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IVF with PGD #102
106 replies to this topic
Posted 09 November 2012 - 08:02 AM
I'm considering POAS. Please convince me not to, it will just drive me crazy!
Posted 09 November 2012 - 09:00 AM
How many days past pick up are you Peta? I'm not very good at not POAS, and it does drive me crazy.
Posted 09 November 2012 - 09:05 AM
Oh dear, I just thought about it and I'm only 5 days past transfer - I think I will need to hold off a bit longer!
Its just that I've been feeling lots of symptoms and today they are gone... I'm paranoid!
How are you going bree18? Any updates?
Posted 09 November 2012 - 09:40 AM
Do you get to be Sliver and Bronze, if you have not claimed the position Ladies????
Does this make me Silver?
Good Luck Peta, it's not easy, but at 5 days, it's not likely to be positive yet, so be strong and enjoy the feeling.
Yes Bree, time for an update isn't it?
Posted 09 November 2012 - 12:14 PM
Hey guys, I had to jump back in to help puddle duck out- yes April I'm still lurking! I'm just so so sooooo sick that I have had no energy to jump on the comp. I'm writing this on my phone in bed! But I dont expect any sympathy- this morning sickness is what we all hope for!
Anyway puddleduck, yep I'm in Perth and can thoroughly recommend Hollywood. Our embryos have a 25% chance of having cystic fibrosis so we explored PGD costs and centres- i was told only pivet, concept and hollywood are the best. Concept and hollywood came recommended and pivot was more $$. I wouldn't tell you to not go with them for that reason tho! I liked hollywood straight away as they took time answering my questions. We had to go to king Edward genetic councellors to get a referral letter and then wait a few months for our feasibility test to be done. Then Hollywood had to create a specific test for us which took another few months. After that we had the go ahead and its a case of a normal IVF stimulation cycle where you stimulate your ovaries to produce as many eggs as possible, they are harvested, your man makes his sample and the scientists try to fertilize the eggs. At Hollywood they grow the fertilized eggs to 5 days and then biopsy them and send the biopsy to Genea, Sydney.
I chose Hollywood over concept because concept only grew to 3 days which to me seemed very small to biopsy!
So at this point it is a heartbreaking wait to see which eggs fertilize, then which embies grow and survive biopsy! As u can see from my signature, we were left with 5 before testing. and they are frozen. You can't do a fresh transfer because of being in Perth unfortunately.. I think at concept you might tho.
Because of this we also chose to have chromosome testing done as well. If we had to wait an extra cycle then We thought we would make the most of it!
After 3 weeks they were able to tell us we had 2 with cf, 1 with a whole new syndrome and another that would have miscarried before 14 weeks.
Leaving us with the little lovely who is making me so sick right now!!
You have to wait a full cycle before they can transfer your healthy emby back but this can be a good thing!
They are very thorough at Hollywood, don't seem to have some of the problems that april is having with a set amount of pgd per month and they do blood tests 12 days after transfer which is good and weekly blood tests after that which is reassuring.
I also felt I could call the scientists at genea where they do the testing whenever I had a concern and they would happily chat to me.
So I'm not meaning to push you toward Hollywood I have just had a good experience so far.
Definitely call up the centers and see who you feel comfortable with because that is very important! It is a long road but I feel much happier doing things this way instead of risking it.. As Bree said the clinics do still watch their backs and recommend having th CVS test too.. Ours is in a month or so- maybe ill sing a different tune if they have effed up and transferred an unhealthy one.. Don't even want to joke about that!
Good luck and keep in touch!
Hi to everyone else .. I am following and sending lots of good vibes to you all!!
Posted 09 November 2012 - 03:05 PM
1st Time, great to hear from you! When are you having a scan?? Keen to hear updates...
Hi Bree, are you due for a scan soon? I'm also hanging out for your updates!!
Madalem, hope you are having a really nice time away!
Peta, how is the 2ww going?? Not too long now until you test! When are you going to POAS??
April, Puddleduck, hi. April, I was so angry to read your update. Surely the clinic should have applied to the council as soon as you knew you were not going to test your PGD & were planning another stim? I have lots to say on the matter, but PM me if you want any info as I'm too cross for you to write what I think in a public forum.
I'm also a Perth girl, but am living in SA. I have had two babies with a fatal genetic trisomy (the most recent in June this year) yet both DH & I are chromosomally normal so we have chosen to undergo PGD with CGH looking at all chromosomes to avoid having another stillborn or midtrimester loss which has torn us apart emotionally.
All of the information I have is that a day 5 biopsy is 20% more likely to give a healthy pregnancy than a day 3 biopsy & all the presenters at the recent fertility conferences agree with this. We have gone through Genea in Sydney & the experience is extremely awesome. I thoroughly recommend them. It is a pain with all the travelling for transfers but they are certainly the best as far as labs go & have the highest success rates but are very pricey. Prices on the website are surprisingly accurate. I believe that Hollywood in Perth also uses the Genea lab. Not sure about the others.
In my case, I feel much better travelling to what I think is the best lab & thoroughly recommend them. Their lab staff are always available on the phone to answer the most stupid of my questions & I feel really reassured. I also had much better results from my stim cycle with them - all 8 of my embryos made it to blastocyst stage which I have never had before!!
Also April, I have 6 frozen embryos (untested) from a stim cycle here in SA which I can't throw out but won't use as I can't face another stillborn but this was of no consequence before I started another stim in Sydney.
I had an initial phone consult with the FS & had a visit to Sydney for nurse/scientist/finance person meeting & have only been back for transfers/EPU. We had to do a freeze all cycle to wait for CGH results but again there has been some research that shows that frozen natural cycles have a better success rate possibly than fresh transfers without OHSS risk.
Anyway, hope that helps & hope you all have a nice weekend.
Posted 09 November 2012 - 04:22 PM
Hi hoping, 1sttimelucky and April!
April- you can claim silver
Peta- 10 days past transfer is still early. I have always started testing at 4 days past 5dt and have gotten a positive at 5 days past transfer but many people don't get a positive that early so ideally I would wait another few days. BUT I know that I wouldn't have the will power!
AFM- I had a BT on Monday and my hcg had doubled nicely again and progesterone was the same so I've calmed down a lot. I think I'll get another test Monday or Tuesday to check my progesterone as I'm still a little worried but I'm hoping that it is just going to stay the same or go up now. I still look at my left over crinone wondering whether I should work out a way of using half a stick a night. I have a scan on Tuesday which hopefully shows a nice healthy heartbeat. I have to admit I haven't really accepted that I'm pregnant and I know that's to protect myself if it doesn't turn out well but I'm hoping that the scan will be fine and I can start to accept and enjoy it.
Edited by bree18, 09 November 2012 - 04:24 PM.
Posted 09 November 2012 - 04:45 PM
Hi hoping and Bree! How are you? My scan is monday so hoping for a nice heartbeat! My last hgc levels we 80,000+ so hoping this means there will be!
Yep it's Genea who Hollywood use but just for pgd/ cgh all the growing and fertilizing and biopsying (word?) happens in Perth.. Well it did for me. Did u speak to don in the lab at Genea hoping? He is awesome! He would just keep talking and give me heaps of info! He really made me feel comfortable with any little question I had.
I've nOticed A few perthies in the November 2ww puddleduck, some at concept you might want to ask them about their experience?
Edited by 1sttimelucky, 09 November 2012 - 04:48 PM.
Posted 09 November 2012 - 06:07 PM
Good luck for Monday !st Time & for Tuesday Bree!!
Hope you find a clinic & FS you can trust soon, April. What a complete disappointment. You must be really disappointed!
Good luck with your journey, Puddleduck. I'm sorry that you have to join us here...
I'm also with the big clinic in Sydney & am really happy with them.
AFM, I finally o'd on Wednesday so am gearing up to have a natural cycle FET - transfer on Monday. I'm getting excited but really nervous that my embryo won't thaw.... I haven't had success with FETs in the past but am really hoping this one is different. I'm using ovidrel & crinone as luteal support. Anyone else had experience with that? I've also booked in for accupuncture before & after so fingers crossed this will be the perfect embryo & will nestle in for the next 9 months or so....
Praying hard that this embryo thaws & sticks.
Good luck with the 2ww Peta. I guess you'll already have POAS by the time I join you on Monday!!
Posted 09 November 2012 - 06:19 PM
Hi everyone, I just wanted to say a massive thank you to all of you who replied. I really appreciate your feedback and it has certainly given me something to think about. I think I will be calling a couple of the clinics to see our options. As horrible as it is, it is kind of nice to know there are other people who have been through similar things with the genetic side of thing. Thanks again
Posted 11 November 2012 - 07:44 AM
It's really not looking good for me. All symptoms have gone and two very very negative pregnancy tests. I guess I didn't expect it o happen first time but I really had my hopes up
Posted 11 November 2012 - 07:59 AM
Hang in there peta.....it's still might be too early.....
On phone...hard to reply....be back on Tues....
Posted 11 November 2012 - 08:27 AM
Peta- I'm keeping my fingers crossed for you. Blood tests have been known to surprise before. As for the lack of symptoms, lots of people don't get any.
Ivfmiracles- good luck on Wednesday.
Madalem- hope your holiday is going well.
Hi everyone else. Just a quick one today, have a busy day ahead of cleaning, grocery shopping, washing etc- yuck!!
Posted 11 November 2012 - 04:24 PM
Peta, don't give up yet.... I've never had a positive POAS until at least 12 dpo or 7 dpost 5 day transfer.
Good luck with your scan tomorrow 1st time!
Getting ready to go to the big city for transfer tomorrow. Just praying that my little embryo thaws nicely & decides to grow this time!! Feeling really yucky from ovidrel. Hope there are no flight delays/computer problems tomorrow as I will go absolutely nuts if I miss my transfer.
Hope you are all having a nice weekend.
Good luck Puddleduck. Let us know how you go. It usually takes ages to get in to a FS. I know that I had to wait a month or two but I got a really good recommendation from some of the ladies on here & am really happy with him.
Posted 11 November 2012 - 11:03 PM
Good luck to you IVF miracle! I'm sure all the problems yesterday with computers happened so they wouldn't happen tomoro for you. I m sending lots of wake up and do your thing vibes to your little emby!!
Thanks to everyone for the well wishes tomoro, I may not be able to have one as it turns out, if my ob isn't qualified to make it a dating scan then I'll have to go somewhere else. Bit annoyed to find that she has an ultrasound machine but no qualifications for it?! Weird.
Peta.. I hope it works out for you .. Please just be a late starter!!
Posted 13 November 2012 - 10:06 AM
Bree : Good luck with your scan today. I will be stalking you for updates...
Peta : Have you tested again???
First Time : Did you get a scan anyway? Surely your doctor could look for a reassuring heartbeat for you!!!!!
I'd like news please girls....
Posted 13 November 2012 - 11:37 AM
Yep I had my scan and there was a lovely heartbeat! 176bpm..
And turns out she could do the dating scan and I'm only 8 weeks!! Feels like I should be 20!
Any news bree?
IVF miracle how did your transfer go?
Anyone else, peta- how are you going?
Posted 13 November 2012 - 11:41 AM
No I havent tested again Hoping. I've had a fair bit of bleeding yesterday and today but not like AF. My blood test is tomorrow so I guess I will know for sure then!
Can I ask a stupid question? WHat happens when you get a BFN after an IVF cycle - does AF just come? Is it usually later than normal? I have no idea what to expect!
Congrats on your scan 1sttime!!! That is so wonderful for you.
Posted 13 November 2012 - 11:41 AM
Sorry double post
Edited by PetaSiddle, 13 November 2012 - 11:43 AM.
Posted 13 November 2012 - 02:31 PM
Congratulations First Time! How exciting to see that lovely heart beat! That is such lovely news to hear.
?Bree : How did your scan go today??
Peta : I am the Queen of BFNs & my AF usually comes within 2 days of stopping any luteal support meds. Usually she makes her appearance on or around expected time though.... Hoping that you get some good news tomorrow though & you don't have to worry although any bleeding is a real worry, isn't it?
April? How are things progressing with a new clinic? Lots of waiting I imagine!
Well, I had my ET yesterday. Lovely hatching blast thawed nicely on board. Thankfully it thawed. Nothing really different to previous transfers so not feeling too confident. No symptoms & no implantation spotting of any kind. I'm on HCG as luteal support so cant really test early. BT booked for Friday 23rd November. That seems so long away. Anyhow, now just trying to keep sane in the 2ww!
Posted 13 November 2012 - 03:04 PM
Well I'm in limbo land.
There was a baby but its measuring a week behind at 6w1d when I'm 7w1d and the heartbeat was slow at only 86. I had to hold my breath twice for her to find it. I'm guessing that's not good but suppose I shouldn't assume anything until the FS gets the report and calls me
Edited by bree18, 13 November 2012 - 03:11 PM.
Posted 13 November 2012 - 03:09 PM
It's been a looooong time since I have posted in here..
I am 7 days past transfer and thinking I should test early..
I have a huge head cold, temps & feeling like cr*p
So sorry to jump in and have a whinge...
Any advice on what I can do?
The thing is that I don't even know if I am PG so am tollerating this maybe for nothing???
Ohhh the joys..lol
I will pop in later once I'm feeling better to update my story
Bree~ I remember you from a few yrs ago.....
Posted 13 November 2012 - 03:13 PM
Bree - Fingers crossed that your next scan leaves you feeling a little more positive.
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