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Silent reflux in 10 week old
Reassure me please!


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#1 lozzylots

Posted 12 January 2013 - 07:49 PM

My DD is nearly 10 weeks old - at around 4 weeks she was diagnosed with silent reflux but not prescribed anything to treat it given that it wasn't affecting her weight gain. She had a slight improvement for a little while, feeding well and sleeping a little longer at night, but has gone downhill again. Her temperament seems to be getting more and more unsettled and irritable, she just seems so miserable so often. We get short periods of happy time, usually after a feed, and then suddenly the screaming starts. She can be extremely hard to settle down once she starts crying and in the last week it's had an effect on her feeding, she fusses the whole time, and wakes every 2 and a half to 3 hours during the night. She is bottle fed EBM and formula and has gone from having 120-150 mls per feed down to 60-90 with an occasional 120 if we're lucky. Today she'd had less than 100 mls total up until 3pm so I took her to the doctor and he seems to think it's the reflux that is worrying her. It's breaking my heart - we have these beautiful smiles and her sweet, cheeky nature shines through in her big grins, but then so much of the day is spent trying to calm her crying and screaming.

We're back to the doctor tomorrow or Monday depending what kind of a night she has tonight, to decide what to do from here. Has anyone else had this experience, and did medication help bubs enough to warrant whatever side effects there may be? When did things start to improve? I guess I just want to know that it gets easier. TIA.

#2 MrsMammaB

Posted 12 January 2013 - 08:03 PM

Yes it will get better.

Our DD was diagnosed with silent relux and we put her on Zantac based on advice from our paediatrician. She is so much happier. We used to only get such short bouts of happiness and I would wonder when I would be able to start enjoying her and felt so bad she was so unhappy.  

She is now 19 weeks and such a happy little camper. Sleep has gone downhill but that seems to be common around the 4 month mark. Before that she was waking for one feed a night.

A girl from my mothers group had the same issue and Losec has changed their lives around. MIserable bubs to a happy little lady.  

Good luck original.gif

#3 xqdel

Posted 12 January 2013 - 08:56 PM

I have had two DDs who had silent reflux. Medication led to relief for both girls. DD1 was on losec from 4-16 months. She was started on Zantac which helped a bit but not enough so the losec was tried after 3 weeks. With her we also used mylanta for any break through pain which worked very well. After starting medication she smiled for the first time.

DD2 was diagnosed by 3 weeks and went onto losec at 5 weeks. She only came off the losec last month at 22 months. We had a difficult journey with her, as she would gain weight which would cause the reflux to flare as she was no longer taking a high enough dose (she also had food issues which complicated her treatment). But most importantly when the losec dose was correct she was a happy baby, when it wasn't she would scream, and arch, and try to climb out of her own body. She also comfort fed which meant she was a very good weight.

You need a referral to a paed (or an unusually good gp) who is familiar with (and proactive in dealing with) reflux, particularly making sure that the dose is sufficient (babies process losec quicker than adults so need higher doses). Just because weight is being gained does not mean that the poor poppets are not in pain and in need of medication. I personally imagine it must be worse, at least if you vomit the acid isn't going up and down the oesophagus continually.

We did not experience any side effects from the losec.

It does get better once medication is introduced and babies typically start to grow out of it between 6 and 12 months and can come off the medication.

I remember clearly how horrendous reflux was, it does get better first via the relief that medication brings and then ultimately once they grow out of the problem.

#4 lozzylots

Posted 12 January 2013 - 09:11 PM

Thank you both so much for your replies... I know logically it's going to get better at some point but it's dreadful seeing her in pain - I can handle crying, but the screaming and writhing tear me apart - xqdel I know exactly what you mean when you mention trying to climb out of her own body. I'd do anything to see more of her beautiful smiles!! Thanks again.

#5 lucky 2

Posted 12 January 2013 - 09:52 PM

Dd was diagnosed with silent reflux at 10 weeks of age (by a neonatologist), she was screaming a lot and so hard to breast feed, back-arching and pulling on and off the breast, high pitched screaming. She was prescribed Zantac and it did help.
She took it well and I wasn't aware of any side-effects.
What side effects are you concerned about?

#6 lozzylots

Posted 12 January 2013 - 11:04 PM

We were told firstly by hospital paed that OTC antacids like gaviscon don't do anything (despite obvious relief after 2 doses this evening), and then by our GP that antacids shouldn't be used long term because of something in them (sorry, can't remember what & he didn't specify how long 'long term' was); and then that meds like losec can increase chances of respiratory issues like chest infections. That said, I just read somewhere that untreated reflux can have the same effect. To be honest I don't have a lot of faith in the paed we saw at the hospital, she wasn't very helpful at all

#7 annasue

Posted 12 January 2013 - 11:27 PM

Reflux in tiny people is so cruel. Please don't be frightened to use medication. DS who is now six had a horrible first 6 months it took me three months to get a doctor to listen to me. I was appalled when at 4 weeks my GP told me I was an anxious new mum and to put him up one end of the house so I couldn't hear him and he'd soon settle.

We ended up trying both Zantac and the Losec. I felt ripped off because I spent those first 6 months just wishing he would hurry up and grow out of it.

Once he was sitting up it did improve and by 12 months he was a different little boy.

As well as the meds anything that keeps bub upright helps. We had the head of his bed on bricks, you can buy a wedge now that they can sleep on, to keep them more upright. His Bumbo seat from three months was a godsend it helped keep him upright, as did the jolly jumper for short bursts. carrying him in a sling as opposed to laying him down in a pram made a difference, and small amounts of milk often. Unfortunately that means you feel like all you do is feed.

If I could turn back the clock and have known that it was going to get better then I would have just spent my days in the first 6 months keeping him comfortable but that's hard if you have other kids or have to return to work.

Find a good paed or as someone else suggested a GP who is good with reflux babies.

There are plenty of drs and midwives who unfortunately are not as enlightened as they should be when it comes to reflux. Some of the comments made to me by so called professionals about reflux had me wishing a refluxing child on them.

#8 lozzylots

Posted 14 January 2013 - 05:24 PM

We're at the hospital now, our GP referred us in as he wanted a second opinion on the reflux. I can't believe how reluctant all the doctors we've seen are to treat the reflux, I just don't understand. At least this time they've all seen her at her worst and agree it's not right. At the moment we're waiting on urine test results as she may have a uti as well, although no other symptoms of infection. But they might actually trial her on losec this time. At least they've acknowledged her discomfort. I hate hospitals  :-(

ETA: the doctor here won't diagnose it as reflux or treat it because she doesn't vomit and her weight gain is ok. I'm so frustrated I could cry, nobody is listening!!

Edited by lozzylots, 14 January 2013 - 05:59 PM.


#9 lucky 2

Posted 14 January 2013 - 06:55 PM

sad.gif I am so sorry to hear you are struggling and your baby is miserable, I hope the staff at the hospital are able to help you and your baby, otherwise ask if one of them would like to go home with you to console your baby for you. Perhaps then they will feel moved to intervene.
All the bestx.

#10 lozzylots

Posted 14 January 2013 - 07:45 PM

Thank you. After 6 hours at the hospital and arguing and pleading to be taken seriously with 2 doctors we finally got a script to trial losec. The official diagnosis? Irritable baby. That's what our letter back to the GP says. No kidding, but she's irritable for a reason. Anyway...  I got what I wanted but it shouldn't have been so hard. We had one lovely sympathetic nurse whose own baby had silent reflux but other than that every other medical professional (I use that word loosely) seems to deny the seriousness of it, or even its existence. Here's hoping the losec helps! Thanks again everyone, your reassurance has made me feel like I'm not just a paranoid first time mum

#11 ♥~Bodhichitta~♥

Posted 14 January 2013 - 07:48 PM

My DS also had silent reflux, and was given Losec.  It's a while ago now, so I can't remember the exact details.  He was about 10 weeks old at the time also, and was on it until he was about 1yo.

It helped so much!!

Although for us it wasn't until we stopped dairy completely (due to an intolerance) that both his reflux, and his eczema, cleared up.

#12 ~Peaches~

Posted 14 January 2013 - 08:06 PM

I'm so glad you finally got the prescription in the end, but I'm so sorry they wouldn't listen to you and weren't/aren't taking it very seriously sad.gif

My DD2 had silent reflux, and unless you've experienced it first hand, you really don't know how awful it is. I took her to 6 Dr's in the first 5 months of her life as she just screamed and screamed for 14hrs + most days, with little bursts of happiness in between, it was heartbreaking. One Dr finally suggested Zantac, which worked perfectly for 2 weeks and she was like a completely different baby! Then it just stopped working, but no GP's wanted to prescribe anything more in case it wasn't silent reflux in the first place rolleyes.gif Having never experienced that with DD1 who was only 15 months old at the time, I just took their word for it, but felt like I was going crazy as no one seemed to think it was an issue, yet I had a screaming writhing baby who needed me 24/7, and another bigger baby to look after at the same time, so it certainly felt like an issue to me.  
If I could go back now, I would keep pushing and keep seeing different dr's until I got some help. So if you're not happy and feel like there's still something that's not quite right, please keep asking for help or see a paed, you shouldn't have to put up with it being like that every day if there's something that might help. I've heard good things about Losec, so I really really hope it helps your DD wub.gif It's so hard seeing them in pain and not being able to do much for them sad.gif
DD did seem to get a bit better around 6 months when she was sitting up and eating solid food, but it wasn't until after she was one that I could finally feel like I could 'see the light' out of the silent reflux nightmare.
I hope so much the Losec helps and you're able to see much more of your happy little girl  xx

Edited by ~Peaches~, 14 January 2013 - 08:09 PM.


#13 tiggy2

Posted 14 January 2013 - 08:49 PM

How awful and frustrating for you. I hope the losec works.
I found a squirt of mylanta worked wonders.
As per pps keep bub upright for as long as you can after a feed. I'm onto my third silent refluxer.  No.3 is 6 weeks, he mostly sleeps on me or in the swing (turned off). If I try to put him in bed ie lying flat he wakes crying very quickly.

You may wish to try different formulas too, both dairy and soy can aggravate reflux in some bubs.

Btw silent reflux typically tyrant involve vomiting that's why it's silent!

Hope it improves quickly for you.

#14 lozzylots

Posted 20 January 2013 - 02:32 PM

I couldn't not post to say thank you all for your support and advice, I wish I could give each of you a big hug. DD has been on Losec for a week and I've switched her to an AR formula... Already everyone can see such a difference in her, we have so many more smiles, hardly any screaming, she'll go down in her rocker and chat to herself for a while instead of screaming as soon as she's put down, she's easier to settle for sleeps and nearly always wakes up smiling (which makes my heart melt wub.gif she always has woken up crying before), she'll go in her stroller... I have a different little girl, she's so much happier. Thank you!!!!




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