Jump to content

Pernicious Anaemia


  • Please log in to reply
15 replies to this topic

#1 mrshappymum

Posted 16 January 2013 - 03:34 PM

I was diagnosed with this around 18 months ago, I was feeling very run down and now have b12 shots every 2 months.  

I have never spoken to anyone who has this so I thought I would see if anyone of this forum has it and would tell me about their experience and how they feel now.

I feel a lot better having the regular injections but still feel run down and tired a lot of the time.

Thanks original.gif

#2 tily

Posted 16 January 2013 - 03:39 PM

I have had this for about 20 years to varying severities. Actually have good B12 levels at the moment but always need to watch it. Can be very difficult to live with.

#3 mrshappymum

Posted 16 January 2013 - 09:21 PM

Thanks Tily.

Bump ... anyone else?

#4 OneProudMum

Posted 16 January 2013 - 09:24 PM

I am living a bit of a nightmare ATM with B12 deficiency.
My level is 120-something. To say it has affected me is an understatement. I had my first shot today and I have another in 2 weeks time.

#5 Shamoo

Posted 16 January 2013 - 09:56 PM

Hi there  original.gif

I was diagnosed back in 2011. I now have the regular shots & limit processed meats/carcinogens (bbq'/anything burnt to a crisp)
My gp at the time had done iron tests on me many times, noticed my levels were VERY low but nothing had ever been confirmed  mad.gif This went on for a few years
I've just had a baby and i remember my OB checking my bloods throughout, but i also had gestational diabetes so was well monitored  wink.gif

My Dad has lived with it for about 10yrs, he has his regular B12 shots & watches what he eats. Minimal processed meats (hams and bacon are on mums watch list, he sneaks it every now and then  wink.gif )
He also has his insides checked out (up the back way unsure.gif ) once a year, i know this gives him a peace of mind to check if any damage had been fine

I'll try to find my results, i know they were bad. Seriously bad.

Sorry if I'm all over the place, on my phone  original.gif

#6 mrshappymum

Posted 16 January 2013 - 10:08 PM

Thanks everyone.

Hmm that is interesting about the processed meats. I have read about people having different symptons. I have always had a very low tolerance to alcohol, literally when I drink 2 glasses of wine or more I would vomit (sorry for tmi). I have a sensitive stomach aswell but haven't really made any changes to my diet but I should probably look at that.

My main symptom is just fatigue. I have such a slump in the afternoon, but I never give in to it - I just struggle through. Sick of the struggle though.

My levels were about 130 when first diagnosed and I think I am up to 170 now with regular shots.

Can I ask you girls, what your main symptoms are?

#7 mrshappymum

Posted 16 January 2013 - 10:11 PM

Oh and also my grandfather had it, but my parents dont. My grandfather actual died from it in the 70's but only because he didn't seek treatment early enough, wouldn't happen these days.

I suffer from mild depression and anxiety, and although I am on anti-depressents it really hits me in waves. I have read links to Vitamin b12 deficiancies. Interested if anyone else has this.

#8 OneProudMum

Posted 16 January 2013 - 10:18 PM

Yes I am plagued with Anxiety! I am lying here in bed wondering if I have a brain tumour.

#9 Shamoo

Posted 16 January 2013 - 10:42 PM

My main symptom was fatigue but i also used to catch nearly every little cold/flu/bug that was going around. It really messed with my immune system.
I remember the gp saying that because i had 2 blood immune deficiencies i really lucked out  glare.gif
It took awhile for me to physically feel any different when having the shots, probably a couple of months??
I have missed my shots a few times (my own forgetfulness) but my new gp always picks it up at my next appt  blush.gif they store my B12 in their medicine fridge (my 'shots' are the oral dose not injection)
I have heard that it is more hereditarily (sp?) common in families with certain lineage (i have German ancestors)

I have had anxiety problems in the past & both anxiety and depression during my pregnancy  

eta: Pressed reply too soon, Stoopid phone.

I hope you start to feel better soon, keep up date with your shots you will feel it if you miss too many in a row.
Although the anaemia won't go away it is manageable  bbighug.gif

Edited by Shamoo, 16 January 2013 - 11:12 PM.


#10 Atomac

Posted 16 January 2013 - 10:47 PM

I was diagnosed years ago but only started getting shots when I was pregnant with my daughter. My levels were about 9. When my levels are getting low I find that I get headaches, am tired but can't sleep and my hair falls out.

#11 OneProudMum

Posted 16 January 2013 - 10:54 PM

QUOTE (Atomac @ 16/01/2013, 11:47 PM) <{POST_SNAPBACK}>
I was diagnosed years ago but only started getting shots when I was pregnant with my daughter. My levels were about 9. When my levels are getting low I find that I get headaches, am tired but can't sleep and my hair falls out.


9? Holy crap! You must have been terrified?!

#12 Atomac

Posted 16 January 2013 - 11:11 PM

QUOTE (OneProudMum @ 16/01/2013, 08:54 PM) <{POST_SNAPBACK}>
9? Holy crap! You must have been terrified?!

Not really. My dr had me come in for daily shots for a couple of weeks.

#13 Shamoo

Posted 16 January 2013 - 11:19 PM

QUOTE (Atomac @ 16/01/2013, 11:41 PM) <{POST_SNAPBACK}>
Not really. My dr had me come in for daily shots for a couple of weeks.


I just found my results & my subsequent frantic emails to my parents to get our family tree medical history.
At the beginning of my diagnosis/worst my levels were down to 11 (my Dad's were barely measurable at 5)

Same as Atomac I was in the gp's for numerous doses over a 2/3 week period


#14 Megs25

Posted 16 January 2013 - 11:47 PM

Not me but my son was born with no B12. They have so far not been able to work out why.

They didn't discover it until he was 11 months old but wasn't developing.

Now he has a lot of learning difficulties and delays, and mild cerebral palsy. They think it's because he had no B12 for so long.

That said, he's intrinsic factor is normal, so they still aren't sure what's going on. Interesting to hear from grown up with it.

#15 tily

Posted 17 January 2013 - 06:33 AM

I was on daily shots for a while too but haven't had one for a while and just had levels checked and was normal for about the first time ever. I have a number if gut issues and it is the lack of intrinsic factor that gets me. My lain symptom is exhaustion and some grogginess of thinking (probably linked!) also get anxiety which may all be a part of it. No family history that I am aware of but that doesn't mean it wasn't there!

#16 mrshappymum

Posted 17 January 2013 - 03:29 PM

Wow some of those levels were crazy low.

I have always have my injection on time, I can feel when I need it.

My levels are normal now but I still feel lethargic which makes me think I will be like this forever  sad.gif  I shouldn't complain - could have worse things wrong with me.




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

Show us your DUPLO creations to win!

We love to see the cool creations kids build when they play with LEGO DUPLO. Enter and share a picture of your childs creation for a chance to WIN 1 of 10 LEGO DUPLO prize packs worth over $100 each.

Jammy, Hula Hoop, Rage: Reddit reveals most unusual baby names

A recent Reddit thread has revealed some of the more creative names in the world.

Woman awakens from coma, learns she gave birth

A US woman awakened this week from a four-month-long coma that doctors had feared would be permanent and learned that she had given birth to a baby boy, according to her family.

'Give us a break': mum sent shocking letter over Facebook baby pics

Posting a lot of baby photos doesn't make you a bad person. It may make your Facebook feed a little irritating, but it doesn't make you a bad person.

In defense of the dads who do so much

It's time to shift the focus off what dads aren’t doing and shine it on what they are.

The modern cloth nappies too cute to cover up

If you're only just joining the modern cloth nappy movement, or would like to spruce up your collection, we have to introduce you to Designer Bums.

How breastfeeding can affect your libido

When you’ve just had a baby, having sex isn’t usually top priority. In fact, for a lot of women it rates about as appealing as changing another dirty nappy.

Should pregnant women be allowed to use 'parent and child' car parking spots?

Is it acceptable to use these car parking spots when pregnant? How many of us would admit to doing it?

Healthy baby from sperm taken 48 hours after a man died

Fertility doctors have described their "most extraordinary case" - creating a healthy baby from sperm taken 48 hours after a man had died.

Anti-vaccination mum's seven children contract whooping cough

A Canadian woman who had declined to have her children immunised against pertussis, better known as whooping cough, has changed her position now that all seven of her children have come down with the disease.

How pregnancy probiotics can help you and your baby

New research suggests that taking specific pregnancy probiotics could be the answer to a range of common pregnancy side effects.

Childcare is a big problem, but there's more to it

Let’s keep talking about these issues and not allow them to be put into a neat little box that’s labelled ‘Fix childcare and everything is solved’.

Pink's awesome response to body-shaming trolls

When trolls felt the need to comment on 35-year-old singer-songwriter Pink's weight, her answer was an awesome ode to body love.

Fertility clinic offers egg donors $5000

A national chain of fertility clinics is offering egg donors a $5000 payment to cover their expenses, a first for Australia which is raising concerns the money could act as an inducement.

Baby boy abandoned in India amid fresh surrogacy concerns

Australian officials could do nothing to stop an Australian couple from abandoning their baby son, born through surrogacy in India, after they decided they did not want to bring him to Australia.

Herd immunity and community responsibility: how free-riders can make kids suffer

Individual choice works for haircuts and handbags, but not for preventing infectious diseases that kill kids.

Photographer captures 'unexpected beauty' of birth

If there is one thing Leilani Rogers knows about childbirth, it is that no two deliveries are ever the same.

Expectations vs the reality of making a toddler's clothes

Note to self: less sewing, more life. Not the party dress, but the party. The toddler, as usual, has it all figured out.

Mum meets 'dead' daughter 49 years after birth

In 1965, Zella Jackson-Price was told her premature baby girl had died shortly after birth.

Sign up to our 30 days of #PlayIQ challenge

Sign up to receive 30 amazing tips and ideas for play with baby during the month of April and submit a picture or tip on our social wall for a chance to win an amazing Fisher-Price prize pack.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Sign up to our 30 days of #PlayIQ challenge

Sign up to receive 30 amazing tips and ideas for play with baby during the month of April and submit a picture or tip on our social wall for a chance to win an amazing Fisher-Price prize pack.

Tips for flying with a baby

Travelling with kids requires a whole other set of skills - ones that I have learned through (sometimes unfortunate) trial and error.

How to stay calm in an emergency

I’m not expecting you to be as calm as you might be right now. What I mean is that if your panic levels are through the roof during a stressful situation, let’s bring them down to just under the ceiling.

Toddler gets 'drunk' after cranberry juice mix-up

A toddler was taken to hospital after a waitress served her sangria instead of cranberry juice at a US restaurant.

Show us your toddlers LEGO DUPLO creations

We love to see the cool creations kids build when they play with LEGO DUPLO. Enter and share a picture of your childs creation for a chance to WIN 1 of 10 LEGO DUPLO prize packs worth over $100 each.

We need to stop using this word when we talk about childbirth

Is it shaming to point out that women are often being let down in birth?

The certificate helping parents deal with pregnancy loss

For some people, this certificate will offer a sense of validation that their child was acknowledged as being here and now gone, and will help them with life post-loss.

The phenomenon of phantom pregnancy kicks

'Phantom pregnancy kicks’ are encountered by many mums months - or even years - after their pregnancy is over.

The health insurance advice you can't afford to ignore

There's one simple switch that could save you hundreds of dollars a year in private health insurance.

4D scans show how smoking affects babies still in the womb

The harmful effects of smoking during pregnancy on unborn babies may be seen in tiny movements in their faces using 4D ultrasound scans, research has found.

The most dangerous toddler food trends

Pete Evans' paleo cookbook for kids caused a storm, but there are plenty of other unsafe food trends for babies and toddlers.

Infection killed new mum of twins

Modern medicine could not save 19-year-old Sophie Burgess who died 48 hours after giving birth to twins in the UK.

How to babyproof your job interview

Once upon a time, I was a fan of job interviews. That all changed after I'd switched careers, had a baby and decided to spend the first year at home with her.

Grieving families give warnings after toddler deaths

Two Queensland families are grieving the loss of their toddler sons after the boys drowned in separate incidents last week.

Man faces jail after giving woman abortion pill smoothie

A Norwegian man is facing jail after putting abortion pills in his ex-girlfriend's smoothie, causing her to have a miscarriage.

'He's a blessing': family of baby born without eyes

Jordy Jackson was born without eyes. He has anophthalmia, which affects one in every 100,000 babies born.

Super fit model Sarah Stage defends her pregnancy body

Model Sarah Stage has defended her pregnancy body after critics claimed her slim figure at eight-and-a-half months pregnant wasn't "normal".

Why I post breastfeeding photos online

I love to take pictures of my children. In some of the pictures, my younger son is nursing.

The day I broke my baby

There are things I wish I didn't know. I wish I didn't know that companies make tiny braces, small enough to hold necks no bigger than a wrist.

Geeky baby gear

If your family is more into Star Wars, gaming and the periodic table than most, you might want to check out these geek-chic baby items.

Grandbabies: the babies born looking old

Not a day under 65 and a lifetime of struggle! That's the look of these newborns, who look adorably older than their real age. Social networking site Reddit recently featured user submissions of adorable grandbabies, here are our favourites.

53 creative pregnancy announcements

Announcing that you're expecting can be a time to express your creativity, sense of humour and imagination. Check out how other parents and parents-to-be have broken the news to friends and family.

IKEA hacks for the nursery and kids' rooms

Are you one of those that know the whole IKEA catalogue by heart? Love their stuff but want to personalise it? Here's some inspiration to help you realise the potential of IKEA furniture and fittings.

36 baby names inspired by food and drinks

A French court may have ruled out Nutella as a baby name, but that doesn't have to stop you from taking inspiration from the supermarket (or bottle shop). See what parents in the US have chosen for their delicious little ones.

Clever breastfeeding products

Check out this range of products designed to help make your breastfeeding journey more enjoyable, manageable and convenient.

 

SIGN UP NOW!

Win a year's worth of toys

Receive a daily email from Essential Baby for just the month of April with great play tips and ideas, then submit your baby at play photos to our Playwall, Instagram or Twitter for your chance to win.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.