Jump to content

Epileptic wanting to TTC this year
Experiences with this please


  • Please log in to reply
12 replies to this topic

#1 Whatsername

Posted 21 January 2013 - 11:00 AM

Not to sure if I am in the right place. I am a bit new to this.

My DH and I want to start TTC this year however I am on a lot of anti-epileptics. 2 of which are quiet new on the market and not much research has been done in regards to what impacts these particular drugs have on fetus'.


I am really unsure what to do. The epilepsy has been hard to control which after 8 years I am finally stable enough to start thinking about having a baby and if I stop my medications there is a high chance I could relapse, start having seizures again and that would be horrible if it were to happen while I was pregnant. On the other hand the thought of taking medications that could too put a baby at risk frightens me.

I have a great Neurologist who is  very supportive but will not advise me on what to do, only provide me with all the answers to my questions and concerns, understandably so, because ultimately it is our choice either way.


My DH and I are very frightened about making this decision. Is there anyone out there who has been in a similar circumstance?

I

Edited by Chelli, 23 January 2013 - 09:31 AM.
Altered thread title


#2 Isolabella

Posted 21 January 2013 - 02:54 PM

My sister is epileptic.

With her Neuro she agreed that the risk of medication was the lower risk when compared to the risk of seizures. As it was PG hormones did impact her and she did have some seizures during PG.

It is a hard decision to make.

Eta my sister has a healthy 15mo and is TTC #2

Edited by lsolaBella, 21 January 2013 - 03:03 PM.


#3 CFMummy

Posted 21 January 2013 - 03:00 PM

Hi im epileptic and have 2 girls. I was told to take a hight strength folic acid for at least 3 months before TTC then all the way through the pregnancy. I did have afew seizures towards the end of the pregnany but both my girls were born healthy

#4 madammuck

Posted 23 January 2013 - 09:24 AM

Hi there,

My sister is epileptic and has two very lovely, healthy little boys, both of which she conceived while on her meds (albeit lower doses than normal).

She's currently TTC #3, falling pregnant is not a problem but she's miscarried twice in a short period of time, which doctors are attributing to her epilepsy medication.

She's been directed to see an OB who specialises in the care of pregnant women with epilepsy, together they're going to map out the best plan for her. She told me the other day she's feeling emotionally much better knowing that she's rallying a support team of experts around her.

As PPs have said, she's also on a higher dose of folate.

Good luck OP original.gif

#5 Chelli

Posted 23 January 2013 - 09:29 AM

Hi there,
When it comes to medication advice, this must only come from your medical practitioner. Responses to this must only be about experiences with TTC. I have edited the title of this thread to reflect that.

All the best with TTC.

Chelli
Admin

#6 Whatsername

Posted 23 January 2013 - 09:41 AM

Thank You all for your responses. It is good to hear other people's stories and thoughts. It is such a hard decision.

We have a wonderful Neurologist onboard but I don't have anyone else who I can talk to about all this.


Thank You original.gif

#7 Whatsername

Posted 23 January 2013 - 09:46 AM

QUOTE (CFMummy @ 21/01/2013, 04:00 PM) <{POST_SNAPBACK}>
Hi im epileptic and have 2 girls. I was told to take a hight strength folic acid for at least 3 months before TTC then all the way through the pregnancy. I did have afew seizures towards the end of the pregnany but both my girls were born healthy



I have been told to start on high strength folic acid just incase of any unexpected surprises however that has not happened.


Do you mind me asking if you were medicated throughout your pregnancy? Also, did you have natural or elective C-sections as I usually have seizures after being tired, forgetting medications and stressful situations. I really want to try a Natural birth but have all these other things to think about.

#8 suline

Posted 23 January 2013 - 09:53 AM

QUOTE
We have a wonderful Neurologist onboard but I don't have anyone else who I can talk to about all this.


Can you ask your GP for a referral to a high risk or feto-maternal specialist obstetrician for a pre-conception and pregnancy planning meeting. I would guess it would be through the largest maternity hospital in your state (sorry, not sure where you are located) Im guessing they will have experience with many women having babies with different forms of epilepsy  and medications, and they should be able to liase with your neurologist.

Goodluck.

#9 Isolabella

Posted 23 January 2013 - 10:00 AM

My sisters OB worked closely with her Neuro.

My sister was wanting a natural birth. Her OB was OK with the idea, so long as certain criteria were met. Once again it is about what is the lesser risk.

As it was it was all taken out of her hands as she developed HELLP eclampsia (not related to epilepsy) and she had an emerg full GA cs.

Work with your caregivers about what is best for your situation.



#10 CFMummy

Posted 23 January 2013 - 10:01 AM

I had 2 natural births both very fast labours of 1.5 hours and 1/2 hour. I did have a siezure after my 1st while I was showering afterward but DH was sitting in the bathroom with our DD1 so was able to get the midwife imediatly. I will add that I have never had a siezure while holding either of my babies as I could feel it coming and was able to put baby down and move away

#11 Whatsername

Posted 23 January 2013 - 10:06 AM

QUOTE (suline @ 23/01/2013, 10:53 AM) <{POST_SNAPBACK}>
Can you ask your GP for a referral to a high risk or feto-maternal specialist obstetrician for a pre-conception and pregnancy planning meeting. I would guess it would be through the largest maternity hospital in your state (sorry, not sure where you are located) Im guessing they will have experience with many women having babies with different forms of epilepsy  and medications, and they should be able to liase with your neurologist.

Goodluck.



    I live in NSW. I haven't been told of this. I have another appointment with my Neurologist in a few months to discuss all medications etc. I would like my Neurologist involved as much as possible as we have a good relationship. He really has been a rock through all the hard times, he is very understanding. I will have to chat to him about this when I see him next.


Thank you so much original.gif

#12 opethmum

Posted 23 January 2013 - 10:06 AM

Hi there,

I don't have classic epilepsy but do suffer from seizures nonetheless, I think that you should discuss fully with your neuro in how to make that happen. I am luckily on medication that helps me and I did not have to stop during my 2 pregnancies. I hope you can find the medication that allows you to TTC.

Since my seizures are somewhat controlled we had to make some tough decisions regarding the welfare of our bubs. My DH and I made the decision that I was not to bathe the kids and left unattended with them near water. When we swim or are near water I make sure that at least one other adult I know is present so can help me if I have a seizure. I do not drive because of this and you will have to figure out whether your region is well stocked with public transport so you can get around independently with the kids and go to mothers groups etc because being isolated with kids is not fun and to rely on your DH and others can be paralysing.

Sometimes you and your DH will have to make tough calls in regards to your seizures and what arrangements you will have to make to accommodate them in the event of pregnancy and potential motherhood. You are going to be a high risk pregnancy and
you will have to have extra monitoring and you might have to have a controlled birth of your little one e.g c section or have heavy monitoring during your labour and if you do seizure during the birth you may have to be prepared to have an emergency c section.

There are so many things to consider and I think with the right advice and right medical team behind you, you could TTC with no problems but you have to be realistic and honest with yourself. Only you know what you can take and you alone will have to live with your choices and if your condition is not controlled and is serious in that you can not guarantee the safety of yourself and a child then you and your DH may have to make a tough call and be prepared to take the steps necessary to make that happen.

I wish you good luck in your journey and I hope you come to a decision you are happy with.

#13 Isolabella

Posted 23 January 2013 - 10:07 AM

CFMummy you are very lucky to know it is coming. For my sister it happens out of the blue. She was very shaken to realise she had had a seizure while holding my nephew. Luckily she was in bed and he was 15m, so he just happily climbed off the bed. That is why my sister is now looking to move into the back half of my folks place. She can not bathe bubs without an adult there and prefers not to be alone with child.

But she is working on it. Her medication ATM is at lower levels, but she does not want to increase levels as she is TTC. A delicate balance sad.gif .




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

Funny Father's Day cards

A little fun never goes astray when celebrating special occasions and Father's Day is no different. We've rounded up some funny Father's day cards for your husbands, fathers and other important men in your lives.

Electronic tags may keep newborns safe

The possibility of using electronic bracelets for mothers and their newborn babies is being investigated by Adelaide's Women's and Children's Hospital. 

Baby steps: when your little one starts walking

As a parent there are so many milestones to look forward to. That first smile, first word - and, of course, that first step.

Julia Watson's new book 'Breakfast, School Run, Chemo'

Tomorrow my friend Julia launches her first book. And while we're all overjoyed, the success is tinged with sadness. You see, Julia has stage 4 bowel cancer.

How not to name twins

Call me boring, but I don't think that when it comes to choosing my twins' names is the right time to use a good pun.

Fun Sunny Life pool inflatables just for babies

The babies of 2015 will thus be thrilled to paddle their happy baby legs in these brand new flamingo and swan baby inflatables.

Baby and bulldog born on the same day are best friends

When Chicago mum Ivette Ivens saw a French bulldog puppy who had the same birthdate as her son Dilan, she "just knew it?s meant to be" and took him home. Five months later, puppy Farley and Dilan are the best of friends - as Ivens says, "I?m pretty sure Dilan thinks they?re both the same species, as they walk at the same level and are both going through the stage of chewing on everything.?

Breastfeeding basics for beginners

Here are 10 tips to help make breastfeeding successful and stress free for both you and your baby as quickly as possible.

Girl smothers baby brother with peanut butter

This mum had a big clean up job on her hands.

How to hide those under eye shadows

Pandas are the only ones who benefit from under-eye shadows. If you're not fluffy and cute, you'll just look tired.

Young mum dies after being denied pap smear

A mother has died after she was denied a pap smear because she was deemed "too young" to need it.

Birthday cakes banned at childcare centre

A childcare centre in Sydney has banned birthday cakes after parent complaints about excessive sugar and children with allergies being left out.

Triplet surprise for newlyweds

As the radiographer moved the wand over her abdomen, Shelley King got the surprise of her life.

3 yummy Thermomix baby and toddler recipes

Louise Fulton Keats shares her recipes for babies and toddlers, including corn and sweet pikelets, pumpkin and pea risotto, and cheesy bunny biscuits.

Man arrested over toddler Nikki's death

A 31-year-old man has been arrested over the death of two-year-old Nikki Francis-Coslovich in Mildura.

Adoption ban on pregnant women to be lifted

Pregnant women will no longer be barred from adoption waiting lists in NSW, after the Baird Government decided the practice was discriminatory.

Are you getting enough magnesium?

Magnesium is the fourth most abundant mineral in the body, but we don't talk enough about it and the vital role it plays in great health and energy, as well as disease prevention.

5 workplace lessons for new parents

Take heart in these principles that will transfer seamlessly from the workplace into your new life as a parent.

Mums to follow on Instagram

A creative outlet for many, there are some savvy women complementing their blogs and businesses with riveting Instagrams feeds. We've chosen a few which have bucketloads of appeal; there are some big time players and some smaller local ones, and they each bring their special brand of magic to the Instagram experience.

Review: The Volvo 2015 XC90 SUV has all the safety features your family needs

The new Volvo XC90 SUV's focus on keeping you safe does not come at the expense of comfort in the XC90.

Kim Kardashian reveals she may have hysterectomy

Kim Kardashian has revealed complications during pregnancy means she might have to have a hysterectomy after the birth of her second child.

Why late night snacks wreak havoc on weight loss

 Loath as you may be to admit it, chances are that at some point you have found yourself in the kitchen late at night, devouring food.

Toddler twins pretend to be asleep to fool mum

They say twins have a unique connection. If this cute clip is anything to go by, these toddler sisters like to use their special bond to try to fool their mother.

Dad bags: 10 picks for out and about

Getting out of the house is a big priority in the early years of parenthood and you need to take a well-stocked kit with you. We've chosen 10 of the best nappy bags sure to appeal to dads in style and function.

Win a Mountain Buggy Swift

To celebrate Essential Baby reaching half a million Facebook fans, we have a Mountain Buggy Swift to giveaway to a lucky fan.

Get your FREE Baby & Toddler Show ticket!

Get your free ticket to the Sydney Essential Baby & Toddler Show for September 25-27 - register online now.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Dads who do their share have more sex: study

For women trying to encourage their partners to take more interest in fatherhood, it could be the ultimate incentive.

Think you might have IBS, coeliac disease or Crohn's?

Conditions affecting the gastrointestinal tract are common in modern humans, and many are on the rise - including irritable bowel syndrome (IBS), inflammatory bowel disease (IBD) and coeliac disease.

Couple poses for newborn shoot with adorable puppy

Tired of being asked about their baby-making plans, Australian couple Matt and Abby decided to give a creative answer.

The exercises you know you should be doing (but probably aren't)

I bet your to-do list today is long. But somewhere on that massive list, are you making time for your pelvic floor?

This baby really loves the family cat

Some babies get excited when mum or dad come to get them from their cot after a nap.

Designer kids clothing good enough to eat by Oeuf

Even if you aren't heading to the Northern hemisphere in the next six months, you can't help but love the amazing food-themed knits for babies and kids by cult kids brand Oeuf.

Early exposure to peanuts recommended for allergy prevention

A paediatricians' group is recommending that infants at high risk of peanut allergies be given foods containing peanuts before they turn one.

Home brand foods contain less salt than pricier rivals

Supermarket home brand foods, long derided as cheap and inferior, contain far lower levels of salt than pricier, branded rivals, new research shows.

Nannies for hire, wherever you're flying

Ever dreaded the prospect of a long flight, dreaming about how wonderful it would be for a nanny to entertain the kids?

Couple poses for newborn shoot with adorable puppy

Tired of being asked about their baby-making plans, Australian couple Matt and Abby decided to give a creative answer: with an unusual photo shoot with their 'baby', a groodle (poodle/golden retriever cross) named Humphrey. The talented Elisha from Elisha Minnette Photography caught all the precious shots.

Is it okay to name your baby with a sense of humour?

My husband was sure that Danger was a good option for a boy. And as the pregnancy progressed, it actually started to sound really good.

Woman gives birth after having her own mother's uterus transplanted

In a world first, a healthy baby has been born from the same womb that nurtured his own mother.

So hot right now: double-barrelled baby names on the rise

It's one way to make your baby stand out from the pack – giving them not one, but two first names.

Second time around: is it really better the devil you know?

When I fell pregnant with my second child I was, naturally, very excited. Then it all started to come back to me - and I freaked.

Shopping with kids: breaking the pester-power cycle

You're out shopping with your little one and they're incessantly whining that they want a treat. It's easy to say no ... the first time, at least.

How did we have babies before apps came along?

Three months ago, my wife, Chrysta, and I were driving along Melrose Avenue in Los Angeles when she let out a harrowing cry.

When your toddler disagrees

There comes a time when your child starts having different views to you. I didn't realise that time would come so soon.

Win a Pacapod this Father's Day

To celebrate dads and families, we are giving away a Picos Pack from Pacapod Australia filled with a few extra goodies ENTER NOW

 

FREE TICKET

Discover the magic of the LEGOŽ DUPLOŽ Play Area in Sydney

Get your free ticket to The Essential Baby & Toddler Show and save $20 - register online now!

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.