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Very strange...UPDATE
Not sure what to do


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#1 trebambinibelli

Posted 03 December 2012 - 10:14 PM

A little over a year ago I sustained a concussion and as part of that had partial seizures. They lasted a couple of days.  The first symptom that appeared was a painless contraction of my 2nd toe sideways. When I recovered, the toe thing would still recur every so often, maybe once every few months. In the last couple of weeks it has suddenly ramped up so now it happens multiple times an hour, several times every day. It even wakes me up sometimes, it's not uncomfortable, just weird feeling my toe move strangely that way.  I can't work out whether it is of concern or whether it is just one if those weird things like an eye twitch.  I had an MRI at the time which showed nothing.  I feel silly being worried but I'm probably averaging around 50 contractions an hour, maybe more? I feel silly going to a Dr about it though. So WDYT?

Edited by trebambinibelli, 16 January 2013 - 08:43 PM.


#2 fancie

Posted 03 December 2012 - 10:20 PM



If this only started occurring after your concussion, I would most definitely be seeing the GP.  In my experience, GP's would rather you "wasted their time" when something is harmless than you "not waste their time" when it is something far more serious.

Good luck, OP.  


#3 songshirah

Posted 03 December 2012 - 10:25 PM

Yes, what PP said.  Go see your GP, it needs looking at again as the condition has worsened.

#4 jennywin

Posted 03 December 2012 - 10:29 PM

who knows, but maybe not a gp, maybe a podiatrist or chiropractor?

#5 trebambinibelli

Posted 03 December 2012 - 10:33 PM

Thanks for your replies. Jemmy win - ironically I trained as a podiatrist and never came across this issue before! Maybe I should see someone about it...

ETA I just counted the contractions - 20 in one minute....

Edited by trebambinibelli, 03 December 2012 - 10:36 PM.


#6 fancie

Posted 03 December 2012 - 10:37 PM



get thee to the GP!


#7 katrina24

Posted 03 December 2012 - 10:40 PM

Hi, if the toe movement was associated with seizures and is suddenly increasing that rapidly I would probably seek urgent medical advice. I am a very cautious type but that's what I would do.

Edited by katrina24, 03 December 2012 - 10:41 PM.


#8 Peanut

Posted 03 December 2012 - 10:49 PM

If it was one of the earliest symptoms after the initial seizures then the same brain activity that made it appear has reappeared for some reason.

I would suggest you go see your GP as soon as possible.  At the very least, it will give you some reassurance if the GP investigates and finds it to be just an annoying but harmless side effect.

#9 opethmum

Posted 03 December 2012 - 11:02 PM

I would get to a GP post haste and get a referral to a neurologist, you need to rule out any electrical imbalances in the brain. Partial seizures are nothing to be fobbed off. This painful contractions may just be the gatekeeper of something more serious going on in the brain.
Don't let a gp fob you off either. Concussions are a serious condition and you may have an unknown brain injury as a result. I would get a full battery of tests to rule out anything and everything. I am an advocate for knowing everything about your body and investigating things that just don't sit right. You have a right to know what is happening with your body, don't be afraid to get the help you need.


#10 trebambinibelli

Posted 04 December 2012 - 06:13 AM

Thanks for your opinions. I think I will see the Dr.

#11 morgansacre

Posted 04 December 2012 - 07:14 AM

I am glad you are going to the Drs, please come back and let us know how you got on.

I just wanted to say....I suffered from indigestion one night, it was that bad I couldn't sleep for hours through the night, then when they stopped I was so exhausted I almost slept through seeing my DD off at school....

I worried about it and decided to go to my GP, he ran some tests and found out I had actually not had indigestion but a heart attack. So even when you think it silly to go to the Drs about something like this, it could turn out to be something major.

Lynn

#12 trebambinibelli

Posted 04 December 2012 - 07:56 AM

Lynn - Thank goodness you followed up on that indigestion! How scary for you.

I will definitely give an update. I am seeing a neurologist next week as I also have a prolapsed disc in my neck from the accident so I will ask them about the toe thing too.  It's happening constantly now....

#13 Therese

Posted 04 December 2012 - 09:29 AM

Can you try to get into your GP today ? It sounds like you need to see someone soon.

#14 trebambinibelli

Posted 04 December 2012 - 11:07 AM

Hi, I rang Health Direct and they advised I see a GP today so right now I'm waiting to go in. Thanks to those who took the time to reply to me. I'll let you know of an update later.

#15 Lyra

Posted 04 December 2012 - 11:09 AM

I am glad that you are seeing a GP. You don't want to mess around with brain issues!

#16 Therese

Posted 04 December 2012 - 12:46 PM

I'm really glad you are seeing someone today. Good luck original.gif

#17 trebambinibelli

Posted 04 December 2012 - 01:35 PM

My GP has never heard of such a thing.  He watched my toe go sideways multiple times with great fascination...  Glad it was happening while I was there so he could see it, although I did take some 'footage' (haha) on my phone just in case.  He has referred me to a neurologist, so I've booked for 4 weeks time, the earliest I could get.  GP didn't seem to think it was anything serious.  I hope not.  Just have to wait for my appt now.

#18 trebambinibelli

Posted 16 January 2013 - 08:42 PM

Update - saw neurologist. He thinks I had a small bleed on the brain from my concussion that has set up a focal point causing these spasms ie epilepsy. Not sure if it is permanent or not. Will be having an EEG to investigate further. Thanks to those who replied and encouraged me to seek help. Glad I went now!!

#19 katrina24

Posted 16 January 2013 - 08:51 PM

I'm gals you are getting the help you need. I hope it all works out well for you.

#20 Harmonica

Posted 16 January 2013 - 09:59 PM

The body behaves in mysterious ways... glad that you went and will get it sorted!


#21 babyinabackpack

Posted 16 January 2013 - 10:25 PM

Glad to see you have seen a neurologist and hope it's nothing too concerning.

#22 songshirah

Posted 17 January 2013 - 12:00 AM

Glad the GP got to see it action and sent you off to the neurologist.  Hope the EEG and MRI shows up the cause and that it's easily remedied.

Good luck, I was wondering how you got on with that toe of yours.  biggrin.gif

#23 Peanut

Posted 17 January 2013 - 08:07 AM

I thought of you a few weeks ago and was wondering how you went.  Hopefully its something that will go away soon, best of luck!

#24 Therese

Posted 17 January 2013 - 08:12 AM

Good luck with the EEG.

#25 trebambinibelli

Posted 17 January 2013 - 08:00 PM

Thank you for thinking of me. The EEG is in a couple of weeks so hopefully that will shed more light on my toe lol




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