Jump to content

graves disease


  • Please log in to reply
4 replies to this topic

#1 soontob6

Posted 30 November 2012 - 11:16 AM

So, last Saturday, I noticed that one of my eyes were bigger than the other and started to freak out abit.  Went to the Dr on Monday and straight away she asked if I had family history of Thyroid problems.  I said no and she said that straight away she could see my thryroid and did a couple of tests - reflexes etc and they seemed to point to overactive thyroid, which made me feel alittle better as I was of course thinking the worst like a tumour rolleyes.gif
Anyway, I went off to get blood tests done and yesterday, after a very anxious wait at the Drs, I was diagnosed with Graves Disease.  But then she said that my level of antibodies was only 88 where as sometimes it can be up in the thousands and that she wasn't 100% sure then ??
But then she called the endocrinoligist (sp) and gave him my results and asked what meds to start on (I'm breastfeeding my 10 mo) and gave me a very low dosage for a month to give me time to wean, and after she got off the phone she didn't say anymore about not being sure so I'm gathering I def do?

does anyone here have Graves Disease?
I'm glad I know what it is now and that it can be treated, and I guess it was pretty good timing as my 10 mo is my fourth and last so I don't have to worry about pregnancy upsetting my levels.
I'd just like others to share their experience?  tia

#2 soontob6

Posted 03 December 2012 - 08:32 PM

Theres got to be someone on here with this condition?? unsure.gif

#3 JKTMum

Posted 03 December 2012 - 09:01 PM

I had Graves about 4 years ago now. Mine manifested in massive loss of weight (was eating well), hair falling out, palpitations and hand tremors, really hyper and lack of sleep. I had a thyroid ultrasound and there was no nodules or swelling, no noticable eye changes either.

I went on the meds for two year, starting off with quite a high dose and then weaning down, but everytime they tried to get me off the meds it would go overactive again. Final option after two years was either to have the thyroid removed or to have Radio Active Iodine. I chose the RAI, which meant I went permanently underactive and now take meds to counteract that (safer healthwise to be underactive rather than overactive). I still have to adjust my meds every so often and have regular bloodtests, but I'm no longer under an Endocrinologist, my GP just handles it all now.

Some people go into remission after having the medication for a number of months and they dont need any further treatment.

Cant say I'm totally happy being underactive, now I really struggle to lose weight (put on about 15kgs in the two years after diagnosis), also struggle with energy levels, but I know that long term its better for my health to be on the underactive meds. I'll be on some form of them for the rest of my life.

The RAI itself wasnt a big deal, swallow a capsule in outpatients and head home (I had the highest dose that could be given as an outpatient, anything higher and I would have had to be admitted and monitored for my radiation level to fall before being allowed to be discharged). For the week after I had to take lots of precautions, couldnt be around my kids at all and pretty much hibernated in my room for 5 days (had to use a separate toilet from everyone else and couldnt prepare food or share any utensils). I passed the time by joining facebook, reading novels and watching a lot of movies on the laptop.

#4 blackmetallic

Posted 03 December 2012 - 09:13 PM

Hi, my XH has Graves Disease (for about 5 years now). He's on PTU which is an older medication. The first one he was on (sorry can't remember what it's called) was ok, but when he stopped taking it his levels went sky high again.
At the moment he's 'weaning' off the PTU to see how he goes without it...apparently sometimes the thyroid 'fixes' itself or something. So far his levels are stable, although on the high side. He has to have blood tests every month or so.
I think the alternative treatment is radiation therapy to remove the thyroid, then Thyroxine tablets for the rest of your life.
He has had issues with food intolerances since being diagnosed, actually that's partly how he was diagnosed, he went to the doctor as he was having issues after eating (pain, bloating, diaroeha (sp?) escpecially from gluten. He still can't eat gluten, and he can't handle fruit, or a lot of lactose. Apparently it's a common side effect of Graves.
He has the bulging eyes, and before being diagnosed was quite skinny, couldn't put on weight, and was really hyperactive - he's naturally pretty hyper anyway so he was pretty full on! Since being medicated though he's 'calmed down' a lot, and put on a bit of weight.
Graves disease can have some pretty serious effects on you, so you should really go and see an endocrinologist and discuss your options. I don't know much about the hormone levels or anything, but feel free to ask me anything - I can ask XH too.

#5 rrt1000

Posted 03 December 2012 - 09:30 PM

I tried to PM you, but it did not work for me. I'm more then happy to talk to you about my experiences if you wanted to try and PM me? original.gif






0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

 

Mum shares hilarious story about attempting shower sex

As most parents know, finding time for sex post-kids is one of life's not-so-little challenges.

16 things you'll learn on the preschool party circuit

Kids birthday parties sound fun in the abstract but the reality is they often end up an introverts worst nightmare – forced social interaction in the name of good parenting.

The 92-year-old who's a great-great-great-grandmother

A 92-year-old Canadian woman has become a great-great-great grandmother this week after the family welcomed a baby boy.

The Pramrolla mimics a walk in the park to help your baby get to sleep

Simply put the pram brake on, set the wheels on top of the Pramrolla, plug it in and off they go ... or so they think.

Beyonce shares surreal pregnancy photo shoot

Pop superstar Beyonce on Thursday released a slew of photos of herself posing pregnant and nude.

Airport staff order mum to squeeze her breasts to prove she's lactating

A Singaporean mum of two has spoken about her humiliation at the hands of German airport security guards who ordered her to prove she could breastfeed.

How to keep your baby or toddler safe at home

Child-proofing tips that will ensure your home remains a safe haven for curious toddlers and babies on the move.

Told to get rid of their dogs, this expectant couple took the sweetest photos instead

When the couple conceived their first human child they came under enormous pressure to give up their dogs.

Bereaved parents take baby home for 'family time' after death, thanks to cuddle cot

A bereaved mother has spoken about her decision to take her daughter's body home to spend time as a family before her funeral.

'Get off your phone!': the daycare note that's got people talking

A note posted by a US daycare facility has urged parents to get off their phone when collecting their children:

Babysitter's creative 'hands-free' baby carrier hack

We've all been there – you need to hold the baby, but you also need to eat.

Will these be the most on-trend baby names of 2017?

Nameberry has crunched the numbers, predicting which monikers will see a rise in 2017.

Firefighter adopts the baby he helped deliver

Five years ago firefighter Marc Hadden took an emergency call that changed his life.

Mum shares graphic image to highlight importance of rear-facing car seats for kids

A British safety blogger has shared a graphic photo of the damage a seatbelt can do in a car accident in a bid to persuade more parents to use rear-facing car seats for as long as possible with their kids.

Pharrell Williams and his wife welcome triplets

Now that's a good way to start the new year.

Turn yourself into a child's climbing gym with this wearable vest

It's such a neat idea for those living in high density apartment blocks where children may struggle to get enough physical activity.

Bugaboo unveils its new Bugaboo Bee5

The lightweight and compact Bugaboo Bee has been on the scene for a decade now.

The first few weeks of pregnancy: surreal, scary, exciting

It is okay to be worried, nervous, anxious, in love and happy all at the same time.

 
Advertisement
 

Top 5 Articles

Advertisement
 
 
 

From our network

Essential Baby & Toddler Show, presented by Blackmores

3-5 March 2017, Brisbane Convention & Exhibition Centre. Get your FREE ticket now. Save $20.

Your child's fine motor skills: what you should know

There is less of a focus on fine motor skills, but they're just as important as others. (SPONSORED)

5 ways music helps your toddler's development

There are at least five other compelling reasons to get musical around your toddler. (SPONSORED)

 

Free ticket offer

Essential Baby & Toddler Show, presented by Blackmores

3-5 March 2017, Brisbane Convention & Exhibition Centre. Get your FREE ticket now. Save $20.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.