Jump to content

Cyclic vomiting


  • Please log in to reply
18 replies to this topic

#1 Looking for answer

Posted 24 December 2012 - 02:57 PM

Just wondering if there's any others out there that have had a similar experience as this...My 2.5 yr old wakes up vomiting once every 30-40 days. There's no signs or symptoms to let us know its going to happen. He will just wake up one day and start vomiting, nothing but bile. He will vomit every 10-15 min for about 5 hrs. He will then sleep for a couple hours and wakes completely normal, eating, running,playing and talking non stop. Has been happening on average every month now for just over a year. It's starts and finishes the same way every time and no-one else in the family has ever been sick around the same time. We've been to a specialist and had tests for food allergies, X-rays and scans on his tummy but they have no idea what might be causing it. Would just be interested to know if anyone else has had a similar experience and if they found out what was causing it???

#2 Turtles Mum

Posted 24 December 2012 - 03:03 PM

My 12yr old daughter has this - can be completely happy and normal and the next minute pale and vomitting with no signs or symptoms. Our GP prescribed Zofran which has been so far working.

It is incredibly frustrating, and so draining on the kids sad.gif we have vomit bags on hand at ALL times car, house, school bag, etc etc

Good luck - I feel your pain! sad.gif



#3 Looking for answer

Posted 24 December 2012 - 03:06 PM

QUOTE (Turtles Mum  @ 24/12/2012, 03:03 PM) <{POST_SNAPBACK}>
My 12yr old daughter has this - can be completely happy and normal and the next minute pale and vomitting with no signs or symptoms. Our GP prescribed Zofran which has been so far working.

It is incredibly frustrating, and so draining on the kids sad.gif we have vomit bags on hand at ALL times car, house, school bag, etc etc

Good luck - I feel your pain! sad.gif

Oh that sucks for you and her! Does it happen randomly? My son only does it once a month type thing and for about 5hrs that day. Because it happens first thing when he wakes in the morning we haven't been caught out, too many times. Just do a quick cancellation of the days plans.
What does the zofran do?




#4 mellymoos

Posted 24 December 2012 - 03:09 PM

maybe parasites in the gut? laying dormant then getting active for a period. can you get a blood/feces test for parasites?
ETA: i met a lady whose son gets severe stomach cramps once a month or so with vomiting which lasts a few hours to a day, there's some sort of parasite been found which she believes is the cause, and she can't find anything which kills the parasite, but is looking into medical and alternative ways to deal with it.
OR it could be something completely different?!?

Edited by mellymoos, 24 December 2012 - 03:13 PM.


#5 lizzzard

Posted 24 December 2012 - 03:10 PM

I wonder if this might be a type of migraine...

#6 Turtles Mum

Posted 24 December 2012 - 03:16 PM

QUOTE
I wonder if this might be a type of migraine...


That was what we originally thought, but was later diagnosed with cyclic vomitting syndrome

QUOTE
maybe parasites in the gut? laying dormant then getting active for a period. can you get a blood/feces test for parasites?


We have had every test under the sun, no parasites etc


QUOTE
Oh that sucks for you and her! Does it happen randomly? My son only does it once a month type thing and for about 5hrs that day. Because it happens first thing when he wakes in the morning we haven't been caught out, too many times. Just do a quick cancellation of the days plans.
What does the zofran do?


As she is getting older it is less frequent, but still enough to be annoying for her. She was on avg about 2-3 times a month, but now it is approx 1 per month. Hers could be any time of the day or night without warning

Zofran is a wafer that dissolves under her tongue which is used for nausea - the minute she is looking pasty and we know whats coming we give her one.

Hope that helps original.gif

#7 Looking for answer

Posted 24 December 2012 - 03:20 PM

QUOTE (mellymoos @ 24/12/2012, 03:09 PM) <{POST_SNAPBACK}>
maybe parasites in the gut? laying dormant then getting active for a period. can you get a blood/feces test for parasites?
ETA: i met a lady whose son gets severe stomach cramps once a month or so with vomiting which lasts a few hours to a day, there's some sort of parasite been found which she believes is the cause, and she can't find anything which kills the parasite, but is looking into medical and alternative ways to deal with it.
OR it could be something completely different?!?


I will ask our specialist next visit if she can test for parasites. We've had a huge number of blood tests for almost everything they can think of so could have already been done. Thanks for that tho, will def. be asking!

#8 Looking for answer

Posted 24 December 2012 - 03:22 PM

QUOTE (lizzzard @ 24/12/2012, 03:10 PM) <{POST_SNAPBACK}>
I wonder if this might be a type of migraine...



I've convinced myself its cyclic vomiting syndrome, which according to google is linked (but not proven) to migraines when older.


#9 twinmumplus1

Posted 24 December 2012 - 03:32 PM

My son has just been diagnosed with CVS and abdominal migranes.  Give me a yell if you want any more info - its been quite a ride.

#10 WYSIWYG

Posted 24 December 2012 - 03:35 PM

I used to get it as a child, but I also had horrible stomach pain too and it was diagnosed as an abdominal migrane.

Hope you get some answers OP. I know my mother tried for years to find out what was wrong with me, she even started thinking I was making it up!

#11 ~ky~

Posted 25 December 2012 - 01:33 AM

QUOTE (lizzzard @ 24/12/2012, 03:10 PM) <{POST_SNAPBACK}>
I wonder if this might be a type of migraine...



QUOTE (Turtles Mum  @ 24/12/2012, 03:16 PM) <{POST_SNAPBACK}>
That was what we originally thought, but was later diagnosed with cyclic vomitting syndrome



I thought CVS was often a type of migraine?


Quoted from eMedicineHealth ...

QUOTE
Migraine-associated cyclic vomiting syndrome (periodic syndrome): This syndrome is characterized by recurrent periods of intense vomiting separated by symptom-free intervals. Many people with cyclic vomiting have regular or cyclic patterns of illness. Symptoms usually come on quickly at night or in the early morning and last 6-48 hours. Associated symptoms include abdominal pain (80%), nausea (72%), retching (76%), anorexia (74%), paleness (87%), lethargy (91%), photophobia (32%), phonophobia (28%), and headache (40%).

â—¦Headache often does not appear until the child is older. Migraine-associated cyclic vomiting syndrome usually begins when the person is a toddler and disappears in adolescence or early adulthood. (It rarely begins in adulthood.) This syndrome affects more females than males.

Edited by ~ky~, 25 December 2012 - 01:34 AM.


#12 cameo

Posted 25 December 2012 - 06:44 AM

DS has cyclic vomitting syndrome too diagnosed by the hospital and paed.  He has had it for several years, we used to think he got tired and would vomit as that's what DH did but his episodes have gotten more severe.

At first they used to last half a day but the last (unmedicated one) lasted 3 days at Christmas.  He spent the day being sick and we kept on thinking he would stop as normal but he didn't  Still feel massive guilt at that, my poor boy....

He now has Zofran and when he had an episode last time we stopped the vomitting after a few hours with the Zofran.

CVS and migraines are connected and CVS can turn into migraines at a later stage, that's what we were told.



#13 Waratah

Posted 25 December 2012 - 06:52 AM

I have spent the first 6 months of this year with my DD who was then 12 in hospital due to cyclic vomiting.  My DD has always been a kid that vomits ever since she was a little one.  Which now with the diagnosis of CVS and Adominal Migraine she finally got after six months of suffering with hospital stays for up to a month at a time almost makes me think she has had it since she was very little.  My DD was also diganosed with SMA Syndrome as she very thin.  My DD would vomit for weeks at a time.   She is now taking Periactin once a day to stop the adominal migraine and touch wood we have only had to visit the hospital once since June and that ended up being a stomach virus.

After all the reading I have done one thing that I read was watch the cycle of vomiting.  See if it comes at the same time each month.  

I feel for you it is horrible watching your kids just vomit and vomit.

#14 Looking for answer

Posted 25 December 2012 - 01:31 PM

QUOTE (Waratah @ 25/12/2012, 06:52 AM) <{POST_SNAPBACK}>
I have spent the first 6 months of this year with my DD who was then 12 in hospital due to cyclic vomiting.  My DD has always been a kid that vomits ever since she was a little one.  Which now with the diagnosis of CVS and Adominal Migraine she finally got after six months of suffering with hospital stays for up to a month at a time almost makes me think she has had it since she was very little.  My DD was also diganosed with SMA Syndrome as she very thin.  My DD would vomit for weeks at a time.   She is now taking Periactin once a day to stop the adominal migraine and touch wood we have only had to visit the hospital once since June and that ended up being a stomach virus.

After all the reading I have done one thing that I read was watch the cycle of vomiting.  See if it comes at the same time each month.  

I feel for you it is horrible watching your kids just vomit and vomit.


Oh that sounds horrible, I'm grateful we haven't had to go to the hospital yet! We have been keeping track of when it happens and it is on average once a month but then he goes and does an 80 day stint and then jumps back to 30days for another 6 myths.  Hopefully as he gets older he might be able to tell us more and let us know if he can feel it coming on.



#15 Looking for answer

Posted 25 December 2012 - 01:33 PM

QUOTE (cameo @ 25/12/2012, 06:44 AM) <{POST_SNAPBACK}>
DS has cyclic vomitting syndrome too diagnosed by the hospital and paed.  He has had it for several years, we used to think he got tired and would vomit as that's what DH did but his episodes have gotten more severe.

At first they used to last half a day but the last (unmedicated one) lasted 3 days at Christmas.  He spent the day being sick and we kept on thinking he would stop as normal but he didn't  Still feel massive guilt at that, my poor boy....

He now has Zofran and when he had an episode last time we stopped the vomitting after a few hours with the Zofran.

CVS and migraines are connected and CVS can turn into migraines at a later stage, that's what we were told.


Cn I ask how long it took you to get a diagnoses? I'm really convinced this is what my son has. I hate the thought of putting him trough more blood tests and scans etc, if they can't really do anything for him. Bt at the same time I'd like a diagnoses so others don't think I'm just making it up.

#16 Looking for answer

Posted 25 December 2012 - 01:37 PM

QUOTE (twinmumplus1 @ 24/12/2012, 03:32 PM) <{POST_SNAPBACK}>
My son has just been diagnosed with CVS and abdominal migranes.  Give me a yell if you want any more info - its been quite a ride.



Can I ask what your son would do? Was he pretty on the spot when he vomited? He long did it take for them to give you a diagnoses? And was all the tests etc worth it? I'm pretty convinced this is what my son has, and I hate the thought of them giving a million more tests if they can't really do anything to stop the episodes. D you think it's worth it? Does it actually get worse as they get older??
Sorry for all the questions, as much as it sucks for you and your son, it's nice to know we aren't the only family going through it.

#17 Waratah

Posted 26 December 2012 - 06:10 AM

From what I know there is not a test to determine CVS same with abdominal migraine. I think it is more a watch and see thing determining if it is coming regularly.

#18 Mpjp is feral

Posted 26 December 2012 - 06:29 AM

My dd does the same. I'd suggest you see a gastro paed. Our did a endoscope and was able to easily see that she had a weakness of the valves between stomach and oesophagus and also the stomach and intestines. She has a hiatus hernia, and slow gastric motility.

Basically all this means that she has bile in her stomach which is highly irritating, causing her to vomit. It also means she has reflux, which also causes her vomiting. She is on gut motility drugs, and losec. We elevate her bed, put her on a low fat diet and....no more vomiting, much less tummy pain.

It's really worth ruling things out by having a look inside rather than relying on gp,s mucking around w blood tests. Our gp thought he could handle it and delayed our simple diagnosis for a year.

#19 cameo

Posted 26 December 2012 - 08:07 AM

Looking for answers, we went to a paed (one I didn't really like but anyway) and he said that DS had CVS.  We went to the paed because of his vomitting and also to check about his height (he is on the small side)

He told us to get tests - blood tests, stool tests etc but I never went back to him.  DS's CVS if he has it, is very mild and only really vomits twice a year or so.  The last episode was extremely severe but we can now monitor it with Zofran.

When we went to hospital to get him drugs to stop him vomitting, the ER dr agreed with the diagnosis of CVS.

Now, I always have Zofran around but he has it so infrequently.

It would be good to have a permanent diagnosis, at least to stop the comments of "oh he is just tired" from MIL but I don't want to put him through that when it is so mild.

He did get worse as he got older, but not in frequency, just in duration.

Good luck...




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

Win a Mountain Buggy Swift

To celebrate Essential Baby reaching half a million Facebook fans, we have a Mountain Buggy Swift to giveaway to a lucky fan.

Shopping with kids: breaking the pester-power cycle

You're out shopping with your little one and they're incessantly whining that they want a treat. It's easy to say no ... the first time, at least.

eBay jacket may hold clue to murdered girl's identity

A jacket similar to the one found with the remains of a brutally murdered little girl in South Australia has been identified on eBay.

New mum forced back to work early due to paid parental leave 'technicality'

Shelley Parker had to keep driving buses until the date her baby was due and will have to rush back to work at the end of this week after being denied paid parental leave on a "technicality".

Pregnant Amanda Palmer poses naked for book drive

It has to be the most original way ever of promoting a children's book donation day.

The conception dilemma facing many parents today

Some parents who conceived through a sperm donor will be wary of telling the child, while others prefer to deal with it early on. But recent research suggests it makes little difference either way.

The wedding photo the bridesmaid would rather forget

We've probably all seen a passed-out bridesmaid at one wedding or another, but it usually happens towards the end of the night.

Pregnant TV meteorologist takes on haters

Pregnant TV meteorologist Katie Fehlinger has hit back at haters who called her a "sausage in casing".

Honest words from first-time mums

I didn't want to say anything negative to my pregnant friend, but I wish I'd been more honest.

Adorable baby experiences rain for the first time, couldn't be happier

Harper had seen rain from the comfort of indoors before, but had never had the pleasure of being outside and experiencing it first hand.

What it's really like to start a family in your fifties

Many people suppose that it must be much more tiring to have a baby in middle age, but all the mothers in the playground look exhausted, whatever their age.

'Biggest hypocrite ever': Josh Duggar admits to Ashley Madison account

An American reality TV star has been busted with a cheating website account, according to US media.

Long recovery ahead for girl hit by car weeks after baby brother's death

A little girl is more alert and starting to talk after being hit by a car a week ago, but still faces a long recovery.

How to react when a toddler lies

Q: My almost-3-year-old is starting to figure out that he can lie when asked if he ripped the book, threw the food, hit his brother, etc. Totally normal, I know. How do we respond?

The circular experience of a Centrelink client

A mum-to-be experiences the frustration of dealing with Centrelink, myGov and everything in between.

Kelly Clarkson announces live on stage: 'I'm pregnant!'

Singer Kelly Clarkson has announced she is pregnant with her second child during a concert in Los Angeles.

Hack

How to search the leaked Ashley Madison data

At least three sites are republishing Ashley Madison's user data on the public-facing internet.

Mum dances her way through labour

There are a fair few ways to distract yourself and beat pains while in labour, but it's probably a rare woman who chooses her dance her way through it.

'Rest in peace, my little lion': premmie baby Jacob passes away

Baby Jacob, whose photo of him born at just 27 weeks was deemed 'too graphic' for a fundraising site, has died.

Mum killed three young sons 'to help her daughter', prosecutor says

Niall Pilkington's death last summer apparently raised little alarm in Bellefontaine, Ohio. Tragic accidents happen, after all.

Shorter women have shorter pregnancies: study

When a group of researchers studied nearly 3500 mothers and their babies, they noticed a curious pattern.

Get your FREE Baby & Toddler Show ticket!

Get your free ticket to the Sydney Essential Baby & Toddler Show for September 25-27 - register online now.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

The worst 20 minutes of my life

Thirty seconds was all it took to turn a shopping trip into my worst nightmare.

Top baby names for England and Wales in 2014

George has overtaken William in the official rankings of most popular British baby names - and Game of Thrones is still having an impact on parents.

Baseball or baby? Dad's tough choice

What's more important, a baby or a baseball? That's a question this dad seems to struggle with.

Childbirth choices: five star or free?

It's not often you hear the words labour and luxury in the same sentence but for some, a 5-star start to parenthood is exactly what they seek. And with a number of private hospitals now offering packages which include a post-birth stay at a sumptuous first class resort, many mums are choosing to recover in style.

'Where did your boobies go, Mummy?' and other soul-destroying comments from kids

Most women carry a smidge of baby weight after giving birth. If you're lucky enough to have an older child in the house, they can keep you on track with your weight loss goals.

Do you read me, baby?

Is it too soon to be reading to my two-month-old son? If not, what should I read?

Minimising sibling rivalry when you've got a baby

Sibling rivalry is an act of competition, but if your children feel involved and special, this type of jealousy will be minimised.

Will studying on maternity leave take you away from your most important job?

I remember when I was trying to decide if I could combine motherhood and furthering my university education.

Win a Pacapod this Father's Day

To celebrate dads and families, we are giving away a Picos Pack from Pacapod Australia filled with a few extra goodies ENTER NOW

Preschooler hit by car shortly after baby brother's death

A mother has had a frantic race to the hospital after her daughter was hit by a car, just four weeks after her infant son died.

Gay couple and Thai surrogate in custody tug-of-war

A six-month-old baby girl is trapped in the Thai capital in a bitter custody wrangle between her Thai surrogate mother and her biological father.

Couple denied IVF over parenting concerns

A mother of six has been denied access to IVF treatment in order to have another child over concerns about her parenting skills.

The book that promises to put your children to sleep

Exhausted parents from around the world are singing the praises of a "miracle" book which promises to put even the most restless child to sleep in just minutes.

5 things every parent who feels guilty needs to know

Parenthood can make you feel bad, but you're not alone.

Royals criticise 'dangerous' attempts to photograph Prince George

The British royal family criticized paparazzi on Friday for what it called their increasingly dangerous attempts to photograph young Prince George.

'No jab, no play' rule to cover Victorian kindergartens and childcare centres

"Anti-vaxxers" face not being able to send their children to childcare centres or kindergarten if they refuse to have them immunised.

15,000 birthing kits on their way to developing countries

Giving birth in a hospital surrounded by medical experts is tough enough, but some women deliver babies without a clean sheet to lie on.

Photo of premmie 'too graphic', fundraising site says

When their son Jacob was born at just 27 weeks, Christina and Jeff Hinks were thrown into an uncertain world.

The latest Bugaboo collections: cool chevron and runner prams

Bugaboo sure likes to keep things fresh, and with the Australian spring/summer season coming up, there are two new Bugaboo pram releases.

Making room for two in the bed

Mum's room or their own room? Cot or bassinets? Deciding where twins will sleep can be tricky.

 

FREE TICKET

See Hi-5 LIVE in Sydney!

Get your free ticket to The Essential Baby & Toddler Show and save $20 - register online now!

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.