Jump to content

Help!
I don't know where to start!


  • Please log in to reply
15 replies to this topic

#1 Fastrunnydog

Posted 24 November 2012 - 07:26 PM

My 3 yr old saw a naturopath today specialising in testing for allergies and food intolerance.  He has had poos issues for months (lurching from constipation to diarrhea) and escalating behavioural issues too.  He is already confirmed allergic to egg and cashews and was given an epi-pen even though he hasn't had an ANA reaction.

Today we were told that he is allergic to

Gluten
Cow dairy
Fructose

and a host of other preservatives and chemicals.

I don't know where to start, what CAN he eat??  I am looking on a website to order some specialty GF foods just to stock up for while until I work out a diet plan for him but I have to check that each product is also free from egg, fructose, and dairy!  I will deal with the preservatives later, right now I just need to get his poo under control with the GF DF and FF diet.

I am a bit overwhelmed :-(

#2 jmaz86

Posted 24 November 2012 - 08:35 PM

Have you thought about going to a dietitian who deals with food allergies, or perhaps your pediatrician could give some assistance.

#3 follies

Posted 24 November 2012 - 08:43 PM

Out of interest how did the naturopath test for the allergies?

#4 amabanana

Posted 24 November 2012 - 08:46 PM

I think it is pretty standard when you go to a naturopath for them to say stop eating dairy/gluten/fructose.  Unless he's had a medical test (biopsy/elimination diet for example) for allergies/intolerances to these things I have to say I would be pretty skeptical to be honest.  I'm all for alternative therapies but in your case I would be seeing an allergist before a naturopath. But that's just my opinion.

Good luck.

#5 Feralmummacat

Posted 24 November 2012 - 09:17 PM

OP

Here is a link from the Australasian Society of Clinical Immunology and Allergy on alternate allergy testing, please have a read of it before placing your child on what is a very restrictive diet. I second PP to seek the advice of a dietician and a allergist/immunologist.

http://www.allergy.org.au/health-professio...g-and-treatment

It is my understanding that there is no such thing as an allergy to gluten, it is an intolerance. Additionally, there is no test for gluten intolerance, you can be tested for coeliac disease but a naturopath can not do that.

If the naturopath is saying your child is allergic to gluten this would be ringing alarm bells for me.

#6 Guest_~Songbird~_*

Posted 25 November 2012 - 02:26 PM

Naturopaths are not qualified to test for allergies. Also what you have described are actually intolerances.

#7 ms flib

Posted 25 November 2012 - 02:46 PM

Just think very carefully about what you do next. He will be on a very restrictive diet which could cause other health problems. I would be seeking further medical advice.

These things could be the problems but I'd also be concerned about growth and brain development at his age. Maybe just try removing one thing at a time rather than all at once.

Good luck!

#8 BabeBlossom

Posted 25 November 2012 - 03:00 PM

My DD is intolerant to gluten, dairy and we are currently trialling low fructose.
We originally saw a naturopath that specialises in allergies after a dodgy pediatric allergist wasn't any help. She gave us some tips and advice and ordered tests. Before putting my child through more blood tests I researched the tests and decided I wasn't confident they were conclusive enough to use as a diagnosis so didn't do them.
Instead we found a really good gastro allergist at our major children's hospital and haven't looked back. We have seen 2 dieticians and stayed in contact when we have had to make subsequent dietary adjustments.
I would not undertake attempting the dietary restrictions you are speaking of without the guidance of a good allergist or dietician as there are so many implications and quite frankly it sucks, for the parents and the child.

#9 sad small umbrella

Posted 25 November 2012 - 03:09 PM

We had a very similar diet recommended by a medical allergist, and gastro after skin prick testing and elimination diet.  We saw a leading dietician who specialises in elimination diets and she said the diet was utterly impossible longterm and she felt it was impractical for even a month.

There is no freaking way I would take all of that out based on a naturopathic consult without proper testing.

With those symptoms has anyone checked him out for encopresis?

#10 30bt

Posted 25 November 2012 - 10:59 PM

Another who agrees with above posts- do not listen to naturopath ! Go and see your immunologist again!

#11 Fastrunnydog

Posted 26 November 2012 - 06:47 AM

Thanks for the replies.  I am in despair over what to feed him. I get the Naturopath could be talking through a hole in his hat, but who do I trust?  He's had skin prick tests with a 'leading'  allergy clinic, I did ask about Gluten etc then and they said the only way to tell was through an elimination diet.

My GP has no idea.  All the hospitals have a long wait to see paeds.  I am going on word of mouth for naturopaths etc.   I thought a paediatric dietican but apparently even they can be dodgy?

I just want to help him stop feeling like crap, literally.

#12 Feralmummacat

Posted 26 November 2012 - 09:36 AM

OP

See if you can get a referral to a pead gastroenterologist. I know the waits can be long but call up and be prepared to go on the standby list.

A very restrictive diet my harm your child and even prevent the correct diagnosis. For example coeliac disease if you place your child on a gluten free diet before testing you will need to wait until you reintroduce gluten for 6 weeks to start testing.

It is true that the only way to determine gluten intolerance is to go on a gluten free diet and see if symptoms improve. This is not recommended until the person/child has been fully tested for coeliac disease though.

You could talk to your GP about starting the testing for coeliac while waiting for a gastroenterologist appointment. This will involve a blood test first off that the GP can order for coeliac serology, the coeliac gene and they normally add iron. Here is a link to the coeliac society.

http://www.coeliac.org.au/coeliac-disease/diagnosis.html

I am not saying your child has coeliac disease but if you want to go down the gluten free diet path it is best to rule it in or out first.

I hope you get some medical help and your LO gets better quickly.

#13 FeralZombieMum

Posted 26 November 2012 - 11:47 AM

QUOTE (Fastrunnydog @ 26/11/2012, 07:47 AM) <{POST_SNAPBACK}>
I did ask about Gluten etc then and they said the only way to tell was through an elimination diet.

If they didn't mention having the Coeliac screening blood test, then I would be asking the naturopath to refund your money, because they are clearly lacking in the knowledge and expertise and have given you misleading advice.

Can I ask what "tests" they did on the day to determine if your child had issues with those foods?

Unfortunately there are some dodgy naturopaths out there but there are also some brilliant ones. We took DD1 to see one many years ago, and the first thing she mentioned was gluten - but she insisted we go to our GP for the screening blood test before she'd 'treat' our DD - as she wanted to make sure that Coeliac disease was ruled out.

I would be taking your child back to the GP and ask for the coeliac screening blood test. Doesn't hurt for them to test for iron as well (this tends to be low in those with Coeliac disease).
Your GP can also order tests on a stool sample.

I would then ask the GP for a referral to a dietician - as they are more qualified to help you work out food issues, rather than a naturopath.

Also ask for a referral to a paed gastro.

#14 shatavari

Posted 30 November 2012 - 10:35 AM

Hi OP,
If you want to continue on with your Naturopath, can I suggest you follow up with him asap. Those food groups you mention (gluten, fructose, dairy, preservatives...) all encompass so many foods that it is not surprising you are confused. In addition to the diagnosed allergies you mention perhaps starting with one group eg.cow's milk dairy free, would be a way forward. Did he say to actually cut out all of those groups at the same time and right away?
Best of luck.




#15 beccaj

Posted 30 November 2012 - 10:52 AM

The naturopath - did they order blood tests or stool tests? A naturopath can order the same allergy tests through path labs that your GP can - and should refer you to a GP for a  test for something like coeliacs before removing gluten from the diet.

The naturopath should also have given you a very detailed list of what your child can eat how you can make these changes within your current diet etc, not good enough if they sent you away to do your own research.

You mentioned you have already had skin prick testing done - did those result mirror the recent testing? or have you now got different results?





#16 eri

Posted 03 December 2012 - 09:48 PM

i am intolerant to 16 foodstuffs. i went to gasto drs, dietician, gps,and finally found a naturopath that ordered and igG bloodtest. Found my 16 foods just like that after 4years of trying elimination diets(im intolerant to pears and egg white which are fine to eat during the failsafe elimination diet....no wonder the elimination diet didn't work), coeliac tests(i'm intolerant to wheat, rye and barley all in which contain gluten however i can have spelt and oats which contain gluten ...so i'm not a coeliac), bloodtest, flu misdiagnosis(that was really helpful...NOT mad.gif ), allergy test that weirdly only tested for animal hairs etc wacko.gif .
I like a doctor who listens. if you like the doctor/naturopath and trust them, listen to them. then do your own research and put two and two together. you are the only one who knows your son as well as he does. You will find the answer. just keep going it takes time and a lot of hit and misses and alot of research. i still stuff up eating something packaged thinking its ok them read the fineprint etc. It takes alot of home cooking but there is plenty of info, fresh food out there and food substitutes. If your not sure of a foodstuffs ingredients don't let him eat it, email the company and ask them stating his allergies and they will let you know whats in the product, for example im dairy intolerant however i am also canola intolerant and nuttalex doesnt contain dairy but all of them except the kosher nuttalex contain canola, it doen't say canola oil on the ingredients list of the others it says vegetable oils. so it always helps to ask. Remember cutting out the foods that cause him problems wont hurt only eating them will. Eggs may be a great source of protein etc but not so great if they give him bad reactions.
Good luck bbighug.gif

Edited by eri, 03 December 2012 - 09:54 PM.





1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

Why Tracey Spicer has given up make-up

"After 30 years on television, I had become what I despised: a painted doll who spent an hour a day and close to $200 a week putting on a mask."

Empowering bikini photo of 46-year-old mum goes viral

When a group of teenagers made rude remarks about her body as she walked past them in a bikini at the local beach, Julie Cross refused to cover up.

Devastated widow discovers she's pregnant the day before husband's funeral

They had been trying to conceive a baby for seven years. Tragically Kristy Kirchner found out she was pregnant the day before her husband Royce's funeral.

Gabriella Goat sues Peppa Pig

Every toddler's favourite television pig is being sued by an Italian woman who shares a name with a Peppa Pig character.

Meet the Mpregs, the male pregnancy enthusiasts

"Men can't have babies - that's something only women can do! But our community is full of like-minded people who wish otherwise."

Your new motherhood survival kit

Forget about the bright, pretty baby things - while you're in survival mode, all you'll need are the essentials.

More than 100,000 cars recalled globally after death of pregnant woman

The announcement of a mass recall comes as Malaysian police investigate the death of pregnant woman in July.

Win a family pass to Disney Live!

We have 4 family passes to give away to see Disney Live! presents Three Classic Fairy Tales, touring Australia this December/January.

I had a 'good baby' but still suffered from postnatal depression

I had a much wanted precious baby girl, a 'good baby' who slept well, self settled and was mostly content. It just seemed implausible to think I could succumb to depression.

There's no need to eclipse a babymoon

As long as pregnant women do their research, travelling during pregnancy can be done safely.

Mum and daughter have babies on same day

"It's not really something you ever want or think could happen. To have my mum going through it with me is probably the most special, amazing thing ever.”

Our baby's reflux caused the longest endurance test of our lives

I'm glad she wasn't my first child, or I would have thought that this was normal.

Win one of 5 Little Tikes Cozy Coupe Sport

Australia?s No 1 selling car is now available in a Sports model and we have 5 to give away to some lucky Essential Baby families.

The podcast that reminds mums they are not alone

A mum's complicated, gruelling labour gave birth to two lovely beings: her daughter and her delightful podcast, The Longest Shortest Time.

Is it too late to change my midwife?

My wife is nine months pregnant and we are planning a home birth - but we've had late problems with our midwife team.

The Very Hungover Caterpillar: a parody many can relate to

A new book released this month will be sure to have parents nodding and giggling in recognition the world over.

Babywearers unite against misinformation

Everyone has heard of people power, but what about passionate babywearing power?

Reliving the birth experience

When people ask about how my labour went, I usually respond: "Good, I think? Four hours long, and yeah it hurt, but I dunno, it's labour, it's giving birth, it's painful... but I guess it was good? As good as good gets?"

Literary baby name inspiration

From Harry Potter to Shakespeare and everything in between, we've scoured the library shelves for literary baby name inspiration.

Preparing your child to attend a sibling's birth

Thinking about having your kids at the birth of your baby? Here are some things to consider.

Counselling helps mum deal with triplets' early birth

When Kimberlee King's waters broke nine weeks before her triplets were due, she went into autopilot as she packed her hospital bag.

The women balancing babies with new businesses

Motherhood teaches us that we can be more tolerant, patient, and loving than we ever thought possible - and can also show us that we're innovative, creative and entrepreneurial, too.

It's true, kids grow up overnight

A dad ponders how his toddler daughter can change so much in just one 24 hour period.

Father sings to dying son days after losing wife

A heartbreaking video shows a new dad singing 'Blackbird' to his dying son just days after losing his wife.

Download now: Essential Kids Activity Finder app

Got bored kids? Quickly find the best activities for kids wherever you are in Australia with the Essential Kids app.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Win one of 5 Little Tikes Cozy Coupe Sport

Australia?s No 1 selling car is now available in a Sports model and we have 5 to give away to some lucky Essential Baby families.

Join PADDINGTON on the red carpet!

To celebrate the release of PADDINGTON, we are giving five lucky winners the chance to win a family pass to the exclusive Australian Premiere in Sydney on December 7!

Knowing you are one of the lucky ones

I am secure, confident and strong, but the responsibility of protecting my children can almost bring me undone.

Why I am so emotional now I have kids?

There are so many ways in which parenthood changes us as women, but one of the most noticeable, for me, has been the changing state of my emotions.

Baby survives despite sharing womb with 'foreign body'

Baby Maia was conceived against the odds, only to find she was sharing a womb with an ominous "foreign body".

Video: Baby shows dog how to jump - or vice versa

They say dog is man's best friend, but this playful pooch seems to have chosen a jumping baby as her number one buddy.

10 ways to soothe a crying baby

New paernts can get frustrated when their newborn gets fussy and can't settle down. When you're feeling overwhelmed, try some of these simple tips to help soothe your baby.

20 baby names that are becoming more popular every year

The data-lovers at nameberry.com have been at it again – this time, they’ve discovered the names that are continually rising up the ranks, ready to take out some top spots in the next few years.

10 great meals to make for new parents

Ideally, you want to give food that isn’t expensive to make, isn't too difficult to create, and freezes well; stews, bakes, soups and pasta sauces are perfect.

'It's not you, it's me': Boston bombing survivor mum to have leg amputated

Rebekah DiMartino is going through a break-up. She even wrote a farewell love letter. But it's not to her husband.

What it's like to go through early menopause

In a cruel twist, Carla had been breastfeeding and perimenopausal at the same time. But she's far from the only one to go through menopause early.

Restaurant served alcohol to two-year-old

Busy restaurants can be forgiven for getting food and drink orders mixed up from time to time, but not when the confusion leads to a two-year-old being served an alcoholic cocktail instead of the child-friendly beverage they ordered.

Julia Morris tells of miscarriage on a flight

Julia Morris has spoken about the devastation of suffering a miscarriage while on an international flight.

Woman's survival after birth 'a story of two miracles'

A US mother is home and tending to her new baby less than a month after surviving without a pulse for 45 minutes.

Eating ice may give mental boost to the iron deficient: study

A new study proposes that, like a strong cup of coffee, ice may give those with insufficient iron a much-needed mental boost.

Tiny lives in caring hands: Thank U NICU Day

Each year in Australia, over 40,000 newborns need the help of a special care nursery or neonatal intensive care unit. One day a year, the staff are honoured by the parents they help through those dark days.

I paid $50,000 to have a girl

This time my husband and I hadn't taken any chances. We had paid $50,000 and travelled 13,000 kilometres to make sure the baby growing inside me was female.

Weird pregnancy products

Some pregnancy products come to market and are just awesome. Others just leave you scratching your head.

Dear firstborn, I'm sorry

Being a first-time mum is tough for so many reasons – particularly because you really have no idea what you're doing.

A trace of sesame could kill my son

Helen Richardson son's had two anaphylactic reactions in a month. It's traumatic for everyone.

When you know before the test says yes

It wasn't a pregnancy test or missed period that told me I was pregnant with my second baby; it was too early for those things. A doner kebab told me I was going to be a mum again.

What not to do when your partner is in labour

Robbie Williams stole the show during his wife Ayda's labour, pretty much demonstrating everything on the "what not to do when your partner is in labour" list.

Best maternity swimwear and beach cover-ups

Thinking about a tropical babymoon but have nothing to wear? Here are some great swimwear and beach cover-up options for mums-to-be.

Parents face bankruptcy after birth

A couple has been slammed with a $1 million medical bill after the early arrival of their baby while on holidays.

 

How many weeks til Christmas?

On your To-Do list

Get the "Santa" shopping done without the kids in tow.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.