Jump to content

Pernicious Anaemia


  • Please log in to reply
15 replies to this topic

#1 mrshappymum

Posted 16 January 2013 - 03:34 PM

I was diagnosed with this around 18 months ago, I was feeling very run down and now have b12 shots every 2 months.  

I have never spoken to anyone who has this so I thought I would see if anyone of this forum has it and would tell me about their experience and how they feel now.

I feel a lot better having the regular injections but still feel run down and tired a lot of the time.

Thanks original.gif

#2 tily

Posted 16 January 2013 - 03:39 PM

I have had this for about 20 years to varying severities. Actually have good B12 levels at the moment but always need to watch it. Can be very difficult to live with.

#3 mrshappymum

Posted 16 January 2013 - 09:21 PM

Thanks Tily.

Bump ... anyone else?

#4 OneProudMum

Posted 16 January 2013 - 09:24 PM

I am living a bit of a nightmare ATM with B12 deficiency.
My level is 120-something. To say it has affected me is an understatement. I had my first shot today and I have another in 2 weeks time.

#5 Shamoo

Posted 16 January 2013 - 09:56 PM

Hi there  original.gif

I was diagnosed back in 2011. I now have the regular shots & limit processed meats/carcinogens (bbq'/anything burnt to a crisp)
My gp at the time had done iron tests on me many times, noticed my levels were VERY low but nothing had ever been confirmed  mad.gif This went on for a few years
I've just had a baby and i remember my OB checking my bloods throughout, but i also had gestational diabetes so was well monitored  wink.gif

My Dad has lived with it for about 10yrs, he has his regular B12 shots & watches what he eats. Minimal processed meats (hams and bacon are on mums watch list, he sneaks it every now and then  wink.gif )
He also has his insides checked out (up the back way unsure.gif ) once a year, i know this gives him a peace of mind to check if any damage had been fine

I'll try to find my results, i know they were bad. Seriously bad.

Sorry if I'm all over the place, on my phone  original.gif

#6 mrshappymum

Posted 16 January 2013 - 10:08 PM

Thanks everyone.

Hmm that is interesting about the processed meats. I have read about people having different symptons. I have always had a very low tolerance to alcohol, literally when I drink 2 glasses of wine or more I would vomit (sorry for tmi). I have a sensitive stomach aswell but haven't really made any changes to my diet but I should probably look at that.

My main symptom is just fatigue. I have such a slump in the afternoon, but I never give in to it - I just struggle through. Sick of the struggle though.

My levels were about 130 when first diagnosed and I think I am up to 170 now with regular shots.

Can I ask you girls, what your main symptoms are?

#7 mrshappymum

Posted 16 January 2013 - 10:11 PM

Oh and also my grandfather had it, but my parents dont. My grandfather actual died from it in the 70's but only because he didn't seek treatment early enough, wouldn't happen these days.

I suffer from mild depression and anxiety, and although I am on anti-depressents it really hits me in waves. I have read links to Vitamin b12 deficiancies. Interested if anyone else has this.

#8 OneProudMum

Posted 16 January 2013 - 10:18 PM

Yes I am plagued with Anxiety! I am lying here in bed wondering if I have a brain tumour.

#9 Shamoo

Posted 16 January 2013 - 10:42 PM

My main symptom was fatigue but i also used to catch nearly every little cold/flu/bug that was going around. It really messed with my immune system.
I remember the gp saying that because i had 2 blood immune deficiencies i really lucked out  glare.gif
It took awhile for me to physically feel any different when having the shots, probably a couple of months??
I have missed my shots a few times (my own forgetfulness) but my new gp always picks it up at my next appt  blush.gif they store my B12 in their medicine fridge (my 'shots' are the oral dose not injection)
I have heard that it is more hereditarily (sp?) common in families with certain lineage (i have German ancestors)

I have had anxiety problems in the past & both anxiety and depression during my pregnancy  

eta: Pressed reply too soon, Stoopid phone.

I hope you start to feel better soon, keep up date with your shots you will feel it if you miss too many in a row.
Although the anaemia won't go away it is manageable  bbighug.gif

Edited by Shamoo, 16 January 2013 - 11:12 PM.


#10 Atomac

Posted 16 January 2013 - 10:47 PM

I was diagnosed years ago but only started getting shots when I was pregnant with my daughter. My levels were about 9. When my levels are getting low I find that I get headaches, am tired but can't sleep and my hair falls out.

#11 OneProudMum

Posted 16 January 2013 - 10:54 PM

QUOTE (Atomac @ 16/01/2013, 11:47 PM) <{POST_SNAPBACK}>
I was diagnosed years ago but only started getting shots when I was pregnant with my daughter. My levels were about 9. When my levels are getting low I find that I get headaches, am tired but can't sleep and my hair falls out.


9? Holy crap! You must have been terrified?!

#12 Atomac

Posted 16 January 2013 - 11:11 PM

QUOTE (OneProudMum @ 16/01/2013, 08:54 PM) <{POST_SNAPBACK}>
9? Holy crap! You must have been terrified?!

Not really. My dr had me come in for daily shots for a couple of weeks.

#13 Shamoo

Posted 16 January 2013 - 11:19 PM

QUOTE (Atomac @ 16/01/2013, 11:41 PM) <{POST_SNAPBACK}>
Not really. My dr had me come in for daily shots for a couple of weeks.


I just found my results & my subsequent frantic emails to my parents to get our family tree medical history.
At the beginning of my diagnosis/worst my levels were down to 11 (my Dad's were barely measurable at 5)

Same as Atomac I was in the gp's for numerous doses over a 2/3 week period


#14 Megs25

Posted 16 January 2013 - 11:47 PM

Not me but my son was born with no B12. They have so far not been able to work out why.

They didn't discover it until he was 11 months old but wasn't developing.

Now he has a lot of learning difficulties and delays, and mild cerebral palsy. They think it's because he had no B12 for so long.

That said, he's intrinsic factor is normal, so they still aren't sure what's going on. Interesting to hear from grown up with it.

#15 tily

Posted 17 January 2013 - 06:33 AM

I was on daily shots for a while too but haven't had one for a while and just had levels checked and was normal for about the first time ever. I have a number if gut issues and it is the lack of intrinsic factor that gets me. My lain symptom is exhaustion and some grogginess of thinking (probably linked!) also get anxiety which may all be a part of it. No family history that I am aware of but that doesn't mean it wasn't there!

#16 mrshappymum

Posted 17 January 2013 - 03:29 PM

Wow some of those levels were crazy low.

I have always have my injection on time, I can feel when I need it.

My levels are normal now but I still feel lethargic which makes me think I will be like this forever  sad.gif  I shouldn't complain - could have worse things wrong with me.




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

Funny Father's Day cards

A little fun never goes astray when celebrating special occasions and Father's Day is no different. We've rounded up some funny Father's day cards for your husbands, fathers and other important men in your lives.

Electronic tags may keep newborns safe

The possibility of using electronic bracelets for mothers and their newborn babies is being investigated by Adelaide's Women's and Children's Hospital. 

Baby steps: when your little one starts walking

As a parent there are so many milestones to look forward to. That first smile, first word - and, of course, that first step.

Julia Watson's new book 'Breakfast, School Run, Chemo'

Tomorrow my friend Julia launches her first book. And while we're all overjoyed, the success is tinged with sadness. You see, Julia has stage 4 bowel cancer.

How not to name twins

Call me boring, but I don't think that when it comes to choosing my twins' names is the right time to use a good pun.

Fun Sunny Life pool inflatables just for babies

The babies of 2015 will thus be thrilled to paddle their happy baby legs in these brand new flamingo and swan baby inflatables.

Baby and bulldog born on the same day are best friends

When Chicago mum Ivette Ivens saw a French bulldog puppy who had the same birthdate as her son Dilan, she "just knew it?s meant to be" and took him home. Five months later, puppy Farley and Dilan are the best of friends - as Ivens says, "I?m pretty sure Dilan thinks they?re both the same species, as they walk at the same level and are both going through the stage of chewing on everything.?

Breastfeeding basics for beginners

Here are 10 tips to help make breastfeeding successful and stress free for both you and your baby as quickly as possible.

Girl smothers baby brother with peanut butter

This mum had a big clean up job on her hands.

How to hide those under eye shadows

Pandas are the only ones who benefit from under-eye shadows. If you're not fluffy and cute, you'll just look tired.

Young mum dies after being denied pap smear

A mother has died after she was denied a pap smear because she was deemed "too young" to need it.

Birthday cakes banned at childcare centre

A childcare centre in Sydney has banned birthday cakes after parent complaints about excessive sugar and children with allergies being left out.

Triplet surprise for newlyweds

As the radiographer moved the wand over her abdomen, Shelley King got the surprise of her life.

3 yummy Thermomix baby and toddler recipes

Louise Fulton Keats shares her recipes for babies and toddlers, including corn and sweet pikelets, pumpkin and pea risotto, and cheesy bunny biscuits.

Man arrested over toddler Nikki's death

A 31-year-old man has been arrested over the death of two-year-old Nikki Francis-Coslovich in Mildura.

Adoption ban on pregnant women to be lifted

Pregnant women will no longer be barred from adoption waiting lists in NSW, after the Baird Government decided the practice was discriminatory.

Are you getting enough magnesium?

Magnesium is the fourth most abundant mineral in the body, but we don't talk enough about it and the vital role it plays in great health and energy, as well as disease prevention.

5 workplace lessons for new parents

Take heart in these principles that will transfer seamlessly from the workplace into your new life as a parent.

Mums to follow on Instagram

A creative outlet for many, there are some savvy women complementing their blogs and businesses with riveting Instagrams feeds. We've chosen a few which have bucketloads of appeal; there are some big time players and some smaller local ones, and they each bring their special brand of magic to the Instagram experience.

Review: The Volvo 2015 XC90 SUV has all the safety features your family needs

The new Volvo XC90 SUV's focus on keeping you safe does not come at the expense of comfort in the XC90.

Kim Kardashian reveals she may have hysterectomy

Kim Kardashian has revealed complications during pregnancy means she might have to have a hysterectomy after the birth of her second child.

Why late night snacks wreak havoc on weight loss

 Loath as you may be to admit it, chances are that at some point you have found yourself in the kitchen late at night, devouring food.

Toddler twins pretend to be asleep to fool mum

They say twins have a unique connection. If this cute clip is anything to go by, these toddler sisters like to use their special bond to try to fool their mother.

Dad bags: 10 picks for out and about

Getting out of the house is a big priority in the early years of parenthood and you need to take a well-stocked kit with you. We've chosen 10 of the best nappy bags sure to appeal to dads in style and function.

Win a Mountain Buggy Swift

To celebrate Essential Baby reaching half a million Facebook fans, we have a Mountain Buggy Swift to giveaway to a lucky fan.

Get your FREE Baby & Toddler Show ticket!

Get your free ticket to the Sydney Essential Baby & Toddler Show for September 25-27 - register online now.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Dads who do their share have more sex: study

For women trying to encourage their partners to take more interest in fatherhood, it could be the ultimate incentive.

Think you might have IBS, coeliac disease or Crohn's?

Conditions affecting the gastrointestinal tract are common in modern humans, and many are on the rise - including irritable bowel syndrome (IBS), inflammatory bowel disease (IBD) and coeliac disease.

Couple poses for newborn shoot with adorable puppy

Tired of being asked about their baby-making plans, Australian couple Matt and Abby decided to give a creative answer.

The exercises you know you should be doing (but probably aren't)

I bet your to-do list today is long. But somewhere on that massive list, are you making time for your pelvic floor?

This baby really loves the family cat

Some babies get excited when mum or dad come to get them from their cot after a nap.

Designer kids clothing good enough to eat by Oeuf

Even if you aren't heading to the Northern hemisphere in the next six months, you can't help but love the amazing food-themed knits for babies and kids by cult kids brand Oeuf.

Early exposure to peanuts recommended for allergy prevention

A paediatricians' group is recommending that infants at high risk of peanut allergies be given foods containing peanuts before they turn one.

Home brand foods contain less salt than pricier rivals

Supermarket home brand foods, long derided as cheap and inferior, contain far lower levels of salt than pricier, branded rivals, new research shows.

Nannies for hire, wherever you're flying

Ever dreaded the prospect of a long flight, dreaming about how wonderful it would be for a nanny to entertain the kids?

Couple poses for newborn shoot with adorable puppy

Tired of being asked about their baby-making plans, Australian couple Matt and Abby decided to give a creative answer: with an unusual photo shoot with their 'baby', a groodle (poodle/golden retriever cross) named Humphrey. The talented Elisha from Elisha Minnette Photography caught all the precious shots.

Is it okay to name your baby with a sense of humour?

My husband was sure that Danger was a good option for a boy. And as the pregnancy progressed, it actually started to sound really good.

Woman gives birth after having her own mother's uterus transplanted

In a world first, a healthy baby has been born from the same womb that nurtured his own mother.

So hot right now: double-barrelled baby names on the rise

It's one way to make your baby stand out from the pack – giving them not one, but two first names.

Second time around: is it really better the devil you know?

When I fell pregnant with my second child I was, naturally, very excited. Then it all started to come back to me - and I freaked.

Shopping with kids: breaking the pester-power cycle

You're out shopping with your little one and they're incessantly whining that they want a treat. It's easy to say no ... the first time, at least.

How did we have babies before apps came along?

Three months ago, my wife, Chrysta, and I were driving along Melrose Avenue in Los Angeles when she let out a harrowing cry.

When your toddler disagrees

There comes a time when your child starts having different views to you. I didn't realise that time would come so soon.

Win a Pacapod this Father's Day

To celebrate dads and families, we are giving away a Picos Pack from Pacapod Australia filled with a few extra goodies ENTER NOW

 

FREE TICKET

Discover the magic of the LEGOŽ DUPLOŽ Play Area in Sydney

Get your free ticket to The Essential Baby & Toddler Show and save $20 - register online now!

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.