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Any hope?
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#1 ihope82

Posted 16 November 2012 - 02:12 PM

After natural FET on 5th Nov.... Blood test today "inconclusive" at HCG of 36...retest Monday. Ideas?

Edited by ihope82, 23 November 2012 - 01:19 PM.


#2 Mumma2furrykids

Posted 16 November 2012 - 02:19 PM

First of all I want to say how sorry I am you are going through this. Inconclusive results can wreck havoc on you and hubby.

Unfortunately my experience with low HCG levels is a sad one, but I'll share with you.

My cycle in May this was similar. Here are my stats - you can read more about it on my blog

2012 May - IVF/ICSI #4 with DHEA and Donor sperm
8 eggs, 5 embryos, 1 blastocyst transfer on day 5
16DPO (11dt5dt) = hCG 16/Prog 3.6,
19DPO (14dt5dt) = hCG 102/Prog 9.6
22DPO (17dt5dt) = hCG 786/Prog 17.9
26DPO (21dt5dt) = hCG 2034 / Prog 23.6
28DPO (23dt5dt) = hCG 3300 - pregnancy located in stump of my right tube.

I truly hope your outcome is better and brighter. Fingers crossed your results on Monday are through the roof and your embie is a late implanter.



#3 Mumma2furrykids

Posted 16 November 2012 - 02:21 PM

Edit

** double post **

Edited by brookstar, 16 November 2012 - 02:22 PM.


#4 jules095

Posted 16 November 2012 - 02:25 PM

So you are 11dpt?

Was it a day 2, 3 or 5 transfer?

#5 Mose

Posted 16 November 2012 - 02:27 PM

Oh I hope, how frustrating for you!

I don't know anything about the statistical likelihood, but I do know I had hcg of 12 at 16dpo and was issued with strict instructions not to treat it as a definite BFN until after the second test, although they were pretty clear that was the likely outcome (and is how it worked out).  My FS is actually happy with the result - first cycle I got DS, second ( first FET) chemical pregnancy....she says even the Chen is evidence of a body willing to respond favourably to ivf).

Apparently some women just "do" early pregnancy with low hcg. At the other end of the spectrum, I have a friend who has been suspected of carrying twins every single time due to high hcg.

So it seems, there is some hope, but you need to prepare yourself for either outcome. Also, try not to POAS....it's likely at 36 to give you a BFP, but it is really the test on Monday that will tell you what is happening.

Be kind to yourself - it's truly horrible to spend two weeks preparing for a positive or negative result only to find there is actually a third option no-one told you about!

Good luck, stay strong.

#6 naards

Posted 16 November 2012 - 02:32 PM

A friend of mine had an HCG of 8 and then had twins!  They also treated my first test as inconclusive and two days later said 'of course you're pregnant!'.  It really can go either way, don't give up hope!  Good luck! hands.gif

Edited by naards, 16 November 2012 - 02:35 PM.


#7 Mose

Posted 16 November 2012 - 02:37 PM

Edit: Double post.

Operator error trying to use a Tablet instead of an old-fashioned computer!

Edited by Mose, 16 November 2012 - 02:40 PM.


#8 ihope82

Posted 16 November 2012 - 09:20 PM

It was a day 5 blast...
I'm so confused and hurt and angry. The nurse on the phone said its right on the border but said given my history I shouldn't get my hopes up...I don't think that was really necessary.
She also told me my professor would call me this afternoon to talk and he didn't. I sat by the phone n couldn't talk to anyone else in case he called and nothing... It's not fair, like its not hard enough dealing with this without the disappointment of not speaking with the person who might have more insight.

#9 ihope82

Posted 16 November 2012 - 09:21 PM

By the way...thanks for responses....it's kind of comforting to know there are some happy endings - but then the nurses words ring in my ears about not getting my hopes up.. sad.gif

#10 aidensmum

Posted 17 November 2012 - 02:06 PM

I'm not a big believer in numbers. I've had two positives this year that went bad soon after despite good numbers and had a pg years ago that was not expected to continue for three weeks straight based on hcg and bleeding, which then was suspected ectopic, then small for dates at scan.  PG was successful after a terrible beginning. I try to assume the worst and hope for the best, and don't put much faith in anything until I've seen a heartbeat.
Wishing you luck for Monday.

#11 ihope82

Posted 18 November 2012 - 04:42 PM

I had a little bleeding yday...honestly prob wouldn't have noticed if I weren't so paranoid. There's been none since though and today feel so incredibly nauseous & teeth are hurting (yeah I know, weird symptom but have had sensitive/ sore teeth every pg) It's so confusing.

My DH is quite angry our specialist didn't call on fri..and that we haven't been followed up at all over the wkend - when we have spent over $3000 for this cycle alone, which only consisted of a phone consult, 2 blood tests, transfer then pg blood test. I'm upset too, but it's not about the $$... Even though we can't afford it, I can't put a price on a successful pg & baby. I do think they should have honoured their decision for the professor to call though... And I guess it would be another reason it would be nice if they really where're wrong & I can hang onto this pg and baby.

#12 PetaSiddle

Posted 18 November 2012 - 04:48 PM

I totally agree OP. We are spending so much money at these places, they can at least call when they say they will. My nurse is always incredibly pessimistic as well, seriously, I get that the odds are not great but a little positive thinking wouldnt hurt.

bbighug.gif

#13 newmama2010

Posted 18 November 2012 - 05:08 PM

I really hope your numbers keep going up.  I had a low HCG and fortunately mine did keep going up and I am now 26 weeks pregnant.  Mine was a natural  FET  with 3 day embryo from the previous stim cycle.

14 DPO - 15
17 DPO - 46
19DPO - 134
22 DPO - 550
25 DPO - 1407

As you can see my numbers were very low and I wasn't getting much encouragement from the nurses at my clinic either. Although my specialist was optimistic.

Wishing you the bestest of luck for a sticky one x





#14 Schoolmum12

Posted 19 November 2012 - 04:50 AM

Good Luck with your retest today, Ihope.  Let us know how it goes.

#15 ihope82

Posted 19 November 2012 - 02:31 PM

STILL waiting on the call.....so frustrating  mellow.gif

#16 ihope82

Posted 19 November 2012 - 02:44 PM

So just got the call... HCG at 178, prog 26.
Nurse sounded very pessimistic - which I'm starting to believe after 4 rounds is in their job description....and said it could still go either way.
So not bad news...but not the best either. Professor is going to call this arvo - though I have heard that before! Nurse said he might want to start me on prog pressaries....which I am fine with but wonder why they didn't suggest this on Friday? Anyway...
Thanks for listening to my ranting and raving...

#17 Schoolmum12

Posted 19 November 2012 - 02:46 PM

Well you certainly have a fighter on your hands there Ihope.  All the best.  I'll keep stalking you for updates!

xx

#18 dimensionk

Posted 19 November 2012 - 04:10 PM

Stalking for updates here too. Glad it's not bad news as such. Much be frustrating to still not know though. Have my fingers crossed for you.

#19 halby

Posted 19 November 2012 - 04:12 PM

Ihope82 I am glad to see your hcg has gone up nicely, you definately need some p4 support they like to see your p4 above 30. In saying that your hcg going up should now start to push your progesterone up. Definately tell them you had a little spotting, and I do hope that your fs called. Fingers crossed that you get the all clear and can celebrate a bfp soon. My DD only showed a hcg of 81 at 16dpo, while my clinic was wonderful though as they told me it was a little on the low side but its the doubling that matters not the actual figure initially.

#20 aidensmum

Posted 19 November 2012 - 05:49 PM

Big step in the right direction I think.  So glad you got an increase.
Best wishes for the next few weeks.

#21 ihope82

Posted 19 November 2012 - 06:40 PM

Thanks everybody....a tiny glimmer of hope is creeping in. Still haven't heard from my FS though which is extremely disappointing, ill be trying to get in touch with him first thing tomorrow!

#22 Mumma2furrykids

Posted 21 November 2012 - 11:26 AM

OP, what's the latest update?  Hoping and praying your numbers are doubling !!



#23 ihope82

Posted 21 November 2012 - 07:00 PM

Thanku....

So on Monday, 2 wks since transfer (5 day embie) ...HCG was 178 and progesterone 26. So my FS said he was surprised I didn't lose it over the wkend but levels rose quite a lot and he has seen good outcomes in patients before with these results which is good. He did say though that low levels usually indicate a genetic defect of some sort and that's why the body will usually naturally miscarry - which is stressful because my DD who was born with anencephaly was the first from this "batch" of embies. I don't think there's a statistically higher risk of us having another one with her condition but its playing pretty heavily on my mind.
So more bloods on Friday, I'm on progesterone pessaries now & have a scan booked for early dec..

I really feel a bit disheartened by nurses & FSs approach to this whole situation....I've been the one who's had to chase up all results & I had to be pushy about pessaries etc....he only said "they can't hurt". He's a lovely man and very experienced but I just feel disappointed that if it can't hurt....why wouldn't they give the, to everyone anyway, just incase. None of us are doing IVF cause its fun....we all want to give these little lives the best chance we can at life...sometimes I don't feel the professionals care at all, though I know there needs to be a level of detachment etc. Does anyone else feel like they have a battle to really get thorough treatment and options etc??

Anyway...sorry, turned into a little rant. Hope alls well with u all...thanks for reading. Ill try to update come Friday.
Xo

#24 BJBubbles

Posted 22 November 2012 - 06:03 AM

Hi ihope,

My heart goes out to you - what a stressful situation you are dealing with.  So sorry you are feeling let down by your FS and nurses...

I don't have much advice re the HCG/Progesterone etc, but wanted to try and reassure you about the anencephaly.

***Pregnancy and loss mentioned***
I got pregnant off our 2nd stim (ICSI) cycle last year. We transferred one embryo and froze 3 from this cycle.  Our baby was diagnosed with anencephaly at the 12 weeks scan.  It was devastating!   I, like you, was then very concerned about the possibility of the other embryo's being "defective" (for lack of a better word).  My FS was very cautious too, so sent us to see a genetic counsellor before we proceeded with our FET's.  

They reassured me that while devastating, the anencephaly was in no way genetic and there was no higher statistical chance of those frozen embryo's developing the same problem, as embryo's from a new cycle - even though I wasn't taking the massive doses of folic acid when the eggs were formed. Apparently the neural tube mainly forms between 4 and 10 weeks of pregnancy (I think?!) so as long as I was on the high doses for my transfers (and a month before hand) then all *should*  be fine.  We went on to do 2 FET's with those embryo's, but they were both BFN's.  However, I'm not almost 28 weeks pregnant with a baby that all tests have shown is perfectly healthy, showing no markers of anencephaly, or any other NTD.


Good luck - I hope you get some more solid answers soon.

xoxo



#25 dimensionk

Posted 22 November 2012 - 10:14 AM

I'm glad there is still some hope, though hope can also be torture. Still have my fingers and toes crossed for you.

It's really terrible that you've had to chase up everything. Especially when he's had good outcomes before with those results - while there's a chance that everything could be fine, he should be doing everything he can.


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