Jump to content

Pernicious Anaemia

  • Please log in to reply
15 replies to this topic

#1 mrshappymum

Posted 16 January 2013 - 03:34 PM

I was diagnosed with this around 18 months ago, I was feeling very run down and now have b12 shots every 2 months.  

I have never spoken to anyone who has this so I thought I would see if anyone of this forum has it and would tell me about their experience and how they feel now.

I feel a lot better having the regular injections but still feel run down and tired a lot of the time.

Thanks original.gif

#2 tily

Posted 16 January 2013 - 03:39 PM

I have had this for about 20 years to varying severities. Actually have good B12 levels at the moment but always need to watch it. Can be very difficult to live with.

#3 mrshappymum

Posted 16 January 2013 - 09:21 PM

Thanks Tily.

Bump ... anyone else?

#4 OneProudMum

Posted 16 January 2013 - 09:24 PM

I am living a bit of a nightmare ATM with B12 deficiency.
My level is 120-something. To say it has affected me is an understatement. I had my first shot today and I have another in 2 weeks time.

#5 Shamoo

Posted 16 January 2013 - 09:56 PM

Hi there  original.gif

I was diagnosed back in 2011. I now have the regular shots & limit processed meats/carcinogens (bbq'/anything burnt to a crisp)
My gp at the time had done iron tests on me many times, noticed my levels were VERY low but nothing had ever been confirmed  mad.gif This went on for a few years
I've just had a baby and i remember my OB checking my bloods throughout, but i also had gestational diabetes so was well monitored  wink.gif

My Dad has lived with it for about 10yrs, he has his regular B12 shots & watches what he eats. Minimal processed meats (hams and bacon are on mums watch list, he sneaks it every now and then  wink.gif )
He also has his insides checked out (up the back way unsure.gif ) once a year, i know this gives him a peace of mind to check if any damage had been fine

I'll try to find my results, i know they were bad. Seriously bad.

Sorry if I'm all over the place, on my phone  original.gif

#6 mrshappymum

Posted 16 January 2013 - 10:08 PM

Thanks everyone.

Hmm that is interesting about the processed meats. I have read about people having different symptons. I have always had a very low tolerance to alcohol, literally when I drink 2 glasses of wine or more I would vomit (sorry for tmi). I have a sensitive stomach aswell but haven't really made any changes to my diet but I should probably look at that.

My main symptom is just fatigue. I have such a slump in the afternoon, but I never give in to it - I just struggle through. Sick of the struggle though.

My levels were about 130 when first diagnosed and I think I am up to 170 now with regular shots.

Can I ask you girls, what your main symptoms are?

#7 mrshappymum

Posted 16 January 2013 - 10:11 PM

Oh and also my grandfather had it, but my parents dont. My grandfather actual died from it in the 70's but only because he didn't seek treatment early enough, wouldn't happen these days.

I suffer from mild depression and anxiety, and although I am on anti-depressents it really hits me in waves. I have read links to Vitamin b12 deficiancies. Interested if anyone else has this.

#8 OneProudMum

Posted 16 January 2013 - 10:18 PM

Yes I am plagued with Anxiety! I am lying here in bed wondering if I have a brain tumour.

#9 Shamoo

Posted 16 January 2013 - 10:42 PM

My main symptom was fatigue but i also used to catch nearly every little cold/flu/bug that was going around. It really messed with my immune system.
I remember the gp saying that because i had 2 blood immune deficiencies i really lucked out  glare.gif
It took awhile for me to physically feel any different when having the shots, probably a couple of months??
I have missed my shots a few times (my own forgetfulness) but my new gp always picks it up at my next appt  blush.gif they store my B12 in their medicine fridge (my 'shots' are the oral dose not injection)
I have heard that it is more hereditarily (sp?) common in families with certain lineage (i have German ancestors)

I have had anxiety problems in the past & both anxiety and depression during my pregnancy  

eta: Pressed reply too soon, Stoopid phone.

I hope you start to feel better soon, keep up date with your shots you will feel it if you miss too many in a row.
Although the anaemia won't go away it is manageable  bbighug.gif

Edited by Shamoo, 16 January 2013 - 11:12 PM.

#10 Atomac

Posted 16 January 2013 - 10:47 PM

I was diagnosed years ago but only started getting shots when I was pregnant with my daughter. My levels were about 9. When my levels are getting low I find that I get headaches, am tired but can't sleep and my hair falls out.

#11 OneProudMum

Posted 16 January 2013 - 10:54 PM

QUOTE (Atomac @ 16/01/2013, 11:47 PM) <{POST_SNAPBACK}>
I was diagnosed years ago but only started getting shots when I was pregnant with my daughter. My levels were about 9. When my levels are getting low I find that I get headaches, am tired but can't sleep and my hair falls out.

9? Holy crap! You must have been terrified?!

#12 Atomac

Posted 16 January 2013 - 11:11 PM

QUOTE (OneProudMum @ 16/01/2013, 08:54 PM) <{POST_SNAPBACK}>
9? Holy crap! You must have been terrified?!

Not really. My dr had me come in for daily shots for a couple of weeks.

#13 Shamoo

Posted 16 January 2013 - 11:19 PM

QUOTE (Atomac @ 16/01/2013, 11:41 PM) <{POST_SNAPBACK}>
Not really. My dr had me come in for daily shots for a couple of weeks.

I just found my results & my subsequent frantic emails to my parents to get our family tree medical history.
At the beginning of my diagnosis/worst my levels were down to 11 (my Dad's were barely measurable at 5)

Same as Atomac I was in the gp's for numerous doses over a 2/3 week period

#14 Megs25

Posted 16 January 2013 - 11:47 PM

Not me but my son was born with no B12. They have so far not been able to work out why.

They didn't discover it until he was 11 months old but wasn't developing.

Now he has a lot of learning difficulties and delays, and mild cerebral palsy. They think it's because he had no B12 for so long.

That said, he's intrinsic factor is normal, so they still aren't sure what's going on. Interesting to hear from grown up with it.

#15 tily

Posted 17 January 2013 - 06:33 AM

I was on daily shots for a while too but haven't had one for a while and just had levels checked and was normal for about the first time ever. I have a number if gut issues and it is the lack of intrinsic factor that gets me. My lain symptom is exhaustion and some grogginess of thinking (probably linked!) also get anxiety which may all be a part of it. No family history that I am aware of but that doesn't mean it wasn't there!

#16 mrshappymum

Posted 17 January 2013 - 03:29 PM

Wow some of those levels were crazy low.

I have always have my injection on time, I can feel when I need it.

My levels are normal now but I still feel lethargic which makes me think I will be like this forever  sad.gif  I shouldn't complain - could have worse things wrong with me.

1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users


Get your FREE Baby & Toddler Ticket!

Get your free ticket to the Essential Baby & Toddler Show Brisbane (4-6 March). Register online now to save $20!

Newborn baby found in a nativity scene

Police are trying to trace a woman who abandoned a baby boy in the manger of a church nativity scene.

Life would be harder without my kids

The Humans of New York Facebook page is well known for sharing touching, real stories from one of the world's biggest cities – and it's just hit the heart of parents everywhere.

Mum dresses as Wonder Woman for last day of chemo

A Brisbane mum dressed up as a superhero to celebrate the end of her chemotherapy and created a moment her family will remember forever.

How a raisin can predict a toddler's IQ

All you need to assess a child's future intelligence is a plastic cup and a raisin, according to new research.

Former Hi-5 member's cannabis hope

Former Hi-5 star Tim Harding hopes a cannabis-derived drug will help control his daughter's epilepsy, which sees the four-year-old suffering between 50 and 100 seizures a day.

The top 5 reasons your toddler throws a tantrum

Whilst to the outside world little people may appear to have it easy, it's actually not always the case – just ask any toddler who's had their toast cut up the wrong way.

Glenn McGrath thought he'd lost his wife and baby

Australian cricket ledged Glen McGrath has spoken about the moment he thought he might lose his wife, Sara and their baby daughter, Madison.


Inside my Centrelink nightmare

Mother Bec Smith has been trying for months to access Centrelink payments. A "serious error" is preventing her.

Warnings over push for hourly childcare billing

Australia's peak childcare body has called for caution around the Turnbull government's push for childcare centres to charge parents by the hour, not by the day.

Cate Blanchett thought about adopting for years

Cate Blanchett says her recent adoption of a baby girl had nothing to do with wanting a daughter after having three sons.

Kate Walsh: 'I can't have kids'

Grey's Anatomy star Kate Walsh has revealed she is unable to have children because she has experienced early menopause.

The parasite that could boost fertility

The Tsimane women of Bolivia are often revered as among the most fertile in the world - on average having 10 children in their lifetimes -- but some are even more fertile than others.

Family may sue cousin over genetics

A Melbourne couple is suing the Royal Children's Hospital for failing to diagnose a genetic disorder in their first child - an error they allege caused them to have another child with severe disabilities.

Strange things mums have done in labour

While most women in labour focus on the upcoming birth of their baby, some women do more interesting things.

Michael Clarke reveals baby's name

When Michael Clarke said he was wrapped around the finger of his little princess, he wasn't joking.

The logistics of breastfeeding twins

Our life is more or less divided into neat four hour parcels of time and it's hard to get much of anything done in the time between feeds.

How to stop people ruining Christmas

We can make a conscious effort about how we react to those curly Christmas day scenarios that can send us up the wall, or should we say chimney.

Lots of formula offers for desperate mum

The mum who was down to her last three tins of baby formula said she had received hundreds of calls and offers to send her formula.

Surviving breast cancer while pregnant

It was last thing Rebecca O'Donnell expected at 30 weeks' pregnant. One morning, while putting on her bra, she felt a pea-sized lump in her right breast.

Cot sheet brands for the nursery

With so many awesome cot sheet options these days, we thought we'd put together a list of go-to brands for you to seek out for your baby's bed.


What's hot on EB

How I survived breast cancer while pregnant

It was last thing Rebecca O'Donnell expected at 30 weeks' pregnant. One morning, while putting on her bra, she felt a pea-sized lump in her right breast.

Grieving father's letter to Bataclan terrorists: "...this little boy will threaten you by being happy and free"

A grieving father whose wife was killed in the attacks on the Bataclan Theatre last weekend has written an open letter to her killers.

5 challenges of motherhood - and how to see them differently

Despite the smiles, the sloppy kisses and the pure magic children bring to our lives, it's hard to deny that motherhood can be tough.

4 challenges of being a new dad - and how to face them

Becoming a parent is challenging – and that applies to both mums and dads.

My battle against antenatal and postnatal depression

I was five months pregnant when I realised I needed help.

Children swapped at birth will not be returned to biological parents

A boy and girl accidentally swapped on the day they were born will stay with the families who have raised them, a South African court has ruled.

A quarter of men believe they get 'man periods'

A British study has revealed one in four men believe they have a monthly cycle.

Baby deposit

How much do you need to save for a 'baby deposit'?

It's fairly straightforward to calculate a house deposit, but how much money do you need to save up for a baby?

Dad's beautiful note to his wife, a nurse

To anyone else it might just look like a picture of a mum having a nap with her toddler.

'I was a complete schmuck': Mike Baird opens up about his wife's postnatal depression

When his wife Kerryn was not well following the birth of their daughter, NSW Premier Mike Baird buried himself in his work.

Mum's desperate plea as whooping cough alert issued

A desperate mother has shared a heart-breaking video of her baby struggling to cope with a coughing fit caused by pertussis.

Coffee could help you live longer

New US research found people who report drinking three to five cups of coffee a day are less likely to die prematurely from heart disease, suicide, diabetes or Parkinson's disease.

The joy and dread of playdates

To live vicariously through your child is to rediscover anxieties you thought dead and buried.

Sick baby could die without scarce special formula, mum says

Lizzie Cann is down to her last three tins of a special formula in short supply.

Adorable toddler's strop foiled by squeaky shoes

We're probably all familiar with the pouty bottom lip and tightly crossed arms of a tot mid-strop.

More sex during World Cup created more baby boys

More sex during South Africa's World Cup meant a disproportionately high number of boys were born nine months later, a new study has found.

ABC Shop perfect for Christmas gifts

What a boon it would be to have your toddler's Christmas gifts covered this year. We have two awesome ABC Shop prize packs to give away to two lucky winners.

Do fitness challenges really work?

Fitness challenges aren't new. There's Michelle Bridges 12WBT and a bunch of other programs if you really want to lose weight.

What are pregnant women Googling?

Pregnancy is a huge change for any woman, so it's natural we'll have questions - and turn to Google to ask them.



Can't decide?

Check out the Essential Baby Names section for some inspiration

Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.