Jump to content

Silent reflux in 10 week old
Reassure me please!


  • Please log in to reply
13 replies to this topic

#1 lozzylots

Posted 12 January 2013 - 07:49 PM

My DD is nearly 10 weeks old - at around 4 weeks she was diagnosed with silent reflux but not prescribed anything to treat it given that it wasn't affecting her weight gain. She had a slight improvement for a little while, feeding well and sleeping a little longer at night, but has gone downhill again. Her temperament seems to be getting more and more unsettled and irritable, she just seems so miserable so often. We get short periods of happy time, usually after a feed, and then suddenly the screaming starts. She can be extremely hard to settle down once she starts crying and in the last week it's had an effect on her feeding, she fusses the whole time, and wakes every 2 and a half to 3 hours during the night. She is bottle fed EBM and formula and has gone from having 120-150 mls per feed down to 60-90 with an occasional 120 if we're lucky. Today she'd had less than 100 mls total up until 3pm so I took her to the doctor and he seems to think it's the reflux that is worrying her. It's breaking my heart - we have these beautiful smiles and her sweet, cheeky nature shines through in her big grins, but then so much of the day is spent trying to calm her crying and screaming.

We're back to the doctor tomorrow or Monday depending what kind of a night she has tonight, to decide what to do from here. Has anyone else had this experience, and did medication help bubs enough to warrant whatever side effects there may be? When did things start to improve? I guess I just want to know that it gets easier. TIA.

#2 MrsMammaB

Posted 12 January 2013 - 08:03 PM

Yes it will get better.

Our DD was diagnosed with silent relux and we put her on Zantac based on advice from our paediatrician. She is so much happier. We used to only get such short bouts of happiness and I would wonder when I would be able to start enjoying her and felt so bad she was so unhappy.  

She is now 19 weeks and such a happy little camper. Sleep has gone downhill but that seems to be common around the 4 month mark. Before that she was waking for one feed a night.

A girl from my mothers group had the same issue and Losec has changed their lives around. MIserable bubs to a happy little lady.  

Good luck original.gif

#3 xqdel

Posted 12 January 2013 - 08:56 PM

I have had two DDs who had silent reflux. Medication led to relief for both girls. DD1 was on losec from 4-16 months. She was started on Zantac which helped a bit but not enough so the losec was tried after 3 weeks. With her we also used mylanta for any break through pain which worked very well. After starting medication she smiled for the first time.

DD2 was diagnosed by 3 weeks and went onto losec at 5 weeks. She only came off the losec last month at 22 months. We had a difficult journey with her, as she would gain weight which would cause the reflux to flare as she was no longer taking a high enough dose (she also had food issues which complicated her treatment). But most importantly when the losec dose was correct she was a happy baby, when it wasn't she would scream, and arch, and try to climb out of her own body. She also comfort fed which meant she was a very good weight.

You need a referral to a paed (or an unusually good gp) who is familiar with (and proactive in dealing with) reflux, particularly making sure that the dose is sufficient (babies process losec quicker than adults so need higher doses). Just because weight is being gained does not mean that the poor poppets are not in pain and in need of medication. I personally imagine it must be worse, at least if you vomit the acid isn't going up and down the oesophagus continually.

We did not experience any side effects from the losec.

It does get better once medication is introduced and babies typically start to grow out of it between 6 and 12 months and can come off the medication.

I remember clearly how horrendous reflux was, it does get better first via the relief that medication brings and then ultimately once they grow out of the problem.

#4 lozzylots

Posted 12 January 2013 - 09:11 PM

Thank you both so much for your replies... I know logically it's going to get better at some point but it's dreadful seeing her in pain - I can handle crying, but the screaming and writhing tear me apart - xqdel I know exactly what you mean when you mention trying to climb out of her own body. I'd do anything to see more of her beautiful smiles!! Thanks again.

#5 lucky 2

Posted 12 January 2013 - 09:52 PM

Dd was diagnosed with silent reflux at 10 weeks of age (by a neonatologist), she was screaming a lot and so hard to breast feed, back-arching and pulling on and off the breast, high pitched screaming. She was prescribed Zantac and it did help.
She took it well and I wasn't aware of any side-effects.
What side effects are you concerned about?

#6 lozzylots

Posted 12 January 2013 - 11:04 PM

We were told firstly by hospital paed that OTC antacids like gaviscon don't do anything (despite obvious relief after 2 doses this evening), and then by our GP that antacids shouldn't be used long term because of something in them (sorry, can't remember what & he didn't specify how long 'long term' was); and then that meds like losec can increase chances of respiratory issues like chest infections. That said, I just read somewhere that untreated reflux can have the same effect. To be honest I don't have a lot of faith in the paed we saw at the hospital, she wasn't very helpful at all

#7 annasue

Posted 12 January 2013 - 11:27 PM

Reflux in tiny people is so cruel. Please don't be frightened to use medication. DS who is now six had a horrible first 6 months it took me three months to get a doctor to listen to me. I was appalled when at 4 weeks my GP told me I was an anxious new mum and to put him up one end of the house so I couldn't hear him and he'd soon settle.

We ended up trying both Zantac and the Losec. I felt ripped off because I spent those first 6 months just wishing he would hurry up and grow out of it.

Once he was sitting up it did improve and by 12 months he was a different little boy.

As well as the meds anything that keeps bub upright helps. We had the head of his bed on bricks, you can buy a wedge now that they can sleep on, to keep them more upright. His Bumbo seat from three months was a godsend it helped keep him upright, as did the jolly jumper for short bursts. carrying him in a sling as opposed to laying him down in a pram made a difference, and small amounts of milk often. Unfortunately that means you feel like all you do is feed.

If I could turn back the clock and have known that it was going to get better then I would have just spent my days in the first 6 months keeping him comfortable but that's hard if you have other kids or have to return to work.

Find a good paed or as someone else suggested a GP who is good with reflux babies.

There are plenty of drs and midwives who unfortunately are not as enlightened as they should be when it comes to reflux. Some of the comments made to me by so called professionals about reflux had me wishing a refluxing child on them.

#8 lozzylots

Posted 14 January 2013 - 05:24 PM

We're at the hospital now, our GP referred us in as he wanted a second opinion on the reflux. I can't believe how reluctant all the doctors we've seen are to treat the reflux, I just don't understand. At least this time they've all seen her at her worst and agree it's not right. At the moment we're waiting on urine test results as she may have a uti as well, although no other symptoms of infection. But they might actually trial her on losec this time. At least they've acknowledged her discomfort. I hate hospitals  :-(

ETA: the doctor here won't diagnose it as reflux or treat it because she doesn't vomit and her weight gain is ok. I'm so frustrated I could cry, nobody is listening!!

Edited by lozzylots, 14 January 2013 - 05:59 PM.


#9 lucky 2

Posted 14 January 2013 - 06:55 PM

sad.gif I am so sorry to hear you are struggling and your baby is miserable, I hope the staff at the hospital are able to help you and your baby, otherwise ask if one of them would like to go home with you to console your baby for you. Perhaps then they will feel moved to intervene.
All the bestx.

#10 lozzylots

Posted 14 January 2013 - 07:45 PM

Thank you. After 6 hours at the hospital and arguing and pleading to be taken seriously with 2 doctors we finally got a script to trial losec. The official diagnosis? Irritable baby. That's what our letter back to the GP says. No kidding, but she's irritable for a reason. Anyway...  I got what I wanted but it shouldn't have been so hard. We had one lovely sympathetic nurse whose own baby had silent reflux but other than that every other medical professional (I use that word loosely) seems to deny the seriousness of it, or even its existence. Here's hoping the losec helps! Thanks again everyone, your reassurance has made me feel like I'm not just a paranoid first time mum

#11 ♥~Bodhichitta~♥

Posted 14 January 2013 - 07:48 PM

My DS also had silent reflux, and was given Losec.  It's a while ago now, so I can't remember the exact details.  He was about 10 weeks old at the time also, and was on it until he was about 1yo.

It helped so much!!

Although for us it wasn't until we stopped dairy completely (due to an intolerance) that both his reflux, and his eczema, cleared up.

#12 ~Peaches~

Posted 14 January 2013 - 08:06 PM

I'm so glad you finally got the prescription in the end, but I'm so sorry they wouldn't listen to you and weren't/aren't taking it very seriously sad.gif

My DD2 had silent reflux, and unless you've experienced it first hand, you really don't know how awful it is. I took her to 6 Dr's in the first 5 months of her life as she just screamed and screamed for 14hrs + most days, with little bursts of happiness in between, it was heartbreaking. One Dr finally suggested Zantac, which worked perfectly for 2 weeks and she was like a completely different baby! Then it just stopped working, but no GP's wanted to prescribe anything more in case it wasn't silent reflux in the first place rolleyes.gif Having never experienced that with DD1 who was only 15 months old at the time, I just took their word for it, but felt like I was going crazy as no one seemed to think it was an issue, yet I had a screaming writhing baby who needed me 24/7, and another bigger baby to look after at the same time, so it certainly felt like an issue to me.  
If I could go back now, I would keep pushing and keep seeing different dr's until I got some help. So if you're not happy and feel like there's still something that's not quite right, please keep asking for help or see a paed, you shouldn't have to put up with it being like that every day if there's something that might help. I've heard good things about Losec, so I really really hope it helps your DD wub.gif It's so hard seeing them in pain and not being able to do much for them sad.gif
DD did seem to get a bit better around 6 months when she was sitting up and eating solid food, but it wasn't until after she was one that I could finally feel like I could 'see the light' out of the silent reflux nightmare.
I hope so much the Losec helps and you're able to see much more of your happy little girl  xx

Edited by ~Peaches~, 14 January 2013 - 08:09 PM.


#13 tiggy2

Posted 14 January 2013 - 08:49 PM

How awful and frustrating for you. I hope the losec works.
I found a squirt of mylanta worked wonders.
As per pps keep bub upright for as long as you can after a feed. I'm onto my third silent refluxer.  No.3 is 6 weeks, he mostly sleeps on me or in the swing (turned off). If I try to put him in bed ie lying flat he wakes crying very quickly.

You may wish to try different formulas too, both dairy and soy can aggravate reflux in some bubs.

Btw silent reflux typically tyrant involve vomiting that's why it's silent!

Hope it improves quickly for you.

#14 lozzylots

Posted 20 January 2013 - 02:32 PM

I couldn't not post to say thank you all for your support and advice, I wish I could give each of you a big hug. DD has been on Losec for a week and I've switched her to an AR formula... Already everyone can see such a difference in her, we have so many more smiles, hardly any screaming, she'll go down in her rocker and chat to herself for a while instead of screaming as soon as she's put down, she's easier to settle for sleeps and nearly always wakes up smiling (which makes my heart melt wub.gif she always has woken up crying before), she'll go in her stroller... I have a different little girl, she's so much happier. Thank you!!!!




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

Five ways my second pregnancy is second best

As I roll into the second half of "Pregnancy: The Sequel", here is breakdown of the differences I have found thus far.

Domestic politics

Why I felt guilty about having a cleaner

Coming home to a clean house was a pleasure – and yet, I felt uneasy.

'Ugly' hearing aid ad leaves parents fuming

When Alecia Donoghue found out her baby would need hearing aids she worried about him becoming the target for schoolyard bullies.

Have you seen these missing children?

The Australian Federal Police has released the following information to locate some of Australia's missing children through the Family Law Court.

Margarita time

Keira Knightley welcomes first child

British actress Keira Knightley has become a first-time mother.

IVF patients in the dark over which clinics are least successful

Couples with fertility problems have little way of knowing which IVF clinics are the best performers despite significant differences between clinic success rates.

Couple forced to defend their decision to become parents

They met, fell in love and got married. Then, just like couples everywhere, Simon and Vicky Moore decided it was time to have a baby.

The one parenting tip that made all the difference

Amongst the useless, ill-informed advice we're given as new parents, many of us also receive nuggets of wisdom that make our lives just that little bit easier.

Five lies you tell yourself when you're pregnant

You can see it all now: glowing mumma with her gorgeous babe ... you know exactly what you're going to be like. Or perhaps you know exactly what you're not going to be like.

Family expecting fourth set of twins

A couple is expecting their fourth set of twins in five years.

The day my daughter almost drowned

We had six adults standing there, so I felt like I could relax a bit. After all, what could go wrong with so much supervision?

Sydney siege survivor names baby after victim Katrina Dawson

A Sydney barrister who survived the Lindt cafe siege has named her newborn daughter after her best friend who died in the tragedy.

The universal working mother experience

These days mothers need more than just traditional career advice.

Obama feels full force of toddler tantrum

Shopping centres, restaurants, the White House ... the list of places toddlers like to throw tantrums is endless.

Banishing bloat

How to avoid a bloated tummy

Here are some foods to eat in order to escape feeling ghastly and gassy.

The great new picture book for anxious kids

My son is a worrier by nature. I learnt long ago that it was completely pointless to say to him "Don't worry about it!".

Budget stripped more than $15b from families

The combined impact of the two budgets for low and middle income people was "devastating", new analysis by the Australian Council of Social Service shows.

Pregnant women urged to get flu shots

As the winter chill starts to arrive, NSW Health is urging pregnant women to get their flu shots.

65-year-old gives birth to quadruplets

A 65-year-old German woman, who already has 13 children, has given birth to quadruplets.

What you need to know about pregnancy and health insurance

It's not just waiting periods that couples need to consider - there are other factors to consider when thinking about health insurance.

Yummy mummy

Nicole Trunfio breastfeeds baby on Elle magazine cover

Australian model Nicole Trunfio has taken the concept of multitasking to a fashionable new level for Elle Australia.

Warnings after baby girl died while sleeping in bouncer

Parents have been warned about the dangers of letting babies sleep in bouncers and swings following the death of a three-month-old girl.

Coping with fatigue as a parent

Sleep deprivation is a real hazard of caring for a baby. But there are ways to manage the challenges of fatigue better.

A very 21st century issue: parents, parks and smart phones

It's not all the parents, and it's not all the time, but there is often at least one doing it. And sometimes, that 'one' is me.

Appliances

Faulty washing machines linked to house fires

More than 80,000 faulty Samsung washing machines pose a fire threat in homes throughout Australia despite a nationwide recall of the machines.

7 things you might not know about postnatal depression

Despite its widespread nature, there is still a great amount of mystery surrounding PND - and it's important to try unravelling as much of that as we can.

Seven questions you should be asking about your health cover

If the last time you assessed your health cover was five years ago, there?s a chance it may no longer suit your needs. To ensure it?s still right for your family, click here for seven questions to ask.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

How to use gas effectively in labour

Many women in labour don't use gas effectively and suffer more side effects than benefits. Here's how to get the most out of this pain relief option.

'He has gastro but that's okay, right?': sick kid etiquette

We cannot place all children who are sick in a bubble till they recover, but we can give other parents a choice about exposing their kids to them.

Welcome to Winter

Now that the colder months are here, Essential Baby as all the information you need for staying healthy and happy during the chilly season.

Ada Nicodemou: 'I can never be completely happy again'

Home and Away actress Ada Nicodemou has opened up about the loss of her stillborn baby.

10 things to consider when you're thinking about trying for a baby

Before you start tracking your menstrual cycle and reading up on the best positions to get pregnant, there are a few other things you may want to consider.

How special surgery and IVF can create a post-vasectomy baby

Cricket legend Glenn McGrath and his second wife Sara are expecting their first child together, thanks to IVF and a delicate surgical sperm retrieval process that helped the couple to conceive.

Belle Gibson's mother 'disgusted and embarrassed'

The mother of disgraced wellness blogger Belle Gibson has accused her daughter of lying about her childhood in an attempt to garner public sympathy.

Doctor's mobile phone 'left inside c-section mum'

A new mum claims a doctor left his mobile phone inside her after delivering her baby via caesarean section.

I'm a mum and I'm following my dreams

I want my kids to know that no matter what happens in life, you can still be who it is that you've always wanted to be.

Those first daycare days

I had this innate 'mum' moment the other day.

'If one person had listened, my life would have been so different'

Katherine's father will die in prison for the horrifying sexual abuse of his daughter. Yet she is the one with the true life sentence.

This new plan undermines breastfeeding and baby health at everyone's expense

Mothers, babies, the health system and the wider society are going to pay the price of this new budget.

Couple to celebrate terminally ill baby's birthday in unique way

Baby Jai Bishop has lived at Starship Hospital for the past seven months, with his parents flying back and forth from Hokitika, 1100km away, to be by his side.

Life On Mars

It's men who need 'retraining', not women

We are all responsible for our own behaviour. Telling victims to harden up is wrong.

Baby Gammy's dad tries to claim charity money

The biological father of baby Gammy has reportedly tried to access charity money raised for the little boy's medical costs.

Where are the childcare places?

It?s all very well to encourage women to work if they choose to, but how can the measures lead to increased workforce participation when women are once again left holding the baby?

The pain of not having babies and not knowing why

After seven years of wishing, hoping, crying, punching pillows and shouting "why me?!", the end result is more than I ever thought possible.

Getting your family finances in order

Whether you're after a new car for a growing family, a bigger house, or are just fixing up your finances, here are the basics on borrowing.

Mum shares graphic selfie to warn against tanning

A mum has shared a graphic photo of her skin cancer treatment as a warning to others.

Does parenthood make us happier?

We can certainly gain higher levels of happiness when we become parents, but the trick is to not get overwhelmed by the pressures of raising our kids.

No, having a dog is not like having a human child

It's obvious these people dote on their pets, but they're barking up the wrong tree.

 

Top baby names

Baby Names

The numbers are in and we can now bring you the 2014 top baby name list for Australia.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.