Jump to content

Help!
I don't know where to start!


  • Please log in to reply
15 replies to this topic

#1 Fastrunnydog

Posted 24 November 2012 - 07:26 PM

My 3 yr old saw a naturopath today specialising in testing for allergies and food intolerance.  He has had poos issues for months (lurching from constipation to diarrhea) and escalating behavioural issues too.  He is already confirmed allergic to egg and cashews and was given an epi-pen even though he hasn't had an ANA reaction.

Today we were told that he is allergic to

Gluten
Cow dairy
Fructose

and a host of other preservatives and chemicals.

I don't know where to start, what CAN he eat??  I am looking on a website to order some specialty GF foods just to stock up for while until I work out a diet plan for him but I have to check that each product is also free from egg, fructose, and dairy!  I will deal with the preservatives later, right now I just need to get his poo under control with the GF DF and FF diet.

I am a bit overwhelmed :-(

#2 jmaz86

Posted 24 November 2012 - 08:35 PM

Have you thought about going to a dietitian who deals with food allergies, or perhaps your pediatrician could give some assistance.

#3 follies

Posted 24 November 2012 - 08:43 PM

Out of interest how did the naturopath test for the allergies?

#4 amabanana

Posted 24 November 2012 - 08:46 PM

I think it is pretty standard when you go to a naturopath for them to say stop eating dairy/gluten/fructose.  Unless he's had a medical test (biopsy/elimination diet for example) for allergies/intolerances to these things I have to say I would be pretty skeptical to be honest.  I'm all for alternative therapies but in your case I would be seeing an allergist before a naturopath. But that's just my opinion.

Good luck.

#5 Feralmummacat

Posted 24 November 2012 - 09:17 PM

OP

Here is a link from the Australasian Society of Clinical Immunology and Allergy on alternate allergy testing, please have a read of it before placing your child on what is a very restrictive diet. I second PP to seek the advice of a dietician and a allergist/immunologist.

http://www.allergy.org.au/health-professio...g-and-treatment

It is my understanding that there is no such thing as an allergy to gluten, it is an intolerance. Additionally, there is no test for gluten intolerance, you can be tested for coeliac disease but a naturopath can not do that.

If the naturopath is saying your child is allergic to gluten this would be ringing alarm bells for me.

#6 Guest_~Songbird~_*

Posted 25 November 2012 - 02:26 PM

Naturopaths are not qualified to test for allergies. Also what you have described are actually intolerances.

#7 ms flib

Posted 25 November 2012 - 02:46 PM

Just think very carefully about what you do next. He will be on a very restrictive diet which could cause other health problems. I would be seeking further medical advice.

These things could be the problems but I'd also be concerned about growth and brain development at his age. Maybe just try removing one thing at a time rather than all at once.

Good luck!

#8 BabeBlossom

Posted 25 November 2012 - 03:00 PM

My DD is intolerant to gluten, dairy and we are currently trialling low fructose.
We originally saw a naturopath that specialises in allergies after a dodgy pediatric allergist wasn't any help. She gave us some tips and advice and ordered tests. Before putting my child through more blood tests I researched the tests and decided I wasn't confident they were conclusive enough to use as a diagnosis so didn't do them.
Instead we found a really good gastro allergist at our major children's hospital and haven't looked back. We have seen 2 dieticians and stayed in contact when we have had to make subsequent dietary adjustments.
I would not undertake attempting the dietary restrictions you are speaking of without the guidance of a good allergist or dietician as there are so many implications and quite frankly it sucks, for the parents and the child.

#9 Acidulous Osprey

Posted 25 November 2012 - 03:09 PM

We had a very similar diet recommended by a medical allergist, and gastro after skin prick testing and elimination diet.  We saw a leading dietician who specialises in elimination diets and she said the diet was utterly impossible longterm and she felt it was impractical for even a month.

There is no freaking way I would take all of that out based on a naturopathic consult without proper testing.

With those symptoms has anyone checked him out for encopresis?

#10 30bt

Posted 25 November 2012 - 10:59 PM

Another who agrees with above posts- do not listen to naturopath ! Go and see your immunologist again!

#11 Fastrunnydog

Posted 26 November 2012 - 06:47 AM

Thanks for the replies.  I am in despair over what to feed him. I get the Naturopath could be talking through a hole in his hat, but who do I trust?  He's had skin prick tests with a 'leading'  allergy clinic, I did ask about Gluten etc then and they said the only way to tell was through an elimination diet.

My GP has no idea.  All the hospitals have a long wait to see paeds.  I am going on word of mouth for naturopaths etc.   I thought a paediatric dietican but apparently even they can be dodgy?

I just want to help him stop feeling like crap, literally.

#12 Feralmummacat

Posted 26 November 2012 - 09:36 AM

OP

See if you can get a referral to a pead gastroenterologist. I know the waits can be long but call up and be prepared to go on the standby list.

A very restrictive diet my harm your child and even prevent the correct diagnosis. For example coeliac disease if you place your child on a gluten free diet before testing you will need to wait until you reintroduce gluten for 6 weeks to start testing.

It is true that the only way to determine gluten intolerance is to go on a gluten free diet and see if symptoms improve. This is not recommended until the person/child has been fully tested for coeliac disease though.

You could talk to your GP about starting the testing for coeliac while waiting for a gastroenterologist appointment. This will involve a blood test first off that the GP can order for coeliac serology, the coeliac gene and they normally add iron. Here is a link to the coeliac society.

http://www.coeliac.org.au/coeliac-disease/diagnosis.html

I am not saying your child has coeliac disease but if you want to go down the gluten free diet path it is best to rule it in or out first.

I hope you get some medical help and your LO gets better quickly.

#13 FeralZombieMum

Posted 26 November 2012 - 11:47 AM

QUOTE (Fastrunnydog @ 26/11/2012, 07:47 AM) <{POST_SNAPBACK}>
I did ask about Gluten etc then and they said the only way to tell was through an elimination diet.

If they didn't mention having the Coeliac screening blood test, then I would be asking the naturopath to refund your money, because they are clearly lacking in the knowledge and expertise and have given you misleading advice.

Can I ask what "tests" they did on the day to determine if your child had issues with those foods?

Unfortunately there are some dodgy naturopaths out there but there are also some brilliant ones. We took DD1 to see one many years ago, and the first thing she mentioned was gluten - but she insisted we go to our GP for the screening blood test before she'd 'treat' our DD - as she wanted to make sure that Coeliac disease was ruled out.

I would be taking your child back to the GP and ask for the coeliac screening blood test. Doesn't hurt for them to test for iron as well (this tends to be low in those with Coeliac disease).
Your GP can also order tests on a stool sample.

I would then ask the GP for a referral to a dietician - as they are more qualified to help you work out food issues, rather than a naturopath.

Also ask for a referral to a paed gastro.

#14 shatavari

Posted 30 November 2012 - 10:35 AM

Hi OP,
If you want to continue on with your Naturopath, can I suggest you follow up with him asap. Those food groups you mention (gluten, fructose, dairy, preservatives...) all encompass so many foods that it is not surprising you are confused. In addition to the diagnosed allergies you mention perhaps starting with one group eg.cow's milk dairy free, would be a way forward. Did he say to actually cut out all of those groups at the same time and right away?
Best of luck.




#15 beccaj

Posted 30 November 2012 - 10:52 AM

The naturopath - did they order blood tests or stool tests? A naturopath can order the same allergy tests through path labs that your GP can - and should refer you to a GP for a  test for something like coeliacs before removing gluten from the diet.

The naturopath should also have given you a very detailed list of what your child can eat how you can make these changes within your current diet etc, not good enough if they sent you away to do your own research.

You mentioned you have already had skin prick testing done - did those result mirror the recent testing? or have you now got different results?





#16 eri

Posted 03 December 2012 - 09:48 PM

i am intolerant to 16 foodstuffs. i went to gasto drs, dietician, gps,and finally found a naturopath that ordered and igG bloodtest. Found my 16 foods just like that after 4years of trying elimination diets(im intolerant to pears and egg white which are fine to eat during the failsafe elimination diet....no wonder the elimination diet didn't work), coeliac tests(i'm intolerant to wheat, rye and barley all in which contain gluten however i can have spelt and oats which contain gluten ...so i'm not a coeliac), bloodtest, flu misdiagnosis(that was really helpful...NOT mad.gif ), allergy test that weirdly only tested for animal hairs etc wacko.gif .
I like a doctor who listens. if you like the doctor/naturopath and trust them, listen to them. then do your own research and put two and two together. you are the only one who knows your son as well as he does. You will find the answer. just keep going it takes time and a lot of hit and misses and alot of research. i still stuff up eating something packaged thinking its ok them read the fineprint etc. It takes alot of home cooking but there is plenty of info, fresh food out there and food substitutes. If your not sure of a foodstuffs ingredients don't let him eat it, email the company and ask them stating his allergies and they will let you know whats in the product, for example im dairy intolerant however i am also canola intolerant and nuttalex doesnt contain dairy but all of them except the kosher nuttalex contain canola, it doen't say canola oil on the ingredients list of the others it says vegetable oils. so it always helps to ask. Remember cutting out the foods that cause him problems wont hurt only eating them will. Eggs may be a great source of protein etc but not so great if they give him bad reactions.
Good luck bbighug.gif

Edited by eri, 03 December 2012 - 09:54 PM.





1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

Special Ticket Offer, Save $8!

The Essential Baby & Toddler Show is back this April! Save $8 off the door price for a limited time only!

Why I breastfed my son until he was three

The fact that I not only breastfed my son, but breastfed him for three and a half years, seems pretty incredible in retrospect.

Do babies and young children see ghosts?

Do babies and young children see ghosts? If you’ve pondered the question, you’re not alone.

15 years with Essential Baby: meet Therese

"Life has a funny way of giving you what you need when you need it the most."

Mum causes a stir by taking a stand against leggings

A mum has found herself the subject of debate after claiming tight bottoms cause lustful thoughts in men.

Don't set a parenting goal for 2015 - do this instead

The problem with goal setting as a parent is the measure. How do we really know if we’re succeeding?

5 pregnancy myths that just won't go away

When you're expecting, it often seems like everyone is keen to offer advice about what you should and shouldn't do in the interests of your health and wellbeing.

RPA hospital contacting mums after discovering vaccine storage fault

Sydney's Royal Prince Alfred Hospital (RPA) is trying to contact women who had babies at the facility after discovering a fault in a refrigerator containing vaccines.

'Nutella' not a baby name, French court says

A French court has blocked parents from naming their baby girl after the hazelnut spread Nutella, arguing it would make her the target of mockery.

Why I'm never calling myself 'just a mum' again

I’ve grown three human beings. I feed them, dress them, teach them, care for them and love them 24 hours a day. Yet for eight years, when I meet new people and they’ve asked me what I do, I tell them: “I’m just a mum”.

Rosie Batty named 2015 Australian of the Year

One year ago, Rosie Batty could not have imagined she'd be where she is. Tonight the grieving mum who put domestic violence on the national agenda was named Australian of the Year.

Five reasons to hug more

Hugging – some of us thrive on it, even depend on it – and then there are those who don't care for it really. So, are they missing out?

Help - my three-year-old has started throwing tantrums

My daughter never went through the "terrible twos" but began throwing wild tantrums shortly after her third birthday.

That's commitment

First peek at Sonia Kruger's daughter Maggie

"She smells so good, I could eat her," Kruger tells co-host David Campbell.

Mum assists in own caesarean surgery

A mum who partly delivered her own twins during a caesarean has encouraged other women to take control of their birthing experience.

How to handle common childhood regressions

Regression can be a natural and common part of development prompted by a variety of factors, but that doesn't make it less frustrating.

Disgruntled dad's pram ad goes viral

When buying a second hand pram, there are lots of things to take into consideration. 

Man discovers he's a dad after finding 55-year-old letter

Discovering you are about to father a baby is startling enough - never mind finding out you have a 61-year-old son.

15 thoughts mums have during a tantrum

Ranging from mild to feral and triggered by events both minor and major, tantrums certainly keep life interesting.

Natural pain relief in the early stages of labour

While managing labour pains on your own can be daunting, there are a number of natural pain relief options to help you cope until you are admitted to hospital.

Win an Octonauts prize pack

To celebrate the launch of Octonauts Live! Operation Reef Shield, a spectacular underwater adventure live on stage, we are giving away an amazing Octonauts prize pack to one lucky fan.

Download now: Essential Kids Activity Finder app

Got bored kids? Quickly find the best activities for kids wherever you are in Australia with the Essential Kids app.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Forgotten Baby Syndrome claims the life of toddler

One baby dies every eight days in the back of a car in the US, victims of 'forgotten baby syndrome'.

For a brief time, I was touched by an angel

For a brief time, I was touched by an angel. You stole my heart, and changed me into the women I am today.

Chinese woman gives birth to quintuplets

After six years of trying for a baby, a couple’s dreams have come true many times over after the mum gave birth to quintuplets this week.

Chrissie Swan has reached her "sex quota"

Chrissie Swan says she and her partner have sex once a year due to her fear of falling pregnant.

Stars help save choking babies

It's an important lesson to learn, but one that busy new mums and dads might overlook until it's too late.

New Girl star Zooey Deschanel pregnant

Actress Zooey Deschanel is expecting her first child with her producer boyfriend Jacob Pechenik.

16 times 'dad reflexes' saved the day

Of course, in some cases they may be the ones who actually got their child into a precarious position in the first place, but we'll ignore that for now.

Couple's 'non-traditional' pregnancy announcement goes viral

Knowing you are not the father of your pregnant wife's baby would usually indicate a rocky relationship ahead for traditional parents.

The trials and tribulations of identical triplet newborns

Pip Donnelly is still playing spot the difference with her newborn identical triplets, Isabelle, Georgina and Frankie.

Win an Octonauts prize pack

To celebrate the launch of Octonauts Live! Operation Reef Shield, a spectacular underwater adventure live on stage, we are giving away an amazing Octonauts prize pack to one lucky fan.

Earthquake baby thriving five years on

Jenny Alexis is lucky to be alive after spending four days buried in the rubble of the 2010 Haitian earthquake, but now she's a thriving five year old.

Please don't say I'm lucky because I was adopted

On the one hand I was having a regular life with friends and sports and sleepovers and school. But I was also always wondering: Did my mother love me? What was wrong with me?

An open letter to non-parents who offer advice on child-rearing

Kitty, when you’re the parent of my child you’re welcome to wade in with an opinion – but until then, I’d prefer you to have a supportive ear and a glass of wine ready.

Couple arrested over baby gun video

A US couple faces charges after investigators say they found mobile phone videos showing the woman's 12-month-old daughter putting a handgun in her mouth.

NSW Health dumps 10-year limit on frozen embryos

A 10-year time limit on storing frozen embryos that were created with donor sperm has been dropped by the NSW government.

How my happy-go-lucky husband became a monster

Sharan Nicholson-Rogers watched her husband change from a happy-go-lucky police officer into an unpredictable man prone to violent and emotional outbursts.

Dads-to-be experience hormonal changes, too

Dads-to-be experience hormonal changes in line with their pregnant partners, a new study shows.

'They were just doing their job': mum of toddler killed in police chase gone wrong

"They were just doing their job. I feel so sorry for them. It is all just too sad."

Miscarriages to be formally recognised by NSW government

Women who miscarry will be able to obtain an optional "recognition of loss" certificate as a formal recognition of their often heartbreaking loss.

Cafe cubby house 'too noisy' for neighbours

Teenage parties, domestic disputes, or raucous late night pubs are the things that usually come to mind when you think neighbourhood noise complaints.

Dad films baby playing with snake

Most parents would not consider a snake an appropriate playmate for their baby, but a US dad who filmed his daughter playing with a python has defended himself against criticism.

Clever breastfeeding products

Check out this range of products designed to help make your breastfeeding journey more enjoyable, manageable and convenient.

 

Back to School Offer

Findababysitter.com.au

We've got you covered for this school year. Use www.findababysitter.com.au to meet local nannies now.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.