I don't know where to start!
, Nov 24 2012 07:26 PM
15 replies to this topic
Posted 24 November 2012 - 07:26 PM
My 3 yr old saw a naturopath today specialising in testing for allergies and food intolerance. He has had poos issues for months (lurching from constipation to diarrhea) and escalating behavioural issues too. He is already confirmed allergic to egg and cashews and was given an epi-pen even though he hasn't had an ANA reaction.
Today we were told that he is allergic to
and a host of other preservatives and chemicals.
I don't know where to start, what CAN he eat?? I am looking on a website to order some specialty GF foods just to stock up for while until I work out a diet plan for him but I have to check that each product is also free from egg, fructose, and dairy! I will deal with the preservatives later, right now I just need to get his poo under control with the GF DF and FF diet.
I am a bit overwhelmed :-(
Posted 24 November 2012 - 08:35 PM
Have you thought about going to a dietitian who deals with food allergies, or perhaps your pediatrician could give some assistance.
Posted 24 November 2012 - 08:43 PM
Out of interest how did the naturopath test for the allergies?
Posted 24 November 2012 - 08:46 PM
I think it is pretty standard when you go to a naturopath for them to say stop eating dairy/gluten/fructose. Unless he's had a medical test (biopsy/elimination diet for example) for allergies/intolerances to these things I have to say I would be pretty skeptical to be honest. I'm all for alternative therapies but in your case I would be seeing an allergist before a naturopath. But that's just my opinion.
Posted 24 November 2012 - 09:17 PM
Here is a link from the Australasian Society of Clinical Immunology and Allergy on alternate allergy testing, please have a read of it before placing your child on what is a very restrictive diet. I second PP to seek the advice of a dietician and a allergist/immunologist.http://www.allergy.org.au/health-professio...g-and-treatment
It is my understanding that there is no such thing as an allergy to gluten, it is an intolerance. Additionally, there is no test for gluten intolerance, you can be tested for coeliac disease but a naturopath can not do that.
If the naturopath is saying your child is allergic to gluten this would be ringing alarm bells for me.
Posted 25 November 2012 - 02:26 PM
Naturopaths are not qualified to test for allergies. Also what you have described are actually intolerances.
Posted 25 November 2012 - 02:46 PM
Just think very carefully about what you do next. He will be on a very restrictive diet which could cause other health problems. I would be seeking further medical advice.
These things could be the problems but I'd also be concerned about growth and brain development at his age. Maybe just try removing one thing at a time rather than all at once.
Posted 25 November 2012 - 03:00 PM
My DD is intolerant to gluten, dairy and we are currently trialling low fructose.
We originally saw a naturopath that specialises in allergies after a dodgy pediatric allergist wasn't any help. She gave us some tips and advice and ordered tests. Before putting my child through more blood tests I researched the tests and decided I wasn't confident they were conclusive enough to use as a diagnosis so didn't do them.
Instead we found a really good gastro allergist at our major children's hospital and haven't looked back. We have seen 2 dieticians and stayed in contact when we have had to make subsequent dietary adjustments.
I would not undertake attempting the dietary restrictions you are speaking of without the guidance of a good allergist or dietician as there are so many implications and quite frankly it sucks, for the parents and the child.
Posted 25 November 2012 - 03:09 PM
We had a very similar diet recommended by a medical allergist, and gastro after skin prick testing and elimination diet. We saw a leading dietician who specialises in elimination diets and she said the diet was utterly impossible longterm and she felt it was impractical for even a month.
There is no freaking way I would take all of that out based on a naturopathic consult without proper testing.
With those symptoms has anyone checked him out for encopresis?
Posted 25 November 2012 - 10:59 PM
Another who agrees with above posts- do not listen to naturopath ! Go and see your immunologist again!
Posted 26 November 2012 - 06:47 AM
Thanks for the replies. I am in despair over what to feed him. I get the Naturopath could be talking through a hole in his hat, but who do I trust? He's had skin prick tests with a 'leading' allergy clinic, I did ask about Gluten etc then and they said the only way to tell was through an elimination diet.
My GP has no idea. All the hospitals have a long wait to see paeds. I am going on word of mouth for naturopaths etc. I thought a paediatric dietican but apparently even they can be dodgy?
I just want to help him stop feeling like crap, literally.
Posted 26 November 2012 - 09:36 AM
See if you can get a referral to a pead gastroenterologist. I know the waits can be long but call up and be prepared to go on the standby list.
A very restrictive diet my harm your child and even prevent the correct diagnosis. For example coeliac disease if you place your child on a gluten free diet before testing you will need to wait until you reintroduce gluten for 6 weeks to start testing.
It is true that the only way to determine gluten intolerance is to go on a gluten free diet and see if symptoms improve. This is not recommended until the person/child has been fully tested for coeliac disease though.
You could talk to your GP about starting the testing for coeliac while waiting for a gastroenterologist appointment. This will involve a blood test first off that the GP can order for coeliac serology, the coeliac gene and they normally add iron. Here is a link to the coeliac society.http://www.coeliac.org.au/coeliac-disease/diagnosis.html
I am not saying your child has coeliac disease but if you want to go down the gluten free diet path it is best to rule it in or out first.
I hope you get some medical help and your LO gets better quickly.
Posted 26 November 2012 - 11:47 AM
I did ask about Gluten etc then and they said the only way to tell was through an elimination diet.
If they didn't mention having the Coeliac screening blood test, then I would be asking the naturopath to refund your money, because they are clearly lacking in the knowledge and expertise and have given you misleading advice.
Can I ask what "tests" they did on the day to determine if your child had issues with those foods?
Unfortunately there are some dodgy naturopaths out there but there are also some brilliant ones. We took DD1 to see one many years ago, and the first thing she mentioned was gluten - but she insisted we go to our GP for the screening blood test before she'd 'treat' our DD - as she wanted to make sure that Coeliac disease was ruled out.
I would be taking your child back to the GP and ask for the coeliac screening blood test. Doesn't hurt for them to test for iron as well (this tends to be low in those with Coeliac disease).
Your GP can also order tests on a stool sample.
I would then ask the GP for a referral to a dietician - as they are more qualified to help you work out food issues, rather than a naturopath.
Also ask for a referral to a paed gastro.
Posted 30 November 2012 - 10:35 AM
If you want to continue on with your Naturopath, can I suggest you follow up with him asap. Those food groups you mention (gluten, fructose, dairy, preservatives...) all encompass so many foods that it is not surprising you are confused. In addition to the diagnosed allergies you mention perhaps starting with one group eg.cow's milk dairy free, would be a way forward. Did he say to actually cut out all of those groups at the same time and right away?
Best of luck.
Posted 30 November 2012 - 10:52 AM
The naturopath - did they order blood tests or stool tests? A naturopath can order the same allergy tests through path labs that your GP can - and should refer you to a GP for a test for something like coeliacs before removing gluten from the diet.
The naturopath should also have given you a very detailed list of what your child can eat how you can make these changes within your current diet etc, not good enough if they sent you away to do your own research.
You mentioned you have already had skin prick testing done - did those result mirror the recent testing? or have you now got different results?
Posted 03 December 2012 - 09:48 PM
i am intolerant to 16 foodstuffs. i went to gasto drs, dietician, gps,and finally found a naturopath that ordered and igG bloodtest. Found my 16 foods just like that after 4years of trying elimination diets(im intolerant to pears and egg white which are fine to eat during the failsafe elimination diet....no wonder the elimination diet didn't work), coeliac tests(i'm intolerant to wheat, rye and barley all in which contain gluten however i can have spelt and oats which contain gluten ...so i'm not a coeliac), bloodtest, flu misdiagnosis(that was really helpful...NOT
), allergy test that weirdly only tested for animal hairs etc
I like a doctor who listens. if you like the doctor/naturopath and trust them, listen to them. then do your own research and put two and two together. you are the only one who knows your son as well as he does. You will find the answer. just keep going it takes time and a lot of hit and misses and alot of research. i still stuff up eating something packaged thinking its ok them read the fineprint etc. It takes alot of home cooking but there is plenty of info, fresh food out there and food substitutes. If your not sure of a foodstuffs ingredients don't let him eat it, email the company and ask them stating his allergies and they will let you know whats in the product, for example im dairy intolerant however i am also canola intolerant and nuttalex doesnt contain dairy but all of them except the kosher nuttalex contain canola, it doen't say canola oil on the ingredients list of the others it says vegetable oils. so it always helps to ask. Remember cutting out the foods that cause him problems wont hurt only eating them will. Eggs may be a great source of protein etc but not so great if they give him bad reactions.
Edited by eri, 03 December 2012 - 09:54 PM.
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