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Whooping cough is awful.


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#1 twilightangel

Posted 31 October 2012 - 02:35 PM

Three weeks ago today my baby boy was admitted to our local hospital with a cough the Dr suspected was whooping cough. The test come back positive and since then I have been through the scariest three weeks of my life.

On day 3 (Friday) my baby had a bad coughing fit where his oxygen dropped and he went blue. This was witnessed by myself, my husband and my other four kids. The local hospital decided then it was time to transfer him to RCH Brisbane. An IV line and nasal gastric tube was put in and the paediatric retrieval team organised to come collect him.

We reached RCH around two in the morning where he went straight into the high dependency unit. Later that morning he had another bad episode where he required bagging and he was then transferred to paediatric ICU.

After a few day's there we made it back to HDU and then onto the standard ward. I thought we were on the homeward stretch as there was talk about transferring him back to our local hospital but he had another bad episode that night that required the MET team being called and him being bagged again. It is so very scary seeing all those people come running into a room with all their equipment knowing it is for your baby.

This got us transferred back to HDU and then from there we were transferred back to PICU as he repeated his episode again the next night with full MET team responding again. He's had one more episode after that that also required CPR as well as bagging :-( the rest have been smaller and just requiring flow by oxygen support.

We are now day 6 of our second stay in PICU. I've seen my baby boy blue more times then I can remember. I spend my days sitting by his bed so worried about him and feeling useless.

I'm not sure what I'm after by putting this out there. Maybe just a chance to get my feelings off my chest.

I hope my little boy starts recovering soon. It's so hard seeing him struggle to breathe after or during a coughing fit.

And yes my baby boy has had his first needles. And everyone in the family has had their boosters.

Any advice on keeping my supply up during this stressful time? I'm still feeding him but in trying to express at times too for when the time comes and I might have to go home for a night or two.

Edited by twilightangel, 31 October 2012 - 02:53 PM.


#2 Natttmumm

Posted 31 October 2012 - 02:41 PM

My thoughts are with you, I feel for you and your little boy. My girls had this but were older and were fully vaccinated. It was scary but they were ok as they were ages 1 and 3.
I wish him a speedy recovery. I'm not sure about the supply issue but I couldn't not respond.
Sounds like you are in good hands and I think the first 3 weeks are the worst so hopefully it's going to turn around soon



#3 Natttmumm

Posted 31 October 2012 - 02:41 PM

My thoughts are with you, I feel for you and your little boy. My girls had this but were older and were fully vaccinated. It was scary but they were ok as they were ages 1 and 3.
I wish him a speedy recovery. I'm not sure about the supply issue but I couldn't not respond.
Sounds like you are in good hands and I think the first 3 weeks are the worst so hopefully it's going to turn around soon



#4 missjoads1234

Posted 31 October 2012 - 03:00 PM

OMG that must be so incredibly scary and stressful for you. I can only try and imagine. Sending you strength and a speedy recovery for your baby boy. As for the supply im sorry i dont have alot of info. Perhaps get on the phone to the breastfeeding hotline and ask some questions? Or the eqvuil. in your state?

#5 glasnost

Posted 31 October 2012 - 03:02 PM

Twilightangel- I don't have any advice for you but I just wanted to say that I am thinking of you and wishing your precious baby a speedy recovery.


My two eldest had WC a few weeks ago despite being up to date with their vax. I don't know what you experience has been but it seems to me that there is alot of ignorance out there in the wider community and even with health professionals regarding the efficiency of the vaccination and also the symptoms. My kids just seemed like they had a bad cold and cough and I wonder how many other people there are out there wandering around coughing everywhere and spreading WC completely unaware that they have it? It makes me quite angry actually when it is innocent babies like your who suffer the most!

#6 MrsLexiK

Posted 31 October 2012 - 03:08 PM

I am so sorry you are going through I cannot believe to imagine how scared your little boy must feel every time he coughs.  I am a grown women and got it and I was terriefied when I was having the attacks as I couldn't breath I said to anyone that would listen "imagine being a young child or baby who doesn't understand that the more you panick the worse it gets and not understanding the words your loved ones are telling you"  

I really hope he gets out of the worst of it quickly.  

Supply issue - are you using a double pump? (I don't know much about expressing as I am not there yet but I know double pumps get more out of them then doing single pumps one after another) Does the hospital have a maternity ward? perhaps they could lend you the services of the medela symphony?

#7 twilightangel

Posted 31 October 2012 - 03:51 PM

Natttmumm - My 4 year old and 6 year old have also tested positive but they are handling it better. They only cough 2 or 3 times a day.  I really hope it does turn around soon. Thanks for your kind words.

Missjoads - Thank you. I didn't even think of calling the ABA for advice and support. Thanks for the well wishes.

Mamasaurus - Yes I agree with you completely. I think there is a lot of ignorance out there in regards to whooping cough. I am just so thankful my GP suspected whooping cough straight away and didn't dismiss it as a viral cough etc. I hope your two kids are feeling a lot better now. Luckily my other two are coping a lot better.

MissLexiK - Yeah he does panic a lot and then holds his breath or makes it harder to get the oxygen mask on him cause he's throwing his arms around. It's so scary too watch but I try to stick around and talk to him in the hopes my voice is reassuring. The PICU do have a medela symphony pump for me to use which I have been. Double pumping is a little tricky though as I'm still new at breastfeeding as my previous 4 weren't breastfed. I'm trying to make sure I drink a minimum of 2 litres of water and eat well but I'm just worried that I can't express much after a feed. Guess he's taking it all.

Thanks for the well wishes and support. It's nice to talk about how I feel.

Edited by twilightangel, 31 October 2012 - 03:54 PM.


#8 MrsLexiK

Posted 31 October 2012 - 03:57 PM

MissLexiK - Yeah he does panic a lot and then holds his breath or makes it harder to get the oxygen mask on him cause he's throwing his arms around. It's so scary too watch but I try to stick around and talk to him in the hopes my voice is reassuring. The PICU do have a medela symphony pump for me to use which I have been. Double pumping is a little tricky. I'm trying to make sure I drink a minimum of 2 litres of water and eat well but I'm just worried that I can't express much after a feed. Guess he's taking it all.
[/quote]

I do think hearing your voice will be very very reasuring to him even though he may not understand what it is you are saying.  Just a thought, is he feeding like he used and from both breasts? I know a friend whose baby does the midnight dream feed but only needs a little bit, she expresses at the sametime as feeding the baby.(the baby wasn't 100% sure on the sound the first couple of times but got used to it) I have read from other mothers on here that expressing in the morning will usually give you a lot more then expressing in the afternoon?

#9 Cranky Kitten

Posted 31 October 2012 - 04:08 PM

I cannot even begin to imagine how frightening that must be - my thoughts are with you and your family, hoping your darling boy pulls through and is well soon!



#10 Puffin

Posted 31 October 2012 - 04:13 PM

Hi, sorry to hear your little one is unwell.
Regarding the supply issue, just express as frequently as you can. Yes, your milk supply will drop off a bit, but don't worry. As your baby gets better and can feed directly from you, he will bump up your supply to meet his needs. You might also find as he recovers you'll have a day or two of endless feeds, this is the best way to boost your supply, so don't think it's not working. Breast milk production works on supply and demand. The more baby demands a feed, the greater the supply will be.
The hospital will store/freeze/use whatever milk you give them, if you're not sure, ask them how it all works.
Again , sorry to hear how sick your baby has been and I hope this helps somewhat.

#11 twilightangel

Posted 31 October 2012 - 04:27 PM

QUOTE (MrsLexiK @ 31/10/2012, 03:57 PM) <{POST_SNAPBACK}>
MissLexiK - Yeah he does panic a lot and then holds his breath or makes it harder to get the oxygen mask on him cause he's throwing his arms around. It's so scary too watch but I try to stick around and talk to him in the hopes my voice is reassuring. The PICU do have a medela symphony pump for me to use which I have been. Double pumping is a little tricky. I'm trying to make sure I drink a minimum of 2 litres of water and eat well but I'm just worried that I can't express much after a feed. Guess he's taking it all.


I do think hearing your voice will be very very reasuring to him even though he may not understand what it is you are saying.  Just a thought, is he feeding like he used and from both breasts? I know a friend whose baby does the midnight dream feed but only needs a little bit, she expresses at the sametime as feeding the baby.(the baby wasn't 100% sure on the sound the first couple of times but got used to it) I have read from other mothers on here that expressing in the morning will usually give you a lot more then expressing in the afternoon?


He still only drains one breast per feed so this morning I expressed the other side and got 220mls so I might continue to do that then as in the afternoon I do struggle to get much, maybe 80mls. He is still feeding really well. Maybe more frequently at the moment as he lost some weight at the start but he is now putting it back on. I might try pumping during the night as his last feed is 7pm and then he sleeps until 4am so it would be safe for me to pump around 10pm.

Cranky kitten - Thank you for your kind words and wishes.

Puffin - Yes the hospital are freezing the milk for me as it won't be needed until the end of next week when I am going to need to start going home at nights.  I'm still feeding on demand and I feel he is getting enough from me when he feeds but there just isn't much to express and store for later on. I will continue expressing though and hope it helps boost my supply. At times when I feel really useless I try to remember that I am still providing my son with milk and that that is pretty helpful.



#12 Puffin

Posted 31 October 2012 - 05:34 PM

Sounds like you're doing an awesome job re feeding and expressing. Truly you are!Hope you have a restful night tonight.

#13 twilightangel

Posted 31 October 2012 - 05:40 PM

Puffin - Thank you so much. That's really helped me feel better today.

#14 runnybabbit

Posted 31 October 2012 - 06:32 PM

OP you're doing so well, keep expressing and keep doing what you're doing. If your output seems to slow then you can start on fenugreek and Motilium (need a script for the latter) to temporarily increase your supply during this stressful time. sad.gif

Thoughts are with your little baby, how very very scary.

#15 Pop-to-the-shops

Posted 31 October 2012 - 08:29 PM

Hi op

I'm going through this now with my boy. He is nearly four months, and had one lot of injections.

My dh and I had boosters when he was born, but we think he got it from his sisters, who are 6 and 8 and immunized...

It's horrible watching the coughing fits. We have had one week of coughing so far, and are still at home.

But it is physically and emotionally so draining... I hope things pick up for your little one soon.


#16 Chelli

Posted 31 October 2012 - 08:37 PM

Wishing your DS a speedy recovery!

#17 Futureself

Posted 31 October 2012 - 08:40 PM

I just wanted to let you know I'm thinking of you, I can only imagine how terrifying and upsetting it must be having your baby so sick. It sounds like you are doing an absolutely fantastic job feeding and expressing, 220 mls is fantastic!

#18 Spring Chickadee

Posted 31 October 2012 - 08:47 PM

Oh what a horrid horrid experience, I pray he heals quickly.

My MIL told me the Whooping cough vaccine would be a waste of time for her to get as no one gets Whooping cough and she would certainly never give it to the baby. I'm really happy I stood my ground and told her it was important.

I know my baby will still have contact with loads of people so we can't completely protect him, but your post has sent a reminder for all us parents and parents to be to take any precautions we can. Thankyou

#19 twilightangel

Posted 31 October 2012 - 09:21 PM

Akatara - My little boy is 15 weeks old. It is so scary. I hope your little one continues to remain healthy enough to stay at home.

Spring Chickadee - Please stand your ground and insist your MIL gets the vaccine. To see what my son has been through breaks my heart. Thankfully we are all vaccinated and he has had his first but sadly he has still picked it up from someone who is likely to have not had their vaccination.

Thank you for all the well wishes and support plus the reassurance that I am doing well with my milk supply. It is nice to be able to get my feelings off my chest.

#20 Blossom11

Posted 31 October 2012 - 09:42 PM

I hope your DS improves.  A few years ago we spent a week in the RCH with DD having pneumonia and collapsed lung and it was heartbreaking so I can only imagine what you are going through and we live in Brissy.

Please look after yourself as I know how hard it is to get rest and good food there.  I am not far from the RCH so if you need something please let me know.

K

#21 Jenferal

Posted 31 October 2012 - 09:53 PM

I have a bad cough the last few days and the GP asked me if I'd had contact with WC but I don't know of any cases.
I said my cough doesn't have a whoop sound and she told me in adults and older kids there isn't the typical 'whoop' everyone hears about, just a nasty cough that goes on a while.
It's possible to have WC as an adult and not know it.
I was really surprised to hear it actually.

#22 .Jerry.

Posted 31 October 2012 - 10:00 PM

I am on the tail end of whooping cough myself (I am on week 7 or 8) and it is bad at times for me still.  My 6 year old's coughing fits were scary as well - going purple in the face and not "breathing" afterwards for a minute or so....
I can't imagine how scary it is with a tiny baby.  sad.gif  Poor little guy. sad.gif

WC is far more prevalent in the community than we think.  I would never have suspected I had WC if it wasn't for my daughter's diagnosis.
The triage nurse at Emergency scoffed at me when I said I suspected Molly had WC.  The tests were positive though.

I hope the days get easier as the cough subsides.  Best wishes.

#23 Pop-to-the-shops

Posted 01 November 2012 - 05:51 AM

QUOTE
Thank you for all the well wishes and support plus the reassurance that I am doing well with my milk supply. It is nice to be able to get my feelings off my chest.


me too...

how was your night?

DS is always worse at night, up every 30-45mins with a coughing fit. I've tried everything, but not much luck. I did get one three hour stint between feeds last night which was good. he was up early this morning but seems happy. hes ok in the daytime, just nights are bad.

I hope your night was ok...

Four GP's missed it here. (two for my DD & two for my DS) I was told by all of them that it was just a virus. I'm trying to let that go and focus on DS and his recovery...



#24 Charli73

Posted 01 November 2012 - 06:08 AM

Twilightangel, my dearest hopes that your DS gets well soon, he was born the exact same day as my DD!! She has only had one shot too so eager for her to finish the course..

When I asked my dad to get the vaccine which I gave him money for he went to the doctor who he said told him the vaccine was a waste of time so my dad won't get the vaccine and he pocketed the money for it too.. And he wonders why I won't bring my baby to visit him the nursing home?

All the best for a speedy recovery, it must be very scary for you, hoping he is on the mend..

#25 Guest_Sunnycat_*

Posted 01 November 2012 - 07:45 AM

How awful. I hope your baby boy gets better soon. Xo




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