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HELP! Severe silent reflux
9wo on losec and zantac- no relief


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#1 bula2008

Posted 28 November 2012 - 03:19 PM

My 9 week old DS has suffered from severe silent reflux since he was just 2 weeks old. He has been on Losec since 4 weeks and since 5 weeks has also been on Zantac and Pepti Junior formula as he would not drink more then 20ml at a time and would scream in pain for 18hrs every day. Since starting on medication he has started screaming less however is still in alot of pain for most of the day. He is still only drinking 60ml a feed every 3 or 4hrs. We have tried scheduled feeds but that only made it worse. He has not even put on800g since he was born (he is currently putting on only 20-40g per week). He has been in and out of hospital and seen every kind of specialist imaginable but noone has any ideas. The dietitian had given us a different ratio of formula to use, however they didnt cacate it right so he ended up on less.    
We have tried everything to get our paed to look at doing something to help him however he refuses to until he loses weight. It has started to effect his development an I do not want him to get any further behind in weight of developmentally.
Has anyone else had this issue or have any suggestions on what we can do. My husband and I are going insane!

#2 beastie

Posted 28 November 2012 - 03:23 PM

Have you tried giving him baby probotics?  My baby has thrush and reflux.  We started her on them at  around 4 weeks and within two days she was a different child. She is now 4 months and if I  miss a day or two her symptoms reappear.

#3 marnie27

Posted 28 November 2012 - 03:29 PM

Have you looked at whether there is any other underlying issues?

My DD had severe silent reflux and screamed for 16 hours a day until she was almost 4 months old.  It was maddening and very frustrating not be able to help her.  Part of the issue for her was also that she was also lactose intolerant and highly allergic to soy.  We really had to experiment with formulas to sort it out for her (my partner wasn't able to breastfeed due to medical issues).

Can you try a different formula?



#4 bula2008

Posted 28 November 2012 - 03:36 PM

Thanks for the replies.
Pepti junior is a prescription formula for babies with a milk protein intolerence and who are allergic to soy. He has improved since starting  on it but still  very bad. He has been tested for lactose intolerance and this is not the case.
I have looked into probiotics but no one I have discussed it with was aware of any that can be used for babies that young. I am heading back to the GP next week so will raise it again then- anything is worth a try!

#5 BeachedAsBro

Posted 28 November 2012 - 03:41 PM

Do you wear him? Granted my babies reflux wasn't as severe as your poor boys, but I fairly much wore her in my ergo carrier during her awake hours and she slept in my arms because I couldn't lie her flat.

I'm sorry no advice on FF, I BF my girl. I would be trying to arrange another paed though. I had to fight tooth and nail to get a diagnosis and she wasn't medicated until 16 weeks.

Best of luck with everything.

#6 tamietamara

Posted 28 November 2012 - 03:49 PM

My DD was the same and only ever improved when we gave her the presciption medication Zoton. It was a miracle cure!!! Half a tablet ever night (they are strawberry flavoured and dissolve in theire mouth - she loved them) and after two weeks she was pain free, started drinking happily and putting on weight etc. amazing! Zoton apparently stops them producing stomach acid and is not to be used after about 12 months when you wean them off it.  We did this and she is now fine without it. Good luck!

#7 Feral_Pooks

Posted 28 November 2012 - 04:03 PM

Can you see another paed for a second opinion? Waiting until weight loss is ridiculous. He is in distress (as are you!).

#8 eclare86

Posted 28 November 2012 - 05:38 PM

Hi, congratulations, you are doing so well! My little man only got diagnosed with silent reflux (not as bad as yours though) just a couple of weeks ago and it's been so hard..
One thing I found that has really helped has been chiropractory. Our little man was engaged for 5 weeks before being born and I noticed following birth that one side of his body didn't work as well as the other side (with feeding etc). It turned out that the affected side was involved in digestion too. I was very sceptical when my CHN mentioned to go and see a chiropracter, but it has helped so much! I would only go and see a chiro that is VERY experienced with children, I can't stress that enough...

Edited by eclare86, 28 November 2012 - 05:39 PM.


#9 sapphire_stone

Posted 28 November 2012 - 06:23 PM

We also had to deal with silent reflux and went to see a chiropractor that gave us some baby-biotics.  At the same time we also started Nexium (after being on Zantac and Losec previously) so I don't know if it was the Nexium, the chiropractor or just getting that little bit older (4 months) but we finally started getting some relief.  Wish you all the best!!

#10 Mum2TwoDSs

Posted 28 November 2012 - 07:01 PM

OP, I don't have any advice but this does sound really miserable for your little one and it's tough on you and your DH. I just want to send you a cyber hug and hope it will resolve soon.

#11 Lokum

Posted 28 November 2012 - 07:09 PM

QUOTE (bula2008 @ 28/11/2012, 04:36 PM)
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Thanks for the replies.
Pepti junior is a prescription formula for babies with a milk protein intolerence and who are allergic to soy. He has improved since starting  on it but still  very bad. He has been tested for lactose intolerance and this is not the case.
I have looked into probiotics but no one I have discussed it with was aware of any that can be used for babies that young. I am heading back to the GP next week so will raise it again then- anything is worth a try!


Ask about trying neocate ? Worked for someone i know with multiple protein intolerance, after having limited success with pepti junior.

Also ask for a referral to a specialist gastro enterologist paed, and maybe also an allergist paed - the wait could be long so push for the referral now.
Sorry your LO is struggling. Waiting for weight loss is crap, when he must be just about FTT already.

#12 LovenFire

Posted 28 November 2012 - 07:35 PM

A few babies that I know of who have had truly bad reflux I have improved after neocate and also chiropractic intervention.  I don't have a babe with reflux, but this is what I have heard.  Hope it helps.

And go to a new paed - why wait till he starts losing weight ffs, he's miserable and so are you! And if he is losing weight, you have so much more work to do as well.

#13 babyadvocate

Posted 28 November 2012 - 11:05 PM

Sounds like most of the other Mums have the medical side covered and I don't have anything to add as my DD (now 7yo)  wasn't that bad...

My suggestion is more practical. I used a bed wedge under her cot mattress with a strap called a Safe T Sleep to position her. That way she wasn't flat on her back which made her reflux worse of course, and she had minimal movement.

If you are in Melbourne I can lend you our bed wedge as we still have it. PM me if you are interested.

Hope you baby gets better soon and you all get some sleep.


#14 VJs Mummy

Posted 29 November 2012 - 09:41 PM

Have pmed you op

#15 April girl

Posted 29 November 2012 - 10:02 PM

QUOTE (sapphire_stone @ 28/11/2012, 07:23 PM) <{POST_SNAPBACK}>
We also had to deal with silent reflux and went to see a chiropractor that gave us some baby-biotics.  At the same time we also started Nexium (after being on Zantac and Losec previously) so I don't know if it was the Nexium, the chiropractor or just getting that little bit older (4 months) but we finally started getting some relief.  Wish you all the best!!


Four months was the magic point for us too. OP my little guy would scream 17 hours a day and it was just horrible. Zantac did nothing for us Losec worked slightly better but not really. At about three months I took him to an osteopath. At the same time despite bf approx 10 times a day my period returned and he refused to feed. Finally after 2 days he took a bottle but wouldn't take expressed milk. I also started rice cereal at 3 mth and one week. So like pp I'm not really sure whether it was one thing or a combination of many. I just want to wish you the best and to say that this is no indication of your child's personality. I was scared I'd given birth to the worlds angriest short man!

#16 MummyKylie

Posted 02 December 2012 - 05:18 PM

My DS, now 3 and a half months, was the same and not gaining much weight (was only gaining because I was refeeding after most feeds had been vomited), my paediatrician even said that it's babies like my DS that fall through the gaps because they are gaining some weight. He is much improved now, I'm BF but we gave thickener in EBM before each feed, held him upright (love the ERGO!) after his feeds for sleep and have a towel rolled up under the head of his mattress. We stopped thickener as he got constipated but started on Losec. It's a shame that isn't working for your bubba sad.gif
I would be getting a referral to another paediatrician for a second opinion (you are entitled to it!) and asking for a further referral to a paediatric gastroenterologist.
In the meantime, I would try feeding upright if possible, day sleeping in a carrier, putting the head of the bed up. Ask your GP about using Mylanta as well.
I hope you have some luck! original.gif




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