Jump to content

Pernicious Anaemia


  • Please log in to reply
15 replies to this topic

#1 mrshappymum

Posted 16 January 2013 - 03:34 PM

I was diagnosed with this around 18 months ago, I was feeling very run down and now have b12 shots every 2 months.  

I have never spoken to anyone who has this so I thought I would see if anyone of this forum has it and would tell me about their experience and how they feel now.

I feel a lot better having the regular injections but still feel run down and tired a lot of the time.

Thanks original.gif

#2 tily

Posted 16 January 2013 - 03:39 PM

I have had this for about 20 years to varying severities. Actually have good B12 levels at the moment but always need to watch it. Can be very difficult to live with.

#3 mrshappymum

Posted 16 January 2013 - 09:21 PM

Thanks Tily.

Bump ... anyone else?

#4 OneProudMum

Posted 16 January 2013 - 09:24 PM

I am living a bit of a nightmare ATM with B12 deficiency.
My level is 120-something. To say it has affected me is an understatement. I had my first shot today and I have another in 2 weeks time.

#5 Shamoo

Posted 16 January 2013 - 09:56 PM

Hi there  original.gif

I was diagnosed back in 2011. I now have the regular shots & limit processed meats/carcinogens (bbq'/anything burnt to a crisp)
My gp at the time had done iron tests on me many times, noticed my levels were VERY low but nothing had ever been confirmed  mad.gif This went on for a few years
I've just had a baby and i remember my OB checking my bloods throughout, but i also had gestational diabetes so was well monitored  wink.gif

My Dad has lived with it for about 10yrs, he has his regular B12 shots & watches what he eats. Minimal processed meats (hams and bacon are on mums watch list, he sneaks it every now and then  wink.gif )
He also has his insides checked out (up the back way unsure.gif ) once a year, i know this gives him a peace of mind to check if any damage had been fine

I'll try to find my results, i know they were bad. Seriously bad.

Sorry if I'm all over the place, on my phone  original.gif

#6 mrshappymum

Posted 16 January 2013 - 10:08 PM

Thanks everyone.

Hmm that is interesting about the processed meats. I have read about people having different symptons. I have always had a very low tolerance to alcohol, literally when I drink 2 glasses of wine or more I would vomit (sorry for tmi). I have a sensitive stomach aswell but haven't really made any changes to my diet but I should probably look at that.

My main symptom is just fatigue. I have such a slump in the afternoon, but I never give in to it - I just struggle through. Sick of the struggle though.

My levels were about 130 when first diagnosed and I think I am up to 170 now with regular shots.

Can I ask you girls, what your main symptoms are?

#7 mrshappymum

Posted 16 January 2013 - 10:11 PM

Oh and also my grandfather had it, but my parents dont. My grandfather actual died from it in the 70's but only because he didn't seek treatment early enough, wouldn't happen these days.

I suffer from mild depression and anxiety, and although I am on anti-depressents it really hits me in waves. I have read links to Vitamin b12 deficiancies. Interested if anyone else has this.

#8 OneProudMum

Posted 16 January 2013 - 10:18 PM

Yes I am plagued with Anxiety! I am lying here in bed wondering if I have a brain tumour.

#9 Shamoo

Posted 16 January 2013 - 10:42 PM

My main symptom was fatigue but i also used to catch nearly every little cold/flu/bug that was going around. It really messed with my immune system.
I remember the gp saying that because i had 2 blood immune deficiencies i really lucked out  glare.gif
It took awhile for me to physically feel any different when having the shots, probably a couple of months??
I have missed my shots a few times (my own forgetfulness) but my new gp always picks it up at my next appt  blush.gif they store my B12 in their medicine fridge (my 'shots' are the oral dose not injection)
I have heard that it is more hereditarily (sp?) common in families with certain lineage (i have German ancestors)

I have had anxiety problems in the past & both anxiety and depression during my pregnancy  

eta: Pressed reply too soon, Stoopid phone.

I hope you start to feel better soon, keep up date with your shots you will feel it if you miss too many in a row.
Although the anaemia won't go away it is manageable  bbighug.gif

Edited by Shamoo, 16 January 2013 - 11:12 PM.


#10 Atomac

Posted 16 January 2013 - 10:47 PM

I was diagnosed years ago but only started getting shots when I was pregnant with my daughter. My levels were about 9. When my levels are getting low I find that I get headaches, am tired but can't sleep and my hair falls out.

#11 OneProudMum

Posted 16 January 2013 - 10:54 PM

QUOTE (Atomac @ 16/01/2013, 11:47 PM) <{POST_SNAPBACK}>
I was diagnosed years ago but only started getting shots when I was pregnant with my daughter. My levels were about 9. When my levels are getting low I find that I get headaches, am tired but can't sleep and my hair falls out.


9? Holy crap! You must have been terrified?!

#12 Atomac

Posted 16 January 2013 - 11:11 PM

QUOTE (OneProudMum @ 16/01/2013, 08:54 PM) <{POST_SNAPBACK}>
9? Holy crap! You must have been terrified?!

Not really. My dr had me come in for daily shots for a couple of weeks.

#13 Shamoo

Posted 16 January 2013 - 11:19 PM

QUOTE (Atomac @ 16/01/2013, 11:41 PM) <{POST_SNAPBACK}>
Not really. My dr had me come in for daily shots for a couple of weeks.


I just found my results & my subsequent frantic emails to my parents to get our family tree medical history.
At the beginning of my diagnosis/worst my levels were down to 11 (my Dad's were barely measurable at 5)

Same as Atomac I was in the gp's for numerous doses over a 2/3 week period


#14 Megs25

Posted 16 January 2013 - 11:47 PM

Not me but my son was born with no B12. They have so far not been able to work out why.

They didn't discover it until he was 11 months old but wasn't developing.

Now he has a lot of learning difficulties and delays, and mild cerebral palsy. They think it's because he had no B12 for so long.

That said, he's intrinsic factor is normal, so they still aren't sure what's going on. Interesting to hear from grown up with it.

#15 tily

Posted 17 January 2013 - 06:33 AM

I was on daily shots for a while too but haven't had one for a while and just had levels checked and was normal for about the first time ever. I have a number if gut issues and it is the lack of intrinsic factor that gets me. My lain symptom is exhaustion and some grogginess of thinking (probably linked!) also get anxiety which may all be a part of it. No family history that I am aware of but that doesn't mean it wasn't there!

#16 mrshappymum

Posted 17 January 2013 - 03:29 PM

Wow some of those levels were crazy low.

I have always have my injection on time, I can feel when I need it.

My levels are normal now but I still feel lethargic which makes me think I will be like this forever  sad.gif  I shouldn't complain - could have worse things wrong with me.




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

 

The popular baby name from the Rio Olympics

"With a pair of athletes who are not only successful, but seen as great role models – combined with a softer sound – it is like hitting the jackpot."

Toy stuck in baby's throat for two weeks

When Jude Atiga's baby son Laith was struggling to breathe the worried mum called an ambulance.

Mum awarded $20 million over birth power struggle with nurses

As a mother of three, Caroline Malatesta thought she knew what she was letting herself in for when it came to the birth of her fourth baby.

Win a Baby Jogger City Premier for Father's Day

To celebrate Father's Day, one lucky EB fan will win one of their own! Enter Now!

'There's a giant picture of BOOBS but I can not feed my child'

A mum was ushered out of an US department store's underwear section after discreetly breastfeeding her baby.

Why fatherhood scares many dads-to-be

Travis Bull vividly remembers discovering his partner was pregnant for the first time.

Free ticket offer

Pinky Mckay joins us again at the Essential Baby & Toddler Show presented by Blackmores with her expert baby settling advice. Register now for your free ticket.

Warning for pregnant women as flu-related deaths triple

A more than three-fold increase in flu-related deaths has sparked a plea for those with the flu to stay away from vulnerable people.

I'm trying to keep my child-free friends in my life, but it's tough

I tried to prove to my single friends that I was the same I'd always been. But marriage did change me - and motherhood has, too

For the festival lover in all of us

Pre-book & Save 50%. Get your tickets now for Kidtopia Festival. 7-9 October 2016 Parramatta Park, Sydney.

Too many parents still putting babies in unsafe bedding: study

A study found that a whopping 91 per cent of four-week-old babies had been placed in cots with unsafe bedding.

Mum's shock as toddler fat-shamed by internet trolls

When a mother uploaded a cute photograph of her 14-month old child online, she did not expect a swarm of internet trolls to write that her toddler was fat.

How an Aldi staff member made one exhausted mum's day

It was a simple act of kindness, but one that made an exhausted mother's day.

The most awww-worthy celeb baby pics of the week

It's been a pretty cute week on Instagram in terms of celebs relishing their babies.

When 'Just Do It' just doesn't cut it

When even Michelle Bridges admits to struggling with her exercise regime, it's time to accept that having small children can be a legitimate reason for exercise not happening.

What life is really like when you have five kids

Life is cute with one, manageable with three, but at times completely impossible with five.

When no one can pronounce your baby's name

In Wales it's a common name, but over here, it's cause for some confusion.

Dad shares horror tale after Roomba's run-in with dog poop

It's the poop story that's been shared hundreds of thousands of times around the world.

How a homemade wheelchair is giving baby Evelyn freedom

Like all one-year-olds, Evelyn Moore is keen to get moving and explore the world around her. But a battle with aggressive cancer left the little girl paralysed from the waist down.

Single to double pram that folds with seat attached

A pram is a large purchase, and you only want to buy once.

Mum-to-be surprises husband with big news in joy-filled photoshoot

When Bri Dow learnt that she was expecting, she immediately knew she wanted to break the news to her husband Brandon in a special way.

Blake Lively: 'Post-pregnancy slim down pressure is so unfair'

Blake Lively has urged women not to feel pressured to lose weight after pregnancy.

 
Advertisement
 

Top 5 Articles

Advertisement
 
 
 

What's hot on EB

For the festival lover in all of us

Pre-book & Save 50%. Get your tickets now for Kidtopia Festival. 7-9 October 2016 Parramatta Park, Sydney.

Why drinking water can be deadly for babies

H2O is one of the necessities of life, but for babies a seemingly harmless amount of water can be fatal.

5 ways having a baby is different when you have older children

So much parenting advice is geared towards having your first baby, but what's it like having a baby when you already have children?

You can now make your own plush Falkor

Fans of The NeverEnding Story – of which there are certainly plenty – went crazy for these plush Falkors when they first went on sale last year.

Baby steps

10 things that will actually happen after having a baby

I thought I had prepared myself for motherhood. Then my baby girl arrived and knocked everything flat.

Having a baby: expectations vs reality

People love to warn you about what to expect when having a baby, but they can be way off when it comes to the reality.

Are we having fun yet? Thinking positively as a parent

Motherhood is wonderful ... except when it sucks.

The adorable smile of a baby seeing his mum clearly for the first time

There is no doubt seeing their child smile for the first time is an unforgettable moment for parents everywhere.

When breastfeeding doesn't go with the flow

Breast is best, except when it's not. And in our case, it most definitely wasn't.

'If you don't vaccinate your kids you're a bloody idiot'

The photos are heartbreaking and almost too difficult to look at, but Kayley Burke is begging other parents to take notice.

Why pregnant women should eat chocolate

In news that will make expectant mums jump for joy - and reach for a block of Cadbury - scientists have revealed chocolate could provide health benefits during pregnancy.

The baby born with an incredible head of hair

If you're in any way challenged in the follicle department, prepare to feel a jolt of envy - at a two-month-old baby.

The push for Medicare to fund lactation consultants

While meeting with a lactation consultant can make an enormous difference to a new mother, it's not a service that is available through the public health system.

Parents, this is how to cut grapes to avoid choking

One mum has learnt a harrowing lesson about the best way to cut grapes to make it safe for toddlers and little kids to eat.

Three truths about C-section mums

Lately I've been thinking about the caesarean stories and the brave women who birth their children with strength and beauty.

Help! My baby will only sleep in my arms

It's stressful to be the one who is holding your baby most of the day, but it's even more stressful to wonder, 'am I doing something wrong? Or am I creating bad habits?'

 

ENTER NOW

Win one of two Father's Day Gift Packs

Sign up to receive our new Essential Kids announcements emails for a chance to win.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.