Jump to content

Anyone had this issue?


  • Please log in to reply
1 reply to this topic

#1 UpsyDaisy

Posted 18 November 2012 - 12:18 AM

Okay, this is a little complex, so will copy and paste my recent update from elsewhere on the boards, but does extend to this area of EB, as I also received a heap of advice and help.

QUOTE
Hi,

So many in this section have helped me on my journey over the past three years so I thought I'd put a quick update.

I still do not have answers, but getting there now I think. I saw my Neurologist today and have a copy of my report. I don't quite understand it all at the moment, and just have to wait it out for another appointment to understand.

The tremor assessment shows I have a irregular kinetic and postural tremor. EMG findings aren't consistent with a psychogenic tremor. The report is full of EMG bursts and peak something or rather ranging from 5Hz to 9Hz. Findings say dystonia. Kind of feels like a "symptom" diagnosis more than anything. From what I understood today the dystonia is causing the tremors. As dystonia is a broad term - it's a step in the right direction but not an answer. I made the decision today to try and get my placement for my Uni degree deferred as my hands just are crap. I can't do a placement like this. I had hoped I'd get an answer and medication. Not to be.

My wonderful and ever so patient Neurologist of 3 years said that this is all beyond him, so I have been referred back to the hospital's Neurologist (that did this assessment) in there movement clinic there to investigate all this further.

Kind of a good step forward to some sort of answers, but still in limbo land. Still nothing to treat my significant hand tremors, jerking, muscle twitching etc, so Uni will have to go for the moment, most likely indefinitely. I can't function in the career I have chosen this way.

So now more waiting for an appointment with the Neuro from the movement clinic. I just hope for answers, in the form of something to stop this.


Okay! Now my question. I am not sure whether to wait this one out or see my GP given the above. Disclaimer -- I will follow this up with my GP if needed blah blah ...

The question - About a week ago I started getting annoying twitching in my left foot. No pain or anything just there, and annoying. Two days later laying in bed trying to sleep my foot started spasming and locking up. It did pass eventually. Since then it feels almost like I have torn a muscle or tendon or something. I am limping slightly from this, so it may explain the hip pain, It's painful to walk on and is now hurting the bone near my hip. I have odeama around my ankle now too, where the pain is. Part of me thinks this has to be all related, but as this is all new to me I just don't know.

I am curious if anyone else has experienced muscle twitching, which later lead to muscle spasms/locking, and then pain in the area? Is that normal? Or have I somehow damaged it without knowing I did?

TIA

Edited by UpsyDaisy, 18 November 2012 - 12:21 AM.


#2 Feral Madam Mim

Posted 18 November 2012 - 04:23 PM

Sorry I haven't, but I hope you get some answers soon.  bbighug.gif




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

 

Sonia Kruger speaks of baby joy

Celebrity mum-to-be Sonia Kruger has spoken candidly about using donor eggs and IVF to fall pregnant at age 48.

Dressing to not impress: life through the eyes of a three-year-old

When it comes to getting dressed, my three-year-old has only one criterion: ?I don?t want to look beautiful.? And now I've worked out why.

Special nappies made with love for angel babies

Angel Baby Nappies make and provide tiny bereavement cloth nappies for pre-term stillborn babies and premature babies who pass away in the NICU.

Inside the brain of a tantruming toddler

What's going on in your child's mind in the lead-up to a tantrum? And what?s the best way to respond?

5 secrets to a long-lasting relationship

When it comes to keeping your relationship strong, it?s what you do - and not what you want - that really matters.

When 'furbabies' meet real babies

I am obsessed with my dogs, and can't imagine loving them any less once my baby arrives. But that doesn't stop everyone from telling me I will.

The least popular baby names of 2013

Looking for a baby name that?s nowhere near the top 10 ? or even the top 1000? Try the bottom five.

'I was so sleep deprived I crashed my car'

There are no laws regulating driving while tired, but statistics show that driver fatigue is one of the top three contributors to the road toll.

Why are there so few sexy maternity bras?

Rather than feeling ashamed of their post-baby bodies, women should be free to buy lingerie that makes them look attractive and pretty - no matter what stage of life they're in.

Toddler Alliyah one step closer to first trip home

She has lived the first 14 months of her life in a hospital intensive care unit, but Alliyah Broadby's parents hope to finally take their little girl home with them.

'Put people before IVF profits': IVF pioneer Alan Trounson

IVF could be done for hundreds of dollars in Australia instead of $8500 if clinics stopped charging what ''the market will handle'', a pioneer of the technology says.

Expectant parents urged to swap the pub for bub

Nearly one in five women drink while pregnant, but a current campaign is trying to drive down that unhealthy statistic.

Nutella supplies threatened by bad weather

There's bad news for fans of Nutella, the gooey, chocolatey hazelnut spread.

The cost of growing your own vegies

Does it make financial sense to grow your own veggies, or are you better off ordering produce from the local food co-op?

Breastfeeding mums less likely to suffer from PND, but all need support

A new study has shown the a complex relationship between a mother?s intention to breastfeed, her ability to do so, and postnatal depression.

The #loveyourlines Instagram account taking on body issues

A new Instagram account, LoveYourLines, has put the call out for to change the way we view stretch marks.

Mum gets diploma 51 years after being thrown out of school over pregnancy

Sandra Lantz was about six months pregnant and four months from graduation when she was forced to leave high school. Now, more than half a century later, she has finally graduated.

The lowdown on male midwives

How would you feel about having a male midwife assist your baby's birth? For a growing number of mums, the idea is a reality - and the experts all agree that it's something that should be encouraged.

Bomb threat at daycare centre

Worried parents took to social media yesterday after their children's daycare was evacuated due to a bomb threat.

Unusual celebrity baby names

Celebrities love to use their imaginations when it comes to naming their kids! Here's a gallery of some of the most memorable monikers in show biz families.

5 fears I've overcome since becoming a mum

Motherhood has a way of putting any phobias you had pre-parenthood into perspective: you either realise they?re a pointless waste of energy or they simply vanish in a sleep-deprived haze.

Mums review the Dymples range from Big W

The Big W Dymples range offers parents a vast selection of quality products to keep their little ones happy and healthy. We asked the Real Mums Test Drive team to review some items - here's what they said.

Recall: Another cot deemed unsafe

Parents are being warned to check their baby's cot is not one of those which have been recalled in recent weeks due to safety concerns.

The truth about breastfeeding and weightloss

Celebrities often state that their post-baby weight loss is down to breastfeeding, and breastfeeding alone. But that's not the reality for all women.

10 weird things little kids do

Most kids have their own personal brand of oddity. It's usually nothing to worry about, but every now and again you might find yourself scratching your head and asking, ?Really? Is that really a thing??

The app that helps detect signs of autism

Parents can assess their children's progress at critical developmental stages, thanks to this new app.

Win back some precious time and get FREE coupons

Membership to eBay's Bubs? Corner is free and includes a $10 coupon to spend on nappies each month - a win for multitasking mums!

Download now: Essential Kids Activity Finder app

Got bored kids? Quickly find the best activities for kids wherever you are in Australia with the Essential Kids app.

 
Advertisement
 
Advertisement
 
 
 

What's hot on EB

Win back some precious time and get FREE coupons

Membership to eBay's Bubs? Corner is free and includes a $10 coupon to spend on nappies each month - a win for multitasking mums!

Do you suffer from Precious Firstborn Syndrome?

Testing ?no more tears? shampoo in your own eyes, warming cucumber sticks so they're not cold straight from the fridge, waking a sleeping baby to check they?re still breathing: these are all symptoms of Precious Firstborn Syndrome.

Ezra's tragic death not in vain, mum says

Little Ezra was a "Harry Houdini" who loved trying to escape the family home. Now, after his tragic death, his parents are doing what they can to help others.

7 mistakes old hands make with new babies

As I sat across the table from my friend ? me, a seasoned mother of three; her, a brand new mum ? I thought of all the mistakes an old-hand parent can make when visiting a newborn baby.

Video: When adults act like children

Ever wondered what would happen if adults were allowed to act like children? This dad's hilarious video clip will give you an idea of what life would be like.

Mums hit hardest as flu cases skyrocket

The number of confirmed cases of influenza in Australia has doubled the number for the same time last year - and women are 25 per cent more likely to get it.

The mum who had four babies in nine months

Feeling exhausted due to the demands of caring for a baby? Imagine the life of this mum, who gave birth to three boys and one girl in just nine months.

Everything baby at Big W

Lowest prices on everything baby, only at Big W. Sale starts August 4 and ends August 20 2014.

Smiggle is painting the town red!

We have 3 Red Smiggle prize packs to give away! Enter by posting a photo of something red to your Instagram.

Mum gives birth at school

She went to a doctor complaining of stomach pains, then had an unexpected operation to remove a decades-old fetus.

Personalised baby gifts

We've scoured the internet to find gorgeous personalised keepsakes and nursery decor to record baby name and dates. They make great gifts for christenings, name days and birthdays! (All prices in AU.)

 

Mind, body, beauty, life

Making time for me

We look at your wellbeing, covering health, relationships, beauty and fashion, mind and body.

 
Advertisement
 
 
Essential Baby and Essential Kids is the place to find parenting information and parenting support relating to conception, pregnancy, birth, babies, toddlers, kids, maternity, family budgeting, family travel, nutrition and wellbeing, family entertainment, kids entertainment, tips for the family home, child-friendly recipes and parenting. Try our pregnancy due date calculator to determine your due date, or our ovulation calculator to predict ovulation and your fertile period. Our pregnancy week by week guide shows your baby's stages of development. Access our very active mum's discussion groups in the Essential Baby forums or the Essential Kids forums to talk to mums about conception, pregnancy, birth, babies, toddlers, kids and parenting lifestyle. Essential Baby also offers a baby names database of more than 22,000 baby names, popular baby names, boys' names, girls' names and baby names advice in our baby names forum. Essential Kids features a range of free printable worksheets for kids from preschool years through to primary school years. For the latest baby clothes, maternity clothes, maternity accessories, toddler products, kids toys and kids clothing, breastfeeding and other parenting resources, check out Essential Baby and Essential Kids.