Jump to content

Epileptic wanting to TTC this year
Experiences with this please


  • Please log in to reply
12 replies to this topic

#1 Whatsername

Posted 21 January 2013 - 11:00 AM

Not to sure if I am in the right place. I am a bit new to this.

My DH and I want to start TTC this year however I am on a lot of anti-epileptics. 2 of which are quiet new on the market and not much research has been done in regards to what impacts these particular drugs have on fetus'.


I am really unsure what to do. The epilepsy has been hard to control which after 8 years I am finally stable enough to start thinking about having a baby and if I stop my medications there is a high chance I could relapse, start having seizures again and that would be horrible if it were to happen while I was pregnant. On the other hand the thought of taking medications that could too put a baby at risk frightens me.

I have a great Neurologist who is  very supportive but will not advise me on what to do, only provide me with all the answers to my questions and concerns, understandably so, because ultimately it is our choice either way.


My DH and I are very frightened about making this decision. Is there anyone out there who has been in a similar circumstance?

I

Edited by Chelli, 23 January 2013 - 09:31 AM.
Altered thread title


#2 IsolaBella

Posted 21 January 2013 - 02:54 PM

My sister is epileptic.

With her Neuro she agreed that the risk of medication was the lower risk when compared to the risk of seizures. As it was PG hormones did impact her and she did have some seizures during PG.

It is a hard decision to make.

Eta my sister has a healthy 15mo and is TTC #2

Edited by lsolaBella, 21 January 2013 - 03:03 PM.


#3 CFMummy

Posted 21 January 2013 - 03:00 PM

Hi im epileptic and have 2 girls. I was told to take a hight strength folic acid for at least 3 months before TTC then all the way through the pregnancy. I did have afew seizures towards the end of the pregnany but both my girls were born healthy

#4 madammuck

Posted 23 January 2013 - 09:24 AM

Hi there,

My sister is epileptic and has two very lovely, healthy little boys, both of which she conceived while on her meds (albeit lower doses than normal).

She's currently TTC #3, falling pregnant is not a problem but she's miscarried twice in a short period of time, which doctors are attributing to her epilepsy medication.

She's been directed to see an OB who specialises in the care of pregnant women with epilepsy, together they're going to map out the best plan for her. She told me the other day she's feeling emotionally much better knowing that she's rallying a support team of experts around her.

As PPs have said, she's also on a higher dose of folate.

Good luck OP original.gif

#5 Chelli

Posted 23 January 2013 - 09:29 AM

Hi there,
When it comes to medication advice, this must only come from your medical practitioner. Responses to this must only be about experiences with TTC. I have edited the title of this thread to reflect that.

All the best with TTC.

Chelli
Admin

#6 Whatsername

Posted 23 January 2013 - 09:41 AM

Thank You all for your responses. It is good to hear other people's stories and thoughts. It is such a hard decision.

We have a wonderful Neurologist onboard but I don't have anyone else who I can talk to about all this.


Thank You original.gif

#7 Whatsername

Posted 23 January 2013 - 09:46 AM

QUOTE (CFMummy @ 21/01/2013, 04:00 PM) <{POST_SNAPBACK}>
Hi im epileptic and have 2 girls. I was told to take a hight strength folic acid for at least 3 months before TTC then all the way through the pregnancy. I did have afew seizures towards the end of the pregnany but both my girls were born healthy



I have been told to start on high strength folic acid just incase of any unexpected surprises however that has not happened.


Do you mind me asking if you were medicated throughout your pregnancy? Also, did you have natural or elective C-sections as I usually have seizures after being tired, forgetting medications and stressful situations. I really want to try a Natural birth but have all these other things to think about.

#8 suline

Posted 23 January 2013 - 09:53 AM

QUOTE
We have a wonderful Neurologist onboard but I don't have anyone else who I can talk to about all this.


Can you ask your GP for a referral to a high risk or feto-maternal specialist obstetrician for a pre-conception and pregnancy planning meeting. I would guess it would be through the largest maternity hospital in your state (sorry, not sure where you are located) Im guessing they will have experience with many women having babies with different forms of epilepsy  and medications, and they should be able to liase with your neurologist.

Goodluck.

#9 IsolaBella

Posted 23 January 2013 - 10:00 AM

My sisters OB worked closely with her Neuro.

My sister was wanting a natural birth. Her OB was OK with the idea, so long as certain criteria were met. Once again it is about what is the lesser risk.

As it was it was all taken out of her hands as she developed HELLP eclampsia (not related to epilepsy) and she had an emerg full GA cs.

Work with your caregivers about what is best for your situation.



#10 CFMummy

Posted 23 January 2013 - 10:01 AM

I had 2 natural births both very fast labours of 1.5 hours and 1/2 hour. I did have a siezure after my 1st while I was showering afterward but DH was sitting in the bathroom with our DD1 so was able to get the midwife imediatly. I will add that I have never had a siezure while holding either of my babies as I could feel it coming and was able to put baby down and move away

#11 Whatsername

Posted 23 January 2013 - 10:06 AM

QUOTE (suline @ 23/01/2013, 10:53 AM) <{POST_SNAPBACK}>
Can you ask your GP for a referral to a high risk or feto-maternal specialist obstetrician for a pre-conception and pregnancy planning meeting. I would guess it would be through the largest maternity hospital in your state (sorry, not sure where you are located) Im guessing they will have experience with many women having babies with different forms of epilepsy  and medications, and they should be able to liase with your neurologist.

Goodluck.



    I live in NSW. I haven't been told of this. I have another appointment with my Neurologist in a few months to discuss all medications etc. I would like my Neurologist involved as much as possible as we have a good relationship. He really has been a rock through all the hard times, he is very understanding. I will have to chat to him about this when I see him next.


Thank you so much original.gif

#12 opethmum

Posted 23 January 2013 - 10:06 AM

Hi there,

I don't have classic epilepsy but do suffer from seizures nonetheless, I think that you should discuss fully with your neuro in how to make that happen. I am luckily on medication that helps me and I did not have to stop during my 2 pregnancies. I hope you can find the medication that allows you to TTC.

Since my seizures are somewhat controlled we had to make some tough decisions regarding the welfare of our bubs. My DH and I made the decision that I was not to bathe the kids and left unattended with them near water. When we swim or are near water I make sure that at least one other adult I know is present so can help me if I have a seizure. I do not drive because of this and you will have to figure out whether your region is well stocked with public transport so you can get around independently with the kids and go to mothers groups etc because being isolated with kids is not fun and to rely on your DH and others can be paralysing.

Sometimes you and your DH will have to make tough calls in regards to your seizures and what arrangements you will have to make to accommodate them in the event of pregnancy and potential motherhood. You are going to be a high risk pregnancy and
you will have to have extra monitoring and you might have to have a controlled birth of your little one e.g c section or have heavy monitoring during your labour and if you do seizure during the birth you may have to be prepared to have an emergency c section.

There are so many things to consider and I think with the right advice and right medical team behind you, you could TTC with no problems but you have to be realistic and honest with yourself. Only you know what you can take and you alone will have to live with your choices and if your condition is not controlled and is serious in that you can not guarantee the safety of yourself and a child then you and your DH may have to make a tough call and be prepared to take the steps necessary to make that happen.

I wish you good luck in your journey and I hope you come to a decision you are happy with.

#13 IsolaBella

Posted 23 January 2013 - 10:07 AM

CFMummy you are very lucky to know it is coming. For my sister it happens out of the blue. She was very shaken to realise she had had a seizure while holding my nephew. Luckily she was in bed and he was 15m, so he just happily climbed off the bed. That is why my sister is now looking to move into the back half of my folks place. She can not bathe bubs without an adult there and prefers not to be alone with child.

But she is working on it. Her medication ATM is at lower levels, but she does not want to increase levels as she is TTC. A delicate balance sad.gif .




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

Australia's top baby names of 2014

The numbers have been crunched and it's official: Australian parents are having a bit of an 'O' moment.

As a guilty mum: the best advice for treating head lice

Just like a horror movie ... THEY'RE BAAAAAACK. So what works in treating and avoiding head lice and nits?

No, having a dog is not like having a human child

It's obvious these people dote on their pets, but they're barking up the wrong tree.

Confirmed: Kate Middleton is in labour

The Duchess of Cambridge is in the early stages of labor at St Mary's Hospital.

Baby-led weaning worked for us

My baby wasn't interested in food - until we tried something new. Now she's eating it all, and it often comes from my plate.

Parenting an early walker

Watching your child take their first wobbly steps is one of the best parenting highs you'll ever experience. But with that high comes a new reality.

Overdue and over it

A watched womb never labours ... or at least mine didn't.

'Paralysed bride' becomes a mum

Rachelle Friedman Chapman was preparing to marry the man of her dreams when tragedy struck four years ago.

Why the royal baby will look more like Prince Philip than Prince William

No matter what the occasion the world always seems to be waiting for Prince William and Kate Middleton.

Surprise baby born on toilet

Discovering your wife has just given birth on the toilet would be a surprise for anyone. But the shock would be even greater if neither you or your partner knew you were expecting a baby.

5 spooky photos with babies and children

These five photos show some ghostly images - but are they real? Do you believe in the spirit world?

Does it matter how much time you spend with your children?

Does spending more time with your kids help their development? This is a more complex topic than it may seem.

Rare condition diagnosed during optional scan

A mother who opted for a 4D scan late in pregnancy discovered her unborn baby had a rare brain disorder.

Cleveland captives speak about their decade of terror - and their futures

"I think we were just tired of people talking, trying to tell our stories, and they had no idea, no clue, what we went through."

Proof it's impossible to not join in a toddler's laughter

They say laughter is the best medicine. If that's true Tom Fletcher and his son should live long, healthy lives.

How I really feel about my drug-free birth

Do I feel 'smug'? No. Nor do I feel remotely superior. Each birth was valid and valuable in its own right, producing, as it did, a healthy baby.

How to talk about your pregnancy at work

The workplace isn't always a friendly place for pregnant women. Yet working women inclined to conceal a pregnancy from prying coworkers may be better off opening up and carrying on, according to a new study.

Tell us your story to win!

To celebrate Mother's Day this year we are giving you the chance to win one of five great prizes simply by telling us your story.

The Goss

Sonia Kruger: 'One baby is enough'

The popular TV host has no plans for a sibling for her new daughter Maggie.

Where to get help to help your baby sleep

There is so much pressure about having a baby who sleeps 'all night' , it's no wonder you worry about your baby if she wakes in the night.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Playtime guide:

A new area on our site for all your playtime and learning fun with baby - specially brought to you by Fisher-Price Play IQ?. PLUS your chance to win a year's supply of toys.

Vintage baby names having a comeback

What makes some names have comebacks while others silently fade into oblivion? A few factors come into play.

How to play with your newborn

Even though they're immobile and can't speak, there are plenty of ways you can engage and communicate with your newborn to stimulate their physical, cognitive and emotional development.

Building your baby’s confidence

What is a confident baby? A child that feels secure and safe.

Mum of six faked cancer to get donations, police claim

Elizabeth Edmonds' husband posted some devastating news on Facebook last year.

I'll admit it: I have last child parenting fatigue

If you're a new mum and feeling ignored by the older mum/the old hand/the has-been, please know, it's not you, it's me. Blame the last child parenting fatigue.

Cobie Smulders speaks about her battle with ovarian cancer

The 'How I Met Your Mother' star has revealed that she was diagnosed with ovarian cancer at 25 - and was told she'd never conceive naturally.

Essentials your child needs to grow

What does your baby need to grow up healthy? The experts give their advice.

Coroner warns of 'dangerous' cot

A UK coroner has warned of the dangers of a bedside cot after the death of a newborn baby who choked to death this month.

Building your baby's emotional and social skills through play

Babies are social beings who enjoy being around people they know and love, especially you.

Why suicide prevention is everybody's responsibility

Everyone agrees we need to do more to care for people at risk from suicide, the problem is what.

Exhaustion is not the same as tiredness

Having a new baby isn't tiring - it can be downright exhausting.

Five posterior babies, four home births

I was on a high. I'd done it all by myself with no help from anyone.

Mum's list of birthday gift demands goes viral

We're big fans of kids' birthday parties - but this is one bash we're glad we didn't get an invite to.

Kate Middleton to receive 'loyalty discount' for second birth

Everybody loves a bargain - including the Duchess of Cambridge.

Fish & chip shop owner's sad note goes viral

A lengthy note put on the window of a fish & chip shop has gone viral due to the writer's serious doubts about the romance of travel.

Pregnant women need good nutrition advice, not judgment

Pregnant women are under pressure to do all the "right things" to have a healthy child. It results in women feeling judged about their decisions.

William Tyrrell's mum speaks out: 'We hope he is still alive'

The mother of missing toddler William Tyrrell says she has a vision that somebody "picked him up and moved him on ... that's the only way ... to explain for him not to be there".

Family comes first for 23-year-old Tommy Connolly

Most 23-year-old blokes spend their hard earned cash on fun times with mates or romantic dinners with their girlfriend, but not Tommy Connolly.

Newborn all-girl quintuplets 'doing great'

The first all-female quintuplets born in the United States were delivered last week, at 28 weeks and two days.

53 creative pregnancy announcements

Announcing that you're expecting can be a time to express your creativity, sense of humour and imagination. Check out how other parents and parents-to-be have broken the news to friends and family.

IKEA hacks for the nursery and kids' rooms

Are you one of those that know the whole IKEA catalogue by heart? Love their stuff but want to personalise it? Here's some inspiration to help you realise the potential of IKEA furniture and fittings.

 

Top baby names

Baby Names

The numbers are in and we can now bring you the 2014 top baby name list for Australia.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.