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I knew how to be my disabled son's nurse, but I had to learn how to be his mum

No one tells you how gummy the electrodes are on a heart monitor. It's the kind of detail that gets lost when you consider why the monitor is needed in the first place. But they are sticky and strong as leeches, and while they are meant for good, they do not give up easily. I watched my son squirm, a 10-week-old kid who'd never been outside his hospital room, and tried to be both swift and gentle when removing them.

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