Jump to content

Prolactinoma and pregnancy
Does anyone else have one?


  • Please log in to reply
7 replies to this topic

#1 jjcover

Posted 17 December 2012 - 07:03 PM

I'm 14 weeks pregnant and have very healthy and positive test results for everything but have been termed high risk as I have a micro prolactinoma. I have never taken medication for it but am now referred to an endocrinologist.

Does anyone else have a prolactinoma and has it caused any problems? I really want to be a low risk pregnancy to get into the midwifery group practice for my pregnancy care.

#2 KeepTheFaith

Posted 17 December 2012 - 09:11 PM

Hi OP, I have had a prolactinoma for almost 20 years now (well, it was diagnosed when I was 18). I have taken multiple medications, but for the last 8 years have been on Dostinex.

Mine is on the cusp of being a macroadenoma, but even so, u have not had any issues with it and pregnancy. Obviously you can't take medications like Dostinex whilst pregnant, but my endocrinologist and fertility specialist (the latter for recurrent miscarriages that were unrelated to the adenine, as well as other fertility issues) never deemed me "high risk" because of this. These types of adenomas are known to be very slow growing, so going off medication for 10 months is not a big deal. I'm just starting Dostinex again after having my second child.

I don't understand why you are considered high risk for this? Please PM me if I can be of any further assistance.

Good luck with everything original.gif

Edited by KeepTheFaith, 17 December 2012 - 09:13 PM.


#3 KeepTheFaith

Posted 17 December 2012 - 09:17 PM

Sorry for multiple spelling errors above, darn iPhone auto correct, which won't let me edit my post.

Hope you get my meaning anyway ;-)

#4 KeepTheFaith

Posted 17 December 2012 - 09:46 PM

Hi Cadie, may I ask why you were considered high risk with a prolactinoma? As I mentioned above, I never was, and I don't understand why having one makes us high risk- I was told it grows so slowly that it was unlikely to cause any problems whilst pregnant. Like you, I needed Dostinex to be able to conceive, but I now have to take it again.

It's not as if having lots of prolactin in your blood is odd during pregnancy, obviously...

#5 wattle-bird

Posted 17 December 2012 - 10:19 PM

You may be able to do both - ask the endocrinologist if low risk midwifery care would be an option if you also still came to see the doctor and did visual field tests +/- anything else they want to do to monitor you in pregnancy ( don't know, probably depends how big and the adenoma is)

Because its my understanding that the main risk during pregnancy is to you not the baby (as long as you aren't being treated with meds)

So an endo may be happy to share care

Worth asking??

#6 jjcover

Posted 17 December 2012 - 10:19 PM

Thanks so much for your comments. I'm hoping its precautionary and once I see the Endo Ill become low risk. I couldn't understand why it would be high risk when I don't even have treatment for it but I guess once they are satisfied its not growing Ill be good to go. After all it didnt seem to affect my fertility wink.gif

#7 kate_123

Posted 18 December 2012 - 07:54 AM

My friend was found to have this after investigations into why she was not getting her period and having trouble conceiving. She was placed on medication. When she fell pregnant with her first 2 she went off the medication but was advised to breastfeed for minimum length of time (6months) and then return to medication and had regular MRIs to monitor. After her 2nd it had shrunk/disappeared so she is off all meds and has breastfed her 3rd as normal. Didn't realise it was such a common thing!

#8 IreneRyanBaby

Posted 16 September 2014 - 04:44 PM

Hi KeeptheFaith,
I have prolactinoma, diagnosed more than a year ago. I was taking Dostinex but since I have fallen pregnant (I am on my 11th week now), I stopped the medication as recommended by my endoctrinologist. However in the past week I have been having severe headaches. I had my blood checked and the result was my prolactin has gone high again. I know it is normal for pregnant women to have high levels of prolactin but now I am not sure if that's due to my pregnancy or my tumour enlarging again. I have submitted the result to the antenatal clinic and they said it is normal as I am pregnant but they would need to call the neurologist to ask for advice.
Did you suffer from the same when you were pregnant? How did the doctors managed it? Did they re initiate medication?
Thank you for your reply. I appreciate every bit of info I could get.

Cheers,
Irene




2 user(s) are reading this topic

0 members, 2 guests, 0 anonymous users

 

Win Coles Little Explorer nappies for your toddler

Introducing the new Coles Little Explorer Nappies! You can confidently rely on Coles Little Explorer nappies at each stage of your child's growth, so take the Big Nappy Change and try new Coles Little Explorer nappies for yourself!

Robbie Williams live tweets wife's labour

And the award for most patient woman in labour goes to ... Robbie Williams' wife, Ayda Field.

Vaccine ignorance is deadly and contagious

In the absence of credible, strong political leadership, paranoia about disease can go viral.

Parenting differently based on birth order

All children have unique personalities, but keeping birth order in mind could help when parenting.

How to get rid of the mum guilt

Motherhood and guilt seem to go hand in hand, but there are ways to focus

Paid parental leave scheme grinds to a halt

The future of Prime Minister Tony Abbott's paid parental leave scheme appears to be up in the air, despite the fact it is due to begin in less than nine months.

The devastation of foetal alcohol spectrum disorders

No one's sure how many Australians are affected by foetal alcohol spectrum disorders, but the consequences for those who are can be devastating.

The pros and cons of finding out the sex of your unborn baby

It’s often one of the biggest choices parents make during the course of their pregnancy; to find out, or not to find out, the sex of their baby before it’s born.

Toddler's awesome dress up month

Two-year-old Willow and her photographer mum, Gina Lee, made October "Dress Up Willow Month". She posted photos of Willow's costumes on her Instagram account, and her creative takes on popular culture are simply adorable.

Childhood around the world

It can be easy to assume our ideas around childhood are universal, but they are particular to where we live, as these practices show.

Best picks for baby and toddler shoes

Here's a great selection of footwear from pre-walker to walker ensuring comfort and style for growing feet.

I lost my wife and daughters to Ebola - then it came for my son

Sunday, September 21, is a day I will never forget.

The 'yucky' illness that took over my life

I have a chronic illness nobody likes to discuss. It involves toilet talk, and probably caused my miscarriage. But it needs to be talked about.

Prenatal testing: the facts

Prenatal testing is done to check if a baby has certain medical conditions before birth. Here is some important information about what the tests are for and the risks involved.

5 things to do with your baby?s old clothes

Did you think your only option for your baby?s old clothes was to pack them away or give them to the Salvos? Think again.

Why it's possible to not realise you're pregnant until the baby arrives

After hearing about 'surprise babies' born to mums who didn't know they were pregnant, it's common to ask "how did she not realise?" But experts say it's entirely possible for it to happen.

'My miracle is finally here'

How has the world continued on its pace when mine has been altered so drastically?

Dairy can help older women fall pregnant: study

Ice cream may be the ultimate comfort food, but a study suggests it could also help older women to have children.

Megan Gale goes topless for 'sexiest people' cover

Six months after a heavily pregnant Megan Gale posed nude for Marie Claire, the glowing new mum has gone topless for the cover of another magazine.

A new perspective on life from living with two diseases

A mother shares her personal story about the difficulty of living with two conditions, one of which stops her from being able to see her daughter's face.

Warning about Children's Panadol dosage

The Therapeutic Goods Administration has issued a safety advisory warning parents about confusion when using the dosing syringe supplied with Children's Panadol.

Download now: Essential Kids Activity Finder app

Got bored kids? Quickly find the best activities for kids wherever you are in Australia with the Essential Kids app.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Take 'The Coles Big Nappy Change' Challenge

You could become part of our Test Drive team and win one of 200 packs of Coles Little Explorer Nappies as part of our 5-day challenge.

Win 1 of 5 Canon Powershot D30 cameras

Capture life more easily with the Canon Powershot D30. Shockproof, waterproof and dustproof, you can take it almost anywhere and shoot beautiful images, time after time. Enter now!

16 parenting truths you won't find in the baby books

I am five years into this parenting gig and I’ve learnt that sleepless nights and changing dirty nappies are child’s play.

Best and worst potty party cakes

It's nice to celebrate a child making the shift from nappies to 'big kid' undies, but do we really need a semi-realistic used toilet cake to do it? Here are some of the best and worst cakes parents have used at 'potty parties' around the world.

7 tips for a financially festive Christmas

Plan ahead - and do it now - to ensure festive season expenses don't break the bank.

'Go the F*** to Sleep' author's new book for frustrated parents

A sequel is coming soon to the 2011 hit book 'Go the F*** to Sleep' - and this time, it's about mealtimes.

Great birthday party buys from Etsy

Handmade crafts to decorate and personalise your child's next birthday - from banners to cake decorations, we've got gorgeous party finds from Etsy.

Join us in The BIG nappy change

Introducing the new Coles Little Explorer Nappies! You can confidently rely on Coles Little Explorer nappies at each stage of your child's growth, so take the Big Nappy Change and try new Coles Little Explorer nappies for yourself!

Creative storage ideas for the kids' rooms

Creative and practical storage ideas for the kids' toys and books can also add some stylish decor to your home. Visit babyology.com.au for more stylish modern finds for hip kids & parents.

Weird trend

'Why we called our daughter Wyatt'

Ashton Kutcher has spoken about how he and Mila Kunis chose their daughter's name - and why they've set up her social media accounts.

To the mum in the doctor's waiting room

Maybe the mum I saw in that waiting room, seemingly disconnected from her baby, doesn’t have the support she needs.

10 space-saving nursery ideas

Starting a family doesn't always mean moving into a bigger house - not yet, anyway.

 

What's in a name?

Baby Names

Looking for a classic name, or an unusual name? Our Baby Name Finder is for you, search or browse to refine your shortlist.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.