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Pretend play finally!
From my ASD 4 y.o


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15 replies to this topic

#1 Gumbette

Posted 14 November 2012 - 06:40 AM

After 4 years of doing nothing with her toys except tipping them out them out all over the living room, DD is sitting in the corner playing with her Barbie completely unprompted (albeit Barbie is nude, trying to get the giraffe out of her hot tub  unsure.gif ).  Thank you early intervention!!!

Edited by Gumbette, 14 November 2012 - 06:43 AM.


#2 ~chiquita~

Posted 14 November 2012 - 06:46 AM

That's awesome news, Gumbette! Yay for EI! original.gif

#3 Studybug

Posted 14 November 2012 - 07:14 AM

I'm not familiar with your situation, but know this is great news anyway! Really lovely to hear.
Yay for your DD - play away!!

#4 Farmgal

Posted 14 November 2012 - 07:19 AM

What a great moment for you! Well done.


#5 brazen

Posted 14 November 2012 - 07:19 AM

well done!

we didn't get pretend play til 7 for ryan and 5.5 for rora (not diagnosed until nearly 7) so that is great work!

#6 FeralZombieMum

Posted 14 November 2012 - 08:45 AM

Awesome news!

Isn't it funny how these "little" things mean so much more to some of us parents! biggrin.gif

#7 baddmammajamma

Posted 14 November 2012 - 09:05 AM

Oh wow, that's awesome Gumbette! You know that I have a special soft spot for your daughter, so I truly share in your joy!

We are both so lucky that our daughters have gotten such great early intervention. May the victories keep coming!

#8 Chelli

Posted 14 November 2012 - 09:11 AM

I remember the first time my niece with SN started pretend play, it made me teary. Thankyou for sharing your wonderful news original.gif

#9 Gumbette

Posted 14 November 2012 - 09:46 AM

QUOTE (ZombieMum @ 14/11/2012, 09:45 AM) <{POST_SNAPBACK}>
Isn't it funny how these "little" things mean so much more to some of us parents! biggrin.gif

I know, I was almost too embarrassed to post it, but I am just so thrilled I couldn't help myself.

QUOTE (baddmammajamma @ 14/11/2012, 10:05 AM) <{POST_SNAPBACK}>
We are both so lucky that our daughters have gotten such great early intervention. May the victories keep coming!

A quick thanks to you and everyone who gave me a gentle shove, I might have sat on my hands hoping she would be okay until it was too late otherwise.

#10 baddmammajamma

Posted 14 November 2012 - 04:36 PM

QUOTE (Gumbette @ 14/11/2012, 10:46 AM) <{POST_SNAPBACK}>
A quick thanks to you and everyone who gave me a gentle shove, I might have sat on my hands hoping she would be okay until it was too late otherwise.


We do the whole "gentle shove" thing really well around here! wink.gif  I am so happy that your daughter is thriving.

Gumbette, if it wouldn't be too much to ask, would you mind sharing a quick run down of your "story" for the benefit of other EBers?

I think your daughter's situation is a perfect illustration of why it's so important to get a proper assessment by qualified professionals -- I remember that you guys were getting a bit of a runaround when you first started noticing that something was different re your daughter's development.

#11 ASDivine

Posted 14 November 2012 - 06:26 PM

Great news!

Edited by ASDivine, 01 December 2012 - 09:28 PM.


#12 Gumbette

Posted 14 November 2012 - 09:14 PM

QUOTE (baddmammajamma @ 14/11/2012, 05:36 PM) <{POST_SNAPBACK}>
We do the whole "gentle shove" thing really well around here! wink.gif  I am so happy that your daughter is thriving.

Gumbette, if it wouldn't be too much to ask, would you mind sharing a quick run down of your "story" for the benefit of other EBers?

I think your daughter's situation is a perfect illustration of why it's so important to get a proper assessment by qualified professionals -- I remember that you guys were getting a bit of a runaround when you first started noticing that something was different re your daughter's development.

Okay here goes...

DD was late with talking and had no eye contact.  All her gross & fine motor skills were absolutely fine, she was an adorable affectionate little girl, who hardly ever had a tantrum.  In fact she was probably the best behaved baby I had ever come across.  

When DD started day care at almost 3 her educators noticed that she still wasn't able to tell them that she needed changing instead she would just stand and cry until someone attended to her.  She didn't play with other children, and in fact would push them away if they invaded her space.  She would also spend a long time lining things up and often walked on her toes (we never saw this behaviour at home).

It was on the advice of the day care we started to investigate further.  However we hit a lot of brick walls (5 in fact).  Her paediatrician told us not to worry as he had a few children who weren't toilet trained at aged 3 and as long as she didn’t walk on her toes constantly it wasn’t a concern.  He also cited that she was such an affectionate child, was cognitively ahead of her peers, and had reached all her milestones (except speech) on time, so there was no way she could be on the spectrum.  A speech therapist told us not to be concerned as she was bilingual (in hindsight a ridiculous piece of advice as she barely spoke English let alone a second language).  A clinical psychologist referred to us by the same paediatrician also assured us DD was fine as she often came to us for comfort throughout the session.  Although I was buoyed by all this good news (no one really wants to hear that their one and only desperately longed for child is anything but perfect), I knew there was something wrong, and day care kept pushing me to get a diagnosis.  Two clinical psychologists later we were still being told that she was fine and to come back in 6 months.  By this stage DD was 3 ½.  This is when I stumbled onto Aspect who diagnosed DD straight away with moderate Autism.  

This is where the lovely mothers from the Special Needs section stepped in and suggested ABA.  BMJ, Item, Duffy29 , tel2 and countless others were all very helpful with advice on their E.I. provider(s).   They encouraged me to get DD the help she needed and deserved, they gave me support and the hope that things could only get better, they talked me through the stages of grief that one inevitably goes through when their child receives such a diagnosis and helped me through the guilt that I may have caused her condition.

So…one year later, DD still has a slight speech delay, but is pretty much at the low end of average.  She no longer pushes her peers and with the help of a shadow is starting to make friends.  Her eye contact is good.  She is also about to finish up her formal ABA program, she has done so well – better than any child our senior therapist has ever come across in fact, so much so that they’re trialling a new program custom designed for her.

So there is my terribly long winded story.  As BMJ loves to say ‘if in doubt check it out’.  We wouldn’t be where we are today if I had listened to well-meaning friends and family ,or medical practitioners who worried too much about ‘labelling’ to properly diagnose my DD.  


#13 VioletRose

Posted 14 November 2012 - 09:24 PM

QUOTE (Gumbette @ 14/11/2012, 10:46 AM) <{POST_SNAPBACK}>
I know, I was almost too embarrassed to post it, but I am just so thrilled I couldn't help myself.


I'm so glad you posted, it truly is wonderful news. Congratulations to her for reaching this milestone and to you for helping her get there. biggrin.gif

#14 baddmammajamma

Posted 15 November 2012 - 09:34 AM

Thanks for taking time to write all of that out.

I think your & your daughter's story is so powerful. There are a lot of kids out there whose issues go undetected for too long because the front line professionals working with them don't fully grasp all of the nuances of ASD, ADHD, or other common developmental issues -- and parents concerns are dismissed.

I sound like such a broken record on this score, but if anyone reading this has a child with "quirks" that are impacting his/her daily functioning, your best bet is to get a comprehensive assessment by a specialist (e.g. developmental paed) who works within the space of developmental disorders. If someone tells you that there's "nothing wrong" yet your child is still struggling, trust your mamma bear instincts and get things checked out by someone who truly is an expert in the field.

#15 Therese

Posted 15 November 2012 - 09:49 AM

That is such great news Gumbette original.gif



#16 item

Posted 15 November 2012 - 06:20 PM

Thrilled to read this! Well done :-)

(& thank you sharing your story). Can't wait to catch up soon xo




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