Jump to content

HELP! Severe silent reflux
9wo on losec and zantac- no relief


  • Please log in to reply
15 replies to this topic

#1 bula2008

Posted 28 November 2012 - 03:19 PM

My 9 week old DS has suffered from severe silent reflux since he was just 2 weeks old. He has been on Losec since 4 weeks and since 5 weeks has also been on Zantac and Pepti Junior formula as he would not drink more then 20ml at a time and would scream in pain for 18hrs every day. Since starting on medication he has started screaming less however is still in alot of pain for most of the day. He is still only drinking 60ml a feed every 3 or 4hrs. We have tried scheduled feeds but that only made it worse. He has not even put on800g since he was born (he is currently putting on only 20-40g per week). He has been in and out of hospital and seen every kind of specialist imaginable but noone has any ideas. The dietitian had given us a different ratio of formula to use, however they didnt cacate it right so he ended up on less.    
We have tried everything to get our paed to look at doing something to help him however he refuses to until he loses weight. It has started to effect his development an I do not want him to get any further behind in weight of developmentally.
Has anyone else had this issue or have any suggestions on what we can do. My husband and I are going insane!

#2 beastie

Posted 28 November 2012 - 03:23 PM

Have you tried giving him baby probotics?  My baby has thrush and reflux.  We started her on them at  around 4 weeks and within two days she was a different child. She is now 4 months and if I  miss a day or two her symptoms reappear.

#3 marnie27

Posted 28 November 2012 - 03:29 PM

Have you looked at whether there is any other underlying issues?

My DD had severe silent reflux and screamed for 16 hours a day until she was almost 4 months old.  It was maddening and very frustrating not be able to help her.  Part of the issue for her was also that she was also lactose intolerant and highly allergic to soy.  We really had to experiment with formulas to sort it out for her (my partner wasn't able to breastfeed due to medical issues).

Can you try a different formula?



#4 bula2008

Posted 28 November 2012 - 03:36 PM

Thanks for the replies.
Pepti junior is a prescription formula for babies with a milk protein intolerence and who are allergic to soy. He has improved since starting  on it but still  very bad. He has been tested for lactose intolerance and this is not the case.
I have looked into probiotics but no one I have discussed it with was aware of any that can be used for babies that young. I am heading back to the GP next week so will raise it again then- anything is worth a try!

#5 BeachedAsBro

Posted 28 November 2012 - 03:41 PM

Do you wear him? Granted my babies reflux wasn't as severe as your poor boys, but I fairly much wore her in my ergo carrier during her awake hours and she slept in my arms because I couldn't lie her flat.

I'm sorry no advice on FF, I BF my girl. I would be trying to arrange another paed though. I had to fight tooth and nail to get a diagnosis and she wasn't medicated until 16 weeks.

Best of luck with everything.

#6 tamietamara

Posted 28 November 2012 - 03:49 PM

My DD was the same and only ever improved when we gave her the presciption medication Zoton. It was a miracle cure!!! Half a tablet ever night (they are strawberry flavoured and dissolve in theire mouth - she loved them) and after two weeks she was pain free, started drinking happily and putting on weight etc. amazing! Zoton apparently stops them producing stomach acid and is not to be used after about 12 months when you wean them off it.  We did this and she is now fine without it. Good luck!

#7 Feral_Pooks

Posted 28 November 2012 - 04:03 PM

Can you see another paed for a second opinion? Waiting until weight loss is ridiculous. He is in distress (as are you!).

#8 eclare86

Posted 28 November 2012 - 05:38 PM

Hi, congratulations, you are doing so well! My little man only got diagnosed with silent reflux (not as bad as yours though) just a couple of weeks ago and it's been so hard..
One thing I found that has really helped has been chiropractory. Our little man was engaged for 5 weeks before being born and I noticed following birth that one side of his body didn't work as well as the other side (with feeding etc). It turned out that the affected side was involved in digestion too. I was very sceptical when my CHN mentioned to go and see a chiropracter, but it has helped so much! I would only go and see a chiro that is VERY experienced with children, I can't stress that enough...

Edited by eclare86, 28 November 2012 - 05:39 PM.


#9 sapphire_stone

Posted 28 November 2012 - 06:23 PM

We also had to deal with silent reflux and went to see a chiropractor that gave us some baby-biotics.  At the same time we also started Nexium (after being on Zantac and Losec previously) so I don't know if it was the Nexium, the chiropractor or just getting that little bit older (4 months) but we finally started getting some relief.  Wish you all the best!!

#10 Mum2TwoDSs

Posted 28 November 2012 - 07:01 PM

OP, I don't have any advice but this does sound really miserable for your little one and it's tough on you and your DH. I just want to send you a cyber hug and hope it will resolve soon.

#11 Lokum

Posted 28 November 2012 - 07:09 PM

QUOTE (bula2008 @ 28/11/2012, 04:36 PM)
15115054[/url]']
Thanks for the replies.
Pepti junior is a prescription formula for babies with a milk protein intolerence and who are allergic to soy. He has improved since starting  on it but still  very bad. He has been tested for lactose intolerance and this is not the case.
I have looked into probiotics but no one I have discussed it with was aware of any that can be used for babies that young. I am heading back to the GP next week so will raise it again then- anything is worth a try!


Ask about trying neocate ? Worked for someone i know with multiple protein intolerance, after having limited success with pepti junior.

Also ask for a referral to a specialist gastro enterologist paed, and maybe also an allergist paed - the wait could be long so push for the referral now.
Sorry your LO is struggling. Waiting for weight loss is crap, when he must be just about FTT already.

#12 LovenFire

Posted 28 November 2012 - 07:35 PM

A few babies that I know of who have had truly bad reflux I have improved after neocate and also chiropractic intervention.  I don't have a babe with reflux, but this is what I have heard.  Hope it helps.

And go to a new paed - why wait till he starts losing weight ffs, he's miserable and so are you! And if he is losing weight, you have so much more work to do as well.

#13 babyadvocate

Posted 28 November 2012 - 11:05 PM

Sounds like most of the other Mums have the medical side covered and I don't have anything to add as my DD (now 7yo)  wasn't that bad...

My suggestion is more practical. I used a bed wedge under her cot mattress with a strap called a Safe T Sleep to position her. That way she wasn't flat on her back which made her reflux worse of course, and she had minimal movement.

If you are in Melbourne I can lend you our bed wedge as we still have it. PM me if you are interested.

Hope you baby gets better soon and you all get some sleep.


#14 VJs Mummy

Posted 29 November 2012 - 09:41 PM

Have pmed you op

#15 April girl

Posted 29 November 2012 - 10:02 PM

QUOTE (sapphire_stone @ 28/11/2012, 07:23 PM) <{POST_SNAPBACK}>
We also had to deal with silent reflux and went to see a chiropractor that gave us some baby-biotics.  At the same time we also started Nexium (after being on Zantac and Losec previously) so I don't know if it was the Nexium, the chiropractor or just getting that little bit older (4 months) but we finally started getting some relief.  Wish you all the best!!


Four months was the magic point for us too. OP my little guy would scream 17 hours a day and it was just horrible. Zantac did nothing for us Losec worked slightly better but not really. At about three months I took him to an osteopath. At the same time despite bf approx 10 times a day my period returned and he refused to feed. Finally after 2 days he took a bottle but wouldn't take expressed milk. I also started rice cereal at 3 mth and one week. So like pp I'm not really sure whether it was one thing or a combination of many. I just want to wish you the best and to say that this is no indication of your child's personality. I was scared I'd given birth to the worlds angriest short man!

#16 MummyKylie

Posted 02 December 2012 - 05:18 PM

My DS, now 3 and a half months, was the same and not gaining much weight (was only gaining because I was refeeding after most feeds had been vomited), my paediatrician even said that it's babies like my DS that fall through the gaps because they are gaining some weight. He is much improved now, I'm BF but we gave thickener in EBM before each feed, held him upright (love the ERGO!) after his feeds for sleep and have a towel rolled up under the head of his mattress. We stopped thickener as he got constipated but started on Losec. It's a shame that isn't working for your bubba sad.gif
I would be getting a referral to another paediatrician for a second opinion (you are entitled to it!) and asking for a further referral to a paediatric gastroenterologist.
In the meantime, I would try feeding upright if possible, day sleeping in a carrier, putting the head of the bed up. Ask your GP about using Mylanta as well.
I hope you have some luck! original.gif




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

The day my daughter almost drowned

We had six adults standing there, so I felt like I could relax a bit. After all, what could go wrong with so much supervision?

Sydney siege survivor names baby after victim Katrina Dawson

A Sydney barrister who survived the Lindt cafe siege has named her newborn daughter after her best friend who died in the tragedy.

Banishing bloat

How to avoid a bloated tummy

Here are some foods to eat in order to escape feeling ghastly and gassy.

The great new picture book for anxious kids

My son is a worrier by nature. I learnt long ago that it was completely pointless to say to him "Don't worry about it!".

Budget stripped more than $15b from families

The combined impact of the two budgets for low and middle income people was "devastating", new analysis by the Australian Council of Social Service shows.

Pregnant women urged to get flu shots

As the winter chill starts to arrive, NSW Health is urging pregnant women to get their flu shots.

65-year-old gives birth to quadruplets

A 65-year-old German woman, who already has 13 children, has given birth to quadruplets.

What you need to know about pregnancy and health insurance

It's not just waiting periods that couples need to consider - there are other factors to consider when thinking about health insurance.

Yummy mummy

Nicole Trunfio breastfeeds baby on Elle magazine cover

Australian model Nicole Trunfio has taken the concept of multitasking to a fashionable new level for Elle Australia.

Warnings after baby girl died while sleeping in bouncer

Parents have been warned about the dangers of letting babies sleep in bouncers and swings following the death of a three-month-old girl.

Coping with fatigue as a parent

Sleep deprivation is a real hazard of caring for a baby. But there are ways to manage the challenges of fatigue better.

A very 21st century issue: parents, parks and smart phones

It's not all the parents, and it's not all the time, but there is often at least one doing it. And sometimes, that 'one' is me.

Appliances

Faulty washing machines linked to house fires

More than 80,000 faulty Samsung washing machines pose a fire threat in homes throughout Australia despite a nationwide recall of the machines.

'I had a lotus birth and I loved it'

Lotus birthing is not all that common, but for a number of women it feels like the most natural thing to do.

7 things you might not know about postnatal depression

Despite its widespread nature, there is still a great amount of mystery surrounding PND - and it's important to try unravelling as much of that as we can.

Is your family's car part of the world's biggest safety recall?

More than 50 million vehicles recalled for potentially lethal airbag fault - is your car affected?

Why drinking water can be deadly for babies

H2O is one of the necessities of life, but for babies a seemingly harmless amount of water can be fatal.

Mother-in-law faceplants during proposal

He had it all planned: a romantic proposal on a windswept beach. The whole family would be there so they'd all be able to celebrate the joyous moment together.

A preschooler suddenly goes mute - and it's not just shyness

When our son stopped talking, our sense of loss was painful and acute.

The mums who ask for a 'wife bonus'

They run their homes like domestic CEOs and work tirelessly to improve their family's social standing. And now, according to a new book, they want an annual perk from their husbands.

Woman shares photo of dimple on breast to warn others of cancer risk

A widely-shared Facebook photograph of a British woman's breast has raised awareness of a more subtle breast cancer symptom.

Starting a family despite a low sperm count

"I'd never really failed a test - how could I fail this particularly manly test?"

It's official: we must better protect our kids from toxic lead exposure

New guidelines have been released, aimed at reducing children's harmful exposure to lead. But they still don't go far enough.

Trouble-shooting toddler social skills

Chances are your toddler's behaviour is all completely normal - but here's how to tackle some common social problems.

Helping your first-born welcome a sibling

We did sigh with joy at the arrival of a royal princess - but, mostly, we sighed with pity at the sight of Prince George being taken to meet her.

Farewell, daytime nap

I've been in denial and I'm not too proud to beg, but it appears I must accept the fact that you have gone. I need to let you go.

The identical triplets who are one in 50 million

The father of identical triplets born in a Texas hospital says his three daughters, including conjoined twins, are "a miracle" sent by God.

Seven questions you should be asking about your health cover

If the last time you assessed your health cover was five years ago, there?s a chance it may no longer suit your needs. To ensure it?s still right for your family, click here for seven questions to ask.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

How to use gas effectively in labour

Many women in labour don't use gas effectively and suffer more side effects than benefits. Here's how to get the most out of this pain relief option.

'He has gastro but that's okay, right?': sick kid etiquette

We cannot place all children who are sick in a bubble till they recover, but we can give other parents a choice about exposing their kids to them.

Welcome to Winter

Now that the colder months are here, Essential Baby as all the information you need for staying healthy and happy during the chilly season.

Ada Nicodemou: 'I can never be completely happy again'

Home and Away actress Ada Nicodemou has opened up about the loss of her stillborn baby.

10 things to consider when you're thinking about trying for a baby

Before you start tracking your menstrual cycle and reading up on the best positions to get pregnant, there are a few other things you may want to consider.

How special surgery and IVF can create a post-vasectomy baby

Cricket legend Glenn McGrath and his second wife Sara are expecting their first child together, thanks to IVF and a delicate surgical sperm retrieval process that helped the couple to conceive.

Belle Gibson's mother 'disgusted and embarrassed'

The mother of disgraced wellness blogger Belle Gibson has accused her daughter of lying about her childhood in an attempt to garner public sympathy.

Doctor's mobile phone 'left inside c-section mum'

A new mum claims a doctor left his mobile phone inside her after delivering her baby via caesarean section.

I'm a mum and I'm following my dreams

I want my kids to know that no matter what happens in life, you can still be who it is that you've always wanted to be.

Those first daycare days

I had this innate 'mum' moment the other day.

'If one person had listened, my life would have been so different'

Katherine's father will die in prison for the horrifying sexual abuse of his daughter. Yet she is the one with the true life sentence.

This new plan undermines breastfeeding and baby health at everyone's expense

Mothers, babies, the health system and the wider society are going to pay the price of this new budget.

Couple to celebrate terminally ill baby's birthday in unique way

Baby Jai Bishop has lived at Starship Hospital for the past seven months, with his parents flying back and forth from Hokitika, 1100km away, to be by his side.

Life On Mars

It's men who need 'retraining', not women

We are all responsible for our own behaviour. Telling victims to harden up is wrong.

Baby Gammy's dad tries to claim charity money

The biological father of baby Gammy has reportedly tried to access charity money raised for the little boy's medical costs.

Where are the childcare places?

It?s all very well to encourage women to work if they choose to, but how can the measures lead to increased workforce participation when women are once again left holding the baby?

The pain of not having babies and not knowing why

After seven years of wishing, hoping, crying, punching pillows and shouting "why me?!", the end result is more than I ever thought possible.

Getting your family finances in order

Whether you're after a new car for a growing family, a bigger house, or are just fixing up your finances, here are the basics on borrowing.

Mum shares graphic selfie to warn against tanning

A mum has shared a graphic photo of her skin cancer treatment as a warning to others.

Does parenthood make us happier?

We can certainly gain higher levels of happiness when we become parents, but the trick is to not get overwhelmed by the pressures of raising our kids.

No, having a dog is not like having a human child

It's obvious these people dote on their pets, but they're barking up the wrong tree.

 

Top baby names

Baby Names

The numbers are in and we can now bring you the 2014 top baby name list for Australia.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.