Jump to content

Sending blood samples overseas for testing immune issues
Anyone done it?


  • Please log in to reply
11 replies to this topic

#1 Angelic80

Posted 20 November 2012 - 02:47 PM

Hi ladies,

I have been considering sending blood samples overseas to the US (at RFU - Rosalind Franklin University) for some immune testing.

My understanding is that when it comes to immune related issues, Australia is far behind than the technology in the US.  I am concerned that if I continue and do trial and error, I might end up spending lots and lots of money.

I am thinking that doing the testing might be useful and might identify the problems that haven't been picked up by my FS.  I completely trust my FS but I guess he's not an immunologist so only has limited knowledge in that area.  I am thinking of working with an immunologist in the US and getting her to prescribe the medications for me...etc.

What do you think?
Anyone had any experience with doing something similar?

Thanks..

Angelic original.gif

#2 Madalem

Posted 20 November 2012 - 05:15 PM

Hi there,

I've recently had some extra blood testing ordered by a reproductive immunologist based here in Aus (testing that hadn't been done by either of the FS that I have had).

He did training in the US, and also sends more blood off to the US if required for testing - I'm still waiting for the initial results (should be later this week).... so not sure yet if my blood will be on a holiday or not!!

I thought about going straight through a US immunologist, but found it quicker and easier to deal with a local office.....and will be easier if/when treatment is required (I think!)

I'll be interested to hear if anyone has gone direct.....

Let me know if you want more information....and good luck!  biggrin.gif

#3 Angelic80

Posted 20 November 2012 - 05:49 PM

QUOTE (Madalem @ 20/11/2012, 06:15 PM) <{POST_SNAPBACK}>
Hi there,

I've recently had some extra blood testing ordered by a reproductive immunologist based here in Aus (testing that hadn't been done by either of the FS that I have had).

He did training in the US, and also sends more blood off to the US if required for testing - I'm still waiting for the initial results (should be later this week).... so not sure yet if my blood will be on a holiday or not!!

I thought about going straight through a US immunologist, but found it quicker and easier to deal with a local office.....and will be easier if/when treatment is required (I think!)

I'll be interested to hear if anyone has gone direct.....

Let me know if you want more information....and good luck!  biggrin.gif


Hi Madalem,

Thanks for posting...
If you don't mind me asking, who is your immunologist... (feel free to PM me if you dont want to put it out in public)... I am guessing you are based in Sydney... and have an idea on who it could be...

If it is who I think it is, I did consider that option, but I heard that that RI doesn't particularly like working with other doctors and can be a bit vague in answering questions... I am based in Melbourne... so have an FS who I would want to include in all discussions as I believe he is very good...

Hence, the reason why I am thinking of going through an overseas immunologist... There are doctors like Dr Jeffrey Braverman and Dr Kwak, but I think you have to meet them in person before they consult to you and also I don't think they would work with other doctors.  I have come across another immunologist who isn't a doctor but has a PhD in immunology - she's gone through multiple failures with IVF and then conceived 2 beautiful children...so I have trust in her since she's gone through it herself...

Angelic xx

#4 Spock

Posted 20 November 2012 - 06:25 PM

Hi, good idea to check everything out and then you can make more informed decisions. I did this with a doctor in USA. It is possible, just need to be very organised. I advise you to ring the path lab you plan to use in Australia beforehand and ask them if you need to do anything. Goodluck!Spock

#5 Angelic80

Posted 20 November 2012 - 06:26 PM

QUOTE (Spock @ 20/11/2012, 07:25 PM) <{POST_SNAPBACK}>
Hi, good idea to check everything out and then you can make more informed decisions. I did this with a doctor in USA. It is possible, just need to be very organised. I advise you to ring the path lab you plan to use in Australia beforehand and ask them if you need to do anything. Goodluck!Spock


Hi Spock...

Thanks for that invaluable tip! original.gif
Which pathology did you get your testing done from?

I am thinking either Melbourne Pathology or Healthscope...

Angelic

#6 Spock

Posted 20 November 2012 - 06:28 PM

Btw, I saw dr b, we consulted with him via skype and phone, was totally fine. Feel free to pm me if you want details. I coordinated dr b with the Sydney immune dr, was fine. They have done this many times.Spock

#7 Angelic80

Posted 20 November 2012 - 06:31 PM

QUOTE (Spock @ 20/11/2012, 07:28 PM) <{POST_SNAPBACK}>
Btw, I saw dr b, we consulted with him via skype and phone, was totally fine. Feel free to pm me if you want details. I coordinated dr b with the Sydney immune dr, was fine. They have done this many times.Spock


Oh ok... From what I know, Dr B doesnt consult with other docs anymore...i think it's due to some legal issues...

Were you successful with Dr B?

Also do you know anything about getting an import permit and the costs involved for blood testing?

#8 Spock

Posted 20 November 2012 - 06:33 PM

I just went to my local Douglas hanly moir as there was a strict time cut of to get the bloods to fed ex for flight to USA. Dr b uses Reprosource who are USA based but coordinate blood testing globally. Reprosource sent me a kit with the test tubes and labels and packaging. The bloods need to be same day flown to USA. Hope that helps. Spock

#9 Spock

Posted 20 November 2012 - 06:46 PM

I think dr b will work with other doctors if you are overseas as I started seeing him only after the ny state law changed. If you are interested you can always just send dr b an email and ask.
From all the immune testing - and he really did test some cutting edge things, I came back with nothing out of the ordinary. My last transfer which we coordinated with dr b, my fs and my Sydney RI was always going to be our last go as I came to immune testing late, went through many m/c's beforehand you see. Sadly our last transfer where we tried neupogen (more as a this might help) resulted in a bfn. We are now on the surrogacy path as tired of losing babies.
I do think immune testing has helped many women though (just not me) in identifying odd immune things and then they can get appropriate treatment. I don't know why in this aspect Australia is so far behind. Even UK is more advanced than Australia for this.
Wishing you success!Spock

#10 Spock

Posted 20 November 2012 - 06:47 PM

I think dr b will work with other doctors if you are overseas as I started seeing him only after the ny state law changed. If you are interested you can always just send dr b an email and ask.
From all the immune testing - and he really did test some cutting edge things, I came back with nothing out of the ordinary. My last transfer which we coordinated with dr b, my fs and my Sydney RI was always going to be our last go as I came to immune testing late, went through many m/c's beforehand you see. Sadly our last transfer where we tried neupogen (more as a this might help) resulted in a bfn. We are now on the surrogacy path as tired of losing babies.
I do think immune testing has helped many women though (just not me) in identifying odd immune things and then they can get appropriate treatment. I don't know why in this aspect Australia is so far behind. Even UK is more advanced than Australia for this.
Wishing you success!Spock

#11 Angelic80

Posted 20 November 2012 - 06:55 PM

QUOTE (Spock @ 20/11/2012, 07:47 PM) <{POST_SNAPBACK}>
I think dr b will work with other doctors if you are overseas as I started seeing him only after the ny state law changed. If you are interested you can always just send dr b an email and ask.
From all the immune testing - and he really did test some cutting edge things, I came back with nothing out of the ordinary. My last transfer which we coordinated with dr b, my fs and my Sydney RI was always going to be our last go as I came to immune testing late, went through many m/c's beforehand you see. Sadly our last transfer where we tried neupogen (more as a this might help) resulted in a bfn. We are now on the surrogacy path as tired of losing babies.
I do think immune testing has helped many women though (just not me) in identifying odd immune things and then they can get appropriate treatment. I don't know why in this aspect Australia is so far behind. Even UK is more advanced than Australia for this.
Wishing you success!Spock


Thanks Spock... I am sorry to hear that it didnt work out.. but I pray that surrogacy is the answer for you..and it all works out original.gif Good luck..!  Have you started the process for it yet?

Sent you a PM with a few more questions...



#12 Madalem

Posted 20 November 2012 - 07:14 PM

QUOTE (Angelic80 @ 20/11/2012, 06:49 PM) <{POST_SNAPBACK}>
Hi Madalem,

Thanks for posting...
If you don't mind me asking, who is your immunologist... (feel free to PM me if you dont want to put it out in public)... I am guessing you are based in Sydney... and have an idea on who it could be...

If it is who I think it is, I did consider that option, but I heard that that RI doesn't particularly like working with other doctors and can be a bit vague in answering questions... I am based in Melbourne... so have an FS who I would want to include in all discussions as I believe he is very good...

Hence, the reason why I am thinking of going through an overseas immunologist... There are doctors like Dr Jeffrey Braverman and Dr Kwak, but I think you have to meet them in person before they consult to you and also I don't think they would work with other doctors.  I have come across another immunologist who isn't a doctor but has a PhD in immunology - she's gone through multiple failures with IVF and then conceived 2 beautiful children...so I have trust in her since she's gone through it herself...

Angelic xx


Hi....I'll send you a PM with who the immunologist is.....

I'm actually in Melbourne too, but did a phone consult with him (in Sydney). I did ask about working with my FS, and was told that there wouldn't be an issue.....but I'm not up to that part just yet, so I can't be sure....   I felt he was pretty good with the phone consult, and answered all of my questions at the time, and sent through the blood request form that night as well.....

I have heard about the US immunologist lady with the 2 kids......but didn't look into it further......





1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

Special Ticket Offer, Save $8!

The Essential Baby & Toddler Show is back this April! Save $8 off the door price for a limited time only!

Finding baby name inspiration in unusual places

Sometimes the greatest baby name ideas come from the most unexpected places, as these EB members show.

The case for inducing at 37 weeks

While we often think of pregnancy as a 40 week affair, experts agree that 37 weeks is actually “full term". So is there an argument for inducing all births at 37 weeks?

Does controlled crying really work?

Controlled-crying techniques may help some babies sleep through the night, but for many exhausted new parents, it's just a recipe for more tears all round.

How I taught my infant to use a toilet

As people become more aware of these benefits, I hope more parents will practice this method, so we can cut down on nappies and improve baby bonding.

'I thought it was impossible': Emily Symons pregnant at 45

Aussie actress Emily Symons has announced she is pregnant with her first baby.

Shallow water blackout kills fit, healthy dad

A little girl will grow up without her father after the fit and healthy 34-year-old passed away while doing something he had practised his whole life.

Afternoon naps may be bad for toddlers' sleep

You could be doing yourself a disservice by encouraging your toddler to have an afternoon nap, according to new research.

Best gifts for newborns, new mums and christenings

We've compiled a guide to some of the most popular presents for newborns and new mums, and for christenings and naming days.

Jaime King to be a mum again

Actress Jaime King is pregnant with her second child, giving 16-month-old James a sibling.

Nannies should receive government funding

The Abbott government should extend funding to nannies, and direct childcare payments to low and middle income families, a landmark study on childcare has found. 

Common skin irritations in newborns (and how to treat them)

As many as one in two newborn babies suffer from skin irritations in their first few weeks. So what are the most common rashes and irritations to look out for?

10 wall decals for the nursery or playroom

Wall decals are the answer to creating a beautiful nursery or children's space without lifting a paint brush, a spirit level or even a hammer.

Preschooler walks 2.4km home alone

Three-year-old Cain Trainor headed off home after his first day at a new preschool without telling anyone.

Video: Why mums get nothing done

In spite of being in an almost constant state of motion while looking after the kids and trying to keep things together at home, it can seem as though parents have managed to get nothing on the to-do list done by the end of the day.

The middle name game

The middle name is no longer an afterthought, and parents' inspiration comes from many places.

Have a baby or your money back - but there's a catch

A new IVF scheme offers couples the chance to fall pregnant and give birth - or get their money back. But there's more to it than you might think.

A rare glimpse inside the womb

A baby born still inside the amniotic sac gave US doctors a rare glimpse at life inside the womb.

Battered mum forced to write to her attacker ex in jail

Three years ago Jason Hughes viciously attacked his ex-partner. Now she has to write to him three times a year.

Woman pleads not guilty to ultrasound scam

A West Australian woman will fight allegations that she scammed expectant mums by selling them fake ultrasound pictures of babies.

Download now: Essential Kids Activity Finder app

Got bored kids? Quickly find the best activities for kids wherever you are in Australia with the Essential Kids app.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Brain damaged mum receives compensation

A Sydney mother who suffered brain damage when she was hit by a car while pushing her newborn baby in a pram has reached a confidential out-of-court settlement with the driver's insurance company.

Indigenous midwives break down the barriers

A culturally sensitive midwifery service has gained the trust and respect of Aboriginal women.

The Katering Show's next big delivery

Most mums-to-be plan to take things easy and perhaps have a little break from work as the birth of their baby draws near. Not Kate McCartney.

53 creative pregnancy announcements

Announcing that you're expecting can be a time to express your creativity, sense of humour and imagination. Check out how other parents and parents-to-be have broken the news to friends and family.

Why I have mixed feelings about Cindy Crawford's leaked photo

Last week an un-retouched photo of model Cindy Crawford surfaced, showing the 48-year-old mother-of -two posing in underwear.

How to create a Peppa Pig pancake

Thought your toddler could not love pancakes any more than they already do? How about if the breakfast treat came in the shape of every two-year-old's favourite cartoon character?

'It's a little life, not a little loss': pregnancy after miscarriage

I thought I was never going to be able to have a successful pregnancy. I decided that I wasn't going to form an emotional attachment with this baby.

Bonds Baby Search 2015: what you need to know

February 18 marks the start of one of the most prolific annual baby competitions in Australia: the Bonds Baby Search. And this year is going to be more special than ever.

Who will manage your Facebook account when you're gone?

This is not something that people like to talk about, but Facebook has announced that it will grant users more control over what happens to their pages after they die.

Struggling mum of four wins $188 million

Mother of four Marie Holmes was financially struggling after quitting her jobs at Walmart and McDonald's in order to care for her children.

Pregnant obese women a 'relatively new problem', coroner hears

A first-time mother whose daughter died hours after her frightening birth insists she was never told of the risks of being obese and pregnant.

'I'm angry as hell': the story behind mum's passionate vaccination plea

She has labelled parents who do not vaccinate their children "misinformed imbeciles" - and for that, she makes no apologies.

IKEA hacks for the nursery and kids' rooms

Are you one of those that know the whole IKEA catalogue by heart? Love their stuff but want to personalise it? Here's some inspiration to help you realise the potential of IKEA furniture and fittings.

8 different kinds of tantrums

I never thought I’d say this, but for a brief moment last week, Kim Kardashian and I had something in common: both our kids had public tantrums.

Polycystic ovary syndrome: symptoms, treatment and your fertility

Polycystic ovary syndrome (PCOS) is the most common female hormonal condition, affecting roughly one in 12 Australian women.

What's the best position for giving birth?

If doing it on your back is out, what's the best position for labour and birth?

Wife forgives snake catcher husband for car surprise

With Valentine's Day coming up, Nat Gilbert could be forgiven for thinking her husband might be planning a surprise for her.

Kids who meet milestones at their own pace

We usually only hear the success stories: tales of the two-year-old who’s talking, running and completely toilet trained. But other stories need to be told too.

Ruby shines as Bonds Baby

Sarah Kiss has a word of advice for proud mums and dads who are keen to enter their babies in this year's Bonds Baby Search Competition - just have fun.

Why dads should go to sleep school

If your family needs to go to sleep school, go with them. You are part of that family and you are part of the solution.

36 baby names inspired by food and drinks

A French court may have ruled out Nutella as a baby name, but that doesn't have to stop you from taking inspiration from the supermarket (or bottle shop). See what parents in the US have chosen for their delicious little ones.

Clever breastfeeding products

Check out this range of products designed to help make your breastfeeding journey more enjoyable, manageable and convenient.

 

Win a KitchenAid Mixer

Let's celebrate 300,000 fans on Facebook

To celebrate, and to thank our amazing fans, we?re giving away a KitchenAid Artisan Tilt-Head Stand Mixer.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.