Silent reflux in 10 week old
Reassure me please!
, Jan 12 2013 07:49 PM
13 replies to this topic
Posted 12 January 2013 - 07:49 PM
My DD is nearly 10 weeks old - at around 4 weeks she was diagnosed with silent reflux but not prescribed anything to treat it given that it wasn't affecting her weight gain. She had a slight improvement for a little while, feeding well and sleeping a little longer at night, but has gone downhill again. Her temperament seems to be getting more and more unsettled and irritable, she just seems so miserable so often. We get short periods of happy time, usually after a feed, and then suddenly the screaming starts. She can be extremely hard to settle down once she starts crying and in the last week it's had an effect on her feeding, she fusses the whole time, and wakes every 2 and a half to 3 hours during the night. She is bottle fed EBM and formula and has gone from having 120-150 mls per feed down to 60-90 with an occasional 120 if we're lucky. Today she'd had less than 100 mls total up until 3pm so I took her to the doctor and he seems to think it's the reflux that is worrying her. It's breaking my heart - we have these beautiful smiles and her sweet, cheeky nature shines through in her big grins, but then so much of the day is spent trying to calm her crying and screaming.
We're back to the doctor tomorrow or Monday depending what kind of a night she has tonight, to decide what to do from here. Has anyone else had this experience, and did medication help bubs enough to warrant whatever side effects there may be? When did things start to improve? I guess I just want to know that it gets easier. TIA.
Posted 12 January 2013 - 08:03 PM
Yes it will get better.
Our DD was diagnosed with silent relux and we put her on Zantac based on advice from our paediatrician. She is so much happier. We used to only get such short bouts of happiness and I would wonder when I would be able to start enjoying her and felt so bad she was so unhappy.
She is now 19 weeks and such a happy little camper. Sleep has gone downhill but that seems to be common around the 4 month mark. Before that she was waking for one feed a night.
A girl from my mothers group had the same issue and Losec has changed their lives around. MIserable bubs to a happy little lady.
Posted 12 January 2013 - 08:56 PM
I have had two DDs who had silent reflux. Medication led to relief for both girls. DD1 was on losec from 4-16 months. She was started on Zantac which helped a bit but not enough so the losec was tried after 3 weeks. With her we also used mylanta for any break through pain which worked very well. After starting medication she smiled for the first time.
DD2 was diagnosed by 3 weeks and went onto losec at 5 weeks. She only came off the losec last month at 22 months. We had a difficult journey with her, as she would gain weight which would cause the reflux to flare as she was no longer taking a high enough dose (she also had food issues which complicated her treatment). But most importantly when the losec dose was correct she was a happy baby, when it wasn't she would scream, and arch, and try to climb out of her own body. She also comfort fed which meant she was a very good weight.
You need a referral to a paed (or an unusually good gp) who is familiar with (and proactive in dealing with) reflux, particularly making sure that the dose is sufficient (babies process losec quicker than adults so need higher doses). Just because weight is being gained does not mean that the poor poppets are not in pain and in need of medication. I personally imagine it must be worse, at least if you vomit the acid isn't going up and down the oesophagus continually.
We did not experience any side effects from the losec.
It does get better once medication is introduced and babies typically start to grow out of it between 6 and 12 months and can come off the medication.
I remember clearly how horrendous reflux was, it does get better first via the relief that medication brings and then ultimately once they grow out of the problem.
Posted 12 January 2013 - 09:11 PM
Thank you both so much for your replies... I know logically it's going to get better at some point but it's dreadful seeing her in pain - I can handle crying, but the screaming and writhing tear me apart - xqdel I know exactly what you mean when you mention trying to climb out of her own body. I'd do anything to see more of her beautiful smiles!! Thanks again.
Posted 12 January 2013 - 09:52 PM
Dd was diagnosed with silent reflux at 10 weeks of age (by a neonatologist), she was screaming a lot and so hard to breast feed, back-arching and pulling on and off the breast, high pitched screaming. She was prescribed Zantac and it did help.
She took it well and I wasn't aware of any side-effects.
What side effects are you concerned about?
Posted 12 January 2013 - 11:04 PM
We were told firstly by hospital paed that OTC antacids like gaviscon don't do anything (despite obvious relief after 2 doses this evening), and then by our GP that antacids shouldn't be used long term because of something in them (sorry, can't remember what & he didn't specify how long 'long term' was); and then that meds like losec can increase chances of respiratory issues like chest infections. That said, I just read somewhere that untreated reflux can have the same effect. To be honest I don't have a lot of faith in the paed we saw at the hospital, she wasn't very helpful at all
Posted 12 January 2013 - 11:27 PM
Reflux in tiny people is so cruel. Please don't be frightened to use medication. DS who is now six had a horrible first 6 months it took me three months to get a doctor to listen to me. I was appalled when at 4 weeks my GP told me I was an anxious new mum and to put him up one end of the house so I couldn't hear him and he'd soon settle.
We ended up trying both Zantac and the Losec. I felt ripped off because I spent those first 6 months just wishing he would hurry up and grow out of it.
Once he was sitting up it did improve and by 12 months he was a different little boy.
As well as the meds anything that keeps bub upright helps. We had the head of his bed on bricks, you can buy a wedge now that they can sleep on, to keep them more upright. His Bumbo seat from three months was a godsend it helped keep him upright, as did the jolly jumper for short bursts. carrying him in a sling as opposed to laying him down in a pram made a difference, and small amounts of milk often. Unfortunately that means you feel like all you do is feed.
If I could turn back the clock and have known that it was going to get better then I would have just spent my days in the first 6 months keeping him comfortable but that's hard if you have other kids or have to return to work.
Find a good paed or as someone else suggested a GP who is good with reflux babies.
There are plenty of drs and midwives who unfortunately are not as enlightened as they should be when it comes to reflux. Some of the comments made to me by so called professionals about reflux had me wishing a refluxing child on them.
Posted 14 January 2013 - 05:24 PM
We're at the hospital now, our GP referred us in as he wanted a second opinion on the reflux. I can't believe how reluctant all the doctors we've seen are to treat the reflux, I just don't understand. At least this time they've all seen her at her worst and agree it's not right. At the moment we're waiting on urine test results as she may have a uti as well, although no other symptoms of infection. But they might actually trial her on losec this time. At least they've acknowledged her discomfort. I hate hospitals :-(
ETA: the doctor here won't diagnose it as reflux or treat it because she doesn't vomit and her weight gain is ok. I'm so frustrated I could cry, nobody is listening!!
Edited by lozzylots, 14 January 2013 - 05:59 PM.
Posted 14 January 2013 - 06:55 PM
I am so sorry to hear you are struggling and your baby is miserable, I hope the staff at the hospital are able to help you and your baby, otherwise ask if one of them would like to go home with you to console your baby for you. Perhaps then they will feel moved to intervene.
All the bestx.
Posted 14 January 2013 - 07:45 PM
Thank you. After 6 hours at the hospital and arguing and pleading to be taken seriously with 2 doctors we finally got a script to trial losec. The official diagnosis? Irritable baby. That's what our letter back to the GP says. No kidding, but she's irritable for a reason. Anyway... I got what I wanted but it shouldn't have been so hard. We had one lovely sympathetic nurse whose own baby had silent reflux but other than that every other medical professional (I use that word loosely) seems to deny the seriousness of it, or even its existence. Here's hoping the losec helps! Thanks again everyone, your reassurance has made me feel like I'm not just a paranoid first time mum
Posted 14 January 2013 - 07:48 PM
My DS also had silent reflux, and was given Losec. It's a while ago now, so I can't remember the exact details. He was about 10 weeks old at the time also, and was on it until he was about 1yo.
It helped so much!!
Although for us it wasn't until we stopped dairy completely (due to an intolerance) that both his reflux, and his eczema, cleared up.
Posted 14 January 2013 - 08:06 PM
I'm so glad you finally got the prescription in the end, but I'm so sorry they wouldn't listen to you and weren't/aren't taking it very seriously
My DD2 had silent reflux, and unless you've experienced it first hand, you really don't know how awful it is. I took her to 6 Dr's in the first 5 months of her life as she just screamed and screamed for 14hrs + most days, with little bursts of happiness in between, it was heartbreaking. One Dr finally suggested Zantac, which worked perfectly for 2 weeks and she was like a completely different baby! Then it just stopped working, but no GP's wanted to prescribe anything more in case it wasn't silent reflux in the first place
Having never experienced that with DD1 who was only 15 months old at the time, I just took their word for it, but felt like I was going crazy as no one seemed to think it was an issue, yet I had a screaming writhing baby who needed me 24/7, and another bigger baby to look after at the same time, so it certainly felt like an issue to me.
If I could go back now, I would keep pushing and keep seeing different dr's until I got some help. So if you're not happy and feel like there's still something that's not quite right, please keep asking for help or see a paed, you shouldn't have to put up with it being like that every day if there's something that might help. I've heard good things about Losec, so I really really hope it helps your DD
It's so hard seeing them in pain and not being able to do much for them
DD did seem to get a bit better around 6 months when she was sitting up and eating solid food, but it wasn't until after she was one that I could finally feel like I could 'see the light' out of the silent reflux nightmare.
I hope so much the Losec helps and you're able to see much more of your happy little girl xx
Edited by ~Peaches~, 14 January 2013 - 08:09 PM.
Posted 14 January 2013 - 08:49 PM
How awful and frustrating for you. I hope the losec works.
I found a squirt of mylanta worked wonders.
As per pps keep bub upright for as long as you can after a feed. I'm onto my third silent refluxer. No.3 is 6 weeks, he mostly sleeps on me or in the swing (turned off). If I try to put him in bed ie lying flat he wakes crying very quickly.
You may wish to try different formulas too, both dairy and soy can aggravate reflux in some bubs.
Btw silent reflux typically tyrant involve vomiting that's why it's silent!
Hope it improves quickly for you.
Posted 20 January 2013 - 02:32 PM
I couldn't not post to say thank you all for your support and advice, I wish I could give each of you a big hug. DD has been on Losec for a week and I've switched her to an AR formula... Already everyone can see such a difference in her, we have so many more smiles, hardly any screaming, she'll go down in her rocker and chat to herself for a while instead of screaming as soon as she's put down, she's easier to settle for sleeps and nearly always wakes up smiling (which makes my heart melt
she always has woken up crying before), she'll go in her stroller... I have a different little girl, she's so much happier. Thank you!!!!
1 user(s) are reading this topic
0 members, 1 guests, 0 anonymous users
The workplace isn't always a friendly place for pregnant women. Yet working women inclined to conceal a pregnancy from prying coworkers may be better off opening up and carrying on, according to a new study.
To celebrate Mother's Day this year we are giving you the chance to win one of five great prizes simply by telling us your story.
There is so much pressure about having a baby who sleeps 'all night' , it's no wonder you worry about your baby if she wakes in the night.
What makes some names have comebacks while others silently fade into oblivion? A few factors come into play.
Dads can have many reasons for not wanting their partners to breastfeed their baby, but both parents should learn more about it before making a final decision.
Most new mums would recoil at the thought, but Sarah Stage has shared a post-pregnancy selfie just four days after giving birth.
If you're a new mum and feeling ignored by the older mum/the old hand/the has-been, please know, it's not you, it's me. Blame the last child parenting fatigue.
Having a new baby isn't tiring - it can be downright exhausting.
I was on a high. I'd done it all by myself with no help from anyone.
We're big fans of kids' birthday parties - but this is one bash we're glad we didn't get an invite to.
Everybody loves a bargain - including the Duchess of Cambridge.
A lengthy note put on the window of a fish & chip shop has gone viral due to the writer's serious doubts about the romance of travel.
Pregnant women are under pressure to do all the "right things" to have a healthy child. It results in women feeling judged about their decisions.
Giving your child a sibling when you don't want to have another baby can be a complex issue.
The mother of missing toddler William Tyrrell says she has a vision that somebody "picked him up and moved him on ... that's the only way ... to explain for him not to be there".
Most 23-year-old blokes spend their hard earned cash on fun times with mates or romantic dinners with their girlfriend, but not Tommy Connolly.
The first all-female quintuplets born in the United States were delivered last week, at 28 weeks and two days.
He may be less than a week old, but baby James Hunter has already helped his model mum silence her critics.
A recent Reddit thread has revealed some of the more creative names in the world.
A US woman awakened this week from a four-month-long coma that doctors had feared would be permanent and learned that she had given birth to a baby boy, according to her family.
Posting a lot of baby photos doesn't make you a bad person. It may make your Facebook feed a little irritating, but it doesn't make you a bad person.
It's time to shift the focus off what dads aren’t doing and shine it on what they are.
If you're only just joining the modern cloth nappy movement, or would like to spruce up your collection, we have to introduce you to Designer Bums.
When you’ve just had a baby, having sex isn’t usually top priority. In fact, for a lot of women it rates about as appealing as changing another dirty nappy.
Is it acceptable to use these car parking spots when pregnant? How many of us would admit to doing it?
Fertility doctors have described their "most extraordinary case" - creating a healthy baby from sperm taken 48 hours after a man had died.
Sign up to receive 30 amazing tips and ideas for play with baby during the month of April and submit a picture or tip on our social wall for a chance to win an amazing Fisher-Price prize pack.
You have less than a week left to win your child one of five Fisher-Price toy packs valued at over $600 each - hurry, enter today!
Let’s keep talking about these issues and not allow them to be put into a neat little box that’s labelled ‘Fix childcare and everything is solved’.
When trolls felt the need to comment on 35-year-old singer-songwriter Pink's weight, her answer was an awesome ode to body love.
A national chain of fertility clinics is offering egg donors a $5000 payment to cover their expenses, a first for Australia which is raising concerns the money could act as an inducement.
Australian officials could do nothing to stop an Australian couple from abandoning their baby son, born through surrogacy in India, after they decided they did not want to bring him to Australia.
Individual choice works for haircuts and handbags, but not for preventing infectious diseases that kill kids.
If there is one thing Leilani Rogers knows about childbirth, it is that no two deliveries are ever the same.
Note to self: less sewing, more life. Not the party dress, but the party. The toddler, as usual, has it all figured out.
In 1965, Zella Jackson-Price was told her premature baby girl had died shortly after birth.
New research suggests that taking specific pregnancy probiotics could be the answer to a range of common pregnancy side effects.
Announcing that you're expecting can be a time to express your creativity, sense of humour and imagination. Check out how other parents and parents-to-be have broken the news to friends and family.
Are you one of those that know the whole IKEA catalogue by heart? Love their stuff but want to personalise it? Here's some inspiration to help you realise the potential of IKEA furniture and fittings.
A French court may have ruled out Nutella as a baby name, but that doesn't have to stop you from taking inspiration from the supermarket (or bottle shop). See what parents in the US have chosen for their delicious little ones.
Last week to submit a picture of your baby at play for your chance to win. Visit the Play Wall to view our recent entries.