Jump to content

New to ASD - Question about Toe-Walking


  • Please log in to reply
7 replies to this topic

#1 PhotogMama

Posted 19 December 2012 - 03:22 PM

Hello everyone! I am so glad to have found my way here after a friend recommended your warm, loving forum to me today!  My 10.5 year old son has very recently been diagnosed with Asperger's following a very sudden onset (or exacerbation) in tendencies after Scarlet Fever and Mycoplasma infections - I am also told the age/hormone changes may be contributing to the rather sudden changes.

My son has been toe-walking for the past few weeks on a fairly permanent basis, it is definitely more prominent when bare-foot or in socks, but still happens when wearing shoes.  When I read about toe-walking I see a lot of information about interventions being necessary.  

My concern at this stage is that a Psychiatrist through Mental Health made the diagnosis of ASD, while working with him for OCD - but we will not have access to an Occupational Therapist or other ASD support services until the beginning of the next school term for assessments.  

Is it safe for my son to be toe-walking throughout the school holidays, which is quite some time really, without intervention?  Are there any home-physio I can be doing with him to stretch out his tendons each night or something in the meantime until he will see the Support Services or do I need to take him to a GP? I am sorry if this seems very obvious to everyone, but we were given a diagnosis and sent on our way, and Mental Health are only able to work with my son for the OCD, so I am navigating this new path on my own at the moment!  I would truly appreciate input from other parents original.gif  Thank you in advance!

#2 handsfull

Posted 19 December 2012 - 06:52 PM

Hi OP and welcome to toewalking!  LOL!

DD1 has been doing it since she could walk and DD2 has been doing a lot more of it in the recent years as well, but whether that be because we also try to correct DD1 and she gets attention with it.

Due to the school holidays I would go to GP and get physio referral.  That's a good place to start off over this period and they can give you some exercises esp for home to work on his tendons etc.  Try and get him to wear structured footwear, joggers with a not so flexible sole will help stop the arching of his foot.  

A few weeks of toe walking is not going to overly harm him esp as he has only really just started it.  It is also a sensory thing.  I would also ask GP for occupational therapist referral.  No need to wait for school term get started asap that way there could be plan you can hand onto school that will also help get him assistance.

Better to start the ball rolling on all fronts. It can be a little daunting all the testing and forms you will have to fill in but it will be worth it for your son.

Cheers.

#3 PhotogMama

Posted 19 December 2012 - 08:33 PM

Thank you both so very much for your replies!  I just knew in my gut we needed to get moving sooner rather than later but didn't want to overreact either!

Unfortunately the only OT available within 200km will not be available until school goes back (event though they are an independent Support Service, they operate during school terms!) which is possible to travel but I was hoping to stay local so my son will have minimal disruption to school etc in the new year when he needs to go for appointments (as you would imagine, a 400km round trip takes up a school day!) but I am positive there are Physios available here so I will start looking into that in the morning, and also find out about shoe recommendations.  

I have been trying to keep him in shoes for as much of the day as possible, however he overheats easily and HAS to wear a Fedora every waking hour, so he takes his shoes off to cool down original.gif Oh, it's all such a new learning experience!

Thank you again, I feel better knowing where I need to go for now at least!

#4 Carmen02

Posted 20 December 2012 - 07:37 AM

is toe walking in a 2yr old asd a concern? DS was only doing it occasionally but his doing it more often now he cant stand shoes (sorry to drop in on the thread was going to post a new one lol)

#5 tel2

Posted 20 December 2012 - 11:21 AM

My DS 2.5 years has been toewalking on and off since he started walking at 15 months. No one has made a big deal about it, so therefore I haven't really worried about it (more worried about his speech delay and pica). Should I be worried about his toe wallking too  and it causes problems in the future ?  unsure.gif


#6 tel2

Posted 20 December 2012 - 06:47 PM

EBH - thanks for the link and advice. Will read the link in the comming days original.gif

#7 sueb31

Posted 20 December 2012 - 07:35 PM

To the OP
Did they feel the OCD and scarlet fever was linked? (Syndrome called PANDAS). I think there is some evidence that early treatment can help the course, if that's what it is. Just thought I'd mention it.

http://intramural.nimh.nih.gov/pdn/web.htm

Sue

#8 PhotogMama

Posted 20 December 2012 - 08:22 PM

QUOTE (sueb31 @ 20/12/2012, 07:35 PM) <{POST_SNAPBACK}>
To the OP
Did they feel the OCD and scarlet fever was linked? (Syndrome called PANDAS). I think there is some evidence that early treatment can help the course, if that's what it is. Just thought I'd mention it.

http://intramural.nimh.nih.gov/pdn/web.htm

Sue


PANDAS was actually our very first thought, given the timing etc. however even after 6 weeks on the recommended antibiotics, both the OCD and "ASD tendencies" continued to worsen quickly, we had consults with some of Australia's best PANDAS specialists who also involved their mentors (including a top Paed Neurologist in the US) and even with all of their suggestions, it continued to become more exacerbated and in the end everyone agreed with the ASD diagnosis even though they were so positive to begin with that PANDAS was the only possible reason for it all.

Following a very thorough history, it was obvious my son has exhibited signs on and off his whole life, I had even been concerned enough when he was only 10 months old that I discussed some of his repetitive behaviours, need for routine, over stimulation etc with his Pediatrician at that point but was advised he would likely to end up with an ADHD diagnosis as he got older.

However, this sudden exacerbation was to the extreme - suddenly one morning my son woke up and decided and he was going to spend his life living in a cardboard box (literally - he just sat in it, put pillow and blankets in and attempted to sleep there, ate there, wouldn't talk, just sat in the box - if he needed to go to another room, he would tip it on its side and push it to the other room!), his gait changed, his speech diminished, he could barely put a sentence together and suddenly all of his normal "quirks" were just tenfold, if that makes sense?  He went from being a child of 10 who was identified as Gifted, to what I would describe as a 5 year old most of the time, it was just such a drastic change that it worried me a lot, I knew SOMETHING was wrong.  It was as if he woke up with an ASD that first day!

I was reluctant in the first weeks to consider an ASD as a possibility, surely I hadn't raised him 10 years without knowing, but within just weeks, it became the only thing that really made sense. I am told the OCD will occur in about 30% of those with an ASD.  He has a good Psychologist who is working with him each week, however it has been decided that after 5 months in total if there is no improvement with therapy, he will need medication, and that's not far off now.  

As for the toe-walking, thank you all so very much for your input, I can not tell you how much I truly, truly appreciate it!!! I have found a private Physio here in town, but they advised me their waiting list is actually as long as the Public one, so we have an appointment with the GP next week to get a referral.  I will also be going shopping tomorrow to buy him some Reefies, I think they might be the best solution, they are quite stiff in the sole and cool enough to help him not overheat, and no hat is not an option apparently (this is pretty new too!!)
Thanks again!

Edited by PhotogMama, 20 December 2012 - 08:27 PM.





2 user(s) are reading this topic

0 members, 2 guests, 0 anonymous users

 

Heartwarming prank gives single mum the house she was hired to clean

Cara Simmons arrived at work to clean a large and beautiful house in time for a party planned for that evening. It was soon hers.

Why we should stop telling new parents to 'enjoy every moment'

A few weeks ago, some dear friends of mine had their first baby. As the proud dad texted me a picture I had to fight the natural instinct to say “Enjoy every moment!”

Transgender dad breastfeeds his babies

A transgender man who breastfed his first baby - despite having his breasts removed as part of his transformation from female to male - has now had a second child.

Couple face $1 million medical bill and bankruptcy after babymoon birth

A Canadian couple were slammed with a million dollar medical bill after their daughter was prematurely during their babymoon.

Win one of 5 Little Tikes Cozy Coupe Sport

Australia?s No 1 selling car is now available in a Sports model and we have 5 to give away to some lucky Essential Baby families.

Cigarettes, junk food dominate supermarket sales growth

One in every five dollars spent at supermarkets goes on cigarettes or junk food, according to industry data.

Teacher under fire for breastfeeding in class

There is no doubt mums have a right to continue breastfeeding after they have returned to work, but one teacher in the US has taken it to the extreme.

Video: Baby sniffs beardless dad to make sure it's him

She looks him up and down and then touches his chin, but baby Lindsey still isn't sure this clean-shaven man is her dad.

The tragedy of losing a favourite teddy bear

We were green and uninitiated, perhaps a little naïve when it came to the favourite toy responsibility.

It's possible to workout while pregnant

Medical experts say intense fitness routines can be done safely during pregnancy - if the mums-to-be follow some guidelines.

Baby for Asher Keddie and Vincent Fantauzzo

Fans followed every step of her on-screen pregnancy in Offspring, now Asher Keddie is going to be a mum in real life too.

What parents really want for their kids

Are our hopes, dreams and expectations for our children what they really need?

'I had a feeling something was seriously wrong': the fight for Kaden's diagnosis

Before even giving birth, Katie Myers' maternal instincts warned her something was wrong with her baby.

When your pregnancy causes a relationship rift

Some dads-to-be don't miss a beat when their partner is pregnant; others struggle with a range of issues and can become withdrawn, right when their support is needed most.

Couple uses group photo trick to announce pregnancy to loved ones

Katharine and Kris Camilli devised a clever trick to immortalise their family and friends' reaction to their exciting pregnancy news.

Why Tracey Spicer has given up make-up

"After 30 years on television, I had become what I despised: a painted doll who spent an hour a day and close to $200 a week putting on a mask."

Empowering bikini photo of 46-year-old mum goes viral

When a group of teenagers made rude remarks about her body as she walked past them in a bikini at the local beach, Julie Cross refused to cover up.

Devastated widow discovers she's pregnant the day before husband's funeral

They had been trying to conceive a baby for seven years. Tragically Kristy Kirchner found out she was pregnant the day before her husband Royce's funeral.

Win a family pass to Disney Live!

We have 4 family passes to give away to see Disney Live! presents Three Classic Fairy Tales, touring Australia this December/January.

Gabriella Goat sues Peppa Pig

Every toddler's favourite television pig is being sued by an Italian woman who shares a name with a Peppa Pig character.

Meet the Mpregs, the male pregnancy enthusiasts

"Men can't have babies - that's something only women can do! But our community is full of like-minded people who wish otherwise."

Your new motherhood survival kit

Forget about the bright, pretty baby things - while you're in survival mode, all you'll need are the essentials.

More than 100,000 cars recalled globally after death of pregnant woman

The announcement of a mass recall comes as Malaysian police investigate the death of pregnant woman in July.

I had a 'good baby' but still suffered from postnatal depression

I had a much wanted precious baby girl, a 'good baby' who slept well, self settled and was mostly content. It just seemed implausible to think I could succumb to depression.

Download now: Essential Kids Activity Finder app

Got bored kids? Quickly find the best activities for kids wherever you are in Australia with the Essential Kids app.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Win one of 5 Little Tikes Cozy Coupe Sport

Australia?s No 1 selling car is now available in a Sports model and we have 5 to give away to some lucky Essential Baby families.

Join PADDINGTON on the red carpet!

To celebrate the release of PADDINGTON, we are giving five lucky winners the chance to win a family pass to the exclusive Australian Premiere in Sydney on December 7!

Knowing you are one of the lucky ones

I am secure, confident and strong, but the responsibility of protecting my children can almost bring me undone.

Why I am so emotional now I have kids?

There are so many ways in which parenthood changes us as women, but one of the most noticeable, for me, has been the changing state of my emotions.

Baby survives despite sharing womb with 'foreign body'

Baby Maia was conceived against the odds, only to find she was sharing a womb with an ominous "foreign body".

Video: Baby shows dog how to jump - or vice versa

They say dog is man's best friend, but this playful pooch seems to have chosen a jumping baby as her number one buddy.

10 ways to soothe a crying baby

New paernts can get frustrated when their newborn gets fussy and can't settle down. When you're feeling overwhelmed, try some of these simple tips to help soothe your baby.

20 baby names that are becoming more popular every year

The data-lovers at nameberry.com have been at it again – this time, they’ve discovered the names that are continually rising up the ranks, ready to take out some top spots in the next few years.

10 great meals to make for new parents

Ideally, you want to give food that isn’t expensive to make, isn't too difficult to create, and freezes well; stews, bakes, soups and pasta sauces are perfect.

'It's not you, it's me': Boston bombing survivor mum to have leg amputated

Rebekah DiMartino is going through a break-up. She even wrote a farewell love letter. But it's not to her husband.

What it's like to go through early menopause

In a cruel twist, Carla had been breastfeeding and perimenopausal at the same time. But she's far from the only one to go through menopause early.

Restaurant served alcohol to two-year-old

Busy restaurants can be forgiven for getting food and drink orders mixed up from time to time, but not when the confusion leads to a two-year-old being served an alcoholic cocktail instead of the child-friendly beverage they ordered.

Julia Morris tells of miscarriage on a flight

Julia Morris has spoken about the devastation of suffering a miscarriage while on an international flight.

Woman's survival after birth 'a story of two miracles'

A US mother is home and tending to her new baby less than a month after surviving without a pulse for 45 minutes.

Eating ice may give mental boost to the iron deficient: study

A new study proposes that, like a strong cup of coffee, ice may give those with insufficient iron a much-needed mental boost.

Tiny lives in caring hands: Thank U NICU Day

Each year in Australia, over 40,000 newborns need the help of a special care nursery or neonatal intensive care unit. One day a year, the staff are honoured by the parents they help through those dark days.

I paid $50,000 to have a girl

This time my husband and I hadn't taken any chances. We had paid $50,000 and travelled 13,000 kilometres to make sure the baby growing inside me was female.

Weird pregnancy products

Some pregnancy products come to market and are just awesome. Others just leave you scratching your head.

Dear firstborn, I'm sorry

Being a first-time mum is tough for so many reasons – particularly because you really have no idea what you're doing.

A trace of sesame could kill my son

Helen Richardson son's had two anaphylactic reactions in a month. It's traumatic for everyone.

When you know before the test says yes

It wasn't a pregnancy test or missed period that told me I was pregnant with my second baby; it was too early for those things. A doner kebab told me I was going to be a mum again.

What not to do when your partner is in labour

Robbie Williams stole the show during his wife Ayda's labour, pretty much demonstrating everything on the "what not to do when your partner is in labour" list.

Best maternity swimwear and beach cover-ups

Thinking about a tropical babymoon but have nothing to wear? Here are some great swimwear and beach cover-up options for mums-to-be.

Dad breastfeeds his babies

Trevor Macdonald has now been pregnant twice, and is successfully breastfeeding his newest family member.

 

How many weeks til Christmas?

On your To-Do list

Get the "Santa" shopping done without the kids in tow.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.