Jump to content

Epileptic wanting to TTC this year
Experiences with this please


  • Please log in to reply
12 replies to this topic

#1 Whatsername

Posted 21 January 2013 - 11:00 AM

Not to sure if I am in the right place. I am a bit new to this.

My DH and I want to start TTC this year however I am on a lot of anti-epileptics. 2 of which are quiet new on the market and not much research has been done in regards to what impacts these particular drugs have on fetus'.


I am really unsure what to do. The epilepsy has been hard to control which after 8 years I am finally stable enough to start thinking about having a baby and if I stop my medications there is a high chance I could relapse, start having seizures again and that would be horrible if it were to happen while I was pregnant. On the other hand the thought of taking medications that could too put a baby at risk frightens me.

I have a great Neurologist who is  very supportive but will not advise me on what to do, only provide me with all the answers to my questions and concerns, understandably so, because ultimately it is our choice either way.


My DH and I are very frightened about making this decision. Is there anyone out there who has been in a similar circumstance?

I

Edited by Chelli, 23 January 2013 - 09:31 AM.
Altered thread title


#2 Isolabella

Posted 21 January 2013 - 02:54 PM

My sister is epileptic.

With her Neuro she agreed that the risk of medication was the lower risk when compared to the risk of seizures. As it was PG hormones did impact her and she did have some seizures during PG.

It is a hard decision to make.

Eta my sister has a healthy 15mo and is TTC #2

Edited by lsolaBella, 21 January 2013 - 03:03 PM.


#3 CFMummy

Posted 21 January 2013 - 03:00 PM

Hi im epileptic and have 2 girls. I was told to take a hight strength folic acid for at least 3 months before TTC then all the way through the pregnancy. I did have afew seizures towards the end of the pregnany but both my girls were born healthy

#4 madammuck

Posted 23 January 2013 - 09:24 AM

Hi there,

My sister is epileptic and has two very lovely, healthy little boys, both of which she conceived while on her meds (albeit lower doses than normal).

She's currently TTC #3, falling pregnant is not a problem but she's miscarried twice in a short period of time, which doctors are attributing to her epilepsy medication.

She's been directed to see an OB who specialises in the care of pregnant women with epilepsy, together they're going to map out the best plan for her. She told me the other day she's feeling emotionally much better knowing that she's rallying a support team of experts around her.

As PPs have said, she's also on a higher dose of folate.

Good luck OP original.gif

#5 Chelli

Posted 23 January 2013 - 09:29 AM

Hi there,
When it comes to medication advice, this must only come from your medical practitioner. Responses to this must only be about experiences with TTC. I have edited the title of this thread to reflect that.

All the best with TTC.

Chelli
Admin

#6 Whatsername

Posted 23 January 2013 - 09:41 AM

Thank You all for your responses. It is good to hear other people's stories and thoughts. It is such a hard decision.

We have a wonderful Neurologist onboard but I don't have anyone else who I can talk to about all this.


Thank You original.gif

#7 Whatsername

Posted 23 January 2013 - 09:46 AM

QUOTE (CFMummy @ 21/01/2013, 04:00 PM) <{POST_SNAPBACK}>
Hi im epileptic and have 2 girls. I was told to take a hight strength folic acid for at least 3 months before TTC then all the way through the pregnancy. I did have afew seizures towards the end of the pregnany but both my girls were born healthy



I have been told to start on high strength folic acid just incase of any unexpected surprises however that has not happened.


Do you mind me asking if you were medicated throughout your pregnancy? Also, did you have natural or elective C-sections as I usually have seizures after being tired, forgetting medications and stressful situations. I really want to try a Natural birth but have all these other things to think about.

#8 suline

Posted 23 January 2013 - 09:53 AM

QUOTE
We have a wonderful Neurologist onboard but I don't have anyone else who I can talk to about all this.


Can you ask your GP for a referral to a high risk or feto-maternal specialist obstetrician for a pre-conception and pregnancy planning meeting. I would guess it would be through the largest maternity hospital in your state (sorry, not sure where you are located) Im guessing they will have experience with many women having babies with different forms of epilepsy  and medications, and they should be able to liase with your neurologist.

Goodluck.

#9 Isolabella

Posted 23 January 2013 - 10:00 AM

My sisters OB worked closely with her Neuro.

My sister was wanting a natural birth. Her OB was OK with the idea, so long as certain criteria were met. Once again it is about what is the lesser risk.

As it was it was all taken out of her hands as she developed HELLP eclampsia (not related to epilepsy) and she had an emerg full GA cs.

Work with your caregivers about what is best for your situation.



#10 CFMummy

Posted 23 January 2013 - 10:01 AM

I had 2 natural births both very fast labours of 1.5 hours and 1/2 hour. I did have a siezure after my 1st while I was showering afterward but DH was sitting in the bathroom with our DD1 so was able to get the midwife imediatly. I will add that I have never had a siezure while holding either of my babies as I could feel it coming and was able to put baby down and move away

#11 Whatsername

Posted 23 January 2013 - 10:06 AM

QUOTE (suline @ 23/01/2013, 10:53 AM) <{POST_SNAPBACK}>
Can you ask your GP for a referral to a high risk or feto-maternal specialist obstetrician for a pre-conception and pregnancy planning meeting. I would guess it would be through the largest maternity hospital in your state (sorry, not sure where you are located) Im guessing they will have experience with many women having babies with different forms of epilepsy  and medications, and they should be able to liase with your neurologist.

Goodluck.



    I live in NSW. I haven't been told of this. I have another appointment with my Neurologist in a few months to discuss all medications etc. I would like my Neurologist involved as much as possible as we have a good relationship. He really has been a rock through all the hard times, he is very understanding. I will have to chat to him about this when I see him next.


Thank you so much original.gif

#12 opethmum

Posted 23 January 2013 - 10:06 AM

Hi there,

I don't have classic epilepsy but do suffer from seizures nonetheless, I think that you should discuss fully with your neuro in how to make that happen. I am luckily on medication that helps me and I did not have to stop during my 2 pregnancies. I hope you can find the medication that allows you to TTC.

Since my seizures are somewhat controlled we had to make some tough decisions regarding the welfare of our bubs. My DH and I made the decision that I was not to bathe the kids and left unattended with them near water. When we swim or are near water I make sure that at least one other adult I know is present so can help me if I have a seizure. I do not drive because of this and you will have to figure out whether your region is well stocked with public transport so you can get around independently with the kids and go to mothers groups etc because being isolated with kids is not fun and to rely on your DH and others can be paralysing.

Sometimes you and your DH will have to make tough calls in regards to your seizures and what arrangements you will have to make to accommodate them in the event of pregnancy and potential motherhood. You are going to be a high risk pregnancy and
you will have to have extra monitoring and you might have to have a controlled birth of your little one e.g c section or have heavy monitoring during your labour and if you do seizure during the birth you may have to be prepared to have an emergency c section.

There are so many things to consider and I think with the right advice and right medical team behind you, you could TTC with no problems but you have to be realistic and honest with yourself. Only you know what you can take and you alone will have to live with your choices and if your condition is not controlled and is serious in that you can not guarantee the safety of yourself and a child then you and your DH may have to make a tough call and be prepared to take the steps necessary to make that happen.

I wish you good luck in your journey and I hope you come to a decision you are happy with.

#13 Isolabella

Posted 23 January 2013 - 10:07 AM

CFMummy you are very lucky to know it is coming. For my sister it happens out of the blue. She was very shaken to realise she had had a seizure while holding my nephew. Luckily she was in bed and he was 15m, so he just happily climbed off the bed. That is why my sister is now looking to move into the back half of my folks place. She can not bathe bubs without an adult there and prefers not to be alone with child.

But she is working on it. Her medication ATM is at lower levels, but she does not want to increase levels as she is TTC. A delicate balance sad.gif .




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

 

Exclusive Black Friday Sale!

Get over 40% off selected products, including prams, baby carriers, cloth nappies, sleeping bags and much more! 24 hours only, on May 6 - register now for your special code.

Kelly Clarkson shares first photos of son

Kelly Clarkson has shown off the first photos of her son, Remington Alexander Blackstock.

5 childbirth myths that need to be busted

Birth is an unpredictable, mysterious process that intrigues us all, and there is a lot of misinformation out there.

Mum of three fatally shot by toddler while driving

A US mother has been shot by her toddler while driving on a highway in Wisconsin.

All you need is one minute to work out

The seven-minute-work out is old news. Research shows the effectiveness of going hell-for-leather for just one minute.

Pregnant women needed to join diabetes study

Pregnant woman in country Australia will help Adelaide researchers figure out why cases of type 1 diabetes have doubled over the past two decades.

Just announced: the Mountain Buggy Unirider

It's the perfect solution to combat those toddler meltdowns when they no longer want to be in a pram but can't walk long distances.

Authorities euthanise dog that fatally bit a newborn baby

A pit bull mix that fatally bit a 3-day-old infant last week has been euthanised, authorities said.

The push for Medicare to fund lactation consultants

While meeting with a lactation consultant can make an enormous difference to a new mother, it's not a service that is available through the public health system.

Why it's perfectly natural to dislike other people's children

Members of a popular forum are fiercely debating whether it is acceptable to dislike a friend's child.

Woman gives birth on plane, names baby after airline

A pregnant woman who unexpectedly gave birth on a flight has named her new baby after the airline, Jetstar.

Heartwarming photos show the joy of adoption after foster care

Children living in foster care can feel like their future is less than clear. But that uncertainty disappears the day they are adopted by their "forever family" 

'Oh my god, it's a baby!' Mum shocked to give birth

When the cramps started to kick in, Klara Dollan just assumed a painful period was starting.

Mum's Facebook plea: 'Help me find my daughter's father'

Kerryn has a unusual present planned for daughter Imi's 13th birthday celebrations - she hopes to be able to be able to give the soon-to-be the teenager her first ever photo of her dad.

Is it possible for your house to be too clean?

Our houses are cleaner than ever before. But how clean is too clean? Could a sterile home be putting your family's health at risk?

Millions of Monkeys: puzzles that grow with your toddler

Here's a puzzle that grows with them; the Puzzle Grow Pack by Millions of Monkeys.

Baby names from Britpop

If you grew up in the 90s you might want to look to the genre of Britpop music for baby name inspiration.

What to eat and drink when you have gastro

When you catch a bug that causes acute infectious gastroenteritis (gastro), your stomach and intestinal tract become inflamed, causing diarrhoea, nausea, vomiting, abdominal cramping and pain. The last thing you probably feel like doing is eating.

'To this day, I owe her my life'

Would I have survived if I hadn't crossed that street?

Why baby Sonny needs you to vaccinate your children

Caitlin is a firm believer in the importance of immunisation to protect children from harmful and deadly diseases.

Five-year-old's photo captures beauty of motherhood

There is no make-up or special outfits and hairdos, but the five-year-old boy who took this picture captured the essence of motherhood as well as any professional photographer.

Babies know whether you are naughty or nice

Studies have shown that infants in the first months of life try to avoid dealing with social wrongdoers - for example, sharing less with them and helping them less - and they expect others to, too.

 
Advertisement
 

Top 5 Articles

Advertisement
 
 
 

What's hot on EB

The babies who are one in 70 million

Bethani Webb was excited to find out she was pregnant, but the first time mum did not realise she was carrying four babies not one.

Exclusive Black Friday Sale!

Get over 40% off selected products, including prams, baby carriers, cloth nappies, sleeping bags and much more! 24 hours only, on May 6 - register now for your special code.

Cafe offers breastfeeding mums a free cup of tea

A Sydney cafe is offering breastfeeding mums free cups of tea in a bid to show support for the right of women to nurse their babies wherever they choose.

To snip or not to snip? When the decision is not clear cut

Jamie Oliver, who considered a vasectomy, is to be a father again. A fellow dad reflects on his own decision 11 years ago

Doctors stunned by rare twins born almost six weeks apart

To everyone's surprise, Kristen Miller "kept doing better each day", keeping her second baby safe.

Baby book ideas for modern parents

Before my son was born I was given a lovely baby book full of blank pages waiting to be filled with weights and heights and first words.

The adorable smile of a baby seeing his mum clearly for the first time

There is no doubt seeing their child smile for the first time is an unforgettable moment for parents everywhere.

Mum tells how toddler 'nearly hung himself' in cot mishap

When Alison Johnson put her 18-month-old Caleb down for a nap, she had no reason to believe her son was in any danger.

Babies are still switched at birth? Yes, it can happen

All my panic and tears aside, my biggest question looking back is about the kind of security measures used in the maternity ward.

Doctors slammed for taking selfie with newborn

Everyone who visits a mum in hospital in the days following childbirth wants to get a photo with the new baby.

ergoPouch Twosie Sleepsuit for winter breastfeeding

Finally, there's a way to keep warm while breastfeeding through winter.

Health check: How long does sex 'normally' last?

What to do with this information? My advice would be to try not to think about it during the throes of passion.

When breastfeeding sucks: fixing common problems

From niplash to tight boobs, biting to milk supply issues, Pinky McKay looks at common breastfeeding issues and how to solve them.

10 things I've learnt in my first six months with twins

Six months on we're all still alive, and the more we get to know each other the easier the days become.

Mum's loving kiss leaves baby fighting for life

Kirsty Carrington thought nothing of giving her newborn son a kiss, little did she know it would leave the baby fighting for life.

When doing chores is your new 'me time'

After children, 'me time' looks a little different.

Get going: 14 travel strollers for families on the move

A stroller can make or break travelling with a baby or toddler. Here are 15 great single travel stroller options.

10 ways toddlers are terrific

It always pays to remind yourself of how terrific toddlers can be - they're little like this for such a short time

 

ENTER NOW

Do your kids love bananas?

This is the comp for you! We have $800 worth of Myer gift cards and boxes of Australian Bananas to be won. Entry is simple: just post a pic of your little one enjoying a banana in the comments of the FB post to enter.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.