Jump to content

HELP! Severe silent reflux
9wo on losec and zantac- no relief


  • Please log in to reply
15 replies to this topic

#1 bula2008

Posted 28 November 2012 - 03:19 PM

My 9 week old DS has suffered from severe silent reflux since he was just 2 weeks old. He has been on Losec since 4 weeks and since 5 weeks has also been on Zantac and Pepti Junior formula as he would not drink more then 20ml at a time and would scream in pain for 18hrs every day. Since starting on medication he has started screaming less however is still in alot of pain for most of the day. He is still only drinking 60ml a feed every 3 or 4hrs. We have tried scheduled feeds but that only made it worse. He has not even put on800g since he was born (he is currently putting on only 20-40g per week). He has been in and out of hospital and seen every kind of specialist imaginable but noone has any ideas. The dietitian had given us a different ratio of formula to use, however they didnt cacate it right so he ended up on less.    
We have tried everything to get our paed to look at doing something to help him however he refuses to until he loses weight. It has started to effect his development an I do not want him to get any further behind in weight of developmentally.
Has anyone else had this issue or have any suggestions on what we can do. My husband and I are going insane!

#2 beastie

Posted 28 November 2012 - 03:23 PM

Have you tried giving him baby probotics?  My baby has thrush and reflux.  We started her on them at  around 4 weeks and within two days she was a different child. She is now 4 months and if I  miss a day or two her symptoms reappear.

#3 marnie27

Posted 28 November 2012 - 03:29 PM

Have you looked at whether there is any other underlying issues?

My DD had severe silent reflux and screamed for 16 hours a day until she was almost 4 months old.  It was maddening and very frustrating not be able to help her.  Part of the issue for her was also that she was also lactose intolerant and highly allergic to soy.  We really had to experiment with formulas to sort it out for her (my partner wasn't able to breastfeed due to medical issues).

Can you try a different formula?



#4 bula2008

Posted 28 November 2012 - 03:36 PM

Thanks for the replies.
Pepti junior is a prescription formula for babies with a milk protein intolerence and who are allergic to soy. He has improved since starting  on it but still  very bad. He has been tested for lactose intolerance and this is not the case.
I have looked into probiotics but no one I have discussed it with was aware of any that can be used for babies that young. I am heading back to the GP next week so will raise it again then- anything is worth a try!

#5 BeachedAsBro

Posted 28 November 2012 - 03:41 PM

Do you wear him? Granted my babies reflux wasn't as severe as your poor boys, but I fairly much wore her in my ergo carrier during her awake hours and she slept in my arms because I couldn't lie her flat.

I'm sorry no advice on FF, I BF my girl. I would be trying to arrange another paed though. I had to fight tooth and nail to get a diagnosis and she wasn't medicated until 16 weeks.

Best of luck with everything.

#6 tamietamara

Posted 28 November 2012 - 03:49 PM

My DD was the same and only ever improved when we gave her the presciption medication Zoton. It was a miracle cure!!! Half a tablet ever night (they are strawberry flavoured and dissolve in theire mouth - she loved them) and after two weeks she was pain free, started drinking happily and putting on weight etc. amazing! Zoton apparently stops them producing stomach acid and is not to be used after about 12 months when you wean them off it.  We did this and she is now fine without it. Good luck!

#7 Feral_Pooks

Posted 28 November 2012 - 04:03 PM

Can you see another paed for a second opinion? Waiting until weight loss is ridiculous. He is in distress (as are you!).

#8 eclare86

Posted 28 November 2012 - 05:38 PM

Hi, congratulations, you are doing so well! My little man only got diagnosed with silent reflux (not as bad as yours though) just a couple of weeks ago and it's been so hard..
One thing I found that has really helped has been chiropractory. Our little man was engaged for 5 weeks before being born and I noticed following birth that one side of his body didn't work as well as the other side (with feeding etc). It turned out that the affected side was involved in digestion too. I was very sceptical when my CHN mentioned to go and see a chiropracter, but it has helped so much! I would only go and see a chiro that is VERY experienced with children, I can't stress that enough...

Edited by eclare86, 28 November 2012 - 05:39 PM.


#9 sapphire_stone

Posted 28 November 2012 - 06:23 PM

We also had to deal with silent reflux and went to see a chiropractor that gave us some baby-biotics.  At the same time we also started Nexium (after being on Zantac and Losec previously) so I don't know if it was the Nexium, the chiropractor or just getting that little bit older (4 months) but we finally started getting some relief.  Wish you all the best!!

#10 Mum2TwoDSs

Posted 28 November 2012 - 07:01 PM

OP, I don't have any advice but this does sound really miserable for your little one and it's tough on you and your DH. I just want to send you a cyber hug and hope it will resolve soon.

#11 Lokum

Posted 28 November 2012 - 07:09 PM

QUOTE (bula2008 @ 28/11/2012, 04:36 PM)
15115054[/url]']
Thanks for the replies.
Pepti junior is a prescription formula for babies with a milk protein intolerence and who are allergic to soy. He has improved since starting  on it but still  very bad. He has been tested for lactose intolerance and this is not the case.
I have looked into probiotics but no one I have discussed it with was aware of any that can be used for babies that young. I am heading back to the GP next week so will raise it again then- anything is worth a try!


Ask about trying neocate ? Worked for someone i know with multiple protein intolerance, after having limited success with pepti junior.

Also ask for a referral to a specialist gastro enterologist paed, and maybe also an allergist paed - the wait could be long so push for the referral now.
Sorry your LO is struggling. Waiting for weight loss is crap, when he must be just about FTT already.

#12 LovenFire

Posted 28 November 2012 - 07:35 PM

A few babies that I know of who have had truly bad reflux I have improved after neocate and also chiropractic intervention.  I don't have a babe with reflux, but this is what I have heard.  Hope it helps.

And go to a new paed - why wait till he starts losing weight ffs, he's miserable and so are you! And if he is losing weight, you have so much more work to do as well.

#13 babyadvocate

Posted 28 November 2012 - 11:05 PM

Sounds like most of the other Mums have the medical side covered and I don't have anything to add as my DD (now 7yo)  wasn't that bad...

My suggestion is more practical. I used a bed wedge under her cot mattress with a strap called a Safe T Sleep to position her. That way she wasn't flat on her back which made her reflux worse of course, and she had minimal movement.

If you are in Melbourne I can lend you our bed wedge as we still have it. PM me if you are interested.

Hope you baby gets better soon and you all get some sleep.


#14 VJs Mummy

Posted 29 November 2012 - 09:41 PM

Have pmed you op

#15 April girl

Posted 29 November 2012 - 10:02 PM

QUOTE (sapphire_stone @ 28/11/2012, 07:23 PM) <{POST_SNAPBACK}>
We also had to deal with silent reflux and went to see a chiropractor that gave us some baby-biotics.  At the same time we also started Nexium (after being on Zantac and Losec previously) so I don't know if it was the Nexium, the chiropractor or just getting that little bit older (4 months) but we finally started getting some relief.  Wish you all the best!!


Four months was the magic point for us too. OP my little guy would scream 17 hours a day and it was just horrible. Zantac did nothing for us Losec worked slightly better but not really. At about three months I took him to an osteopath. At the same time despite bf approx 10 times a day my period returned and he refused to feed. Finally after 2 days he took a bottle but wouldn't take expressed milk. I also started rice cereal at 3 mth and one week. So like pp I'm not really sure whether it was one thing or a combination of many. I just want to wish you the best and to say that this is no indication of your child's personality. I was scared I'd given birth to the worlds angriest short man!

#16 MummyKylie

Posted 02 December 2012 - 05:18 PM

My DS, now 3 and a half months, was the same and not gaining much weight (was only gaining because I was refeeding after most feeds had been vomited), my paediatrician even said that it's babies like my DS that fall through the gaps because they are gaining some weight. He is much improved now, I'm BF but we gave thickener in EBM before each feed, held him upright (love the ERGO!) after his feeds for sleep and have a towel rolled up under the head of his mattress. We stopped thickener as he got constipated but started on Losec. It's a shame that isn't working for your bubba sad.gif
I would be getting a referral to another paediatrician for a second opinion (you are entitled to it!) and asking for a further referral to a paediatric gastroenterologist.
In the meantime, I would try feeding upright if possible, day sleeping in a carrier, putting the head of the bed up. Ask your GP about using Mylanta as well.
I hope you have some luck! original.gif




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

A mum's tragic battle against inflammatory breast cancer

At just 37 years of age, with two young sons, Vicki was diagnosed with inflammatory breast cancer. Now her family wants all women to know the symptoms.

The business of babies around the world

Pregnancy and birth is an intriguing process no matter where you are in the world. One soon-to-be father gleans wisdom from a new guide.

Finding a positive path through IVF

It’s not surprising that IVF is often seen as a negative journey towards the ultimate positive, but having a glass-half-full approach can make a big difference to the experience.

Giving strangers the gift of parenthood

A mum explains why she and her husband are choosing to gift their leftover embryos to help strangers achieve their dream of parenthood.

Does morning sickness get better or worse with each child?

Just as every baby is unique, so is every pregnancy. And that means morning sickness can vary a lot, too.

What's so wrong with looking 'mumsy', anyway?

Why is it that the word ‘mumsy’ has connotations of such a negative nature – but seems to be the only other option apart from ‘yummy’?

Trying to speed up the inevitable

As the waiting game of late pregnancy continues, this mum considers a few things that might hurry things up a little.

One month later: where is William Tyrell?

It has been a little over a month since William Tyrell disappeared from his grandmother's home, 33 long sleepless nights for his family as they mourn the absence of their cheeky young boy.

Winter's child less likely to be moody: study

Babies born in the summer are much more likely to suffer from mood swings when they grow up, while those born in the winter are less likely to become irritable adults, scientists claim.

Single mum of two creates award-winning baby app

Suddenly single with a baby and an 11-year-old son, Tara O?Connell developed an app to improve the lives of mothers who were similarly overwhelmed.

Food for thought: looking after yourself as a new mum

As soon as your baby enters the world, everything else takes a back seat - even the necessities of daily life such as eating are severely compromised, right when you need energy the most.

'Grabbable guts' campaign aims to cut toxic fat

The Live Lighter campaign will take people inside the human body to show the internal dangers of being overweight.

The best and worst month of my life

A new mum's first month of motherhood didn't pan out as expected when she lost a family member weeks after her baby's birth.

Facebook and Apple offer to pay female staff to freeze their eggs

Facebook and Apple are hoping to provide women with the freedom to build their careers without the added pressure of having children at or by a certain age.

How a pregnancy contract could work for you and your partner

The idea of making a 'pregnancy contract' with your partner may sound a bit silly at first, but it can help make the transition to parenthood a lot smoother.

Finding a mum-friendly personal trainer

Burping babies vs burpees – yes, new mums and personal trainers live in different worlds. But they can work together - once you find the right match for you and your lifestyle.

Alleged baby snatch incident a ?misunderstanding?, say police

Police say that an incident in which a man pulled on a woman?s pram while walking a popular Sydney route late last month was a misunderstanding.

Ebola killed my aunt and is shutting down my country

Three weeks ago, my auntie, a midwife, developed a fever. Sitting here in Sydney basked in Australian sunshine, that shouldn't be big news.

The night my ovary burst

One mum shares her frightening experience and vows to never take her health for granted again.

Download now: Essential Kids Activity Finder app

Got bored kids? Quickly find the best activities for kids wherever you are in Australia with the Essential Kids app.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Win 1 of 5 Canon Powershot D30 cameras

Capture life more easily with the Canon Powershot D30. Shockproof, waterproof and dustproof, you can take it almost anywhere and shoot beautiful images, time after time. Enter now!

16 parenting truths you won't find in the baby books

I am five years into this parenting gig and I’ve learnt that sleepless nights and changing dirty nappies are child’s play.

Best and worst potty party cakes

It's nice to celebrate a child making the shift from nappies to 'big kid' undies, but do we really need a semi-realistic used toilet cake to do it? Here are some of the best and worst cakes parents have used at 'potty parties' around the world.

7 tips for a financially festive Christmas

Plan ahead - and do it now - to ensure festive season expenses don't break the bank.

'Go the F*** to Sleep' author's new book for frustrated parents

A sequel is coming soon to the 2011 hit book 'Go the F*** to Sleep' - and this time, it's about mealtimes.

Great birthday party buys from Etsy

Handmade crafts to decorate and personalise your child's next birthday - from banners to cake decorations, we've got gorgeous party finds from Etsy.

Creative storage ideas for the kids' rooms

Creative and practical storage ideas for the kids' toys and books can also add some stylish decor to your home. Visit babyology.com.au for more stylish modern finds for hip kids & parents.

The 'yucky' illness that took over my life

I have a chronic illness nobody likes to discuss, as it involves toilet talk. But it needs to be talked about.

To the mum in the doctor's waiting room

Maybe the mum I saw in that waiting room, seemingly disconnected from her baby, doesn’t have the support she needs.

10 space-saving nursery ideas

Starting a family doesn't always mean moving into a bigger house - not yet, anyway.

 

What's in a name?

Baby Names

Looking for a classic name, or an unusual name? Our Baby Name Finder is for you, search or browse to refine your shortlist.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.