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Cyclic vomiting

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#1 Looking for answer

Posted 24 December 2012 - 10:08 AM

Just wondering if there's any others out there that have had a similar experience as this...
My 2.5 yr old wakes up vomiting once every 30-40 days. There's no signs or symptoms to let us know its going to happen. He will just wake up one day and start vomiting, nothing but bile. He will vomit every 10-15 min for about 5 hrs. He will then sleep for a couple hours and wakes completely normal, eating, running,playing and talking non stop. Has been happening on average every month now for just over a year. It's starts and finishes the same way every time and no-one else in the family has ever been sick around the same time. We've been to a specialist and had tests for food allergies, X-rays and scans on his tummy but they have no idea what might be causing it. Would just be interested to know if anyone else has had a similar experience and if they found out what was causing it???

Edited by Looking for answer, 24 December 2012 - 01:15 PM.

#2 waawa17

Posted 24 December 2012 - 12:00 PM

Do you mean that they haven't given you a possible diagnosis of any kind, or that they've labelled it "cyclic vomiting syndrome" and told you that the cause is not well understood?

CVS is a well described entity, possibly related to migraine.

#3 Looking for answer

Posted 24 December 2012 - 01:17 PM

QUOTE (waawa17 @ 24/12/2012, 12:00 PM) <{POST_SNAPBACK}>
Do you mean that they haven't given you a possible diagnosis of any kind, or that they've labelled it "cyclic vomiting syndrome" and told you that the cause is not well understood?

CVS is a well described entity, possibly related to migraine.

No they haven't given any possible diagnosis. I have read about CVS online and have convinced myself that that is what it is, but neither GP or specialist have or seem to want to call it that. Was just interested to hear if others have experienced it or not.

#4 kazfromtas

Posted 24 December 2012 - 08:22 PM

A good friend of mine's son had exactly the same problem, and he was diagnosed as cyclic vomiting syndrome. While it was nice to have a diagnosis as such, it really didn't help with the overall problem. After much insistence he was finally sent for a head CT and was ultimately diagnosed with migraines. Due to his age he couldn't properly explain the symptoms, but once they were aware of what to look for, they did notice that he would become very light sensitive, even covering his eyes if he was outside or in sunlight through a window, then he would become quite withdrawn and very irritable, and then the vomiting would follow.
As a chronic migraine sufferer since childhood, I often wake up with a migraine, so I don't get all of the lead in symptoms.
I'm certainly not a doctor, but maybe it's worth asking your doctor about, even if just to rule it out.
Best of luck, there is nothing worse than having a sick child and feeling helpless sad.gif


#5 frazzledstep

Posted 01 September 2013 - 02:15 AM

Hi, my daughter has this horrible disorder. How did you go with your little one?

#6 Procrastinator5000

Posted 02 September 2013 - 08:14 PM

My close friend's son has this. It's just awful.

Before she moved into our street, he was having them almost every two weeks (age 5). Since the move, something miraculous happened and he has had only one or two every 3 months. He is now 6.5, and they are thankful it's easing off, but not sure why. When he has the episodes, nothing really helps, he just rides it out. It's very much like what you describe.

In his case, they have never identified a trigger. He was very premmie, born at about 25 weeks, so some people think it could be connected to that.

They got told that there is a good chance he'd be someone who gets migraines later in life, eg starting in teenagerhood, but I'm sure you've read all the research on that too.

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