Jump to content

Prolactinoma and pregnancy
Does anyone else have one?


  • Please log in to reply
7 replies to this topic

#1 jjcover

Posted 17 December 2012 - 07:03 PM

I'm 14 weeks pregnant and have very healthy and positive test results for everything but have been termed high risk as I have a micro prolactinoma. I have never taken medication for it but am now referred to an endocrinologist.

Does anyone else have a prolactinoma and has it caused any problems? I really want to be a low risk pregnancy to get into the midwifery group practice for my pregnancy care.

#2 Dawarr

Posted 17 December 2012 - 09:11 PM

Hi OP, I have had a prolactinoma for almost 20 years now (well, it was diagnosed when I was 18). I have taken multiple medications, but for the last 8 years have been on Dostinex.

Mine is on the cusp of being a macroadenoma, but even so, u have not had any issues with it and pregnancy. Obviously you can't take medications like Dostinex whilst pregnant, but my endocrinologist and fertility specialist (the latter for recurrent miscarriages that were unrelated to the adenine, as well as other fertility issues) never deemed me "high risk" because of this. These types of adenomas are known to be very slow growing, so going off medication for 10 months is not a big deal. I'm just starting Dostinex again after having my second child.

I don't understand why you are considered high risk for this? Please PM me if I can be of any further assistance.

Good luck with everything original.gif

Edited by KeepTheFaith, 17 December 2012 - 09:13 PM.


#3 Dawarr

Posted 17 December 2012 - 09:17 PM

Sorry for multiple spelling errors above, darn iPhone auto correct, which won't let me edit my post.

Hope you get my meaning anyway ;-)

#4 Dawarr

Posted 17 December 2012 - 09:46 PM

Hi Cadie, may I ask why you were considered high risk with a prolactinoma? As I mentioned above, I never was, and I don't understand why having one makes us high risk- I was told it grows so slowly that it was unlikely to cause any problems whilst pregnant. Like you, I needed Dostinex to be able to conceive, but I now have to take it again.

It's not as if having lots of prolactin in your blood is odd during pregnancy, obviously...

#5 wattle-bird

Posted 17 December 2012 - 10:19 PM

You may be able to do both - ask the endocrinologist if low risk midwifery care would be an option if you also still came to see the doctor and did visual field tests +/- anything else they want to do to monitor you in pregnancy ( don't know, probably depends how big and the adenoma is)

Because its my understanding that the main risk during pregnancy is to you not the baby (as long as you aren't being treated with meds)

So an endo may be happy to share care

Worth asking??

#6 jjcover

Posted 17 December 2012 - 10:19 PM

Thanks so much for your comments. I'm hoping its precautionary and once I see the Endo Ill become low risk. I couldn't understand why it would be high risk when I don't even have treatment for it but I guess once they are satisfied its not growing Ill be good to go. After all it didnt seem to affect my fertility wink.gif

#7 kate_123

Posted 18 December 2012 - 07:54 AM

My friend was found to have this after investigations into why she was not getting her period and having trouble conceiving. She was placed on medication. When she fell pregnant with her first 2 she went off the medication but was advised to breastfeed for minimum length of time (6months) and then return to medication and had regular MRIs to monitor. After her 2nd it had shrunk/disappeared so she is off all meds and has breastfed her 3rd as normal. Didn't realise it was such a common thing!

#8 IreneRyanBaby

Posted 16 September 2014 - 04:44 PM

Hi KeeptheFaith,
I have prolactinoma, diagnosed more than a year ago. I was taking Dostinex but since I have fallen pregnant (I am on my 11th week now), I stopped the medication as recommended by my endoctrinologist. However in the past week I have been having severe headaches. I had my blood checked and the result was my prolactin has gone high again. I know it is normal for pregnant women to have high levels of prolactin but now I am not sure if that's due to my pregnancy or my tumour enlarging again. I have submitted the result to the antenatal clinic and they said it is normal as I am pregnant but they would need to call the neurologist to ask for advice.
Did you suffer from the same when you were pregnant? How did the doctors managed it? Did they re initiate medication?
Thank you for your reply. I appreciate every bit of info I could get.

Cheers,
Irene




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

 

Exclusive Black Friday Sale!

Get over 40% off selected products, including prams, baby carriers, cloth nappies, sleeping bags and much more! 24 hours only, on May 6 - register now for your special code.

Kelly Clarkson shares first photos of son

Kelly Clarkson has shown off the first photos of her son, Remington Alexander Blackstock.

5 childbirth myths that need to be busted

Birth is an unpredictable, mysterious process that intrigues us all, and there is a lot of misinformation out there.

Mum of three fatally shot by toddler while driving

A US mother has been shot by her toddler while driving on a highway in Wisconsin.

All you need is one minute to work out

The seven-minute-work out is old news. Research shows the effectiveness of going hell-for-leather for just one minute.

Pregnant women needed to join diabetes study

Pregnant woman in country Australia will help Adelaide researchers figure out why cases of type 1 diabetes have doubled over the past two decades.

Just announced: the Mountain Buggy Unirider

It's the perfect solution to combat those toddler meltdowns when they no longer want to be in a pram but can't walk long distances.

Authorities euthanise dog that fatally bit a newborn baby

A pit bull mix that fatally bit a 3-day-old infant last week has been euthanised, authorities said.

The push for Medicare to fund lactation consultants

While meeting with a lactation consultant can make an enormous difference to a new mother, it's not a service that is available through the public health system.

Why it's perfectly natural to dislike other people's children

Members of a popular forum are fiercely debating whether it is acceptable to dislike a friend's child.

Woman gives birth on plane, names baby after airline

A pregnant woman who unexpectedly gave birth on a flight has named her new baby after the airline, Jetstar.

Heartwarming photos show the joy of adoption after foster care

Children living in foster care can feel like their future is less than clear. But that uncertainty disappears the day they are adopted by their "forever family" 

'Oh my god, it's a baby!' Mum shocked to give birth

When the cramps started to kick in, Klara Dollan just assumed a painful period was starting.

Mum's Facebook plea: 'Help me find my daughter's father'

Kerryn has a unusual present planned for daughter Imi's 13th birthday celebrations - she hopes to be able to be able to give the soon-to-be the teenager her first ever photo of her dad.

Is it possible for your house to be too clean?

Our houses are cleaner than ever before. But how clean is too clean? Could a sterile home be putting your family's health at risk?

Millions of Monkeys: puzzles that grow with your toddler

Here's a puzzle that grows with them; the Puzzle Grow Pack by Millions of Monkeys.

Baby names from Britpop

If you grew up in the 90s you might want to look to the genre of Britpop music for baby name inspiration.

What to eat and drink when you have gastro

When you catch a bug that causes acute infectious gastroenteritis (gastro), your stomach and intestinal tract become inflamed, causing diarrhoea, nausea, vomiting, abdominal cramping and pain. The last thing you probably feel like doing is eating.

'To this day, I owe her my life'

Would I have survived if I hadn't crossed that street?

Why baby Sonny needs you to vaccinate your children

Caitlin is a firm believer in the importance of immunisation to protect children from harmful and deadly diseases.

Five-year-old's photo captures beauty of motherhood

There is no make-up or special outfits and hairdos, but the five-year-old boy who took this picture captured the essence of motherhood as well as any professional photographer.

Babies know whether you are naughty or nice

Studies have shown that infants in the first months of life try to avoid dealing with social wrongdoers - for example, sharing less with them and helping them less - and they expect others to, too.

 
Advertisement
 

Top 5 Articles

Advertisement
 
 
 

What's hot on EB

The babies who are one in 70 million

Bethani Webb was excited to find out she was pregnant, but the first time mum did not realise she was carrying four babies not one.

Exclusive Black Friday Sale!

Get over 40% off selected products, including prams, baby carriers, cloth nappies, sleeping bags and much more! 24 hours only, on May 6 - register now for your special code.

Cafe offers breastfeeding mums a free cup of tea

A Sydney cafe is offering breastfeeding mums free cups of tea in a bid to show support for the right of women to nurse their babies wherever they choose.

To snip or not to snip? When the decision is not clear cut

Jamie Oliver, who considered a vasectomy, is to be a father again. A fellow dad reflects on his own decision 11 years ago

Doctors stunned by rare twins born almost six weeks apart

To everyone's surprise, Kristen Miller "kept doing better each day", keeping her second baby safe.

Baby book ideas for modern parents

Before my son was born I was given a lovely baby book full of blank pages waiting to be filled with weights and heights and first words.

The adorable smile of a baby seeing his mum clearly for the first time

There is no doubt seeing their child smile for the first time is an unforgettable moment for parents everywhere.

Mum tells how toddler 'nearly hung himself' in cot mishap

When Alison Johnson put her 18-month-old Caleb down for a nap, she had no reason to believe her son was in any danger.

Babies are still switched at birth? Yes, it can happen

All my panic and tears aside, my biggest question looking back is about the kind of security measures used in the maternity ward.

Doctors slammed for taking selfie with newborn

Everyone who visits a mum in hospital in the days following childbirth wants to get a photo with the new baby.

ergoPouch Twosie Sleepsuit for winter breastfeeding

Finally, there's a way to keep warm while breastfeeding through winter.

Health check: How long does sex 'normally' last?

What to do with this information? My advice would be to try not to think about it during the throes of passion.

When breastfeeding sucks: fixing common problems

From niplash to tight boobs, biting to milk supply issues, Pinky McKay looks at common breastfeeding issues and how to solve them.

10 things I've learnt in my first six months with twins

Six months on we're all still alive, and the more we get to know each other the easier the days become.

Mum's loving kiss leaves baby fighting for life

Kirsty Carrington thought nothing of giving her newborn son a kiss, little did she know it would leave the baby fighting for life.

When doing chores is your new 'me time'

After children, 'me time' looks a little different.

Get going: 14 travel strollers for families on the move

A stroller can make or break travelling with a baby or toddler. Here are 15 great single travel stroller options.

10 ways toddlers are terrific

It always pays to remind yourself of how terrific toddlers can be - they're little like this for such a short time

 

ENTER NOW

Do your kids love bananas?

This is the comp for you! We have $800 worth of Myer gift cards and boxes of Australian Bananas to be won. Entry is simple: just post a pic of your little one enjoying a banana in the comments of the FB post to enter.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.