Jump to content

Sending blood samples overseas for testing immune issues
Anyone done it?


  • Please log in to reply
11 replies to this topic

#1 Angelic80

Posted 20 November 2012 - 02:47 PM

Hi ladies,

I have been considering sending blood samples overseas to the US (at RFU - Rosalind Franklin University) for some immune testing.

My understanding is that when it comes to immune related issues, Australia is far behind than the technology in the US.  I am concerned that if I continue and do trial and error, I might end up spending lots and lots of money.

I am thinking that doing the testing might be useful and might identify the problems that haven't been picked up by my FS.  I completely trust my FS but I guess he's not an immunologist so only has limited knowledge in that area.  I am thinking of working with an immunologist in the US and getting her to prescribe the medications for me...etc.

What do you think?
Anyone had any experience with doing something similar?

Thanks..

Angelic original.gif

#2 Madalem

Posted 20 November 2012 - 05:15 PM

Hi there,

I've recently had some extra blood testing ordered by a reproductive immunologist based here in Aus (testing that hadn't been done by either of the FS that I have had).

He did training in the US, and also sends more blood off to the US if required for testing - I'm still waiting for the initial results (should be later this week).... so not sure yet if my blood will be on a holiday or not!!

I thought about going straight through a US immunologist, but found it quicker and easier to deal with a local office.....and will be easier if/when treatment is required (I think!)

I'll be interested to hear if anyone has gone direct.....

Let me know if you want more information....and good luck!  biggrin.gif

#3 Angelic80

Posted 20 November 2012 - 05:49 PM

QUOTE (Madalem @ 20/11/2012, 06:15 PM) <{POST_SNAPBACK}>
Hi there,

I've recently had some extra blood testing ordered by a reproductive immunologist based here in Aus (testing that hadn't been done by either of the FS that I have had).

He did training in the US, and also sends more blood off to the US if required for testing - I'm still waiting for the initial results (should be later this week).... so not sure yet if my blood will be on a holiday or not!!

I thought about going straight through a US immunologist, but found it quicker and easier to deal with a local office.....and will be easier if/when treatment is required (I think!)

I'll be interested to hear if anyone has gone direct.....

Let me know if you want more information....and good luck!  biggrin.gif


Hi Madalem,

Thanks for posting...
If you don't mind me asking, who is your immunologist... (feel free to PM me if you dont want to put it out in public)... I am guessing you are based in Sydney... and have an idea on who it could be...

If it is who I think it is, I did consider that option, but I heard that that RI doesn't particularly like working with other doctors and can be a bit vague in answering questions... I am based in Melbourne... so have an FS who I would want to include in all discussions as I believe he is very good...

Hence, the reason why I am thinking of going through an overseas immunologist... There are doctors like Dr Jeffrey Braverman and Dr Kwak, but I think you have to meet them in person before they consult to you and also I don't think they would work with other doctors.  I have come across another immunologist who isn't a doctor but has a PhD in immunology - she's gone through multiple failures with IVF and then conceived 2 beautiful children...so I have trust in her since she's gone through it herself...

Angelic xx

#4 Spock

Posted 20 November 2012 - 06:25 PM

Hi, good idea to check everything out and then you can make more informed decisions. I did this with a doctor in USA. It is possible, just need to be very organised. I advise you to ring the path lab you plan to use in Australia beforehand and ask them if you need to do anything. Goodluck!Spock

#5 Angelic80

Posted 20 November 2012 - 06:26 PM

QUOTE (Spock @ 20/11/2012, 07:25 PM) <{POST_SNAPBACK}>
Hi, good idea to check everything out and then you can make more informed decisions. I did this with a doctor in USA. It is possible, just need to be very organised. I advise you to ring the path lab you plan to use in Australia beforehand and ask them if you need to do anything. Goodluck!Spock


Hi Spock...

Thanks for that invaluable tip! original.gif
Which pathology did you get your testing done from?

I am thinking either Melbourne Pathology or Healthscope...

Angelic

#6 Spock

Posted 20 November 2012 - 06:28 PM

Btw, I saw dr b, we consulted with him via skype and phone, was totally fine. Feel free to pm me if you want details. I coordinated dr b with the Sydney immune dr, was fine. They have done this many times.Spock

#7 Angelic80

Posted 20 November 2012 - 06:31 PM

QUOTE (Spock @ 20/11/2012, 07:28 PM) <{POST_SNAPBACK}>
Btw, I saw dr b, we consulted with him via skype and phone, was totally fine. Feel free to pm me if you want details. I coordinated dr b with the Sydney immune dr, was fine. They have done this many times.Spock


Oh ok... From what I know, Dr B doesnt consult with other docs anymore...i think it's due to some legal issues...

Were you successful with Dr B?

Also do you know anything about getting an import permit and the costs involved for blood testing?

#8 Spock

Posted 20 November 2012 - 06:33 PM

I just went to my local Douglas hanly moir as there was a strict time cut of to get the bloods to fed ex for flight to USA. Dr b uses Reprosource who are USA based but coordinate blood testing globally. Reprosource sent me a kit with the test tubes and labels and packaging. The bloods need to be same day flown to USA. Hope that helps. Spock

#9 Spock

Posted 20 November 2012 - 06:46 PM

I think dr b will work with other doctors if you are overseas as I started seeing him only after the ny state law changed. If you are interested you can always just send dr b an email and ask.
From all the immune testing - and he really did test some cutting edge things, I came back with nothing out of the ordinary. My last transfer which we coordinated with dr b, my fs and my Sydney RI was always going to be our last go as I came to immune testing late, went through many m/c's beforehand you see. Sadly our last transfer where we tried neupogen (more as a this might help) resulted in a bfn. We are now on the surrogacy path as tired of losing babies.
I do think immune testing has helped many women though (just not me) in identifying odd immune things and then they can get appropriate treatment. I don't know why in this aspect Australia is so far behind. Even UK is more advanced than Australia for this.
Wishing you success!Spock

#10 Spock

Posted 20 November 2012 - 06:47 PM

I think dr b will work with other doctors if you are overseas as I started seeing him only after the ny state law changed. If you are interested you can always just send dr b an email and ask.
From all the immune testing - and he really did test some cutting edge things, I came back with nothing out of the ordinary. My last transfer which we coordinated with dr b, my fs and my Sydney RI was always going to be our last go as I came to immune testing late, went through many m/c's beforehand you see. Sadly our last transfer where we tried neupogen (more as a this might help) resulted in a bfn. We are now on the surrogacy path as tired of losing babies.
I do think immune testing has helped many women though (just not me) in identifying odd immune things and then they can get appropriate treatment. I don't know why in this aspect Australia is so far behind. Even UK is more advanced than Australia for this.
Wishing you success!Spock

#11 Angelic80

Posted 20 November 2012 - 06:55 PM

QUOTE (Spock @ 20/11/2012, 07:47 PM) <{POST_SNAPBACK}>
I think dr b will work with other doctors if you are overseas as I started seeing him only after the ny state law changed. If you are interested you can always just send dr b an email and ask.
From all the immune testing - and he really did test some cutting edge things, I came back with nothing out of the ordinary. My last transfer which we coordinated with dr b, my fs and my Sydney RI was always going to be our last go as I came to immune testing late, went through many m/c's beforehand you see. Sadly our last transfer where we tried neupogen (more as a this might help) resulted in a bfn. We are now on the surrogacy path as tired of losing babies.
I do think immune testing has helped many women though (just not me) in identifying odd immune things and then they can get appropriate treatment. I don't know why in this aspect Australia is so far behind. Even UK is more advanced than Australia for this.
Wishing you success!Spock


Thanks Spock... I am sorry to hear that it didnt work out.. but I pray that surrogacy is the answer for you..and it all works out original.gif Good luck..!  Have you started the process for it yet?

Sent you a PM with a few more questions...



#12 Madalem

Posted 20 November 2012 - 07:14 PM

QUOTE (Angelic80 @ 20/11/2012, 06:49 PM) <{POST_SNAPBACK}>
Hi Madalem,

Thanks for posting...
If you don't mind me asking, who is your immunologist... (feel free to PM me if you dont want to put it out in public)... I am guessing you are based in Sydney... and have an idea on who it could be...

If it is who I think it is, I did consider that option, but I heard that that RI doesn't particularly like working with other doctors and can be a bit vague in answering questions... I am based in Melbourne... so have an FS who I would want to include in all discussions as I believe he is very good...

Hence, the reason why I am thinking of going through an overseas immunologist... There are doctors like Dr Jeffrey Braverman and Dr Kwak, but I think you have to meet them in person before they consult to you and also I don't think they would work with other doctors.  I have come across another immunologist who isn't a doctor but has a PhD in immunology - she's gone through multiple failures with IVF and then conceived 2 beautiful children...so I have trust in her since she's gone through it herself...

Angelic xx


Hi....I'll send you a PM with who the immunologist is.....

I'm actually in Melbourne too, but did a phone consult with him (in Sydney). I did ask about working with my FS, and was told that there wouldn't be an issue.....but I'm not up to that part just yet, so I can't be sure....   I felt he was pretty good with the phone consult, and answered all of my questions at the time, and sent through the blood request form that night as well.....

I have heard about the US immunologist lady with the 2 kids......but didn't look into it further......





1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

WIN an exclusive performance from Sam Moran!

To celebrate the release of children?s musical series Play Along with Sam, out now on DVD, we?re giving one lucky parent the chance to have Sam perform at their child?s pre-school or day care!

The myths and truths of gender swaying

Here are a few popular methods hopeful parents-to-be use to try to get a baby of their preferred gender – and what an expert says about whether they really work.

10 easy DIY Christmas decoration ideas

It's officially time to get into the Christmas spirit. Why not branch out when you put up your tree this year and add a personal touch with a few DIY decorations? We've found the perfect easy-to-make ways to put more festive fever into your home.

The dangerous new trend of glucose challenge test refusal

A dangerous trend is seeing more mothers-to-be declining a relatively simple and painless test to check for gestational diabetes.

Office of Fair Trading reveals naughty toys ahead of Christmas

The Office of Fair Trading has pulled seven toys from shelves ahead of Christmas after they fail safety tests.

Video: Baby boy's trouble with twins

These twin girls will no doubt have fun fooling people in years to come, but nobody will be as confused as baby Landon.

Long-term reversible male contraceptive on its way

Men could soon have access to an injectable long-term contraceptive which works in a similar way to a vasectomy but promises to be easily reversed.

'I tried to kill my baby': one mum's story

After bathing and dressing her three-month-old son, Amanda had a rare moment alone with her baby.

Attack of the 'mummy brain'

I feel that almost every day, someone in my life - be they a friend, family member or complete stranger - feels the need to excuse my behaviour as I have other things on my mind.

Mum of baby who fell ill after drinking raw milk speaks out

A Melbourne mother has described how her son turned grey when he became seriously ill after drinking raw milk.

Australian divorce rate lowest since 1976

Modern newlyweds are now well into their 30s and marriage still offers something powerful a new book argues.

The aftermath of a traumatic birth experience

In Australia, 30 per cent of women find their birth experience traumatic, with 6 per cent going on to develop post traumatic stress disorder (PTSD).

Young mum burns 'from inside-out'

A young mum is in intensive care after she took a friend's antibiotic and wound up with an ailment that is burning her body 'from the inside-out'.

The disagreement that can break a relationship

If he doesn't change his mind, all I can hope is that I will. It would be a waste to spend the rest of my marriage mourning a baby that never was.

Co-sleeping or no-sleeping? Mum videos worst nap ever

One mother's futile attempt to sleep in caught on camera in a hilarious - and very cute - video.

Why children misbehave during the festive season

While we all like to imagine the holiday season as being a fun, loving and bonding experience; often our reality is quiet different.

I was fat-shamed by my doctor

The fear of being weighed is the most significant factor in women cancelling medical appointments - and now weight-shaming has happened to me.

End of an era: no more childcare

As we reach the end of 2014, we're closing the book on many things for another year, most notably childcare. Our last child has attended childcare for the very last time.

The 7-year itch is more like the 10-year itch: study

Contrary to popular belief, making it past the seven-year mark doesn't mean your marriage will be smooth sailing from there on.

Stop telling us that parenting gets harder

I’m sure that parenting will get harder. But life isn’t exactly smooth sailing for many of us right now, either.

Should children be forced to sit on Santa's lap?

We teach kids it’s okay to say no if they don’t feel safe, so why do some parents force their children to climb in to Santa's lap?

Download now: Essential Kids Activity Finder app

Got bored kids? Quickly find the best activities for kids wherever you are in Australia with the Essential Kids app.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Baby born weighing almost 14 pounds

Yes, the bouncing baby girl was born by caesarean section. And mum says no more kids.

The dummy debate

I'm the first to admit that when I used to see tiny babies with dummies in their mouths, I thought "Hmm, lazy parenting." And now I apologise.

WIN an exclusive performance from Sam Moran!

To celebrate the release of children?s musical series Play Along with Sam, out now on DVD, we?re giving one lucky parent the chance to have Sam perform at their child?s pre-school or day care!

'I thought I was an only child'

Imagine meeting your double at a school sports event, or regularly being mistaken for someone you haven't met. Separated twins Margaret and Joy tell their story.

Mums reveal their nappy bag essentials

Ever wondered what other mums carry in their nappy bags? We have, so we asked mums to tell us their must-have nappy bag items.

Toddler died because he wasn't given antibiotics soon enough

A 15-month-old boy would almost certainly be alive today if doctors had given him antibiotics sooner, a coroner has ruled.

VIDEO: moment a toddler falls on to train tracks in Melbourne

Shocking footage has emerged capturing the moment a pram carrying a toddler rolled off a platform and onto train tracks in suburban Melbourne.

Sold on natural birth? Read the fine print

In the excitement and anticipation of a first pregnancy, I ignored the fine print: some women, some of the time.

Child with alcoholic mum who drank while pregnant won't win pay-out

A young child is not entitled to criminal injuries compensation after her mother drank excessively while pregnant.

Superbugs killing India's babies, posing wider threat

A deadly epidemic that could have global implications is quietly sweeping India, tens of thousands of newborns dying because antibiotics no longer work.

Can you teach a toddler to sleep in?

Parents share their tips on getting their early risers to sleep in, even for just a little bit longer.

Keeping your relationship on track as new parents

About 70 per cent of couples experience a slump in their relationship within three years of having a baby. Here's how we tried to get back on track.

America's favourite baby names of 2014

Americans are turning to television, Netflix and sports for ideas for what to name their wee ones.

Carers admit to force-feeding children

As Sydney grieves the loss of Sydney siege victims Katrina Dawson and Tori Johnson, reports have suggested that both died as heroes.

 

How many weeks til Christmas?

On your To-Do list

Get the "Santa" shopping done without the kids in tow.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.