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Doctor won't prescribe motillium.

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26 replies to this topic

#1 JustOneMorePlease

Posted 14 January 2013 - 09:26 PM

DS is almost a year old and the doctor has said that she will no longer prescribe me motillium to feed him.
I have basically no supply without it. I have used it to feed DD2 as well although I only used it for 6 months with her. Just feeling sad because I don't think he is ready to stop feeding yet.

I have slowly dropped my tablets over the last couple of weeks and I'm down to three a day and don't really have a supply at all. I noticed he is getting dry lips. I'm worried he is not getting enough fluid. I offer him water and cows milk but he really loves breast feeding.

Just feeling sad that the doctor has decided that I should stop breast feeding him and I don't get to make the decision myself. Wondering if I should get up the courage and see if another doctor will prescribe it for me or should I just give up now that he is almost a year old? Any advice???

#2 OnTheJourney

Posted 14 January 2013 - 09:29 PM

I personally would most definitely be seeing another doctor.

#3 AntiBourgeoisie

Posted 14 January 2013 - 09:30 PM

Go see another doctor. The WHO recommendations are feeding to two years and beyond.

It is NOT up to any doctor to dictate when you stop feeding.

ETA - keep offering water in a cup. Drinking out of a cup is a useful skill to foster at this age. And monitor his nappies for wee - if he is not having wet nappies then get him checked out.

Edited by AntiBourgeoisie, 14 January 2013 - 09:32 PM.

#4 Escapin

Posted 14 January 2013 - 09:36 PM

Did you doc say why? Are the side effects for you that you should be considering? Don't get me wrong, I'm very pro-breastfeeding, but taking any drug for a long period of time is bound to have some side effects.

#5 niggles

Posted 14 January 2013 - 09:36 PM

That is ****ed. I can't think of another suitable adjective. I would certainly see another doctor. I'd also put in a complaint about the first one.

Is there an issue with your health if you continue taking it? That's the only defense I can see for refusing the prescription. Otherwise the doctor is making a parenting decision on your behalf. What were her reasons?

#6 BeYOUtiful

Posted 14 January 2013 - 09:37 PM

I used Motilium for just over 2 years.  I would see another GP.  I asked about long term use and he said as long as I wasn't having diarreah regularly it was fine.

What were his reasons for not prescribing it?  Surely it wasn't because he thought you should wean.

I started on 6 tablets, reduced to 4 but not in the first year. The last couple of months I was having 2.  I noticed the full feeling was gone but my DS still managed let Downs.  

Good luck

Edited by ~Jane05~, 14 January 2013 - 09:39 PM.

#7 Jaffacakes

Posted 14 January 2013 - 09:38 PM

My GP also wouldn't prescribe it once my DS was a certain age (I think he was around 6 months). I rang up the Breastfeeding Centre affiliated with the hospital I delivered him at and they were able to direct me to a "pro-motillium" doctor. I then went on to BF him for 21 months  biggrin.gif

Perhaps one of the BF Centres or ABA in your state could recommend someone?

ETA: I did not take motillium for the full 21 months though (maybe 12 months at most).

Edited by Jaffacakes, 14 January 2013 - 09:39 PM.

#8 ubermum

Posted 14 January 2013 - 09:39 PM

Did you ask why?

Taking any drug comes with not only benefits, but also risks. Do you know what the risk factors are for people taking this drug long term because I don't. Also, it is excreted in breast milk, so what are the risk factors to your child? Maybe your doctor has a good reason. I am not saying that he does but just offering you an alternate point of view to investigate, consider and discuss with him before you consider some of what previous posters have recommended.

#9 rosiebird

Posted 14 January 2013 - 09:41 PM

I would be upset.

Why don't you go back to your GP and ask her what the evidence is for harm with long-term use of domperidone. If you don't object to talking with her receptionist, when you make the appointment, make a point of telling the receptionist that you want to discuss the side-effects of long-term motilium use and chances are that will spur your GP into doing some current research on the topic prior to your appointment!

If you are fully informed of the risks and you want to continue motilium but your GP refuses, I would find another GP to prescribe it. I don't think the risks are so high that you will encounter uniform objection to it.

#10 Soontobegran

Posted 14 January 2013 - 09:46 PM

QUOTE (AntiBourgeoisie @ 14/01/2013, 10:30 PM) <{POST_SNAPBACK}>
Go see another doctor. The WHO recommendations are feeding to two years and beyond.

It is NOT up to any doctor to dictate when you stop feeding.

ETA - keep offering water in a cup. Drinking out of a cup is a useful skill to foster at this age. And monitor his nappies for wee - if he is not having wet nappies then get him checked out.

There have been documented side effects from long term use of Motilium and there will be some doctors who feel that there is not enough evidence that the benefits outweigh these side effects. I agree with rosiebird that you should re visit your GP and discuss whether this is the reason and ask for an explanation so you can make a decision you are comfortable with.

Edited by soontobegran, 14 January 2013 - 09:50 PM.

#11 JustOneMorePlease

Posted 14 January 2013 - 09:46 PM

I have no health issues or side effects from the  motillium at all. She said that because it goes through the breast milk it is not safe for DS as we don't know how it is affecting him.

I have seen lactation consultants many times with my last two children to try and build supply. They have decided that the only thing that works for me is motillium. I was told by the LC's I can take it as long as I want to continue breast feeding but my doctor doesn't agree.

The lactation consultants say it is safe for as long as I need it but my doctor says its not. The LC's can't actually prescribe it so I need the GP for that. I'm torn, I don't know what to do.

#12 MuppetGirl

Posted 14 January 2013 - 09:48 PM

As PP have said, your doctor has no right to decide when you should be stopping BFing.

See another doctor for the prescription.

Edited by MahnaMahna, 14 January 2013 - 09:49 PM.

#13 pitzinoodles

Posted 14 January 2013 - 09:53 PM

I felt uncomfortable taking it for the better part of 12 months. I personally didn't feel comfortable with the potential long term unknown effects on me or DS.  I would ask what the GPs rationale was.

Is it also a PBS issue?

#14 lucky 2

Posted 14 January 2013 - 09:57 PM

The article below may be of interest.
If you are in Melbourne you could give me a pm as there are some Drs in Melbourne who specialise in Breast feeding Medicine.
All the best.

#15 BeYOUtiful

Posted 14 January 2013 - 10:05 PM

There is minimal amounts passed through the breast milk.

I researched a lot OP.  I also started a thread on here if you would like to search for it.

#16 ladyp

Posted 14 January 2013 - 10:08 PM

I took it from 3 mths til 10 mths then the dr wouldn't give it to me. She said no because she didn't know the side effect on DD. I was able to keep feeding til 14 mths. My supply had dropped well and truly by then.

I have another friend taking it to help keep other meds down and she told me there was a recent study done and it was found to cause heart failure if taking 6 tablets a day, her dr has taken her off it and she is now on zofran which is very expensive. She needs to keep other meds down, she isn't on it from breastfeeding.

Without it there would have been no way I could have fed dd, she was tongue tied and it wasn't found and snipped til week 12.

#17 BeYOUtiful

Posted 14 January 2013 - 10:13 PM

The heart failure/cardiac arrest was related to another drug not the drug in Motilium.

#18 Liadan

Posted 14 January 2013 - 10:21 PM

I would be asking the doctor why he is refusing the prescribe you motilium, if he says anything about weaning, then you need to point out that WHO recommend breastfeeding until at LEAST 24 months. If you get nothing, then see another doctor for a second opinion.

#19 purplekitty

Posted 14 January 2013 - 10:24 PM

QUOTE (lucky 2 @ 14/01/2013, 09:57 PM) <{POST_SNAPBACK}>
The article below may be of interest.
If you are in Melbourne you could give me a pm as there are some Drs in Melbourne who specialise in Breast feeding Medicine.
All the best.
I notice in that link the daily dose ranges from 90-160mg.
The TGA put out an advisory last month on Domperidone  with a maximum daily dose of 80mg. and stating doses greater than 30mg./day may be associated with a risk of serious cardiovascular events so I think some GPs might be cautious of longterm use in light of this when looking at the risks vs. the benefits.

OP,it's worth going back and seeing your GP and have them explain their decision and go from there.

#20 BeYOUtiful

Posted 14 January 2013 - 10:35 PM

From memory each tablet was 10mg?

#21 lucky 2

Posted 14 January 2013 - 10:45 PM

QUOTE (purplekitty @ 14/01/2013, 11:24 PM) <{POST_SNAPBACK}>
I notice in that link the daily dose ranges from 90-160mg.
The TGA put out an advisory last month on Domperidone  with a maximum daily dose of 80mg. and stating doses greater than 30mg./day may be associated with a risk of serious cardiovascular events so I think some GPs might be cautious of longterm use in light of this when looking at the risks vs. the benefits.

OP,it's worth going back and seeing your GP and have them explain their decision and go from there.

They are higher doses than usually prescribed in Aus, I didn't even notice the dosages!
The RWH in Melbourne link is below (60mg per 24 hrs) and often 80 mg seems to be used (total per 24 hrs).
The information sheet probably needs reviewing though as it is 4 years old.

#22 Cindy1014

Posted 14 January 2013 - 10:55 PM

OP i wont go into the side effects as i think that is something you need to talk to a doctor about, all i can tell you is that i went on motillium when my son was 2 month's old as my milk had started to drop down dramaticly i stayed on 60 mg a day until he was 14 months old then dropped down to 30 mg.

When my son was 18 months old i stopped taking it because i still didn't have my period back and we were trying for another baby, my milk supply is still there and we are still enjoying breastfeeding ( although we are down to once a day or every other day ) my son is about to turn 2.

So all up i was on the medication for 16 months, and i would do it again if i need to with my next child.

if you are not ready to stop breastfeeding, please go see another doctor  original.gif

#23 BeYOUtiful

Posted 14 January 2013 - 10:58 PM

I have never heard of anyone being prescribed more than 6 tabs a day ie 60mg.  In fact I have struggled to find many that have taken it as long as I have.

The only thing I would recommend with extended BF is up your calcium intake and get a good dose of the old sun for b
Vit D.

One of the side effects is menstrual cycle not returning.  Mine didn't until I was taking 2 tabs and not feeding overnight.

Edited by ~Jane05~, 14 January 2013 - 11:01 PM.

#24 pitzinoodles

Posted 14 January 2013 - 11:18 PM

I was out put on a starting dose of 80mg 1 yr ago! So those sort of doses are used in Australia.

Sorted my supply issue biggrin.gif

But I always felt slightly uncomfortable about taking any medication because IMO NO medication is 100% safe.

I took it because I thought BF + motilium was better than formula, but once we got to 1yr old, I thought cow's milk was better than motilium.

But then again, I am one of this whacky people who doesn't necessarily believe the WHO recommendations are the best recommendations for affluent mum's living in Australia. shrug.gif

Edited to remove random smilies

Edited by pitzinoodles, 14 January 2013 - 11:48 PM.

#25 CallMeFeral

Posted 14 January 2013 - 11:30 PM

Go to another Dr. It's not his/her decision to make, whether you continue to feed or not, unless there is an actual health reason.

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