Jump to content

Sick baby - updated with answers!
Any clue?


  • Please log in to reply
65 replies to this topic

#1 Anyanswers

Posted 23 January 2013 - 04:36 PM

Hi,

Mods, move this to a  more appropriate section if you feel the need. I have gone anon as I am on FB and no one know on my friends list what is going on.





Baby girl (14 months) has been really off since October. She was sick then (virus) and hasn’t really recovered. She has been quite sick on and off all her life, always told it is a virus.


  These are her symptoms

  -          Swollen lymph nodes present in her head and neck since October

  -          Swollen right nipple

  -          Excessive crying and sooking, even when asleep (yes, I am extremely sleep deprived)

  -          Constantly holds her head and ears

  -          Night sweats

  -          Low weight gain (officially diagnosed with failure to thrive)


  -          Constant scratching at lymph nodes while whining

  -          Vomiting after feeds

  -          Occasional purple feet

  -          Barely eats, refuses everything I offer her

  -          Falling over more and more

- Gagging on nothing

  My GP was concerned and did a full blood evaluation on her. It ruled out leukemia but not lymphoma as she had a marker for it. Also showed the urea levels are high.

  We were sent for an ultrasound on the nodes in her head today that showed that the nodes are swollen but not looking suspicious. That said, the scan was done in under a minute with no measurements taken of any nodes. I am unsure how they could've properly checked them when she was so wriggly and sooky.
I've done some reading and ultrasounds don't detect lymphoma. I have no idea why they even ordered that test.

  The ultrasound on her nipple back in October showed that it was normal glandular tissue (just seems she has more on that side)

  Our GP is stumped and has sent us to a paed who we have an appointment with tomorrow.

  Anyone have any clues or gone through a similar thing? Like I said, we are seeing the paed tomorrow.

Edited by Anyanswers, 26 January 2013 - 06:59 PM.


#2 roses99

Posted 23 January 2013 - 04:44 PM

No, but I truly hope you get answers soon. How very frightening  sad.gif

It's good you're going to the paed.

#3 Anyanswers

Posted 23 January 2013 - 05:25 PM

I am beside myself with worry and it is all starting to get on top of me but will push through. Thanks for the reply.

#4 Guest_Dinah_Harris_*

Posted 23 January 2013 - 05:30 PM

I am sorry to hear this, and I have no real answers for you.  But I hope you get some clarity around what it could be soon.

#5 miinii

Posted 23 January 2013 - 05:34 PM

Oh gosh OP how stressful for you and your poor DD i really hope you get some answers soon.

#6 Ice Queen

Posted 23 January 2013 - 05:36 PM

Certainly no answers from me.  Glad you are going to the paed, just keep pushing and trust your instincts that things aren't right.  Specialists are very hard to get appts with so you will need to keep strong and push, push, push sometimes.

Good luck and hope your LO gets better.  It doesnt sound normal by any means.

#7 Excentrique Feral

Posted 23 January 2013 - 05:37 PM

Let us know how you go OP, how stressful.  sad.gif

#8 Quay11

Posted 23 January 2013 - 05:40 PM

Good luck with the paed. I'm on a periodic fevers forum and there are also a lot of undiagnosed diseases out there too. My daughter ended up having Muckle Wells Syndrome, but there are plenty of children without a diagnosis. I hope the paed has answers for you, but if not and you feel something is not right, keep asking questions and recording symptoms and they might be able to work it out eventually.

#9 MumLOA

Posted 23 January 2013 - 09:16 PM



Hi there, sorry you're going through this, it can be very stressfull.

I don't have any answers for you, but my son has some similar symptoms so thought i would share our story so far...


He is 15 months and has had severe eczema since 3 months old, we have had it under control now since about 12 months with only occasional mild flare ups.

He has also had enlarged lymph nodes on his head, neck and body since about 4-5 months, most of these they believe were due to the eczema, but he has a very prominent one on his neck (approx. 1.5cm+ that can be seen at all times) that has never gone way even with antibiotics and no signs of other infection.

He is also low weight at 7.6kg at last check with no weight gained in the last 3months, but our paed is taking a 'wait and see' approach with everything (we are currently in the process of changing paeds :/)

He also has had very blue hands and feet on occasion and was diagnosed with Raynauds phenomenon, although again, no more investigation was done, it was just 'labeled' ...i have noticed lately that they don't turn as blue as often anymore. Maybe your DD has similar? It may or may not be related to her other symptoms?

Another thing could be allergies, is your DD allergic to anything that you're aware of?


This is probably not much help to you, but you wanted to let you know you are not alone and we are currently investigating similar things with our DS...i hope you get some answers soon original.gif

#10 Anyanswers

Posted 24 January 2013 - 08:56 PM

Thanks for the replies!
Here is what his answers were for everything...

Swollen lymph nodes present in her head and neck since October (most babies have this...)
- Swollen right nipple (No answer, ultrasound was clear)

- Excessive crying and sooking, even when asleep (behavioural/attention seeking)

- Constantly holds her head and ears  (behavioural/attention seeking)

- Night sweats (Didn't comment)


- Low weight gain (I give her too much milk/water so she doesn't want to eat)

- Constant scratching at lymph nodes while whining  (behavioural/attention seeking)

- Vomiting after feeds (behavioural/attention seeking)

- Occasional purple feet (cold - even with night sweats)

- Barely eats, refuses everything I offer her (Give her too much milk/water)

- Falling over more and more  (behavioural/attention seeking)

- Gagging on nothing  (behavioural/attention seeking)

Apparently my baby is a naughty attention seeker.

We are travelling to the closest Children's Hospital tomorrow for a further opinion (3 hours away - just going to emergency)

Edited by Anyanswers, 24 January 2013 - 09:44 PM.


#11 FreeRangeMum

Posted 24 January 2013 - 09:01 PM

Oh you poor thing sad.gif I hope you get more answers tomorrow. Thinking of you xxxx

#12 F1widow

Posted 24 January 2013 - 09:02 PM

My god, that was his assessment from how much observation? 15 minutes? Yeah, get a second, third, fourth opinion! Good luck! bbighug.gif

#13 solongsuckers

Posted 24 January 2013 - 09:02 PM

Wow, that doctor is a knob. I hope you get some answers tomorrow.

#14 Guest_LeChatNinjah_*

Posted 24 January 2013 - 09:04 PM

Those sound to my untrained ear to be ludicrous replies, OP, I am so glad you're getting further opinions.

Good luck tomorrow!

Oh, and if it helps, 2 of my 3 had one swollen nipple for the first 2 years, no idea why, paed said sometimes they're just like that.  They both gradually went more normal-looking.



#15 Coffeegirl

Posted 24 January 2013 - 09:05 PM

Pead sounds like he has no idea so he's fobbing you off.

What 14mth old has the ability to vomit on demand to seek attention?

I hope you get a second/third/fourth opinion!



#16 I'mBeachedAs

Posted 24 January 2013 - 09:06 PM

What a disappointing response! I'm very pleased you're taking her to hospital. Poor little baby, I hope you get some answers soon.

#17 mummabear

Posted 24 January 2013 - 09:08 PM

Good luck tomorrow, you are so doing the right thing, that doctor has no idea! No wonder you are worried sick.

Hope they find something simple and easily fixed...your poor little girl.



#18 TillyTake2

Posted 24 January 2013 - 09:09 PM

That dr sounds crap!! Where are you op? Maybe people can suggest a better paed!!

My only thought is ears. It can affect balance, could be related to gagging/vommiting if tonsils etc involved. ENT would be my best guess but a good paed would be ideal.

#19 TheGreenSheep

Posted 24 January 2013 - 09:10 PM

Glad your heading to the children's hospital. Hopefully they'll treat you and your child with more respect.

#20 Anyanswers

Posted 24 January 2013 - 09:13 PM

I am in Canberra, we are going to Sydney tomorrow.
Her ears were checked by my GP and the paed today and are apparently ok.
I must say that I am pretty impressed that a 14 month old is already attention seeking! (yes, that was sarcastic)

ETA - He told me to stop giving her fluids between the hours of 8:30pm and 6:30am so she would be hungry for breakfast in the morning. She has to learn to self settle and not bother me. Obviously I am disregarding this piece of advice!

Edited by Anyanswers, 24 January 2013 - 09:15 PM.


#21 *Finn*

Posted 24 January 2013 - 09:14 PM

Trust your instinct OP, what a load of crap from the pead. She is a baby for gods sake how can she be attention seeking.

#22 GreenEgg

Posted 24 January 2013 - 09:14 PM

It sounds a llike my friends DD who has been diagnosed with Febrile neutropenia

I hope you get answers soon



#23 Guest_Dinah_Harris_*

Posted 24 January 2013 - 09:17 PM

That sucks, OP.  I hope you get some much better answers tomorrow.  Your poor little baby.

#24 Therese

Posted 25 January 2013 - 09:27 AM

Just a reminder that all recommendations for doctors need to be taken off the boards. Feel free to use the pm system. I have removed a post.


Good luck OP, I hope you can get some answers today.


#25 ScarfaceClaw

Posted 25 January 2013 - 09:36 AM

I assume someone has listened to her chest and ruled out cardiac anomalies? Some of those features, while generally vague could indicate a circulatory issue (FTT, night sweats, purple feet, vomiting, for example)

I hope you find a good dr in emerg who can rule out things for you in a more methodical manner.

Good luck




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

Tot meets his heroes, falls apart with excitement

Two-year-old Quincy finished his potty training last week, and as part of his reward he was able to meet his idols.

Beautiful in our eyes: Georgia's story

I will never deny the fact that grief has a place when you give birth to a child who brings a set of circumstances very different to what you imagined. Because for nine months, I thought I knew my Georgie.

'It's been phenomenal': widower dad of quads thankful for support

There was nothing Erica and Carlos wanted more than a baby.

Vin Diesel names daughter after actor Paul Walker

The actor said there was "no other person" he was thinking about when he chose the name.

How midwives can help women who experience domestic violence

More than half of women who live with abusive partners experience violence during pregnancy.

Mum describes giving birth during Cyclone Pam

A new mother was told she must flee Port Vila hospital with her baby as Cyclone Pam bore down.

6 signs you're done having babies

There were a few signs I'm never going back to the land of maternity jeans, breast pumps and bassinets.

Marta Dusseldorp reveals breastfeeding cost her an acting job

Australian actress Marta Dusseldorp has revealed she was forced to withdraw from a Sydney Theatre Company production because a director did not approve of her breast feeding.

Female celebs (or their babies) with traditionally male names

Looking for a name that's a little bit different for a girl? Turn to names that have been traditionally used for males, as these celebs (or their parents) did.

'If you're anti-immunisation ... take a look at this picture of my son'

Greg Hughes is "an absolute shell of a man" as he and his wife Catherine struggle to come to terms with the loss of their newborn son Riley to whooping cough.

How an extrovert can raise an introvert

Introverts are often misunderstood as shy, and sometimes even rude. A timid child can be difficult to build rapport with, but it's important we nurture their sensitive natures.

Sheryl Sandberg's advice

'Choreplay': Help out at home to get more sex, Sandberg tells men

Forget foreplay. The new and improved route to intercourse is "choreplay" - it's good for your spouse, good for your house, and comes with the imprimatur of feminist du jour Sheryl Sandberg.

How to play with your baby

The first time your child learns a new skill at playtime is very exciting - for both you and your baby! Play is important to your child's development for a variety of reasons - here are some simple ideas for you to try at home.

I'm a single mother by choice

For me, being the best mother I can be means being a mum alone, at least for now. Thinking of my friends with inadequate partners, I wonder why more people don’t choose single motherhood.

Awkward wedding photos

Weird poses, surprise photobombs, bizarre editing: these are the wedding photos that should have never seen the light of day.

Four-week-old baby Riley Hughes dies of whooping cough

The mother of a four-week-old Perth baby who died after contracting whooping cough says her family has been left devastated by the loss of her "gorgeous, sweet" son.

Win a Ben & Holly's Little Kingdom prize pack

To celebrate the April 1 release of Holly's Magic Wand on DVD and Digital, we are giving away five DVD packs featuring the newest installment of Ben & Holly's Little Kingdom Holly's Magic Wand and many more hours of family entertainment! Enter Now!

Oh boy! Video shows family's reaction to baby surprise

Little Peyton Williams thought she was getting a baby sister named Charlee. But the two-year-old has had to settle for a doll dressed in pink after her baby "sister" turned out to be a boy.

How to help build up your baby's immune system

We all know that having a strong immune system is the best way to stay healthy – but what can we do to help it along?

'Nick, you need to call an ambulance': home birth mum's tragic death

A Melbourne mum who died after the home birth of her baby pleaded with her husband to call an ambulance because she felt she was going to die, the Victorian Coroners Court has heard.

When dads believe their baby doesn't 'like' them

Q: My two-month-old baby doesn't like me. He's perfectly content with my wife, but when I try to hold him, he gets upset and cries. I've backed off a little, thinking that he just needs a little time to get used to me, but that doesn't seem to be working. I'm starting to think I'm just not a very good dad. Is it too late for me to build a relationship with my baby?

When was the last time a stranger praised your parenting?

Wouldn’t it be great to get some nice feedback every now and then? After all, everyone likes to hear positive praise, particularly when it comes to parenting.

Special Ticket Offer, Save $8!

The Essential Baby & Toddler Show is back this April! Save $8 off the door price for a limited time only!

15 names on the verge of extinction

If you're looking to revive an older name, or don’t want anything near the top 1000 list, check out these rare monikers for your unique baby.

5 characteristics of great dads

It’s great to see a generation of dads who are more actively involved with caring, nurturing and loving their kids.

Why doesn't Australia have more breast milk banks?

When there’s no question that milk banks are important, why don’t we have more of them in Australia?

Carrie Bickmore announces birth of daughter

Television personality Carrie Bickmore has given birth to her second child.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Sign up to our 30 days of #PlayIQ challenge

Sign up to receive 30 amazing tips and ideas for play with baby during the month of April and submit a picture or tip on our social wall for a chance to win an amazing Fisher-Price prize pack.

Man faces jail after giving woman abortion pill smoothie

A Norwegian man is facing jail after putting abortion pills in his ex-girlfriend's smoothie, causing her to have a miscarriage.

'He's a blessing': family of baby born without eyes

Jordy Jackson was born without eyes. He has anophthalmia, which affects one in every 100,000 babies born.

Win one of 5 Cadbury Easter Hampers

With Easter fast approaching, Cadbury are giving away 5 Cadbury Easter Hampers. Enter Now!

Super fit model Sarah Stage defends her pregnancy body

Model Sarah Stage has defended her pregnancy body after critics claimed her slim figure at eight-and-a-half months pregnant wasn't "normal".

Win a Ben & Holly's Little Kingdom and Peppa Pig prize pack

To celebrate the April 1 release of Holly's Magic Wand on DVD and Digital, Essential Baby and Entertainment One are giving away five bumper DVD packs featuring the newest installment of Ben & Holly's Little Kingdom Holly's Magic Wand and many more hours of family entertainment! Enter Now!

Why I post breastfeeding photos online

I love to take pictures of my children. In some of the pictures, my younger son is nursing.

The day I broke my baby

There are things I wish I didn't know. I wish I didn't know that companies make tiny braces, small enough to hold necks no bigger than a wrist.

The place just for dads of multiples

When a couple discovers they're expecting multiples, the dad can sometimes be almost forgotten in all the excitement and preparation. But one group offers a space just for dads of twins and higher-order multiples.

Brave mum calls for domestic violence law reform

A brave mum of two has shared details of the harrowing attacks she suffered at the hands of her partner in a bid to help other victims of domestic violence.

Why I had the new test for Down syndrome

Early last year I turned 35, and having just found out I was pregnant, I opted to have the new test for Down syndrome.

Geeky baby gear

If your family is more into Star Wars, gaming and the periodic table than most, you might want to check out these geek-chic baby items.

2015: the year of the sheep

According to the Chinese zodiac, babies born in the year of the sheep are creative and enjoy spending quiet time with their own thoughts.

Breakthrough genetic testing now available in Australia

Pregnant women will for the first time have access to locally analysed, accurate, non-invasive pre-natal genetic testing when the first Australian clinic to offer the services opens its doors next week.

Grandbabies: the babies born looking old

Not a day under 65 and a lifetime of struggle! That's the look of these newborns, who look adorably older than their real age. Social networking site Reddit recently featured user submissions of adorable grandbabies, here are our favourites.

Family kicked off flight after toddler seatbelt drama

An entire family was kicked off a Cathay Pacific flight when a misbehaving toddler refused to put his seatbelt on.

Stolen baby found after 17 years

A baby stolen from her mother's arms shortly after birth has been found through an astonishing coincidence.

53 creative pregnancy announcements

Announcing that you're expecting can be a time to express your creativity, sense of humour and imagination. Check out how other parents and parents-to-be have broken the news to friends and family.

IKEA hacks for the nursery and kids' rooms

Are you one of those that know the whole IKEA catalogue by heart? Love their stuff but want to personalise it? Here's some inspiration to help you realise the potential of IKEA furniture and fittings.

36 baby names inspired by food and drinks

A French court may have ruled out Nutella as a baby name, but that doesn't have to stop you from taking inspiration from the supermarket (or bottle shop). See what parents in the US have chosen for their delicious little ones.

Clever breastfeeding products

Check out this range of products designed to help make your breastfeeding journey more enjoyable, manageable and convenient.

 

Sign up now!

30 days of #PlayIQ challenge

Receive a daily email from Essential Baby during April with great play tips and ideas, then submit your baby at play photos to our Playwall, Instagram or Twitter for your chance to win.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.