears  (behavioural/attention seeking)

- Night sweats (Didn't comment)


- Low weight gain (I give her too much milk/water so she doesn't want to eat)

- Constant scratching at lymph nodes while whining  (behavioural/attention seeking)

- Vomiting after feeds (behavioural/attention seeking)

- Occasional purple feet (cold - even with night sweats)

- Barely eats, refuses everything I offer her (Give her too much milk/water)

- Falling over more and more  (behavioural/attention seeking)

- Gagging on nothing  (behavioural/attention seeking)

Apparently my baby is a naughty attention seeker.

We are travelling to the closest Children's Hospital tomorrow for a further opinion (3 hours away - just going to emergency)

Edited by Anyanswers, 24 January 2013 - 09:44 PM.


#11 FreeRangeMum

Posted 24 January 2013 - 09:01 PM

Oh you poor thing sad.gif I hope you get more answers tomorrow. Thinking of you xxxx

#12 F1widow

Posted 24 January 2013 - 09:02 PM

My god, that was his assessment from how much observation? 15 minutes? Yeah, get a second, third, fourth opinion! Good luck! bbighug.gif

#13 solongsuckers

Posted 24 January 2013 - 09:02 PM

Wow, that doctor is a knob. I hope you get some answers tomorrow.

#14 Guest_LeChatNinjah_*

Posted 24 January 2013 - 09:04 PM

Those sound to my untrained ear to be ludicrous replies, OP, I am so glad you're getting further opinions.

Good luck tomorrow!

Oh, and if it helps, 2 of my 3 had one swollen nipple for the first 2 years, no idea why, paed said sometimes they're just like that.  They both gradually went more normal-looking.



#15 Coffeegirl

Posted 24 January 2013 - 09:05 PM

Pead sounds like he has no idea so he's fobbing you off.

What 14mth old has the ability to vomit on demand to seek attention?

I hope you get a second/third/fourth opinion!



#16 I'mBeachedAs

Posted 24 January 2013 - 09:06 PM

What a disappointing response! I'm very pleased you're taking her to hospital. Poor little baby, I hope you get some answers soon.

#17 mummabear

Posted 24 January 2013 - 09:08 PM

Good luck tomorrow, you are so doing the right thing, that doctor has no idea! No wonder you are worried sick.

Hope they find something simple and easily fixed...your poor little girl.



#18 TillyTake2

Posted 24 January 2013 - 09:09 PM

That dr sounds crap!! Where are you op? Maybe people can suggest a better paed!!

My only thought is ears. It can affect balance, could be related to gagging/vommiting if tonsils etc involved. ENT would be my best guess but a good paed would be ideal.

#19 TheGreenSheep

Posted 24 January 2013 - 09:10 PM

Glad your heading to the children's hospital. Hopefully they'll treat you and your child with more respect.

#20 Anyanswers

Posted 24 January 2013 - 09:13 PM

I am in Canberra, we are going to Sydney tomorrow.
Her ears were checked by my GP and the paed today and are apparently ok.
I must say that I am pretty impressed that a 14 month old is already attention seeking! (yes, that was sarcastic)

ETA - He told me to stop giving her fluids between the hours of 8:30pm and 6:30am so she would be hungry for breakfast in the morning. She has to learn to self settle and not bother me. Obviously I am disregarding this piece of advice!

Edited by Anyanswers, 24 January 2013 - 09:15 PM.


#21 *Finn*

Posted 24 January 2013 - 09:14 PM

Trust your instinct OP, what a load of crap from the pead. She is a baby for gods sake how can she be attention seeking.

#22 GreenEgg

Posted 24 January 2013 - 09:14 PM

It sounds a llike my friends DD who has been diagnosed with Febrile neutropenia

I hope you get answers soon



#23 Guest_Dinah_Harris_*

Posted 24 January 2013 - 09:17 PM

That sucks, OP.  I hope you get some much better answers tomorrow.  Your poor little baby.

#24 Therese

Posted 25 January 2013 - 09:27 AM

Just a reminder that all recommendations for doctors need to be taken off the boards. Feel free to use the pm system. I have removed a post.


Good luck OP, I hope you can get some answers today.


#25 ScarfaceClaw

Posted 25 January 2013 - 09:36 AM

I assume someone has listened to her chest and ruled out cardiac anomalies? Some of those features, while generally vague could indicate a circulatory issue (FTT, night sweats, purple feet, vomiting, for example)

I hope you find a good dr in emerg who can rule out things for you in a more methodical manner.

Good luck




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

Abbott's childcare changes will 'reduce access and add complexity'

The government's childcare assistance package threatens to confuse and intimidate many parents, experts say.

Be careful what you wish for

Remember that chubby little baby who rocked on all fours? Remember how you wished he would start to crawl? Then remember how you felt once he did?

William Tyrrell's parents plead for information as anniversary looms

As the one-year anniversary of William Tyrrell's disappearance draws near, the missing four-year-old's parents have again pleaded with the public for information that could help bring their son home.

Family sleepovers: a tribute to my 1970s childhood

My memories of those nights in my childhood are all about fun: sleepover excitement, staying up late, watching movies we probably weren't supposed to watch ... freedom.

43 minutes of terror: family's agonising wait for ambulance for toddler

It was terrifying. As the minutes ticked by little Cooper Harrison's parents felt more and more frantic.

What not to say to a new mum

Some phrases just pop out before you really think about them, but there are some things you should try to not say to a new mum.

Mummydesking: the new hotdesking

It is a paradise that only working parents of small children can understand: a place to sit for three hours without any interruptions while someone looks after the kids.

Charlize Theron adopts baby girl

A few months after splitting from Sean Penn, the actress Charlize Theron has adopted a baby girl.

Facebook CEO Mark Zuckerberg shares painful truth behind wife's pregnancy

Facebook chief executive Mark Zuckerberg has shared a brutally honest truth about pregnancy in the hope it will help others through dark periods.  

Sugary drinks blamed for removal of toddlers' rotten teeth

Children as young as 18 months are having multiple rotten teeth pulled out as parents feed toddlers soft drinks through sipper bottles, and chocolate biscuits and Milo as bedtime treats.

Mum accidentally fake tans baby

Many of us have fallen foul of a bad fake tan or two, but this little guy's started a bit earlier than most.

Does this three-month-old say 'I love you'?

YouTube user Ted Moskalenko was filmed by his wife, Michelle, as his baby son, Ben, engaged in some baby chat.

Kids break out of daycare centre, cross busy highway

Two children broke out of an early childhood centre and wandered across a four-lane road.

Why I'm glad to be an indulgent granny

The phone calls started a couple of weeks ago. At about 5.30 each evening - if I am lucky - I will be greeted by a sweet, excited voice declaring: "'Allo Annie".

Newborn found in toilet at German airport

A newborn baby found abandoned and extremely ill in a bathroom in the Munich airport is doing well.

Is this the worst relationship advice ever published?

You sometimes have to wonder whether relationship/sex advice from magazines is designed to help or humiliate.

How you talk to your baby now can impact social skills later

People used to think that social skills were something kids were born with, not taught.

Three truths about C-section mums

Lately I've been thinking about the caesarean stories and the brave women who birth their children with strength and beauty.

Scientists predict when you should start a family

Scientists have calculated at exactly what age you need to start trying to get pregnant to have the best chance of realising your dream. 

Differently abled child

When 'protecting' a child is really a cover for judgement

Why are people so concerned for this happy child and his mother?

Get your FREE Baby & Toddler Show ticket!

Get your free ticket to the Sydney Essential Baby & Toddler Show for September 25-27 - register online now.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

When toddlers have strange obsessions

When it comes to two-year-olds and birthday cakes there are a few requests that are usually at the top of the list. But a cake featuring a local personal injury lawyer?

When Mama Bear strikes

When we become mums, our instinct to protect our children and keep them safe from harm is so strong we're often likened to a Mama Bear protecting her cubs.  

Immunity boosters for kids

There are no guaranteed ways to avoid the dreaded winter illnesses completely, but there are ways we can boost our children's immunity.

Yes, you can get pregnant before your period returns post-baby

After giving birth, the last thing you want to think about is contraception. But you can get pregnant before your period comes back.

Mum shares portrait of her proudly breastfeeding three-year-old

Jade Beall usually chooses to breastfeed her son, now 3, in private. This week, however, she shared portraits of her breastfeeding her preschooler.

Dealing with a toddler's morning tantrums

Your schedule is not important to your two-year-old, and you cannot convince her otherwise. So what can you do?

My baby's first seizure

It was 1am on a cold winter's night when I woke suddenly to the screams of my 12-month-old son. Our lives were about to change forever.

MP breastfeeds baby during parliamentary session

An Argentinian mum and politician has caused a stir on social media after being filmed breastfeeding her baby.

Heartbreaking moment mum kisses her one-week-old goodbye

At 11.07am on April 2 this year, Sarah Marriott welcomed baby Sebastian into the world.

The best age to get married (according to the latest study)

Not too young, and not too old. That's reportedly the best age to get married. Not everyone agrees.

Fellow diner rewards mum after toddler's tantrum

Parents of toddlers everywhere know the feeling. After working up the courage to take your child out for lunch or dinner in public you are rewarded with a mid-meal meltdown. 

IVF gender selection being considered for Australian parents

Couples using IVF may be able to choose the gender of their babies and women could be financially compensated for donating their eggs.

The amazing Tee Pee bed and kid-friendly Frankie Bunk bed

These kids' beds definitely fit the brief of providing personality and personal space for little people who are moving up in the world.

The funny things kids say when you're pregnant

Since becoming noticeably pregnant, my son has taken more of an interest in the sibling he'll soon have.

The real problem with having one child

In this age of political correctness, it seems the one subject still subject to discrimination is that of the Only Child.

The fire hazard in more than 70,000 Australian homes

So far, 206 Samsung washing machines have caught fire and some have exploded. But many remain in people's homes.

How having a baby can bring on OCD

We all know that having a baby can turn your life upside down - and it can also bring a raft of new anxieties and worries.

IKEA begins massive safety campaign after two toddler deaths

Two children were killed when pieces from their Malm furniture line tipped over.

Which beauty treatments are safe in pregnancy?

Is it safe to use fake tan, hair dye and nail varnish during pregnancy?

A dad's guide to hyperemesis

I am in no way qualified to advise women on how to cope with hyperemesis, but I've learnt some lessons that might be worth sharing with other partners.

The five ways I know my 'baby' is no longer a baby

The truth is, I can no longer deny that my walking, babbling, somewhat-independent little miss is no longer a bona fide 'baby'.

 

FREE TICKET

See Pinky McKay live in Sydney

Get your free ticket to The Essential Baby & Toddler Show and save $20 - register online now!

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.