Jump to content

graves disease


  • Please log in to reply
4 replies to this topic

#1 soontob6

Posted 30 November 2012 - 11:16 AM

So, last Saturday, I noticed that one of my eyes were bigger than the other and started to freak out abit.  Went to the Dr on Monday and straight away she asked if I had family history of Thyroid problems.  I said no and she said that straight away she could see my thryroid and did a couple of tests - reflexes etc and they seemed to point to overactive thyroid, which made me feel alittle better as I was of course thinking the worst like a tumour rolleyes.gif
Anyway, I went off to get blood tests done and yesterday, after a very anxious wait at the Drs, I was diagnosed with Graves Disease.  But then she said that my level of antibodies was only 88 where as sometimes it can be up in the thousands and that she wasn't 100% sure then ??
But then she called the endocrinoligist (sp) and gave him my results and asked what meds to start on (I'm breastfeeding my 10 mo) and gave me a very low dosage for a month to give me time to wean, and after she got off the phone she didn't say anymore about not being sure so I'm gathering I def do?

does anyone here have Graves Disease?
I'm glad I know what it is now and that it can be treated, and I guess it was pretty good timing as my 10 mo is my fourth and last so I don't have to worry about pregnancy upsetting my levels.
I'd just like others to share their experience?  tia

#2 soontob6

Posted 03 December 2012 - 08:32 PM

Theres got to be someone on here with this condition?? unsure.gif

#3 JKTMum

Posted 03 December 2012 - 09:01 PM

I had Graves about 4 years ago now. Mine manifested in massive loss of weight (was eating well), hair falling out, palpitations and hand tremors, really hyper and lack of sleep. I had a thyroid ultrasound and there was no nodules or swelling, no noticable eye changes either.

I went on the meds for two year, starting off with quite a high dose and then weaning down, but everytime they tried to get me off the meds it would go overactive again. Final option after two years was either to have the thyroid removed or to have Radio Active Iodine. I chose the RAI, which meant I went permanently underactive and now take meds to counteract that (safer healthwise to be underactive rather than overactive). I still have to adjust my meds every so often and have regular bloodtests, but I'm no longer under an Endocrinologist, my GP just handles it all now.

Some people go into remission after having the medication for a number of months and they dont need any further treatment.

Cant say I'm totally happy being underactive, now I really struggle to lose weight (put on about 15kgs in the two years after diagnosis), also struggle with energy levels, but I know that long term its better for my health to be on the underactive meds. I'll be on some form of them for the rest of my life.

The RAI itself wasnt a big deal, swallow a capsule in outpatients and head home (I had the highest dose that could be given as an outpatient, anything higher and I would have had to be admitted and monitored for my radiation level to fall before being allowed to be discharged). For the week after I had to take lots of precautions, couldnt be around my kids at all and pretty much hibernated in my room for 5 days (had to use a separate toilet from everyone else and couldnt prepare food or share any utensils). I passed the time by joining facebook, reading novels and watching a lot of movies on the laptop.

#4 blackmetallic

Posted 03 December 2012 - 09:13 PM

Hi, my XH has Graves Disease (for about 5 years now). He's on PTU which is an older medication. The first one he was on (sorry can't remember what it's called) was ok, but when he stopped taking it his levels went sky high again.
At the moment he's 'weaning' off the PTU to see how he goes without it...apparently sometimes the thyroid 'fixes' itself or something. So far his levels are stable, although on the high side. He has to have blood tests every month or so.
I think the alternative treatment is radiation therapy to remove the thyroid, then Thyroxine tablets for the rest of your life.
He has had issues with food intolerances since being diagnosed, actually that's partly how he was diagnosed, he went to the doctor as he was having issues after eating (pain, bloating, diaroeha (sp?) escpecially from gluten. He still can't eat gluten, and he can't handle fruit, or a lot of lactose. Apparently it's a common side effect of Graves.
He has the bulging eyes, and before being diagnosed was quite skinny, couldn't put on weight, and was really hyperactive - he's naturally pretty hyper anyway so he was pretty full on! Since being medicated though he's 'calmed down' a lot, and put on a bit of weight.
Graves disease can have some pretty serious effects on you, so you should really go and see an endocrinologist and discuss your options. I don't know much about the hormone levels or anything, but feel free to ask me anything - I can ask XH too.

#5 rrt1000

Posted 03 December 2012 - 09:30 PM

I tried to PM you, but it did not work for me. I'm more then happy to talk to you about my experiences if you wanted to try and PM me? original.gif






0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

 

How an inquest into one stillbirth is saving lives

A ground-breaking court case that has focused solely on one stillborn baby has already helped to save the lives of other babies.

Get them into reading early with a Nouk book subscription

There's no bonding activity quite like reading to your baby or toddler, and all the signs point to it being important for social and literacy development as well.

I don't want my husband to go on a buck's trip

My husband's best friend is getting married and has planned a men's bachelor party.

The celeb parents who needed a mediator to stop fighting over baby names

Deciding on a baby name can be a fraught experience for many parents.

May Gibbs' 'Gumnut Babies' turns 100 with a special edition, coins, stamps and more

It's time to celebrate the centenary of May Gibbs' very first book release, Gumnut Babies.

African baby names

We have some absolutely gorgeous selections of African baby names for you to consider for your baby.

The mum who retrained to became a plumber

One company refused to give her an apprenticeship because they believed she would be too much of a distraction to the males. 

Meningococcal meningitis: signs, treatment and prevention

What is meningococcal meningitis, why does it occur in seasons, and why does it strike fear into the hearts of so many?

I was scared of the dentist ... and my son paid the price

It was a moment where I could certainly learn from his behaviour, and not him from mine.

Family of toddler killed by alligator at Disney honours his third birthday

The family told supporters that they wanted to celebrate the boy's "first birthday in heaven".

For the festival lover in all of us

Pre-book & Save 50%. Get your tickets now for Kidtopia Festival. 7-9 October 2016 Parramatta Park, Sydney.

7 tips to help you prepare your home for parenthood

Prep your home to make becoming a new parent as stress-free as possible.

Fatherhood to the beat of Daniel's drum

Daniel Gibney knew fatherhood would change him, but he didn't realise it would lead to a global business venture for his family.

A case of gastro and the mummy mean girls

I don't blame any first-time mother who is terrified of her or her baby catching gastro, but it will find you eventually.

Zooey Deschanel's cake smash fail for daughter Elsie

"I kept seeing on the Internet, 'You gotta make a smash cake for your one-year-old,' so I'm like, 'I'm making this cake just so she can smash it.'"

Five things mums should never do

Although I preach the "each to their own" method of parenting, it's unavoidable to have those moments of panic.

Mum allegedly 'groped' while holding toddler in Sydney pool

A mum has told of her horror after she was allegedly sexually assaulted while at a swimming centre with her two young children.

'It whacked me': Michelle Bridges on sleep deprivation and returning to exercise

Michelle Bridges knows a lot about health and fitness, but when she became a mum she had to learn a few lessons the hard way.

 
Advertisement
 

Top 5 Articles

Advertisement
 
 
 

What's hot on EB

Win a Hawaii beachfront resort holiday for two!

Enter now for your chance to win 1 of 4 trips for two to Hawaii, staying at Outrigger resorts in Waikiki.

For the festival lover in all of us

Pre-book & Save 50%. Get your tickets now for Kidtopia Festival. 7-9 October 2016 Parramatta Park, Sydney.

 

Vintage Toys

The toys of your childhood

Take a trip down memory lane with these vinage and retro toys that you may have had in your childhood or your parent's childhood.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.